#spoonieblogger

Instagram photos and videos

#spoonieblogger#spoonie#chronicillness#chronicpain#spoonielife#spoonieproblems#spooniefamily#spooniewarrior#spooniesupport#raredisease#spoonielove#ehlersdanlos#spooniecommunity#spoonieliving#spooniegirl#spoonies#spooniesunite#spoonieprobs#eds#ehlersdanlossyndrome#zebra#spooniefriends#spoonietruth#spoonieforlife

Hashtags #spoonieblogger for Instagram

This is the card that came with my surprise flowers from a mystery person. It’s one of my all time favourite quotes because it just hits home with everything I’ve been through with my mental and physical health problems. A lot of the time, things can just feel so dark, hopeless and scary. But this quote helps me to realise that even in those absolute darkest of days, if you look hard enough you will find some light. It can be something as tiny as your dog giving you a cuddle or a big gummy smile from your gorgeous nephew. And although those things don’t take away the bleak desperation you might be feeling, they can offer a tiny bit of respite
.
.
.
.
#quote #quotes #quotestoliveby #quotesaboutlife #harrypotter #harrypotterquotes #happiness #happinessquotes #happinesscanbefound #mentalhealth #mentalillness #depression #anxiety #eatingdisorder #chronicpain #chronicillness #spoonie #spoonieblogger


1

Hubby thinks he’s bagged brownie points with my surprise treats tonight!
He definitely has but “Shhh” we’ll not let him get all big headed now 😘🤣💖
********************************************
#treats #hubbytreatedme #surprise #cyder #rattlers #cornishcider #unicorn #unicornsmarties #onlysmartieshavetheanswer #browniepoints #chronicallyawesome #spooniesofinstagram #edswarrior #fibrowarrior #spoonieblogger #instablogger #sweetsurprise #instadaily #postoftheday


2

🐱🐱🤣🤣 Oh I do love this funny little mouse of mine. Shes in the bath having a lovely old time. Rolling round like a contented little piggy, purring away. 🛀🛁💕💕🐱 I hope youre all doing ok and have as good a day as you can. Im currently doing the "five more minutes" dance with myself to put off getting showered and putting away some washing. Im so fatigued but I need to do it now rather than in the morning cos Im at the hairdressers first thing. #firstworldprobs
#CATS #catsofinstagram #tuxedocats #tuxcats #mycatsbetterthanyours #tuxcatsofinstagram #cattitude #FUNNYCATS #comedycats #beautycat #cattitudeclub #themostbeautifulcats #catloversclub #sickchickandpoppy #inspirationalpage #positivevibesonly #spoonieblogger #chronicallyfabulous #disabledandcute #lupuslooksgoodonme #kittycrazy #kidneydiseaseawareness #positivityeveryday


0

This weekend has been a shit storm, literally!! On Saturday afternoon my stomach decided it hates me, I have no idea what set it off but the cramps were horrific! Luckily I was only sick once, I hate vomiting 🤮 As a consequence I’ve not been able to take my meds and my pain levels are through the roof 🙄 I’ve tentatively taken a couple of Tramadol this afternoon and evening after eating toast. On the plus side it’ll help with my weight loss 😂 My leg is getting better too. I can now use my insoles so my Plantar Fasciitis is easier to cope with 😁 #everycloudhasasilverlining #diaorrhea #sicknessanddiarrhoea #unknowncondition #undiagnosed #itsamystery #fucibetcream #fucidicacid #betamethasone #fungalinfection #thrushcream #clotrimazol #plantarfasciitis #tendonitis #bulgingdisc #backpain #backpainsucks #lowerbackpain #chronicpain #chronicbackpain #chronicpainlife #chronicpainmeds #degenerativediscdisease #lumbarspondylosis #sciatica #sciaticapain #sciaticasucks #spoonie #spoonieblogger #spinepainwarrior http://www.spinepainwarrior.co.uk


