#invisibleillness

Instagram photos and videos

#invisibleillness#chronicillness#chronicpain#spoonie#mentalhealth#fibromyalgia#chronicfatigue#depression#anxiety#health#butyoudontlooksick#mentalhealthawareness#love#mecfs#mentalhealthwarrior#mentalhealthrecovery#pain#recovery#bipolar#cfs#stress#mentalillness#spoonielife#mentalhealthawarness#endometriosis

Hashtags #invisibleillness for Instagram

Day 92 - side effects
I am trying to do this fibro thing as pharma free as possible. Sometimes when I’m having a flare (a regular fibro flare that is) I wonder why, and I wonder how long I can keep this up. 💊
But then I take medication and I realise why. The meds I’m on my for my back are naproxen and diazepam. The diazepam is making me feel as high as a kite for a solid hour after taking it, and then making me sleepy. The naproxen is making me hella nauseous, I’m supposed to take them with food but by the time my next meal comes around I can barely eat. 💊
Don’t get me wrong, I’m not someone who will avoid medication at all costs. If my doctor suggests I take medication for a specific ailment I will oblige, but the thought of taking them long term for symptoms that will never ease up, knowing that I am likely to get at least the most common side effects of any meds, makes me realise that for me I know I’m doing the right thing in using cbd and other natural remedies. 💊
Now I would like to make it very clear I don’t not think this is appropriate for everyone. I have made this decision based on the knowledge of my own body, and through a fair bit of trial and error. I think one of the most important things you can do with fibromyalgia is tune into your own body and make decisions for yourself. Don’t be afraid to have an open discussion with your medical professionals if you think something isn’t working and don’t be afraid to ask for a treatment that you think will help.
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#100spoons #spoonie #spoonielife #fibromyalgia #fibrowarrior #chronicillness #chronicallyill #chronicpain #chronicfatigue #invisibleillness #butyoudontlooksick #whatfibromyalgialookslike #sideeffects #bigpharma


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I now have the most badass black holographic glitter clawz & I love them so much I can't stop staring 🖤 No picture can do them justice! The process of getting them left me startlingly exhausted & in a lot of pain but I'm gonna say it was worth it! Huge thanks to @deluxebeautytherapygrafton for absolutely nailing it (hehe) 💖🖤💕 #nails #nailsofinstagram #claws #holographicnails #love #spoonie #invisibleillness #eds #tubie #instablog #instadaily #blacklikemysoul #obsessed #chronicillness #treatyoself #pampering


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My top 7 tips for surviving your teenage years as a spoonie🌈 -
Being a teen is hard enough, and having health issues makes it 10x worse! Here are my 7 top tips for getting through your teen years as a spoonie!! -
1. Accept that you’re different. Denying that you sometimes aren’t able to do things kids your age do, then trying to do them and causing your health to be worse isn’t ideal. Having a chronic illness doesn’t make you any less you!
2. Even if your friends or other half are coming over to visit, that doesn’t mean you need to dress up if you’re unwell. COMFORT OVER FASHION👚
3. If you get the chance to get out of the house, and you’re well enough DO IT! Chances are you’ll enjoy yourself, even if you’re a lil’ tired after
4. Remember that having an illness, mobility aid or medical device is okay, and doesn’t make you any less of a baddie!! Own that shit man!
5. Learn that it’s okay to rest! Save those spoons by missing an event, so you can go out to concerts, school dances and on dates and BE A TEEN!
6. Acknowledge the fact that you’re going to loose friends, and when they go, know that they don’t deserve you 💗
7. Just because you’re a teenager doesn’t mean you can’t help advocate for your health. If something seems off, mention it!
💕💕💕


