NOAH@noahalbinism

http://www.albinism.org/

Check out this news story about Atlanta animator Joshua Leonard's Team Supreme cartoon. Among the cast of special superheroes is Angel, a girl with albinism whose superpower is disappearing! Learn more about Joshua's project at http://www.cbs46.com/story/38436226/atlanta-animator-creates-superheroes-with-disabilities #albinismawareness


1

Last month at #NOAHCon2018, NOAH honored Dr. Gail Summers with the first ever Dr. Carl Witkop Award for outstanding achievement in science and medicine in service to the albinism community. Join us in thanking Dr. Summers for her tremendous service to the albinism community and wishing her well in her retirement!


2

Free Teen Tele-Support Group!
Lighthouse Guild is offering a free teen support network for high school students in grades 10-12 to discuss common social, emotional, academic and practical concerns connected with having a vision impairment. Download the flyer (https://bit.ly/2KzFDoB) or learn more at lighthouseguild.org/teensupport


1

The Muse shares the inspiring story of long-time NOAH Board Member and HPS Network Founder and President, Donna Appell! Thank you, Donna, for your tireless efforts on behalf of people with HPS! HPS Network https://www.themuse.com/advice/donna-appell-trailblazer-cure-rare-disease-hps-network


1

Last month in Kansas City, NOAH honored three amazing members with prestigious Founders' Awards! Please join us in expressing our grateful appreciation to Sheila Adamo, Michelle O'Connor, and Tim Laughlin for their extraordinary and sustained service to the albinism community. #NOAH #Volunteer #albinismawareness #MemberMonday


0

Today we throw back to Adult Weekend 2013 in Portland, Oregon for a glimpse into the silliness, education, and warmth of this biennial, must-attend event! Have you marked your calendar for #AdultWeekend2019? #TBT https://www.facebook.com/events/963089930538094/


1

The new Parent Connections schedule has been released! Upcoming topics include The NOAH Conference Experience, Staying Cool as your Kids Return to School, Living with Albinism, Connecting Families of Young Children, and Orientation and Mobility and Establishing Independence in the Teen Years. Learn more or sign up to be a part of Parent Connections at www.albinism.org/parent-connections. #NOAH #ParentConnections


0

Shout out to eight-year-old Elizabeth W., who set a national record in the 800m at the Adaptive Sports USA Junior Nationals in Fort Wayne, Indiana last week! Elizabeth competed in swimming, track and field events, breaking the national record in 800m event in the age 14 and under group (despite being only eight)! If you look quickly, you can see her in action in this video: https://www.facebook.com/AdaptiveSportsUSA/videos/10157113888389316/?t=32 #JrNationals2018 #albinismawareness


5

Shout out to NOAH siblings JAK and Korryn for being featured in the new Official Music Video for "All of the Noise" by the band Castlecomer! Check it out at https://www.youtube.com/watch?v=m8e1zjhxEH4 #albinismawareness


0

Join us in congratulating this year's NOAH Space Camp for Interested Visually Impaired Students (SCIVIS) Scholarship Winners: Gabriel M., John T., Leah S., Lilith H., Nicholas W. and Owen D.! We can’t wait to hear about your out of this world adventures at Space Camp, Sept. 29-Oct 4, 2018. #spacecamp2018 #NOAH #albinismawareness #reachforthestars


0

Today, we find Mike in Reno, Nevada at the Association for Education and Rehabilitation of the Blind and Visually Impaired (AER) International Conference, spreading #albinismawareness #WheresMike #ThankYou


1

Isabella and Hammad join 14 other amazing teens on NOAH's #TeenSpotlight page! Get to know them all at www.albinism.org/teenspotlight! #WebsiteWednesday


0