#spooniefamily

Instagram photos and videos

#spooniefamily#spoonie#spoonielife#chronicpain#chronicillness#spoonies#ehlersdanlossyndrome#spooniewarrior#eds#ehlersdanlos#spoonieblogger#zebra#spoonieproblems#spooniesupport#spoonietruth#spooniesunite#raredisease#disabilityblogger#spoonieforlife#spooniecommunity#spoonieprobs#spoonielove#spooniegirl

Hashtags #spooniefamily for Instagram

Face picking is often the result when my anxiety has skyrocketed out of control. I try to be gentle with myself when this happens, but often end up really upset with myself anyway, because it can be compulsive and hard for me to stop and let it heal; because of the looks and stares I get, because of how self-conscious that makes me feel in turn as a result…
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So this morning, my boyfriend and I were driving to get some chai - I LOVE authentic, Indian Masala Chai - and he tells me that I look sexy. Sexy… Sexy? 🧐🤨 Yup. Now, I try to practice the best means of self care that I am able when I get into these spots of having already “done the damage” to my fragile skin, but it can be hard for me to see past it still. My boyfriend didn’t even have to try, and saw right through it to me. ☺️ Because underneath my mental illness/disorders and unhealthy coping mechanisms that I am working on, he sees me for me, what I am beneath the surface. ☺️☺️💓
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For the rest of the day I am going to make sure to nurture myself, let my skin begin to heal, and allow myself to let in feelings, and also acknowledge then let go of the ones that do not serve me or my health.
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I have never posted a photo of myself when my skin has been freshly picked (and this definitely isn’t even close to the worst I’ve done), but today I feel just strong enough to do so, and it feels important. No make-up either, and no filters. Just me. I will continue to remind myself (even though it can be difficult as fuck at times) that I am enough. 💜💜💜









#selfcare #radicalselfcare #selflove #radicalselflove #spoonie #spooniefamily #spooniestrong #chronicpain #mentalillness #mentalhealth #mentalhealthisimportant #mentalhealthawareness #bopowarrior #nonairbrushedme #embraceyourself #selfiesforselflove #selflovery #skinpositive #skinpositivity #anxiety #anxietyissues #anxietyisreal #excoriationdisorder #dermarillomania #bekindtoyou #bekindtoyourself #takecareofyou #takingcareofyou


0

Just got the opaque Dansac bags from my stoma nurse (I'd literally just changed my bag and put on one of my last clear ones, and 5 mins later the postie knocks with these!) and UPS are delivering my Coloplast Sensura Mio sample bags this afternoon. I'm pretty stressed out today. I got my PIP form yesterday that I need to fill out, because they said now I've got my ileostomy I need a whole new assessment 😣 so I'm still photocopying letters as evidence. Hopefully I can go to the post office later to send it all off if I get it done. And I can sort out my free car tax at the same time. Also in the post this morning was my blue badge, and NHS medical exemption certificate. No sign of a blockage yet, so fingers crossed I'm okay. Feeling pretty low today, trying to just let it be.
#ileostomy #ileostomysurgery #ostomate #stoma #ostomy #loopileostomy #getyourbellyout #stomabag #boweldysmotility #ileostomybag #ileostomywarrior #girlswithguts #output #colonicinertia #spoonie #spooniefamily #slowcolonictransit #slowtransit #coloplast #dansac #disability #disabled #bluebadge #pip #pipassessment #depression #mentalhealth


9

Well I’ve had a long, stressful day, sorting out meds, flat hunting (P&L are a bit more lenient with me staying until I find somewhere for me to go) and being sick and sore at the same time. I did manage to finish #projectrunway before tea.....haven’t eaten all day. I’ve got into a bad habit of not eating during the day coz while I’m here I have to eat dinner (except I’ve missed the last two) I feel REALLY guilty about dessert, omg! Feeling so fat and ugly and worthless. Turning into a full blown #anorexiarelapse - all I want to do is lose weight....it’s consuming everything in me atm! #needtoloseweight
I’m gonna try reading 📖 my book 📚 for a distraction
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#read #reading #novel #book #bookstagram #bookworm #books #booklover #bookblogger #bookphoto #books📚 #bookholic #bookaholic #booknerd 🤓#booknerdigans #bookgeek
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#spoonie #spoonielife #spooniewarrior #spooniefamily #spooniefam #chronicpain #chronicpainsucks #chronicpainwarrior #chronicpainwarriorprincess
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2