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Update! I’m about 8 week’s post #bloodpatch I am doing really well. I saw a #POTS specialist two days ago and he was really helpful. Since going off Gabapentin and implementing the #gundrydiet or as I like to call it the #gundrylifestyle I have lost over 50lbs. Spine surgery and all the meds took a huge toll on my body. I am now finally in a place of feeling more like myself again. I started my PT exercises again because I truly feel that my core isn’t as strong as it was prior to spine surgery and my back has been sore from poor posture (another sign of weakness). A few days in my joints were popping more than normal. My doctor told me about the #muldowneyprotocol and I plan on implementing it instead of my standard PT exercises . If you are an hEDS’er I highly suggest you check it out. I have regained a lot of my life back which I truly attribute to God, prayer, positivity, meditation, yoga, eating organic, working on my gut flora/biome and listening to my body if I need a down day. I still have days that suck. But if I’m honest those are very few. Everyday I live with symptoms, but I choose to not dwell on them and try really hard not to talk about them unless it’s an exceptionally trying day. It’s easy to get wrapped up and live in our illness. I did it for a few years. I’m proud to say I am no longer my illness. I have dreams, I have goals, I may have some shit other people don’t have, but everyone has something. Be Bold, Be Brave, Be Beautiful. Stay tuned for more on wellness xoxo

#chronicillness #ehlersdanlossyndrome #pots #posturalorthostatictachycardiasyndrome #csfleak #spoonies #spooniesupport #getyourlifeback #prayer #meditation #yoga #lifestyle #invisibleillness


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🖤Day 48/80 DONE! Love that my workouts come everywhere with me! I switched up the order and did cardio flow because tomorrow and Saturday I get to workout in-person with all my favorite trainers and I don’t want to be too sore for that! EEE! Okay, time to shower head to our first training, my exclusive Diamond 💎 luncheon, photo shoot and opening ceremony!! All the behind the scenes on my stories!! 🏁


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My clients often say they find it difficult to mediate or practice Mindfulness on their own at home when they are not with me in my office. I found this app that might be helpful as a tool to use at home in between sessions. Remember, Therapy does not only take place in the office - you must put in the work every day in detergent sessions as well! 😉 #TherapyThursday #mindfulness #TheArtofNoticing #BePresent #Gratitude #Peace #calm #love #justbeinthemoment #noticewhatyoureFeeling


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If you have @twitter here’s a couple of ways to help make noise about #mecfs for the Parliamentary debate this afternoon thanks to @meactnet
• Tweet your MP •
• Tweet the Minister for Health Caroline Dinenage & inform her how many #weeksmissing




#meaction #meawareness #MyalgicE #mecfs #meadvocacy #cfsme #cfs #chronicfatigue #chronicpain #myillnessmythoughts #butyoudontlooksick #Invisibleillness #autoimmunedisease #myalgicencephalomyelitis #actionforME #millionsmissing #missingbutnolongersilent #spoonie


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Spent the last hour looking through Hospital notes and calling my Endo Consultant’s office to ask if he’s seen my MRI results and discuss when & where my next surgery will take place - Answer is not yet, but will call you back later today to advise next steps - I know this surgery isn’t going to cure me of Endo, but it might just give me a better quality of life..... We need to try eh!?
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#endometriosis #endendo #endojourney #1in10 #ibs #anxiety #hysterectomy #menopause #fatigue #chronicillness #invisibleillness #chronicpain #ivfbfn #justshit #wantmeback #bleedyellow 💛💛💛


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Today’s the day 🤞🏻 Here’s hoping we see some real support & are offered the hope of FAIR funding for research, patient support, treatment, medical education and so much more. You can watch the debate live and I believe there is a playback function to watch later too. #mecfs Parliamentary debate today 1:30pm 🙌🏻 Link to live broadcast in my bio ⬆️ #parliment #hopeful #parlimentarydebate #actionforme #mp #supportyourconstituents #policychange #affectchange
#meawareness #MyalgicE #mecfs #meadvocacy #cfsme #cfs #chronicfatigue #chronicillness #butyoudontlooksick #Invisibleillness #myalgicencephalomyelitis #millionsmissing #missingbutnolongersilent