0

Branching out from my usual kind of posts today but what I'm dubbing the 'Ally palette of dreams' arrived yesterday & had to share
------
@meltcosmetics gemini eyeshadow palette ------
Expensive & I got hit with customs but it was so worth it because this will get so much use!
Showed it to my sister yesterday and she said that its perfect because its basically all the colours I wear. So true! 😍
------
°
°
°
°
°
°
°
°
#afittingdistraction #photography #naturallightphotography #productphotography #makeupphotography #meltgeminipalette #meltgemini #eyeshadow #eyeshadowpalette #meltcosmetics #bookstagram #bookblogger #bookish #bookdragon #bookaddict #biblophile #slowliving #authenicliving #spoonieblogger #spoonie #disability #chronicillness #scotland #scottishblogger #discoverunder1k


0

Hai. Just me wearing a raggedy ‘My Little Pony’ pj top like the fashionista I am. No make up. Unbrushed hair. Still managing to look cute when I’m sick.
.
Cosentyx day,hip hip hoorah!
.
Since my first injection I have had problems with my sinuses. It has been dismissed as a cold by medical professionals so many times. On one particular occasion I saw a GP a few days after Christmas,in floods of tears asking for some help. Fed up of the constant pain and discomfort and feeling poorly. “It’s a big side effect of your medication,you’ll just have to get on with it” I was told.
.
I continued to try to get on with it. But so far this year I think I’ve now had sinusitis on 14 occasions.
.
Yesterday it all became too much. Out of nowhere I went from enjoying a sofa day watching the World Cup with JP to being in such pain I was crying. Facial pain,snuffy nose,the works. I’ve had this bout for about 3 weeks now and just doesn’t get any better.
.
Today I managed to get a doctors appointment and 7 months after I first saw a GP,I was finally diagnosed with a severe sinus infection that will start to improve in about 6 weeks. As JP said after I told him “never just rains with you does it? You couldn’t just have a sniffle. You had to be on the brink of having your head explode”.
.
Weighing up the pros and cons of medication is something I’m still trying to get my head around. Whilst I am up and running and physically doing well,I am a walking sinus infection on the brink of an IBD who’s putting weight on at an alarming rate.
.
But I’ll still continue to inject. I’ll still savour every injection I take. I’ll still get emotional every time someone remarks at how far I have come.
.
Now,someone pass me a toilet roll and cover your ears. I’ma try to blow my nose.
.
.
#stillcute #cosentyx #biologic #psoriaticarthritis #rheumatoidarthritis #invisibleillness #spoonie #spoonieblogger #spoonieproblems #arthritis #butyoudontlooksick #fibromyalgia #aberdeenblogger #edinburghbloggers #glasgowblogger #scottishbloggers #discoverunder1k #arthritissucks #arthritisawareness #ivelookedbetter #chronicfatigue #chronicillness #chronicpain #chronicallyill #autoimmune #autoimmunedisease


0

Breaking my grid silence with a selfie 💁‍♀️
Another amazing weekend, but yet again my body is destroyed. I was talking to my father in law earlier about how awful I feel today & he said I should take it easier, but how? I'm already sensible (most of the time), the only way I could really take it any easier, is if I start turning down plans completely. Just lately our weekends have been crazy busy!! I love being busy, but my poor body can't handle it. Next weekend we have 3 things happening & that's not even including rugby, which I'll skip- see, sensible 😏
.
.
.
#lsblogger #lifestyleblogger #spoonieblogger #mumbloggeruk #weekendselfie #photosinbetween #bandofun #abmlifeiscolorful #myunicornlife #candyminimal #theeverygirl #peoplescreative #visualcrush #proptoit #Bloggervibes #summerstyle #hairup #goodlighting #myalgicencephalomyelitis #spoonielife #pacing #PEM #howyouglow #holdyourmoments #ontheblog #thatsdarling #thehappynow #stylegram #thousandwords #postthepeople