You may think nothing of a girl finding rocks or sitting on a swing but for @carolinekeeth these are moments of freedom she hasn’t experienced in a long time. Due to her MCAS the outside world can be a truly life threatening place. If she were to be stung by a bee or wasp she would go into anaphylaxis. If someone were to be burning brush or mowing grass it could do the same.
Today’s GI appointment went well. She (the doctor) thinks that a port or pic line would be good for her but wants to hear what her allergist and hematologist think. She has also recommended a cardiologist here in Little Rock who deals more with POTS. We will be finding out more in the coming days. So please keep her in your prayers.
We saw this piano fountain at a craft market after the appointment.
#gastroparesis #ehlersdanlossyndrome #pots #posturalorthostatictachycardiasyndrome #mastcellactivationsyndrome #fibromyalgia #chronicillness #chronicpain #spoonie #spooniefamily


0

ARE YOU TIRED OF FEELING LIKE YOUR WHOLE LIFE IS COMING IN ON YOU?
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The stress of health, finances, family, work, and more, can wreak havoc on you in unknown ways.
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Listen babe, you are amazeballs, but when your life is off balance due to constant overload, it’s hard to feel that way.
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When you add to that the fact that many people, even your doctors and loved ones, treat you like you are faking for attention; Because aside from the bags under your eyes from not sleeping well and your hair up in a ponytail because showering was just more that you could handle today, you don’t “look sick”.
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It all becomes so much that feeling like the whole and balanced person you remember, seems impossible. I know because I've been there.
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I just want you to know that there is hope and you CAN live better.
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#Mindfulness #Endometriosis #Wellness #Stepmom #Thyroid #Autoimmune #SpoonieLife #Spoonie #Fibromyalgia #IBS #LeakyGut #SecondBrain #ChronicIllnessWarrior #ChronicPain #ButYouDontLookSick #InvisibleIllness #SpoonieSupport #Hysterectomy #ChronicIllnessAwareness #SpoonieFamily #Hashimotos #Thyroiditis #DegenerativeDiscDisease #SpinalStenosis #T1Dmom #MADwellness #PCOS #Mindset #ChronicLife #SpoonieSister


6

Link in bio!! Send me some question or whatever!! #spoonie #tellonym #spooniefamily #chronicillness #instafam #inflammatoryboweldisease #nursetobe


0

Just got in my second order from @emblemcannabis today! 📦 😍 I read a lot of hype about their #ArtemisMaximus #QuantumKush, so I decided to test it for myself. It’s a 50/50 Hybrid which I’m nervous about. My nervous system doesn’t like pure Sativa strains... so I’m cautious with any amount of sativa in my bud. Excited. Will report back soon! 📝


3

Really honoured to have been asked to become an Ambassador for @addinternational which helps to empower disability activists in Africa and Asia, giving them the tools and skills to bring about long-term change in attitudes and support for people with disabilities in the countries where they are located.
Read my full interview as to why I accepted the role here:

https://www.add.org.uk/our-new-ambassador

#disability #disabilityawareness #disabilityrights #disabilitypride #disabilitysupport #disabilityactivist #charity #charities #charityambassador #ambassador #charitywork #spoonie #spoonies #spoonielife #spooniefamily #spooniestrong


2

That says it all really. You don't need to prove anything, just believe in yourself. May the bad days quickly pass and in the good days may you have fun and laugh. .
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#spooniefamily #selfcare #kidneydisease #invisibleillness #tiredandsore #compassion #empathy #supportive #smallvictories #bekindtooneanother


1

Big shout out to all the awesome providers I know and love! Do you have a doctor or other provider who has stood in your corner and fought for you? Give them a shout out! 💜


1

Håber I alle får en god dag i morgen 🌸💕 Jeg ville ønske jeg kunne sende en masse skeer til dem af jer, der har brug for ekstra for tiden, men jeg har desværre knap nok selv til at komme igennem dagen. I stedet vil jeg sende en masse kærlighed til alle dem, der passer på os med manglende skeer! I er et lys i mørket 💕🌸 Tak! Og en særlig tak til min egen husbond, som ALTID er der for mig 💗
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#spooniesisters #spoonie #spoonielife #spooniefamily #warrior #chronicpainwarrior #dejligtathavelærtjeratkende #keepfighting #grateful 🙏🏻