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🌟🌟🌟 IT’S TIME 🌟🌟🌟
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WHY I SAID NO TO THE CUBICLE LIFE
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The 9-5 grind is not really my thing 💁🏼‍♀️ .
Mostly due to my health, but let’s be honest - who likes being couped up all day in a little cubicle, with no sunshine, fresh air or any sense of freedom? NOT ME! ❌
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I got to a point in my life where my health ended up making the decision for me. .
June last year, my health got so bad that I could barely leave the house let alone go to work. .
At that point I had a full time 9-5 type job (it was actually 8 to 5 which is even worse 🤣). .
Even though I couldn’t go to work, I still had to pay the bills – so I started looking into other ways of generating an income - a way that I could earn money when I was feeling well enough, and to be able to rest when I needed to.
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This is where the fun started - I decided to throw in my 9-5 and start an internet marketing business. 👊🏻
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By far, this has been the best decision I have ever made🙏🏻
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My business is what saved me mentally at this crossroad in my life - it has given me focus, passion and a purpose! And I can do it all right from the comfort of my bed or couch WHEN I feel well enough to do so.
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And its not just me who has benefited from this - We have helped people to QUIT their full time jobs, create 5, 6 and 7 figure earners online, travel the world and create life on their terms.
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So, if you are ready to say GOODBYE to the CUBICLE LIFE just like I have, comment below “I’m Ready” .
#sayNOtothecubiclelife
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#lifestyle #freedom #travel #invisibleillness #internetmarketing #9to5 #takebackyourlife #work #business #wifilifestyle #onlinebusiness


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I just wanted to talk about something important for a sec because it has been bothering me lately about my experience with being chronically ill. It is not our job to expose our trauma to anyone to seek acceptance or understanding. I am not shaming anyone who chooses to publicly share their experience because sometimes I do, to try to remind people that I am not always available because sometimes I can’t be. When it comes to my photography I have themes and products that relate to it but that isn’t quite the same as exposing myself. Just remember that you should listen to people if they say that are ill whether you see them sitting alone screaming because their head feels like it’s exploding or when they look “perfectly fine”. You’d be surprised with what a person can learn to hide and seem to “tolerate” when they deal with so much pain. .
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[ image description: Where a wall meets the ceiling, a light shines, with a rounded cylinder shaped glass cover. The light creates a shape similar to that of an angel with spread out wings. ]
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#chronicillness #migraines #clusterheadaches #pain #invisibleillness #photography #disability


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I already didn’t had enough motivation for doing my laundry, came this handsome for cuddles.. Bye laundry, hello handsome 🧡#jamie #ginger #catsofinstagram #crohn #stomybag #stomylife #dailystruggle #invisibleillness #ileostomy #ileostomybag #ileostomylife #keeplaughing


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Just because you have been broken, doesn’t mean you aren’t meant to live a kick ass, amazing life! Your past is your past, and that is where it belongs. Live in the current moment and focus on the future ahead! 💕😘💕😘


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Looking for some tasty weeds to chew on.


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Gutted that I’m sick. It really affects my anxiety when I’m unwell. I thought it was just my anxiety making me feel this way. But no. I’m actually sick with possible mild gastroenteritis. I really wanted to go on some longer walks outdoors this week. But being poorly prevents me from even leaving my room because I panic too much. So bland food, lots of fluids and bed rest for me! 😔 I hope you’re all having a better week than I am. Sending love and positivity to you all ♥️
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#agoraphobia #anxiety #panicattack #mentalhealth #mentalillness #recovery #mentalhealthawareness #awareness #strength #anxietywarrior #love #depression #anxious #selflove #mentalwellness #breakthesilence #timetotalk #speakout #life #selfcare #selfworth #inspiration #health #invisibleillness #strength #keepfighting #mentalhealthrecovery #mentalhealthwarrior #mentalhealthsupport #agoraphobiaawareness


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Even with depression, people still want to be with you. You still make people happy, they still love you. You're not a bad person💛by @amberisblue


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J E N O L A N 🏞️
We just spent a few days visiting the Jenolan Caves and all I can say is WOW. What an amazing way to bring in 30. This place is absolutely spectacular. From the greenery and vines covering everything, the gorgeous mountain ranges and those caves, just WOW!!! Highly recommend 😍 Thank you to my gorgeous family for spoiling me so much 😘


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We now have ‘his’ and ‘her’ decals and iron on decals in the store! Their fight is always our fight!
Colours can be changed to match what you would like to represent. Even have the special Autism puzzle piece design.
Check out our bio for an Etsy link to our store.
#autism #cerebralpalsy #polymicrogyria #cause #ribbon #support #love #fightforit #neverbackdown #alwayshaveyourback #cancer #arthritis #invisibleillness #loveislove #nothingtoohard