10

Heute ist ein besonderer Tag für mich: ein Team vom ZDF hat mich begleitet, um einen Beitrag über unsichtbare Erkrankungen und Behinderungen zu drehen. Genauer gesagt, den Umgang der Gesellschaft damit. Für uns bedeutet es wieder ein Stück mehr Sichtbarkeit 🙏💜. Für mich persönlich ist es ein weiterer Schritt in die Öffentlichkeit.
.
Und ganz ehrlich, ich habe lange überlegt, ob ich das tun soll. Ich habe schon mehrfach ähnliche Angebote bekommen. Bis jetzt habe ich aber bildliche Darstellungen von mir im Zusammenhang mit meinem Blog abgelehnt. Ich bin alles andere als eine Rampensau und halte es nicht für essentiell für das Thema, dass ich zu sehen bin. Denn was man auf Bildern sieht ist, dass man nichts sieht, sag ich immer. Das ist ja der springende Punkt. .
.
Aber wie mit allem hat man gerne ein Gesicht zu einer Geschichte. Und dieses Mal war für mich der Schwerpunkt an der richtigen Stelle. In der Sendung (welche wird noch nicht verraten) wird die deutschlandweit einzige Forscherin zum Thema Diskriminierung von/bei unsichtbaren Erkrankungen und Behinderungen eingeladen werden und die Hintergründe beleuchten.
Joa, da dachte ich mir, wenn ich nicht jetzt meinen Senf dazu gebe, wann dann 😜? .
.
Ich bin ziemlich nervös und gespannt. Gleichzeitig freu ich mich darauf, was kommt. Könnte gut werden 😁.
.

Der Beitrag wird wohl Ende Juli gesendet. Ich geb natürlich dann nochmal bescheid 😉.
.
#ZDF #fernsehen #fibromyalgie #unsichtbareerkrankung #unsichtbarebehinderung #endthestigma #fibroundich #chronischkrank #chronischfabelhaft #chronischeschmerzen #freiburg #blogger #germanblogger #spoonieblogger #chroniker #neueswagen


58

So a somewhat productive day even from this somewhat poorly position! A high pain day today.
But Ive rang up all seven of my listed hospitals and changed my address again as my letters still arent getting through to me properly. And Im now on loudspeaker to @plusnet_uk trying to get my broken internet fixed. So Im very glad Ive got a few jobs ticked off today whilst still managing to rest up. All rested up and ready for the hairdressers tommorow! Get my highlights sorted again my hair hasn't been this dark for years! I cant wait!💇💆 Hope you're having a good day and are feeling as well as possible Lots of love and spoons as always Jo. Xx

#broadbandprobs #flareday #alltuckedup #positivityeveryday #positivity #thinkpositive #behappy #bebrave #inspiration #motivation #sickchickandpoppy #inspirationalpage #positivevibesonly #spoonieblogger #chronicallyfabulous #disabledandcute #lupuslooksgoodonme #antiphospholipidsyndrome #fibromyalgia #endometriosis #butyoudontlooksick #spoonie #spooniecommunity #spoonielife #invisibleillness


2

*NEW BLOG POST*
Some things I get asked a lot are “why are you on crutches then?”, “so what did you do?” and “did you break it skiing?” (Not sure why people seem to think I’m a skier???) This post attempts to explain how I answer these questions, and why some of my friends have heard me tell about five different stories for how I dislocated my patella recently! (Link in bio)
#spoonielife #blog #spoonieblogger #crutcheslife #questionsandanswers #healthquestions #newblogpost


0

Home comforts... I never realised how much I missed having a home until I had one again...
It’s been nice to be home all day; warm by the fire with the rain on the windows and no commitments or appointments. Being unwell here beats being unwell in a hospital. I’m thankful for my time in hospitals because it kept me alive and treatment got me well enough to come home after so many years. I don’t want to go back to it though. My body may hate me, berate me, make me suffer. That may take a huge toll on my mental health but I love that I can be home and coping.
Sometimes, when symptoms and pain are really bad, I wish I could go to hospital for some relief or, even better, to get some solutions. I haven’t been in months though and I have survived. The good days, the bad days, the shit days. It’s a struggle a lot of the time but I hold up okay.
Today I’ve done next to nothing and now I’m hearing my body tell me to stop entirely. Might be in for another rough evening. I’m home though and I appreciate that that is something to be very grateful for...


