#spoonieblogger

Instagram photos and videos

#spoonieblogger#spoonie#chronicillness#chronicpain#spoonielife#spooniewarrior#fibromyalgia#spoonieproblems#ehlersdanlossyndrome#spooniesupport#ehlersdanlos#spooniesunite#spooniefamily#invisibleillness#spoonielove#raredisease#spooniecommunity#eds#spooniefriends#spoonies#blogger#chronicfatigue#chronicpainwarrior

Hashtags #spoonieblogger for Instagram

Is anyone else ready for rainy weather? It’s not that I don’t enjoy summer. I just feel less guilty laying in bed or on the couch on stormy days. Also my lungs can’t take this smoke from all the fires. I can’t wait till fall! #chronicillness #chronicpain #chronicallyill #chronicwarrior #spoonie #spoonielife #spoonieblogger #spoonieproblems #wegenersgranulomatosis #weggie #wegenerswarrior #wegenersawareness #granulomatosiswithpolyangiitis #fibromyalgia #fibro #gpa #chemo #depression #vasculitis #autoimmunedisease #autoimmune #raredisease


1

Working hard towards my goal. I’m DOWN 4.7 pounds in two weeks. Every pound off me is massive pressure off my spine. Getting the weight off me is a hard thing for me since I can’t work out due to my health. I’ve lost this weight by clean eating especially shifting towards a more organic plant based eating lifestyle. Looking forward to getting the rest off over time slow and steady wins the race. 15 or so more pounds to go. 👍
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#weightloss #fitnessjourney #fitfamily #droppingpounds #cleaneating #plantpurenation #organicfood #plantpure #plantpurenation #organicliving #organiclife #organiclifestyles #nopesticides #nongmo #cleaneating #shoplocal #jerseyproduce #jerseystrong #spooniefood #foodismedicine #nopills #eatcolorful #eatcolorfully #gihealth #mothernaturesbounty #farmtofork #farmtotable #vegetables #eatyourvegetables #whatsonyourplate


3

Today was Remicade day 💉 {on top of a sinus + ear infection 🤨} Usually I get hardcore post Remicade blues but today I’m trying to focus on the good. Don’t get me wrong, this treatment comes with it’s fair share of side effects and can knock you on your ass for a few days, not to mention the long term effects which I still am unsure of. BUT this regimen has finally allowed me to live life as close to normal as possible. I was able to enjoy my wedding and honeymoon with minimal symptoms which I will be forever grateful for {pretty sure a higher power was watching out for us 💫}. I am still far from where I want to be in my Crohn’s treatment but I am appreciating how far I have come and the fact that I have been able to experience some beautiful events and places recently that I would not have been able to before. Celebrating little wins 💜





#remicade #remicadeday #crohnsdisease #crohns #chronicillness #invisibleillness #spoonie #ibd #biologic #immunosuppressed #crushcrohns #crohnstraveller #spoonietravels #spoonieblogger #honeymoon #greece #santorini #santoriniview #jetsettingspoonie #wifelife #baltimoreblogger #beautifullife #littlewins #instatravel #crohnswarrior #crohnsfighter #believeinyourbody #supportsystem #truelove #oiasantorini


9

Merci beaucoup Paris, je t’aime! Thank you those of you who’ve been in touch with lovely messages 💜🥄🤮
I’m so terrified. I fly home and have less than a week before I go to Harvard... I have to sort out all of the forms, courses, admin, send all my medical supplies and crap in advance, pack and somehow start to mentally prepare myself for leaving my family, partner and (some) friends who I couldn’t have done without and trying to do it on my own. Whenever I’ve thought about it in Paris and my boyfriend’s brought it up, I’ve quickly changed the subject because I wanted to enjoy the time we did have together and I mentally can’t comprehend how I’m going to cope without him and my parents. How am I going to put on/take off my TENS? How will I lie down in bed to sleep without somebody to massage my back so I can lie down without being in agony? How am I going to be at Harvard when I currently can’t sit in a desk chair because of my back pain or hold a pen without my arm going into a shaking spasm?! As I said in my first post on here though, I’m not going to give up and I’m determined to overcome my illness. As the saying goes, nothing worth having comes easy. There is simply no substitute for hard work when it comes to achieving your dreams. @ladygaga I’m coming for you! For now though, I am the most scared I have been in my life. ~
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#fibromyalgia #fibromyalgiaawareness #fibrowarrior #chronicillnesswarrior #flare #backpain #arthritis #fibromialgia #fibromialgiapositiva #fibrogirl #fibrofierce #spooniewarrior #chronicillnesscommunity #spooniefamily #spoonielife #sufferer #littlemonster #ladygaga #instacommunity #upandcomingartist #notgivingupyet #harvarduniversity #incomingfreshman #leavinghome #britinamerica #goodbyeparis #backtoreality #spoonieblogger #spoonietravels #gentlehugs


2

Get them steps in no matter how few or many it may be. Movement is good medicine for our mind body and soul.