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I’ve decided to start selling some of my cards off this account! Card-making is a really gentle activity, so it’s great for me to do, but I’m accumulating them very quickly. I’m planning on selling them through my highlights (details to follow), unless anyone fancies messaging me with an easier way to sell online for free 😁


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#Repost @endowhat
Not all surgery is created equal. And in the endo world, the key question is whether the surgery is excision or ablation. While the vast majority of OBGYNs perform ablation, only a handful are able to truly perform excision surgery. What's the difference you ask? We leave it to renowned endometriosis surgeon, Dr. David Redwine to explain further. "Ablation is simply where the surface that has endometriosis is burned with something. It could be a laser, it could be electricity, it could be hot metal. With excision you actually cut the disease out. Ablation of endometriosis is ineffective. No one would even begin to expect that you would be able to treat the disease that can invade several centimeters below the surface. How would you treat that by burning the surface? The answer is that you can't." Excision is the gold standard. If surgery for endometriosis is in your future, do your homework and make sure the surgeon practices excision.

#endometriosis #chronicpain #endofacts #endoawareness #endometriosisspecialist #adenomyosis #womenshealth #empowerment #surgery #excision #takecharge #education #research #beheard #doctors #laparoscopy #goldstandard #factsmatter #modernconcepts #earlydiagnosis #pelvicpain #endostrong #endosister #endowarrior #invisibleillness #endometriosisawareness #176million1voice


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Finally finished it... and matching collar! Harness goes up to 36 or so inches (I measured it and forgot). I didn't think to measure the collar. I measured it against on I had sitting here. I can do these is all 4 Hogwarts houses. $45. Collar is $10.
If you are interested email me at fibroandpickles@gmail.com.
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Use the code CAWFRIENDSANDFAMILY for 15% off @cypressavenueworks
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Visit my awesome pawtners:
@fantastic_fin_fry
@helper_dog_fauna
@diablo.cinder.rogue_working.k9
@superwoofer_tale_tails
@spookypupmulder
@daisymaetherattie_psd
@helperdogvader
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#spoonie #spoonielife #fibrowarrior #fibromyalgia #scoliosis #ankylosingspondylitis #gastroparesis #copd #butyoudontlooksick #invisibleillness #chronicillness #chronicpain #sdit #servicedogsofinstagram #servicedogpuppy #servicedogintraining #helperdog #greatpyreneesofinstagram #greatpyresneesmix #greatpyrenees #bloodhoundmix #bloodhoundmix #cripplepunk #bloodhoundsofinstagram #pyreneesmountaindog #dogsofinstagram #cripplepunk #lifewithpickles #servicedoggear


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During periods of heavy struggles I definitely feel defeated many times but when the struggle passes a little I feel stronger to have made it. To have made it through a tough period and I'm still here fighting cos I'm a survivor. We are fighters and survivors! 😊💜
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#fibromyalgia #fibrowarrior #invisibleillness #strong #stress  #worries #adrenalfatigue #adrenal #tired #depression #pain #mental #survivors #positive #sleep #fibromyalgi #fight #winning #mind #body #storm #chronicpain #chronicfatigue #mthfr #believe #spoonie #fibromyalgi #health #thyroid #autoimmunedisease


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Chatted to Michelle in the ferry queue. Thanks for the donation!. Enjoy the festival.


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Discover our PICCPerfect: Smart PICC Line Covers!⠀
Once you try them, you won't want to live without them!