19

Absolutely! All this right here. We’ve been thru a lot, it is sad but we should never ever be our own worse enemy & put ourselves down or be hard on ourselves. We’ve already got a lot to deal with. Be kind to you. Be good to you. Be your own cheerleader. Be proud of you. #this #sotrue #begoodtoyou #beproudofyourself #truth #autoimmuneillness #spoonie #autoimmunedisease #mytruth #myspoonielife #spoonieknows #purpleness #chronicness #invisibleillness #chronicchaos #chronicpain #weneedcures #spooniefamily #butyoudontlooksick #chronicillness #spoonielife #spoonietruth #spooniesisters #spooniebrothers #gentlehugs #spooniehugs 💜🌼🌷 #ilovemyselfdoyou


1

We're answering your #KalypsoKetamine™️ FAQ's :
Q: "What happens during the infusion?" Click the link in our profile to see the answer →
#KalypsoWellnessFAQ


1

Oh boy do these ring many bells! Quips like this are used towards all chronic health conditions, and I'm not disregarding others feelings, but to say these to someone with mental health problems (with or without other illnesses) is exceptionally narrow-minded and hurtful.
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#Repost @its.not.my.salt
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I thought this would be helpful to share and raise awareness as a lot of us spoonies don’t just suffer with our physical health! Mental health matters! #depression #mentalillness #mentalhealthawareness #mentalhealth #ptsd #posttraumaticstressdisorder #butyoudontlooksick #invisibleillness #invisibleillness #chronicinsta #chronicallyill #chronicillnesses #chronicillnessfighter #spoonie #spoonies #spoonielife #spooniestrong #spooniefamily #spoonies #dysautanomia #dysautonomia #dysautonomiaawareness #pots #potsie #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #mentalhealthmatters


0

Sleep tests from night 8 pm till 6 pm today and than today night 8 pm till 11 am on the next day. Sexy isn't it? They are 4 tests during the day: sleep for 30 min😴 than wake up and wait than again sleeping for 30 min😴...4 times. Welcome dizziness!
So I hope I get a diagnosis and help without judging me!
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@ehlers.danlos @ehlersdanlosuk @ehlers.danlos.syndrome
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#chronicillness #chronicfatigue #chronicpain #invisibleillness #invisibledisability #spoonie #spoonielife #spooniefamily #spooniestrong #POTS #TMJ #HSD #eds #heds #MCAS #mastcell #gastroparesis #dysautonomia #hypermobility #ehlersdanlos #zebrastrong #ehlersdanlossyndrome #dontjudgeaperson #dontjudge #alwaysfighting #mylife #butyoudontlooksick #spinalfusion #fightlikeawarrior #chroniczebra


3

Sometimes I dwell on how much my life has changed so much after being diagnosed with fibro.. I have lost friendships, hobbies I use to love and enjoy, my freedom to just do whatever and whenever I want, and lost my job of 10 years.. I have been working a lot to get out of this "negative funk" sometimes that means putting myself first before others (which for me is extremely hard as I always dropped everything for everyone) ... Today as I was sitting at home working on marketing for a local restaurant while blasting Sublime, I was thinking of how damn lucky I am!! First off I live in a world where I have shelter, free clean water and money to buy food!! Also I have healthy family and close friends who are there for me no matter what! Also I am able to work for myself at home on my bad days instead of calling in sick, plus able to be a librarian which I NEVER thought would happen!! I would still be in that high stress job and miserable!! Sure fibro doesn't make life easy AT ALL but I do have way more good than bad in my life!! #postivievibes #loveyourlife #youonlyliveonce #fibromyalgia #fibro #fibrofighter #fibrowarrior #chronicillness #chronicpain #chronicfatigue #dontgiveup #keepfighting #spooniefamily #spoonie #fibrofam #fibrofamily #workfromhome #marketing #sublime


4

Yesterday I arrived at the sleep labor in munich. The first night wasn't so nice. In the morning my doc came and said "The computer analysis shows that you have a sucky sleeping"... Yes you read right sucky... but the worst thing was he ask if I'm married and I said not yet but soon. Then he ask if my fiance know about my illness. I said of course. And then he said stunned "and he'd like still married you?"
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Excuse me YES why not? I'm not a pleasant human person? What does it mean STILL? The doc knows nothing about EDS and I'm only here for the arousel diagnosis and sleep disorder but not to abuse me. .
To all Warriors ignore such comments and believe in you, your strenght, your fighting spirit, your feelings and in your partners. Don't give some idiots the power! We are all humans and all adorable. So please stay strong🙏❤️
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@ehlers.danlos @ehlersdanlosuk @ehlers.danlos.syndrome
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#chronicillness #chronicfatigue #chronicpain #invisibleillness #invisibledisability #spoonie #spoonielife #spooniefamily #spooniestrong #POTS #TMJ #HSD #eds #heds #MCAS #mastcell #gastroparesis #dysautonomia #hypermobility #ehlersdanlos #zebrastrong #ehlersdanlossyndrome #dontjudgeaperson #dontjudge #alwaysfighting #mylife #butyoudontlooksick #spinalfusion #chroniczebra
#fightlikeawarrior