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Warriors have united to disable some of their pages. But in a stand to say that LUPUS WARRIORS WILL NOT BE THE BUTT OF THE JOKE, let’s make sure they’re all deactivated, all pages and pages of their owners associated with it. AND ANY NEW ONES that pop up.
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LIFETIME TV NETWORK @lifetimetv should fire or no longer contract with @rashard_mmi for degrading and attacking women and people with Lupus, a disease that primarily affects women, 1 in every 250 women to be exact. He should be banned from Insta for life. The ridiculing posts and unbelievable DMs in response to her asking him to take the posts down were so totally disrespectful, cold and cruel, with no regard for her life threatening situation. The pics and DMs were not reposted here out of respect to @ashasharron but you can see them on her page and show her some love.
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Even though it wasn’t @jesshilarious_official No one should be further tormented this way. Comment on any new account names and we will carry on this fight. ✊🏽 We are #lupusstrong
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WE ARE NOT A PUNCHLINE.
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We are already in the fight for our lives and shouldn’t have to endure ridicule from worthless trolls. I was already a fan and now am a ride or die for her. And to @ashasharron we love and support you in your battle to Overcome Lupus 💜. Their response to you was even more disgusting. Many of us have been where you are now and Know that you can and will pull through and are united with you in prayers and support.
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Repost @jesshilarious_official with @get_repost
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PLEASE REPORT PRESSED PATTY ASS @theindustryonblast & @theindustryonblastx & the OWNER BEHIND THE PAGE @rashard_mmi For making fun of @ashasharron who’s been sick with Lupus and has been hospitalized for the last 7 months. They knew damn well that wasn’t ME. A Roast That Went Wrong. They are so damn pressed to get my attention that they fuckin with some shit that will keep them BANNED from the internet, and by BANNED I mean I will make it my personal priority to get every page they make disabled until they get tired of making them... y’all bitches BEEN CANCELLED 😏🖕🏾 come for ME But DO NOT PLAY WITH THE DELICATE, especially MY DELICATE FANS, they are my Angels 🙏🏾


9

Not to shabby for being in allot of pain and hardly leaving home.


8

Taste The Rainbow, eat colorful and organically. Our weekly trip over to the certified organic farm we shop at to get our produce for the weeks meals. So lovely having this farm 5 min’s away from us. Only 💯 percent organic products are grown there owned by a small family and run by them too. Shop local / Support Farmers / Eat Organic
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#muthfamilyfarm #muthfarms #organicfood #supportfarmers #nofarmersnofood #plantpure #plantpurenation #organicliving #organiclife #organiclifestyles #nopesticides #nongmo #cleaneating #shoplocal #jerseyproduce #jerseystrong #spooniefood #foodismedicine #nopills #eatcolorful #eatcolorfully #gihealth #mothernaturesbounty #farmtofork #farmtotable #vegetables #eatyourvegetables #whatsonyourplate


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There's so much hate, so much toxicity, so much negativity in this community and it's something I have experienced myself over the past few days on a personal level. It's almost broken me, but I'm turning it into something positive. I don't believe in calling individual people out online, as we are not THEIR doctor or health care professional, we do not have access to THEIR medical records. We only see what they allow us to see with short videos and photos online, and it's so easy to represent yourself as something (in a good and a bad way) you are not through only posting a few videos and photos.

We are here to support and to love each other, and be thankful for what we have and what we can do, not what we can't.

Let's get #zebrapositivity trending, let's share photos and stories of what makes us us, and some of our proudest achievements.
I'm going to start with some pictures from the zoo yesterday 🦓
#eds #ehlersdanlos #ehlersdanlossyndrome #raredisease #zebra #chronicillness #chronicpain #disabilityblogger .
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#spoonielife #spoonies #spoonieforlife #spooniecommunity #spoonietruth #spoonieprobs #spoonielove #spooniegirl #spooniesupport #spooniewarrior #spoonieliving #spooniefamily #spoonieblogger #spooniesunite #spooniefriends #spoonieproblems #spoonie


7

Let’s talk about Louis. Sweet, innocent, timid, little Louis. Yesterday Louis was found in the garden with a chicken breast. Not a whole chicken, a chicken breast: filleted and waiting to be cooked. I can only assume that one of my old neighbours left out the chicken breast for their dinner, for Louis to stroll into their house and steal it. Mortified and highly amused at the same time. Sorry to any neighbours who went hungry.
#ehlersdanlossyndrome #ehlersdanlos #fibromyalgia #reactivearthritis #addisonsdisease #gastroparesis #spoonie #spoonielife #spooniesquad #spooniesunite #spooniediaries #pain #chronicpain #chronicillness #chronicallyfabulous #lifeafterdiagnosis #laurasspooniediaries #hospital #hospitallife #hospitalappointment #linkinbio #blog #blogpost #blogger #bloggerlife #lblogger #lbloggers #spoonieblogger #spoonieblog