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Already used to this #spoonie life!⠀
#staystrong💪


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It was a seeing stars while brushing my teeth kinda day but hey I brushed my teeth & also managed a little gardening with Mum this afternoon! 🌻🍃 We planted all our new plant babies & I'm trying to revive a succulent I killed with kindness by using some cuttings from the original plant! 🌼🌿💕 #plantsofinstagram #plants #flowerstagram #flowers #garden #succulents #pansies #heartsies #pretty #gardening #spoonie #invisibleillness #eds #tubie #instablog #instadaily #thursday #chronicillness #sickgirl #chronicpain


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GERRIEY WAINAINA KIDNEY TRANSPLANT FUNDRAISER

@gerrieywainaina
More info is here 👉https://www.gofundme.com/gerriey-wainaina-kidney-transplant/donate

Equity Paybill: 247247
Account number: 0260191319235

Cash App +13609003397
#kidneytransplant #donor


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Day 60 means light stretching and low impact exercise. Sometimes, you need an extra Rest Day. Especially when you feel a couple old injuries flaring up and your hernia is sore..... And, this is a lifestyle. Which means there is no reason to give up on nutrition just because your body was sending you pain signals this morning😉 You don't have to slack on making progress just because your body is whispering "Please slow down...."
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#80DayObsession #BeachBody #sweatitout #Crohnsdisease #UlcerativeColitis #nocolonstillrollin #Jpouchlife #coveredinscars #IBDWarrior #selflove #undefeated #naturalstressrelief #chronicpain #invisibleillness #healthylifestyle #balancedAF #noexcuses #trainingforlife #progressnotperfection #strength #strongereveryday #highprotein #eattherainbow #balancednutrition #eatclean #listentoyourbody


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Can you spot the Kangaroo I quickly snapped out the car windscreen? A frosty start and a clear blue sky day. I made biscuit dough today ready to bake tomorrow morning in my #SomeNotNone baking goal. I roasted and blitzed the peanuts yesterday in preparation. Breaking the recipe into #TinyTasks has worked well.
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🤹‍♀️Abernathy a fellow Australian girl launched her website this week @thetiredgirlsociety where she is building an uplifting community for Women with chronic illness. I wish her the best of luck and hope you check out her profile and website link.


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~ When you’re busy AF you often feel guilty for taking time out just to eat, never mind rest.⠀

Trouble is... if you don’t, you’re gonna burn out... and you’re no good to anyone if your body is so in need that it simply shuts down.⠀

We are rarely faced with tasks that are actually as urgent as our brains make them seem. Being able to listen to our bodies and re-prioritise our day based on how we feel is an essential skill for those with chronic health conditions.⠀

It is not a weakness. It’s a strength.⠀

Anyone who makes you feel rotten for taking the time to care for yourself is the selfish one in my book.⠀

💕


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My brain fog is going strong! 🌫️💪 🤦🏻‍♀️Do your migraines make your brain foggy? Does it make you process things slowly?!


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I'm going on vacation this saturday 🚘 and we're going far away, at least for me it is very far away ⛰️ (I’ll tell you later where I’m going). Since I became chronically ill I have never been so far away from home so I it’s very exciting for me. And I know my body can’t handle it, the whole trip to our vacation destination, so it gets very heavy😣 But I'm going to do it anyway because I want it so badly. Wish me luck🍀 Oh and I’ll miss this little cutie 💗 #kittensofinstagram #belle #cute #kitten #vacation #summer #love #chronicillness #chronicallyill #chronischziek #chronicpain #chronischepijn #chronicfatigue #chronischvermoeid #invisibleillness #onzichtbaarziek #spoonie #butyoudontlooksick #sicklookslikeme #catsofinstagram #petsofinstagram #like4like #follow4follow #l4l #f4f #liefde #igdaily


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Throwback! Here I am aged no more than 4, it was Christmas and this was my Christmas present... to say I loved that desk would be a massive understatement. I would be at it writing, drawing, role playing any time I could. And look! The chair is yellow! I was a total pink girl at that age (hence the pink paper) but my desk chair and desk was yellow just like the theme of Spoonie Village ☺️
Back then my family always thought I’d grow up and be some type of performer, even whilst drawing here I would sing and loved to put on show at my nans, climbing on a stool with a candlestick as a microphone 😂 (hilarious now as I hate being centre of attention, clearly I got it all out of my system at a young age😂) but I can remember even this young I loved to learn and create, I was always creating. Even here I was a bit of a sick kid with severe asthma, I’d stopped breathing twice on my poor mom at this point, but I never let it stop me enjoying myself.
For a while though I stopped doing what I enjoyed before this relapse, life got in the way and I never seemed to find time to create just for me, I was too busy providing opportunities for others to look inward and create. I now look at this photo with a different perspective these days, while I appreciate the fondness of childhood nostalgia, it’s also a reminder, never forget that child you once were and starve yourself of the happy things you used to lose yourself in.
Chronic illness can take a lot away from you, but never forget to connect with the child you were and do something you love just for you. It doesn’t need a reason or an excuse to be part of your life, absorb yourself in it as you once did, it’s there simply because it’s your happy place. Take a moment and think what brought you peace and happiness as a child that you could perhaps reconnect with?