3

@robdrumsnj got us a little pool today!!!! And it has #pineapples on which is super cute! It got up to 96° today & since my #dysautonomia has been super dickish all week I didn’t stay out long with the girls, but we had fun nonetheless! Well I should say that I had fun...Liska was ok as long as I was there & she could climb in my lap when she wanted, & Výhra surprisingly enough wanted NO part of it whatsoever. 😂 Rob was too busy wrangling Výhra to get his feet wet but maybe tomorrow we can try again. Also I got a lovely shot of some of my mom’s #flowers growing alongside our house (please check out my photo page if you haven’t already!) 📸 #summertime #sunday #summer #familyfun #swimming #pomchis #familytime #puppypool #coolingoff #spooniefamily #dogs #puppers #liskapaprika #vyhramultipass #furbabies #pawsup #liskaneedsabikini 🐕🐕🌞👙❤️🐾😂


17

It's 5:45 and I'm up and awake and had tea, now reading 📖
It's been a tough day - group was shit - some people welcomed me back, while others said (just short of coz it's "abuse") fuck off, we don't want you here. I fainted after 1st group - great (NOT) and had bad vertigo until I got home and took some MORE meds coz of it. That made me have a decent sleep. Increased pain because of all the stress - haven't heard back for the real estate agent about the flat...😡😤 #keepsmilingkeepfighting though right?
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#read #reading #novel #book #bookstagram #bookworm #books #booklover #bookblogger #bookphoto #books📚 #bookholic #bookaholic #booknerd 🤓#booknerdigans #bookgeek
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#spoonie #spoonielife #spooniewarrior #spooniefamily #spooniefam #chronicpain #chronicpainsucks #chronicpainwarrior #chronicpainwarriorprincess
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4

Home comforts... I never realised how much I missed having a home until I had one again...
It’s been nice to be home all day; warm by the fire with the rain on the windows and no commitments or appointments. Being unwell here beats being unwell in a hospital. I’m thankful for my time in hospitals because it kept me alive and treatment got me well enough to come home after so many years. I don’t want to go back to it though. My body may hate me, berate me, make me suffer. That may take a huge toll on my mental health but I love that I can be home and coping.
Sometimes, when symptoms and pain are really bad, I wish I could go to hospital for some relief or, even better, to get some solutions. I haven’t been in months though and I have survived. The good days, the bad days, the shit days. It’s a struggle a lot of the time but I hold up okay.
Today I’ve done next to nothing and now I’m hearing my body tell me to stop entirely. Might be in for another rough evening. I’m home though and I appreciate that that is something to be very grateful for...


1

BooBoo and Daddy: Partners in Crime Since 2013

Happy Father’s Day to the perfect father for our kiddo. These two guys had a boys weekend while I got to spend quality time with my father. They are two peas in a pod and best buds. I always knew Husby would be an amazing father but these two were absolutely made for each other. They’ve always had a special relationships, especially with all the time I’ve spent either hospitalized or laid up spoonless. Husby is as supportive and easy going as they come and there is no one else I’d rather do parenting with.
Husby, you’ve been rocking this fatherhood thing for four and a half years and I can only imagine how much better it’s going to get from here. BooBoo and I love you to infinity and beyond.
#fathersday #fatherandson #spooniefamily #spooniespouse #spooniekiddo #spooniemama #chronicillnesswarrior #chronicfatiguesyndrome #chronicillness #chronicpain #chronicillnesslife #chronicpancreatitis #pancreaticdivisum #crankypanky #fibromyalgia #fibrofighter