6

Tuesday is injection day! 💉
Every week on a Tuesday I need to inject Benepali to keep my arthritis inflammation at a manageable level and to stop the disease progressing.
I’ve been doing this for over a year and a half now but every week I still get the anxiety and dread before doing it the same as I did the first time.
I’m a lot better than I used to be - I used to have severe panic attacks before doing it that prevented me even trying. It was through counselling, meditation and a very understanding nurse that I managed to get to a point where I wasn’t freaking out every week.
I also count myself lucky because my injection is administered by a filled pen similar to an epi-pen. A lot of people I know that have similar medications for arthritis, like Humira, need to inject using a proper syringe needle....ouchie! 😖
People do ask how can I do it? Well the simple reason is I have to, if I want to live a manageable life and not be crippled by my arthritis I have to do this. No other medication was right for me and this was literally one of my final chances to stop it progressing.
And I think I’d rather put up with a little anxiety once a week than face the idea of hip or knee replacements and the rest of my joints failing! *******************************************
#positivitypost #injections #arthritis #arthritismedication #inject #thisismylife #spoonieselfie #education #arthritisawareness #disabilityawareness #spoonieblogger #spooniesofinstagram #chronicillnessblogger #chronicillness #clipoftheday #instadaily #instagood #instablogger


4

It’s Tuesday and you know what that means! There’s a new recipe up on Simply Shannonagins! And trust me, you won’t want to miss these No-Bake Chocolate Chip Power Cookies! Healthy, nourishing, and SO delicious! Just follow the link in my bio to check out this super easy recipe!


1

Ever feel like you wanna throw away every item of clothing you own? Like all clothes, pyjamas, socks, underwear and just buy new.
Because I’m having one of those days, I’m imagining doing exactly that.
Harry Potter everything please. ⚡️⚡️⚡️⚡️⚡️⚡️⚡️⚡️⚡️⚡️⚡️⚡️⚡️⚡️⚡️⚡️


















#lushfacemask #chronicpain #lushuk #chronicallyill #chronicfatiguesyndrome #throweverything #pyjamas #buynew #spoonieblogger #chronicillness #spooniecommunity #spooniesisters #spoonielife #spooniestrong #throweverythingaway #invisibleillness #chronicfatigue #chronicfatiguesyndrome #fibromyalgia #harrypottereverything #harrypotterpyjamas #harrypotterclothes #spoonieproblems #neweverything #spooniewarrior #harrypotterprimark #harrypotterworld #chronicfatigue #harrypotteredit #harrypotter


0

Two cutie pies exploring London 🇬🇧 I used a walker for the first time due to my new diagnosis orthostaic hypotension. I was so scared of throwing up or fainting in public, especially in the heat. I gotta be honest, it was not easy for me to accept help and use a mobility aid. I have always been able to do the walking myself during a trip if I took enough breaks. I did push on my last holiday and ended up worse. I knew deep down this is what I needed to do for my safety and to enjoy my time with Beth. As hard as it was to put my pride aside I’m so glad I took this walker with me and asked for assistance on the Eurostar. When I felt the dizziness coming up I could sit down immediatly and not have to look for an available seat in a busy area. It also gave me a lot of support while walking. Thanks Beth for making me feel comfortable and being so kind an caring. 💖 You’re an amazing friend! I’m so proud of us for doing this and words cannot express how much I loved our trip.
Is London an accessible city? How did we visit the city with a walker and electric wheelchair? Link in bio to read the full blog post 📘
#accesibility Kirsten and Beth at Regent's Park in London posing in front of a penguin statue. Kirsten is using a walker. Beth is sitting in her electric wheelchair. ⠀
#graphicorganic #spoonieblogger #spoonie #chronicillness #chronicinsta #chronicillnesswarrior #chronicpain #chronicwarrior #invisibleillness #butyoudontlooksick #orthostatichypotension #dysautonomia #fibromyaglia #spooniestrong #chroniclife #disabledandcute #accessible #disabilityawareness #london #travelblogger #wheelchairtravel #mobilityaid #disability #disabled #accessibletravel #westfieldlondon #theoriginaltour #mytaxi


3

Story of our lives, right? 😅 So last night I had a bit of a crash. I think with family over and all the excitement, it was just a bit too much.

I was a bit silly, I stayed in the living room with everybody all day when I used to stay in my room alone at the other house, only coming out to eat with them.

So I think today I'll stay in my room, I have the reclining bed, so I'll stay seated here instead of the sofa. Try to recover from my blunder.

It can get so frustrating when you feel okay and try to do normal person things, like sit on the sofa with more than one person in the room and then pay so heavily for it.

I've been wanting to help my family unpack and sort out and fix up the garden, but I know that withing a couple of minutes of being upright my heart rate exceeds my anaerobic threshold and the symptoms start to flare.

