Good News And Bad News
We got my bone marrow biopsy results back... they were normal. So while it's good that there's no malignancy & we are very thankful for that, I'm heartbroken at the same time. If there had been signs of the malignant systemic Mastocytosis blood disorder, there would have been a medication that could potentially have significantly reduced my symptoms and allowed me to function again. I was really hopeful for that.
Here’s the unfortunate truth: I don't really have any treatment options right now and that’s scary. I don't have any doctors that seem to know what to do with me or have any clue how to get me to improve. At this point it seems that I've exhausted all the treatment options. We are praying for a door to OPEN so I can do SOMETHING to improve. I've been in bed every day for months, in so much pain. I appear to be getting worse not better and Sean & I (and my mama) are all just completely exhausted and scared.
I'm in shock mostly. It doesn't seem possible that in 6 years of fighting (Lyme Disease, EDS, POTS, MCAD, MALS, Fibromyalgia, Gastroparesis, Mold Toxicity & severe chronic pain) I still haven't found any improvement. I don't know where to go from here. I'm praying constantly for relief and for hope and for more options.
I trust God even still. I’m remaining hopeful and positive. I’m so thankful for our LuLaRoe community of incredible women that cheer me on & allow me to be part of their lives. I’m thankful for church family & sweet friends & little cards and notes of encouragement. I’m thankful for my hubby & my family & my sweet dogs. II’m thankful for soft blankets & fuzzy socks & precious prayers. I know HEALING is still coming for me, but the waiting isn’t easy.