1

Sunday evenings are best spent outside with a drink in your hand (in my case @gtskombucha gingerade). What’s your favorite way to unwind before the week starts?


18

Fibro girl pondering life on the beautiful coastline of Italia... a very emotional (and down) day ending with this creation. Love to spoonies and anyone struggling. Make your own kind of music. 🥄💜🎶
~
~
~
~
~
#fibrogirl #fibromyalgia #originalmemesonly #memez #inspirationalquotes #hope #notgivingup #spoonie #spooniestrong #spooniefamily #spoonieblogger #newblogger #travel #travelblogger #travelawesome #italia #coastline #quoteoftheday #fibromyalgiaawareness #travelholic #selflove #selfcare #selfcarethreads #newphotographers #tryingharder #butyoudontlooksick #invisibledisease #justask


1

I woke up in the Helicopter. It’s the first time I’ve ever flown. I wish it was under better circumstances. HMS Coastguard flew me to Bronglais Hospital in Aberystwyth. We landed on a playing field of a college and transferred by ambulance to the hospital where there was a team waiting to meet me in Resus. 🚁🚑🏥 #eds #ehlersdanlos #ehlersdanlossyndrome #raredisease #zebra #chronicillness #chronicpain #disabilityblogger .
.
#spoonielife #spoonies #spoonieforlife #spooniecommunity #spoonietruth #spoonieprobs #spoonielove #spooniegirl #spooniesupport #spooniewarrior #spoonieliving #spooniefamily #spoonieblogger #spooniesunite #spooniefriends #spoonieproblems #spoonie


3

I had 3 seizures which lasted for about 15 minutes in total and I was unconscious for over an hour. My best friend Mayia called an Ambulance, and we got Mountain Rescue and the paramedics. They were so wonderful 🙌🏻 #eds #ehlersdanlos #ehlersdanlossyndrome #raredisease #zebra #chronicillness #chronicpain #disabilityblogger .
.
#spoonielife #spoonies #spoonieforlife #spooniecommunity #spoonietruth #spoonieprobs #spoonielove #spooniegirl #spooniesupport #spooniewarrior #spoonieliving #spooniefamily #spoonieblogger #spooniesunite #spooniefriends #spoonieproblems #spoonie


12

I’ve been a little MIA on my feed for 3 reasons...
⠀⠀⠀⠀⠀⠀⠀⠀⠀
1. I’ve been really sick the past week & a half, almost 2 weeks it feels like.
2. I get overwhelmed at posting something that won’t fit the “aesthetic” of my feed, or voice I’ve created.
3. I’m a perfectionist or like my mentors like to remind me... a “spirit of excellence.” So I struggle with PARALYSIS OF ANALYSIS.
⠀⠀⠀⠀⠀⠀⠀⠀⠀
This all leads me to this... does anyone else ever miss the days where you could post everything & anything you wanted on Instagram without edits, Apps, or presets?
⠀⠀⠀⠀⠀⠀⠀⠀⠀
Here’s the thing... I’d love to hear your feedback! Truth is, I’m more than the photos I take, & I want to share ALL my life with you. Some changes might be coming. I’d love to share more of my health journey, & not focus so much on “model” or high def photos. I’d also like to post #ootd photos that are taken in front of my mirror that I’ve gotten so much feedback on from you guys!
⠀⠀⠀⠀⠀⠀⠀⠀⠀
So I’d love to know your feelings on these things...
⠀⠀⠀⠀⠀⠀⠀⠀⠀
1. Am I the only one who struggles with paralysis of analysis?
2. Does anyone else miss the days of crappy Instagram photos, & when the only photo edits you did were on the actual Instagram app?
3. Would you love to see more everyday, varied content on my feed?
⠀⠀⠀⠀⠀⠀⠀⠀⠀
Today in the social media industry/world they say your feed should be like your web page, but my truth is, I don’t want my page to be a website. I want it to be a conversation, & creative platform where I get to interact with you all on so much more of a personal level. That’s my heart. So PLEASE let me know what you think. I’d truly love your feedback! Love you guys.❤️


