#kidneywarrior

Instagram photos and videos

#kidneywarrior#dialysis#kidneytransplant#kidneydisease#kidney#dialysiswarrior#toughqueen#lifecontinues#donatelife#spoonie#figther#love#singer#ckdwarrior#kidneys#organdonation#kidneyawareness#kidneytransplantrecipient#invisibleillness#kidneyfailure#blessed#kidneydonor#freelanceartist#donate#fathersday

Hashtags #kidneywarrior for Instagram

Dear jodohku.....
Insya Allah semakin giat melangitkan doa, entah doa km atau doa ku yg akan duluan diijabah Allah swt, aamiin
#dunianyania #niaandriani #happylife #kidneywarrior #capdwarior


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Angela went on #dialysis in 2008 and she faced many challenges including depression and isolation. But she fought back, became a patient advocate and started a non-profit called For Kidney's Sake, which help patients reduce isolation by creating opportunities to meet others who are facing similar challenges.
Angela was also honored as an American Kidney Fund Hero of Hope in 2015 for her commitment to making life better for the patients in her community.

Read more about how Angela helps and inspires other #dialysis patients. Link in profile!
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#MondayMotivation #dialysis #kidneydonor #kidneywarrior #kidneyhealth #kidneytransplant #kidneyfailure #kidneydisease #giveback #kidneynation #quotestoliveby


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I know it’s a day late but I wanted to give a special thanks this Father’s Day to my Dad... my rock... my kidney donor.
When I first found out I was going to need a transplant he didn’t hesitate for one second to offer me his. He went through all the testing, flew out to where I was living and gave me that kidney. No problem. No second thoughts. He just did it.

The surgery for donors is usually harder on them than the surgery is for the recipient. Knowing this didn’t faze him one bit. He knew I needed a kidney, he had an extra, and did what came naturally to him.
I can never describe how thankful I was for his gift. And I’ll never really get over the fact that my FSGS ruined it within 8 months.
I felt like a kid who can’t have nice things because they break them. 😂

While I don’t get to see him often enough... when I need him and ask for help he’s always there.
Thanks Dad for being you and doing what you could do to try and save me.
I’ll never forget that amazing gift.
I’ll never be able to repay you.
But know that I love you!! •




Repost @getloudforkidneys



#happinessisajourney #chronicallybridget #fatherdays #dad #FSGS #ESRD #chronicillness #invisibledisease #spoonie #nationalkidneyfoundation #nephcure #americankidneyfund #dialysis #dialysislife #hemodialysis #transplantlife #transplant #kidneytransplant #givethegiftoflife #organdonation #donatelife #thewaitinglist #straightouttakidneyfunction #kidneywarrior #donate #organ #kidney


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Dramatic emo post alert 🚨:
Dialysis runs my life! It dictates everything. Doctor appts twice a month, ordering supplies once a month, delivery of those supplies every month. My house has supplies, boxes, random masks, hand sanitizer and medication everywhere. I have to time and plan my life with being on and off the machine in time. I don’t get breaks. I was told by a customer that “I don’t look sick” I hate hearing that, but I guess it’s a compliment. Haha. Trust me, I feel it! I try to remain positive about the whole thing, I have no choice...I can’t just stop doing dialysis...(as much as I would LOVE that) I am being dramatic, but I am allowed to! 💚👑 #endpkd #dialysissucks #kidneywarrior #donatelife


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Cut 3: Dance with my Father- cover song by Naomi Jackson.
#fathersday #singer #freelanceartist #ckdwarrior #toughqueen #dialysiswarrior #missmypapa #figther #mrsjac#dancewithmyfather #kidneywarrior #lifecontinues #lasvegassinger ##lasvegas #lasvegasband #curlyhair
For full video: check-Naomi Tamayo Jackson- on FB.


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Everything I do🙋🏽‍♀️ I do it for @winter.lynnn‼️When you have a daughter you just move different🤞🏽I care about what Winter think of me‼️And when people tell me she act just like me when I’m not around makes me smile. 📸@noigELEL #momcrushmonday #mommacrushmonday #mine #blessed #favored #alwaysandforever #beautyandbrains #level14 #kidneydisease #kidneywarrior


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Back on track, today's walk 💕
#type1strong💙
#cardiomyopathy
#kidneywarrior


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Cut:2 Dance with my Father- cover song by Naomi Jackson.
#fathersday #singer #freelanceartist #ckdwarrior #toughqueen #dialysiswarrior #missmypapa #figther #mrsjac#dancewithmyfather #kidneywarrior #lifecontinues
For full video: check-Naomi Tamayo Jackson- on FB.