That's without adding the lifting, bending, pushing and pulling that will be required to accomplish anything in the house or garden! 😂 A great practice in patience and restraint! I'm sure you can relate...
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#pwme #MEcfs #MillionsMissing #RoadToRecovery #Spoonie #sofalife #sickgirl #chronicillness #SpoonieLife #ChronicLife #disability #chronicpainwarrior #InvisibleIllness #lowbattery #StrongerThanYouThink #chronicillnesswarrior #ButYouDontLookSick #housebound #SpoonieBlogger #UKblogger #FaithBlogger #ChronicIllnessBlogger


3

Life quote. Real talk. Truth. The chizz. Whatever you call it, never forget this! .
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One of the biggest problems I have with my autoimmune problems is sensitivity to everything. Food. Shampoo. Beauty products. Stress. Everything. Blog post is going up soon about spoonie tips on dealing with all kinds of sensitivities. Tag your friend who needs to be in on this and leave any requests for topics you'd like me to cover! .
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#spoonie #spoonieblogger #spoonielife #protips #lifequote #inspo #realtalk #college #collegeblog #collegeblogger #ankylosingspondylitis #mastcell #celiac #autoimmunelife #artist #photographer #portraitphotographer


2

Today was a good day, which is weird for a Monday. I woke up earlier than planned and took extra time getting ready for work today, which I’m sure helped me have such a good day because I always feel better when I’ve put effort into my appearance. There’s a sense of peace that is finally coming over me as I celebrate the fact that I am able to be proactive about my health. The fear and anxiety I was experiencing about starting therapy and medication again is starting to go away and I am feeling incredibly confident with the decisions I am making for my health and my future. It feels so good to be at a point in my journey where I can actively choose life! For so long, I never planned too far in advance because I didn’t think I would live past my twenties. I was in so much pain and carried so much hatred that I never thought I would find a way out. God put all of the right people in my life at the right times, each playing a monumental role in my recovery and finally realizing what my purpose in life is. 💚
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@impossiblesideeffects #impossiblesideeffects #mentalhealthawareness #mentalhealthblogger #mentalillness #lifewithmentalillness #bipolardisorder #borderlinepersonalitydisorder #anxietydisorder #ptsd #ocd #generalizedanxietydisorder #dontcallmecrazy #spoonieblogger #thespooniesisterhood #spoonielife #themightysite #breakthestigma #fightthestigma #invisibleillness #mystoryisntoveryet #bpdrecovery


0

“The other side of the curtain”. What started as a journal entry, turned into a blog post, and eventually inspired this account. What does it mean?! A perspective of both sides of the curtain: a full time ER employee, and a full time spoonie who gets frequent infusions. What’s it like to be both?! [link in bio]


2

Happy #ssgratitudemonday everyone! Today I showing gratitude for old friends, decaf lattes, and sunshine. And magical days that combine all three! What are you grateful for today?


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Don’t be so quick to judge those you do not know! Many of us live a life of pain daily that most of you non ill people will never experience in your lifetimes !


6

Today is my favourite day of the month....today is cosentyx day!!
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This makes it 10 months of injections now.
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10 months psoriasis free.
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10 months with no inflammation.
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10 months of getting myself back on track.
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And yes. That is a burn mark on my face from curling tongs. This is why I can’t have nice hair.
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#psoriasis #psoriaticarthritis #psoriasiswarrior #cosentyx #arthritis #arthritissucks #arthritiswarrior #rheumatoidarthritis #invisibleillness #aberdeenblogger #edinburghbloggers #glasgowblogger #scottishblogger #scottishbloggers #spoonie #spoonieblogger #chronicillness #chronicfatigue #happymonday #butyoudontlooksick #30plusblogs


9

🖤🐺🖤


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Traded my athletic wear for some jean shorts and this soft kimono from the beautiful @lauraharrop yesterday for a family event 💖
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Had so much fun and it was nice to actually have an excuse to dress up a little 💋 It was also wonderful just being able to spend time with family, sit outside, and eat some good ole vegan and GF pizza 🍕😋
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Now, back to my athletic wear for a bit while I work on some stuff for you guys this week 😂 Definitely feeling exhausted and sore from yesterday so my body deserves it. Happy Monday everyone! 🤗✨
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#coffee #coffeelover #coffeeblogger #caffeinequeen #caffeineplease #chronicillness #chronicpain #chronicpainwarrior #chronicdisease #chroniclife #rsdcrps #potssyndrome #eds #invisibleillness #mycoplasma #fibromyalgia #spoonie #spoonielife #spooniewarrior #spooniesupport #spoonielove #spoonieblogger #blogger #bloggerlife #bloggerstyle #vegan #glutenfreevegan #crueltyfree #veganeats #glutenfree


7

💌🙋🏼 MEET YA GORGEOUS SISTA @thesunniestspoonie ☀️ "learnin' to focus on the joy felt in the photo instead of focusing on everything i don't like about it! .
just like the na'vi say: Sivako! Rise to the Challenge! I know I can get better at being present and enjoying myself without my thoughts being solely on my body
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Pandora is the prettiest and @alexlikesvlogs is the best photographer 💛✨😍" @thesunniestspoonie 🥄💌