0

Six years ago Trevor and I went on a similar trip with his parents a couple months after we met (we were already engaged 😂). I had just had surgery for endometriosis and received my fibromyalgia diagnosis. I was struggling to cope. I pushed myself too hard to keep up with his parents. His parents like most abled bodied people lacked any understanding of how to treat me. It was so difficult. A beautiful trip, but we were still adjusting to so much.
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6 years later it’s so different. Trevor and I can communicate without words. He knows my needs, often before I tell him. He anticipates and helps his parents understand and treat me better. He is my rock now when we travel. It’s still hard because I still am sick, I always will be things will always be more difficult #spoonielife but now we know how to deal. That’s not just half the battle that’s the whole damn war - knowing how to survive AND thrive.
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These past two years since my assault I have often felt we haven’t made much progress. I’ve measured my recovery by internalized ableist and capitalist narratives. Work gives you worth. Labor and production is progress. But these lies often hid the real progress we’ve made, the real work we’ve done, and the enormous strides in both our recovery from trauma.
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I see it now clearer than ever. We’re doing better than a year ago. Infinitely better than two years ago. Better than when I was physically dying through college and my thesis. Better than the last trip we took with my in laws and I couldn’t be happier.
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Thank you @treviebear for working so hard with me throughout our amazing relationship to make this progress happen come hell and high waters.
#disabledandcute #disabledandproud #disabilityawareness #endometriosis #endometriosisawareness #endowarrior #fibromyalgia #fibromyalgiaawareness #fibrowarrior #diagnosisstory #mancrushsunday #ilovemyhusband #mancrushforever #inlawsintown #westernroadtrip #exploring_shotz #exploringnature #amateurphotography #couplegoals #couplephotography #cutecouples #tallhusbandshortwife #coloradonationalmonument #coloradogirl #coloradobornandraised #spoonietravels #spooniefamily #ptsdrecovery #sexualassaultawareness


3

Jon worked with Ellery on peddling her bike. She doesn't get the concept 🤦‍♀️ Leighton was super content in his new helmet.
#fathersdayshennigans #spooniefamily #fathersday


1

Fibro girl pondering life on the beautiful coastline of Italia... a very emotional (and down) day ending with this creation. Love to spoonies and anyone struggling. Make your own kind of music. 🥄💜🎶
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#fibrogirl #fibromyalgia #originalmemesonly #memez #inspirationalquotes #hope #notgivingup #spoonie #spooniestrong #spooniefamily #spoonieblogger #newblogger #travel #travelblogger #travelawesome #italia #coastline #quoteoftheday #fibromyalgiaawareness #travelholic #selflove #selfcare #selfcarethreads #newphotographers #tryingharder #butyoudontlooksick #invisibledisease #justask


1

I woke up in the Helicopter. It’s the first time I’ve ever flown. I wish it was under better circumstances. HMS Coastguard flew me to Bronglais Hospital in Aberystwyth. We landed on a playing field of a college and transferred by ambulance to the hospital where there was a team waiting to meet me in Resus. 🚁🚑🏥 #eds #ehlersdanlos #ehlersdanlossyndrome #raredisease #zebra #chronicillness #chronicpain #disabilityblogger .
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#spoonielife #spoonies #spoonieforlife #spooniecommunity #spoonietruth #spoonieprobs #spoonielove #spooniegirl #spooniesupport #spooniewarrior #spoonieliving #spooniefamily #spoonieblogger #spooniesunite #spooniefriends #spoonieproblems #spoonie


4

Feel assured that healthy, pain free urination is at hand! 'Urivo' by @vitasciences.
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DM to get your 20% discount code now!


6

I had 3 seizures which lasted for about 15 minutes in total and I was unconscious for over an hour. My best friend Mayia called an Ambulance, and we got Mountain Rescue and the paramedics. They were so wonderful 🙌🏻 #eds #ehlersdanlos #ehlersdanlossyndrome #raredisease #zebra #chronicillness #chronicpain #disabilityblogger .
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#spoonielife #spoonies #spoonieforlife #spooniecommunity #spoonietruth #spoonieprobs #spoonielove #spooniegirl #spooniesupport #spooniewarrior #spoonieliving #spooniefamily #spoonieblogger #spooniesunite #spooniefriends #spoonieproblems #spoonie


17

Happy Fathers Day to a special daddy. Whilst some daddies may have enjoyed breakfast in bed, he got up with the children and made them and me breakfast. He drove us all two hours there and back to enjoy his day out with his own dad and then looked after the children whilst I slept when we got back. Add to this tidying the house, emptying bins, making beds, doing laundry and generally keeping us all afloat. Chronic fatigue means his job as a daddy isn’t typical and he takes on the role of both parents a lot of the time when I cannot. He does it without complaint, is often so tired he could drop at any minute, and rarely gets time to himself. We love you to infinity and beyond.
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*these children are not all ours 🤣
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#whpplay #fathersday #happyfathersday #fathersdayuk #daysoutuk #afatherslove #dadsday #dadsmatter #dadsofinstagram #dadsareimportant #fatherhood #familymatters #bestdad #celebratedad #themanthemyththelegend #youareours #instahubby #cfs #chronicfatiguesyndrome #spoonielife #spooniefamily