9

Had to make an effort to see in my wonderful Dads first heavenly fathers day! This skirt is 14 years old! I always forget about it for years then rediscover it again and love it just as much. 💕 Im now home and straight in my comfies and into bed with my kitty cat. 🐱

Hope youre all ok and are feeling as well as possible
If you're in the Uk I hope you've been well enough to manage to see your Dads today, or if today is hard for you for whatever reason, Im sending you a hug. I get it completely. Please dont be sad alone. DM me if you want to talk. Lots of love and spoons as always always Jo. Xx

#fathersday2019
#fathersday #OurDad #lookatyoudressydress #Sundayvibes #alisteningear #dontbesadalone #sickchickandpoppy #sickgirlchic #inspirationalpage #positivevibesonly #spoonieblogger #chronicallyfabulous #disabledandcute #lupuslooksgoodonme #antiphospholipidsyndrome #fibromyalgia #endometriosis #butyoudontlooksick #spoonie


7

Well it’s the first time in a long time I’ve done my make up properly and I’ve eventually tried out my new lipstick I got for my birthday (which was in March!!). Loving this @narsissist velvet matte lip pencil in Bahamas - gorgeous colour! Double tap if you want me to write a tutorial on my blog of how I created this look! 💄 Also I’m so proud of myself because today I went out for 4 hours to celebrate Father’s Day with my family. I am totally shattered now and feeling a little ill, but it was so nice to be out the house and doing normal things for once! 💓 #makeuplookoftheday #narsvelvetmattelippencil #chronicillnesswarrior #balayagehaircolor #bbloggeruk


3

What could be better than relaxing by the pool! Especially on a hot summer day. At least the pool water feels cool. And yes my towel is zebra print! 🦓🌴☀️
.
.
.
#poolday #pool #summertime #summer #summerday #tanning #relaxation #relaxing #florida #hotsummerdays #ehlersdanlos #zebra #swimming #spoonieblogger #chronicillnesswarrior #hotday #sunnyday #pooltime #itssohotoutside #anotherdayinparadise


1

Playing with shadows..
-----
@booksloth00 tagged me in #anythingbutbooks tag. Let's Go!
-----
⚔️ Favourite Song? Changes all the time but right now probably Living is a Problem - Biffy Clyro
⚔️Something you can do for hours? Procrastinate
⚔️Favourite Fandom? Hmm hard! I always go back to HP. Probably Haikyuu!! (my favourite anime). Also a big Marvel geek, although the fandom can get a bit toxic sometimes #tonystarkdefensesquad
⚔️Most recent project? My veggie garden!
⚔️Something people don't know about you? I have a weird obsession with lighthouses
------
Phew! I'm a rambler & can't give snappy answers 😂 Feel free like usual to do the tag even if I didn't tag ya 💕
------
°
°
°
°
°
°
°
°
#afittingdistraction #photography #naturallightphotography #shadowphotography #shadows #slowliving #authenicliving #spoonieblogger #spoonie #disability #chronicillness #scotland #scottishblogger #discoverunder1k #bookstagram #bookblogger #bookdragon #biblophile #bookishfeatures #bookstagramfeature #bookstafeatures


2

Looking for a super delicious breakfast to make for your Dad tomorrow morning? Try my Simple Gluten Free, Dairy Free Pancakes! Just follow the link in my bio. And don’t forget to show your Dad (or other father figure) a little extra love tomorrow!


4

There’s nothing quite like waking up in the morning and knowing that you don’t have to get up, you don’t have to be anywhere and you can pretty much relax all day, not because you’re ill, but because you’re on holiday and you CAN ☀️


4

The end of the page