3

🌟 Swipe----------->
Some photos of the new double vinyl I got for my birthday that are too pretty not to share. It's the orchestrated Zelda: Ocarina of Time soundtrack & it's everything I dreamed it would be 😍 Every little detail is perfect -----
Fun fact a couple years ago the Zelda Orchestra toured & came to Glasgow but I wasn't well enough to see it so this is my middleground!
I really hope they do more of these for all the different games. Especially Majoras Mask. That soundtrack is something else!!
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#qotd Do you have a favourite video game soundtrack? Maybe one that immediately makes you feel nostalgic?
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#afittingdistraction #photography #naturallightphotography #productphotography #slowliving #authenicliving #spoonieblogger #spoonie #disability #chronicillness #scotland #scottishblogger #discoverunder1k #bookstagram #bookblogger #bookdragon #biblophile #bookish #retrogaming #retrovideogames #retrogame_feature #legendofzelda #recordplayer #gamingmerch #nintendo


2

My friend @bethxxx0409 and I recently went on a trip to London! 🇬🇧 🚄

We have the diagnosis #myalgicencephalomyelitis in common but our bodies don't work the same way. I used a walker for the first time due to my new diagnosis. Beth uses an electric wheelchair. ♿️


You may need it one day but the other you may be fine without it or you need a different kind of support. And you know what, that is okay. An illness affects everyone in many different ways. ⠀ ⠀
So how did we explore London with a chair and a walker? 🏙️

Is London an accessible city? Read about our experience: link in bio ⠀

@theoriginaltour @mytaxiuk @westfieldlondon

#accesibility Kirsten and Beth at Regent's Park in London posing in front of a penguin statue. Kirsten is using a walker. Beth is sitting in her electric wheelchair. ⠀

#graphicorganic #spoonieblogger #spoonie #chronicillness #chronicinsta #chronicillnesswarrior #chronicpain #chronicwarrior #invisibleillness #butyoudontlooksick #orthostatichypotension #dysautonomia #fibromyaglia #spooniestrong #chroniclife #disabledandcute #accessible #disabilityawareness #london #travelblogger #wheelchairtravel #mobilityaid #disability #disabled #accessibletravel #westfieldlondon #theoriginaltour #mytaxi




2

Thank you 🙏so much to all of you who entered the giveway. I am truly grateful for the support and community from my Insta friends and I really enjoyed reading all of your favourite quotes & affirmations. I would have loved to have made everyone a winner but as that's not possible, I am offering 10% off all my pebble sets, art work & cards, using code THANKS10 (see link in bio for online shop) as a thank you for all your support for the next 48 hours. Ends Thursday 16th August at midnight UK time. Now for the important part... the winner is @stuck_likeglue - congratulations!! I'll DM you for your address details and you can let me know which cards you would like 💕Thanks again for all your support - it really means a lot. Have a fab day 😘#tinyacornmightyoakart #timetosoar
#mixedmediapainting #inspirationalart
#holisticlifestyle
#healingart
#choosepeace
#spiritualart
#affirmationart #chronicillnesswarrior #chroniclife #roadtorecovery
#spoonie #spoonielife #spoonies #spooniewarrior #spooniesisters #spoonieblogger #spooniesupport
#wellbeingwarrior #healing #mywellnessjourney #positivevibesonly #mindbodysoul #wellbeing #positiveaffirmations #affirmationoftheday #bekindtoyourself #youareenough #nourishyoursoul


34

Seeing how many things I can fit in a photo ☺️ Spot the: Eiffel Tower, Rodin’s original thinker statue, the Golden Domed Hotel Invalides, Musée Rodin, some dead grass and a very pretty pink rose within some thorns. Kudos if you got them all. (I’ve had to conclude that I don’t really “get” sculptures, I can appreciate the craftsmanship and skill that goes into making them, but all I really think when I look at them is “where are the women” and “Oh, he’s a grower not a shower I see” 🙊🙃🥄
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#travelmore #jetaimeparis #topparisphoto #muséerodin #rodinoriginal #spoonietravels #parisienne #bonjourparis #beautifuldestinationsaroundworld #hiddentreasure #cettesemainesurinstagram #instaphotographer #spoonieblogger #rosegardens #artappreciation #dontgetit #sculptureart #loveparis🇫🇷


2

My bestie @crispy_totter inspired me to make this post tonight because I know that SO many women I know in our community have asked the same types of questions regarding DMs. I should have addressed this before but I guess I didn't realize it's so rampant!
Chrissie's post was asking "is it rude to ignore, block, not answer, etc" these constant DMs from random people and specifically in my experience--random MEN. Here is my response I wanted to share with everyone: "No you are NOT being rude...if you really want to be sure, screen shot their messages and text or message them to me and I'll tell you 😘😘😘( I'll do this for anyone--my creep-o-meter is NEVER wrong!😂) However, as a general rule, I always delete and do not respond to all men who send DMs and say something like "hello" , "hello beautiful", "hello friend", etc. ALL of my beautiful friends in our community are under NO OBLIGATION to answer DMs from people you don't know. It's really a good idea to even make it a point (like myself) to avoid starting or encouraging conversations with some random guy on the Internet who is asking personal questions. I can personally guarantee you that 97% of the people who send random DMs are either a straight up creep AND/OR/ALSO they are not who they say they are or who they have as their profile picture.
Soooo, I know that a lot of you "just want to be nice" or "don't want to hurt anyone's feelings" but I am here as a woman who has experienced this as well and I will 100% assure you that these random people will take advantage of your kindness and I will also 100% guarantee you probably won't hurt their feelings and that they will surely get over it if you just don't respond.
Don't borrow anxiety for yourself from a situation you didn't ask for.