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Happy Fathers day papa. I miss you!
Although I grew up without you in our side while growing up . At 6 years old you left for work and never came back and just fade away, Its hard but It makes me more stronger and had to fill your role in our family as the eldest among 5 kids and helping my mom since i was 6. But everytime I miss you, I can still remember how we both love to sing 🎤. You were playing the guitar in our balcony and always makes me sing and while waiting for my mama to finish while cleaning the dishes so we can all go to sleep. I love u papa and we miss u! 😢😢❤️ You were the one who taught me how to sing and i can still remember how beautiful your voice is, thats why i love singing. I got it from you!:) this song is dedicated for you Papa Saturnino and to all the Fathers in the world. Happy Happy Fathers day!!!! ❤️ Dance with my father- cover song sang by Naomi Jackson-
#fathersday #singer #freelanceartist #ckdwarrior #toughqueen #dialysiswarrior #missmypapa #figther #mrsjac#dancewithmyfather #kidneywarrior #lifecontinues
For full video: check-Naomi Tamayo Jackson- on FB.


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Today is Father’s Day, and while I’ve always thought Mario was a wonderful dad and husband, this year is extra special. It’s extra special because this year he was fortunate enough to be able to give Marina a chance at a healthier life by being her living kidney donor. I say we are fortunate because many times parents, siblings, family and friends get evaluated to be a living donor and sometimes they may not be compatible. Since the first time the doctors discussed the topic of living donors since Marina’s kidney condition was stable, I knew Mario would be a match. When Marina was born, we did not have the opportunity to hold or bond with her. Instead, she was rushed to the NICU after being resuscitated and Mario rushed with the team since they needed a consenting parent. He always tells me he can recall the team telling Marina’s attending NICU nurse that night that they did not anticipate her making it over 24 hours because of the severity of her illness. He knew she would beat the odds because despite how sick she was, Marina found the strength to hold Mario’s finger with a tight grip. That day was not only the day of her birth, but it was also the birth of an inseparable bond between her and Mario. This year, their bond was only proven to be stronger than ever. Wishing Mario, our Dads, brothers, uncles, cousins and friends a wonderful and Happy Father’s Day! #daddyismysuperhero #kidneydonor #kidneyrecipient #kidneytransplant #kidneywarrior #pkdwarrior


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When you have a chronic illness you need all the support you can get. So having a best friend that goes with you to chemo is the best!

#chronicillness #friends #bestfriend #loveyourself #chemotherapy #kidney #kidneydisease #embraceyourscars #support #supportivefriends #chemosucks #ckd #nephcure #nephroticsyndrome #fsgs #kidneywarrior #💚 #weheartkidneys


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Go check out our new polls on our story! Either on your feed or on our account in the section Q&A!
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#polls #stretchmarks #loveyourself #fsgs #nephroticsyndrome #kidney #kidneydisease #kidneywarrior #kidneydiseasesucks #kfc #protein #kid #teen #questions #answer #beauty #makeup #mua #love #art #nofilter #makeupartist #look


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Trying to show off one of my tattoos like (it’s not obvious, right?) 😂😂 #Hype #Jk #Selfie #SundayFunday #FathersDay #FamilyTime #Colombiana #DonateLife #GiftOfLife #KidneyWarrior #KidneyTransplant


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Jumat, 15 Juni 2018
305 ON HD
Tensi 186/93/64
BB 56 Naik 1kg dari berat pulang 55
BB kering 54
Ditarik 2.5kg
Lama HD 4.5 jam
QB 230
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Keluhan sebelum cuci darah :
Obat yang diminum sebelum cuci darah : amlodiphin
Keluhan selama cuci darah : sakit kepala, sakit punggung
Obat yang diminum selama cuci darah :
Obat yang disuntik selama cuci darah :
Keluhan setelah cuci darah:
Obat yang diminum setelah cuci darah :
Obat yang disuntik/dikasih setelah cuci darah :
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#lucylicious74
#lucylicious74dialysisjourney
#dialysisjourney
#patient
#kidneydisease
#chronickidneydisease
#kidneywarrior
#hemodialisa
#hemodialysis
#dialysis
#hemodialysisnurse
#hospital
#instamoment
#instalike
#instamood
#instagram
#photooftheday
#instalove
#mylovely
#husband
#hubbyandwifey
#love
#soulmate
#mybodyguard
#mybodyguardsforlife
#myotherhalf
#picture