1

Omtrent én gang om året tager jeg på hotel i et døgn. Det er den eneste dag om året, hvor jeg er helt alene og hvor der ingen krav er om at skulle være supermor, motivator, psykolog, tovholder, lærer, pædagog etc. Det er også den eneste nat, hvor jeg kan sove en hel nat uden at skulle være der for mine skønne unger. Jeg tager altid på @scandicdanmark ‘s Hotel Regina, for der er jeg SIKKER på at alt er i orden. Sengen er så god, at min ryg og nakke denne gang holdt til at sove 10 timer i streg!! Det er godt nok længe siden sidst og virkelig tiltrængt, så nu er jeg klar til at være løvemor igen 🔋🙌🏻❤️
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#bedstefølelseatfåsovet #mindfulness #selvforkælelse #kendtgæst #sødestereceptionist #autismemor #autisme #elskerminedrenge #spoonie #spoonielife #spooniefamily #autoimmunedisease #warrior #chronicpainwarrior #løvemor #scandichotels #vilgørealtforminebørn ❤️


26

Fibromyalgia
Autoimmune Thyroiditis - Right now I am hypothyroid and on it’s way to full blown Hashimoto’s.
Endometriosis
PCOS - A hysterectomy to treat the pain from both this and the endometriosis.
IBS
Degenerative Disc Disease
Cervical Stenosis with an ossified ligament in my neck
A ruptured disc in my thoracic spine
3 bulging discs in my lumbar spine causing massive sciatic pain
GERD
I have a mystery spasm that likes to happen in my esophagus - I have had a dilation that helped a bit.
Orthostatic Hypotension
And Idiopathic Generalized Edema
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That's me in a list of illnesses.
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I wrote an article this weekend about how hard it can be to get a diagnosis and the fact that I still have 2 illnesses that haven't been named yet.
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It can be hard sunshines, but I'm sure you know that.
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What are your diagnoses? Do you have any that are still stumping doctors?
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#Mindfulness #Endometriosis #Wellness #Stepmom #Thyroid #Autoimmune #SpoonieLife #Spoonie #Fibromyalgia #IBS #LeakyGut #SecondBrain #ChronicIllnessWarrior #ChronicPain #ButYouDontLookSick #InvisibleIllness #SpoonieSupport #Hysterectomy #ChronicIllnessAwareness #SpoonieFamily #Hashimotos #Thyroiditis #DegenerativeDiscDisease #SpinalStenosis #T1Dmom #MADwellness #PCOS #Mindset #ChronicLife #SpoonieSister


7

moved into our first apartment yesterday, and then, low and behold, my body crashed. Focusing on the good and trying to stay positive. 💪🏼@sassysallythechihuahua insists on laying directly next to my face, so that helps keep me smiling ☺️❤️


1

This picture really reflects what's been going the past couple of days;
I'm just trying to stay afloat (no pun intended😜), lots and lots of deep breathing, meditation, mind-fullness and chronic pain management. I've been popping pills like a true addict, but sometimes you've just gotta take advantage of western medicine and take drastic measures.🤷🏼‍♀️ #thatsjustlife
It hasn't been easy and thinking of what I still have ahead of me (meaning; IV's etc) I'm quite literally shitting my pants.💩ANYWAYYYYY.
I still have SO MUCH to be grateful for. I'm 100% focusing on that. 🌟Life is 10% what happens to you and 90% how you react to it🌟#lymedontkillmyvibe #lymedisease #chronicpainawareness


10

Roadtrip to munich for an appointment. I baked glutenfree and lactosefree muffins and chocolate chip Cookies from @nathaliescuisine
I've green apple and cucumber in my bag too. So I hope I've been all set for the 3 days hospital stay. .
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#chronicillness #chronicfatigue #chronicpain #invisibleillness #invisibledisability #spoonie #spoonielife #spooniefamily #spooniestrong #POTS #TMJ #HSD #eds #heds #MCAS #mastcell #gastroparesis #dysautonomia #hypermobility #ehlersdanlos #spinalfusion #ehlersdanlossyndrome #dontjudgeaperson #dontjudge #alwaysfighting #mylife #zebrastrong #chroniczebra #butyoudontlooksick #fightlikeawarrior


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