All my love, ❤️Emily❤️ #mentalhealth #mentalillness #adrenalfatiguerecovery #adrenalfatigue #holistichealth #adrenalhealth #chronicpainwarrior #chronicpain #chronicfatigue #arthritis #rheumatoidarthritis #chronicallyill #spoonieblogger #spinalinjury #CRPS #autoimmunedisease #mentalhealthawareness #mentalhealthrecovery #fibro #spondylolisthesis #depression #backsurgery #spondy #anxiety #panicattacks #thyroiddisease


10

All the moms trying to be moms while battling chronic illness...I got you👍 I got lucky this day. I got a lot done. Going to the gym AND Costco in the same day, with everything in between? That’s a win in my book💯 There’s a lot more where this came from over on IG-Stories. Today and every day, you can catch me on there energy budgeting my life away👊


7

Another super busy week on the blog with all things bookish including reviews, cover reveals and even a book trailer. Also had time to write a couple of spoonie life related posts too.
Absolutely loving getting to read and write about so many wonderful books and support some incredibly talented authors including Paula Daly, @caseykelleher and @erinnamettler
Massive thanks to @shanannigans_of_readsandreels @annecater14 and @bookouture for inviting me on this week's tours too. 🖤

#bookblogger #ukblogger #spoonieblogger #bookreviewer #lovebooks #bookgeek #booknerdigans #abrewandabook #chronicillnessblogger


1

I'm one of those people who always see the glass half empty. Luckily my gf is the opposite. Seeing how much more useful it is to see things positively I'm working on changing that mindset. These 4 steps are the ways to get there. Tell me are you a glass half full or half empty person? 🥛🥛🥛
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#spoonieproblems
#spoonieprobs
#spooniefamily
#spooniesisters
#butyoudontlooksick
#womanowned
#spoonie
#spooniestrong
#spoonielife
#chronicallyliving
#mom-boss
#womanbusinessowner
#spoonieartist
#chronicallyawesome
#spoonieblogger
#mompreneur
#spooniebusiness
#mentalhealthwarrior
#momtrepreneur
#spoonieladyboss
#chronicallyfabulous
#spooniewarrior
#womanentrepreneur
#smallbusinessowner
#momtrepreneur


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TFW you're catching up on emails and see that the fucking utterly gorgeous @nicolasnoad has name-dropped you in her latest newsletter.

I just want to say a massive thank you to everyone who supported my dream of reading books and drinking tea. I'm truly loving my life at the moment and so happy I followed my heart 🖤

#bookblogger #tealover #abrewandabook #bookreviewer #bookstagram #spoonieblogger #lovinglifeeveryday


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So very true and something we must all keep in mind when making choices to start drugs with high risk or known issues....


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I managed a walk around our little garden yesterday! It was super sunny at the time and quite hot. I used my stick for support and took it real slow. Stopping to take pictures of the flowers and enjoy the scenery and sounds.

The garden looks like it's been abandoned for some time. The soil is dead, plants are struggling and droopy. There is lots of empty space and dried up skeletons of plants.

But among the brown there are patches of bright colour. I'm sure that with some love and care the garden will be absolutely beautiful. Already its attracting so many birds and insects, it is a joy to watch!

I only walked about 84 steps out there before returning to the sofa where I lay till bed time. So although it was outside, it was counted among my usual daily steps, but due to the excitement and sensory effects, I have rested a lot today.

Check out my latest post (link in profile) for the latest series I'm doing on the blog. It's called Breakfast With Birds. I hope you enjoy it!
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🌟 Chronicallyhopeful.com/home-life/breakfast-with-birds
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#pwme #MEcfs #MillionsMissing #RoadToRecovery #Spoonie #sofalife #sickgirl #chronicillness #SpoonieLife #ChronicLife #disability #chronicpainwarrior #InvisibleIllness #lowbattery #StrongerThanYouThink #chronicillnesswarrior #ButYouDontLookSick #housebound #SpoonieBlogger #UKblogger #FaithBlogger #ChronicIllnessBlogger