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😂 Yes!!! This is my bipolar life, especially right now with how insane my life is atm.. 😂😂😂
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@iparticipate360 (@get_repost)
・・・
Who can relate? Volunteers Needed: Lupus Clinical Trial
A new clinical trial is seeking volunteers who have been diagnosed with SLE or CLE.

Participating in clinical research helps bring us closer to potential treatments faster.
https://zurl.co/ZyDlJ
#lupusawareness #LupusSLE #lupuscle #lupusdays #lupus #lupusfighter #lupusresearch #lupusawarenessmonth #lupuswarrior
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#mental #health #mentalhealthmatters #mentalhealth #mentalhealthawareness #mentalillness #invisibleillness #invisible #illness #chronicillness #bipolarproblems #bipolardisorder #bipolar #help #helper #advocate #standup #justanotherbipolarartist #staystrong #wilsonnc #sanfrancisco


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So I’ve decided I’m going to do a bit of a diary as my symptoms have started to get a bit more intense in the last 4mths. The flares are more intense and the weird stuff is just getting weirder.
Today I had to stop working, I’m a sales rep, not just once but 3 times. I had good old electric shocks up my arm and more intense in my thumb. The heat spots all came up in the same spots but each time they were redder and hotter. Has a massive ache, felt like I had been hit on the top of my hand with a hammer. Question is does anyone else with CRPS in their hands notice the top of there hand veins pop during a flare?
Any feedback or anyone have the same would great to hear from you so I don’t feelike a complete freak 😔
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#invisibleillness #heartbroken #heartbreak #depression #depressed #anxiety #pain #sadness #peoplejustdontunderstand #broken #crps #cvs #cyclicvomitingsyndrome #colorcoordinated #tryingtowin #unseenillness #mentalhealth #mentalhealthawareness #messedup #losingmymind #chronicpain #spoonie


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Regrann from @theprojectpatchwork - Tag someone who needs to see this cuteness today.

Follow @theprojectpatchwork if you suffer from an #invisibleillness

Video credits:
@8gagpets
@animalsvideos
@animals.clips
@wonderful_earthpix

#chronicfatigue #chronicallyfabulous #chronicmemes #Tiffieldtwins2


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Can you flip your script? We all have scripts running through our minds every moment of every day. Make a conscious effort to make changes and see how you feel.
WARNING : if you practice flipping your script you will feel more positive. ❤️Niamh
www.niamhmccarthy.com

#themedicalcoach #positivevibes #invisibleillness #invisibleillnessawareness #asthma #irishcancersociety #vhi #laya #mindfulness


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Today I’m enjoying the sun on my face whilst supporting #migrainesolidarityday with my #shadesformigraine on!
Let’s spread awareness for migraine, take a quick snap of you in your sunglasses today and post with the hashtag to show your support 💖
#migraineawareness #shadesformigraines #migraine #awareness #notjustsurviving


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It's so sunny today, so I'm glad for my sleep mask when I can't muster the energy to close the curtains. I don't see this flare easing up, as one symptom eases another appears. It's such a beautiful day but I'm freezing cold. A lot of joint pain + IBS trouble means I won't be going anywhere. I hope your day is better than mine!
#myalgicencephalomyelitisawareness #myalgicencephalomyelitis #cfsme #mecfs #fibromyalgia #invisibleillness #chronicpain #chronicfatigue #chronicillness #mecfs #chronicfatiguesyndrome #millionsmissing #timeforunrest #canyouseeMEnow


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Hetki vain meille 👌❤️


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