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Ein neuer Text meiner Serie „Fibromyalgie ist….“ ist jetzt online! Es sind wieder so viele treffende Kommentare von euch eingetroffen, die ich gesammelt habe. Vielleicht ist ja auch DEINER dabei 😍.
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Außerdem geht es um unseren CHRONISCHEN MISTHAUFEN©️ – wie ich den Batzen an Problemen mit unserer Erkrankung getauft habe. Ich habe mich gefragt, wie wir in ihn ein- und auftauchen und vor allem Abstand von diesem stinkenden Teil bekommen können. Die große Frage ist darum, WIE KÖNNEN WIR MIT DIESEM MISTHAUFEN SO GUT WIE MÖGLICH LEBEN? .
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Lies, welche 5 Phasen du nach einer einschneidenenden Diagnose durchläufst und WAS DIR DABEI HELFEN KANN, DEINE KRANKHEIT BESSER ZU BEWÄLTIGEN. Mehr dazu lest ihr auf meinem Blog (Link im Profil!).
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Was hilft euch, Abstand von eurem Misthaufen zu gewinnen und ihn zu bewältigen?
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FORTSETZUNG FOLGT
Die Serie „Fibromyalgie ist, …“ wird weiter gehen. Ihr könnt nach wie vor auf dem Blog oder auf meinen Social-Media-Kanälen (Facebook, Twitter, Instagram) kommentieren und den Satz vervollständigen und eure Eindrücke schildern. Ich freue mich wie immer von euch zu hören!
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Abonniert doch auch meinen Newsletter, damit ihr keinen Neuigkeiten mehr verpasst. Auf meinen Pinnwänden bei Pinterest sammle ich übrigens nützliche Artikel rund um’s Thema Fibromyalgie (Studien, Hilfeportale, Tipps, Therapien).
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Eure FibroFee .
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/// http://www.fibrofee.de /// Blog über den Alltag & Erfahrungen mit Fibromyalgie, über chronische Erkrankung und unsichtbare Behinderung ///
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#fibromyalgie #fibromyalgieist #chronischermisthaufen #misthaufen #chronischkrank #chronischfabelhaft #krankheitsbewältigung #5phasen #trauerbewältigung #machmit #rheuma #schmerzen #arthritis #lupus #bechterew #sjögrensyndrom #restlesslegs #chronicfatigue #fatige #cfs #myalgischeenzephalomyelitis #notjusttired #timeforunrest #millionsmissing #blogger #germanblogger #spoonieblogger #coping #invisibleillnessawareness #unsichtbarebehinderung
Bild ©️ jcomp / Freepik


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3 staples of my morning routine: @rasakoffee for grounding energy and immune support, shilajit for a mineral and energy boost, and lion’s mane for cognitive and nerve health! Learn more about all 3 of these products and my other go-to supplements in my latest blog post (link in bio)! And if you’re interested in trying Rasa, use code “SIMPLYSHANNONAGINS” for 10% off your order! ••
What’s a staple of your morning routine?


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Another IG-Story compilation from last Sunday👍 Let’s see if I can get caught up & post more compilations from last week!

For every “active” day in my world there’s an equal number of slow days. Here’s one from last weekend. The bare minimum was accomplished and that was the goal. Getting my energy back up to baseline for the week ahead takes priority over everything else✌️


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Breakfast date ☀️


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This week's column is all about the gift of literacy 📖 link in bio!
#myastheniagravis #spoonie #spoonieblogger #literacy


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500 followers! Wow, I know it might be a drop in the ocean to some but it feels pretty awesome 😎
Thankyou to everyone who continue to support me. I’m still very new to the whole awareness and blog/vlog thing but I’ve started to build such a wonderful network of online support. It really does help me to push through the negativities of my illnesses and keep going.
You’re all amazing and interesting people, I love you all and Thankyou again for your support 💋💖 *******************************************
#chronicallyfabulous #spooniesofinstagram #500followers #followers #thankyouall #spoonieawareness #chronicillnessawareness #chronicillnessblogger #spoonieblogger #instafollowers #fibromyalgia #ehlersdanlossyndrome #mentalhealth #awareness #disabilityawareness #supportnetwork #instagood #instablogger #bloggersofinstagram #networking #spooniefamily #spooniefriends #socialmedia #postoftheweek #positivevibes #loveyouall


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#selfcaresunday from a last week! I got a new face mask from Lush that's great for oily skin and inflammation (not dry skin though!) so I'm gonna unwind later on with some rosy goodness ✨🌹 #facemask #lush #lushfacemask #rosycheeks #chronicillness #autoimmunedisease #autoimmunewarrior #beautygram #skincare #inflamation #spoonie #spoonieblogger #autoimmuneblogger #disabledblogger


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SUNDAY RUNDAY!!!!! It’s been a while!!
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This running top is filed up ‘runs I was supposed to complete,claimed the entry t-shirt and then never ran because I was too crippled’.
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This face is filed under ‘unbelievably tired and in need of a good sleep’. Just as well I’m not vain enough to only show myself when I have make up on/look alive.
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2 weeks exactly until Aberdeen and 4 until Great North Run. Increasing my Jeffing intervals tomorrow. Going from 30:30 to 45:30. It’s not ground breaking but I’m feeling fit enough and strong enough to try and increase my run time.
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#jeffgalloway #jeffing #girlswhojeff #runningwitharthritis #arthriticrunner #sundayrunday #run #running #runner #runnergirl #halfmarathontraining #arthritis #arthritiswarrior #psoriaticarthritis #rheumatoidarthritis #spoonie #spoonierunner #spoonieblogger #aberdeenblogger #edinburghbloggers #glasgowblogger #scottishblogger #scottishbloggers #discoverunder1k #runningselfie


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It's totally okay if all you do today is just breathe... You're allowed to rest. You're allowed to switch off. You're allowed to put your needs first sometimes. Take care of you.

Sending hugs 💕
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🌟 Chronicallyhopeful.com
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#pwme #MEcfs #MillionsMissing #RoadToRecovery #Spoonie #sofalife #sickgirl #chronicillness #SpoonieLife #ChronicLife #disability #chronicpainwarrior #InvisibleIllness #lowbattery #StrongerThanYouThink #chronicillnesswarrior #ButYouDontLookSick #housebound #SpoonieBlogger #UKblogger #FaithBlogger #ChronicIllnessBlogger


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TODAY ✨ TODAY ✨ TODAY
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SUPER-HAPPY BIOHACKER SEEKS OTHERS WHO RESONATE WITH THE IDEA OF VIBRANT ABUNDANT LIVING. IS THAT YOU
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I am super-happy to announce that I will be hosting my first wellness event at my flat this TODAY ☺️🤸. We'll be introducing you to the mindblowing, beautiful world of Biohacking and sharing some great products that are helping people to have more energy, less pain, less inflammation and better sleep.
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What's more, they also have an absolute abundance of anecdotal evidence to back them up PLUS peer reviewed scientific research proving they do what they say! I'm proper excited about these products because they are Gamechangers! And as yet there's nothing else quite like them.
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There is also a business opportunity to consider for anyone that is looking for a change in their current work situation.
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Who'd like to trade the traditional 40 year work plan for a new 4-year plan? It's yours for the taking!
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Dont listen to the haters about the products (they've never used them so they know nada). And don't listen to the haters about network marketing (they've never done it so they know nada). In fact it's an absolutely lovely business to be in for SO many reasons (which warrants its own post all by itself).
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Think of networking not as a career, but as a vehicle to help you do the things in life that really matter! ... What's your big dream? And where are you at with it now? What if there was a different way to get there?
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IF THIS POST HAS CAUGHT YOUR EYE AND SPARKED YOUR INTEREST JOIN US ON TODAY AND FIND OUT MORE! Or message me for further info!
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Much Love
Corina ✌️💖✊✨
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#BeVividlyWell #BeVividlyYou #HealthIsWealth #FeelGoodFeeling #FindYourMojo #NewParentProblems #BeTheBestYouPossible #ChronicPainRelief #OxidativeStress #FreeRadicalDamage #FibromylagiaSupport #RheumatoidArthritisSucks #Biohackers #BiohackersLondon #BiohackingMumma #BiohackerLondon #MitochondriaIsThePowerhouseOfTheCell #NRF2Activation #ChronicFatigueSucks #ChronicFatigueAwareness #SpoonieBlogger #SpoonieMum #ExhaustedMummy #SleepDeprivedParents #WorkingMumsLife #WorkingMummyLife #WorkingMumBlog #MumpreneurLife


0

Years ago my Saturday night outfit would’ve been sky high heels 👠 , teeny tiny dresses 👗 and a bucket load of sassiness 💖
These days my #ootn is #Disney Pj’s and sparkly slippers.....but with even more sassiness than back then!
I could sit and mope over those lost years but what’s the point when truth be told I LOVE my Saturday nights now 😍. What’s better than snuggling in your favourite cosy pjs, next to your partner in crime shamelessly stuffing yourselves full of takeaway and watching movies?! Plus the only type of hangover I’m gonna have in the morning will be from extra medication and too much pizza dough 🍕 😆 ******************************************
#outfitofthenight #saturdaynight #saturdaynightin #sassy #iputtheassinsass #nightsin #pjs #takeaway #pizza #mermaids #thelittlemermaid #sparkles #glitter #sequinslippers #mermaidpjs #chronicallyfabulous #spooniesofinstagram #butyoudontlooksick #invisibleillnessawareness #fibromyalgiawarrior #edswarrior #zebrawarrior #mentalhealthawareness #spoonieblogger #instablogger #instagood #postofthenight


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11.08.18
Yesterday was a tough one. I had my first MRI scan & although it was less scary than I thought it would be, today I'm absolutely drained. I've been running on a horrible nervous adrenaline spike for like the past 4 days, mainly out of fear of the unknown. I have such a hard time communicating with people not to mention the anxiety I get talking to them that medical procedures are kinda a nightmare 😬 I joked in the hospital that the actual painful part of the day was taking off the plasters left from my canula & having to make small talk with nurses😂
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BUT it's over and done with. Phew... Has anyone else had an MRI. Mine was on my pituitary gland in my brain.
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#ofthebookaug18 Tragic Characters.
Choosing literally anyone in Death Note. It was one of the first animes/mangas I ever got into & one I always recommend for people wanting to start. I'm slowly making a start on catching up on my anime watchlist. Currently watching Parasyte (its very John Carpenter's 'The Thing')
If you have any recommendations fire away in the comments 💕
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#afittingdistraction #photography #naturallightphotography #productphotography #bookphotography #booktography #igreads #slowliving #authenicliving #spoonieblogger #spoonie #disability #chronicillness #scotland #scottishblogger #discoverunder1k #bookstagram #bookblogger #bookdragon #biblophile #bookish #anime #deathnote #


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