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Show it how it is. Still healing and a little lop sided from the swelling around incision. Tho I keep hitting rough patches and I keep hitting brick walls I keep going. I stay strong and I keep hope and am optimistic that next time I will shine. #kidneywarrior #hope #keepmovingforward #staystrong


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If anyone is interested in supporting a great cause and a great little fighter check out Erin's page @sillykidneys such cute things 💚♻️💚 #Repost @getloudforkidneys (@get_repost)
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This is cutie pie Erin, kidney warrior and creator of @sillykidneys ☝️website in bio👆She was diagnosed with FSGS kidney disease when she was 6. Now she's 8, the disease is in full flare yet she's still raising awareness for kidneys with her Silly Kidneys! Check out their online shop ☝️in bio👆and support Erin's amazing awareness efforts. #kidneywarrior #sillykidneys #kidneyawareness #awarenesscreateschange
#Repost @sillykidneys
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#spreadingtheword about Silly Kidney Build-a-Kidney kits and #raisingawareness for #chronickidneydisease #thatshirtthough #adultneys
#cuteness #outofhercomfortzone #kidneygirl


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So my stomach went from being on fire 🔥 to me just turning into charmander. Like usual 🤬. Fuck you stomach. Anyways, it hurts and I’m smoking but it still hurts and idk how or why I’m hungry and craving things when I’m just making pixie dust come out of my mouth non stop 🛑 . The joys of being Diana 👊🏼. How are you? ☺️
#SwearImNice
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#spoonie #chronicillnesswarrior #kidneywarrior #spooniestrong #spoonieproblems #GERD #GIWarrior #chronicNausea #chronicpain #invisibleillness #butyoudontlooksick #chronicallyill #fighter #spoontheory #myGut #regurgitating #regurgitation #Flare #flareUp #painsomnia #bedbound#invisibleillness #spooniesisters#nailsofinstagram


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because I love you, I will find a way to be your light, even when I am at my darkest.
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#instagood #instaart #love #view #perspective #wonderspaces #sandiego #vscoart #moodyport #strength #kidneywarrior #lights #art #photography #quotes #smile


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Sandra Kisselback won Honorable Mention in RSN's 12th annual Essay Contest for her essay titled “Temporarily Speaking." Read her essay at RSNhope.org, enter Web ID 954 in the search bar. Enter to share your story by August 10th!


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Did you feel that?
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When i recently Googled "when should I start dialysis", in the list of results was the above. Obviously as i hadn't Googled that, i was extremely shocked! But the message i got from that result was clear. I needed to make a decision about when i would begin dialysis. Also the previous week, my nurse had explained to me that, the longer i left it, the more likely i would be creating irreparable damage, which would result in me taking longer to get on to the transplant list. If i did at all.
So here we are, a decision has now been made. My GFR is a measly 7, and creatinine 529 at the last count. My plan was to try and get a kidney before i needed dialysis. But honestly that definitely isn't going to happen now. So I've decided, all being well, or more precisely 'unwell', I will begin when my creatinine is 600. Until then...... WAHEY!!! 🤣 (when im not feeling nauseous, knackered, in pain or miserable) and no i didn't read the symptoms list.😊
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#kidneyblessings #kidneyfabulous #kidneyblessings #fingerscrossed #wishingandpraying #kidneyfailure #kidneywarrior #kidneyclever #kidneydisease
#kidneywarriors #ESRF #chronichealthconditions


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Friday socks.#owl socks #purple socks. I couldn't pack all my costume stuff so I just am wearing purple and purple socks to dialysis while on my #vacation
They said they would pull off fluids today. I'm hoping they do. My stomach really hurts from all this extra fluid.

#REMEMBER
#DialysisKeepsUSalive
#PleaseBeAnOrganTissueAndBoneMarrowDonor
#YouHaveToMakeItFUN
#dialysissocks #dialysis #socks
#sockfun #funsocks #sockgame
#sockselfie #sockobsession
#onecanneverhavetoomanysocks
#kidneys #kidneywarrior #PKD #neuropathysucks #spoonie
#wigfun #makeupfun #jewelryfun #jewelry


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"Her lips
Her cheeks
Her eyes
speak for themselves
She's a #KIDNEYWARRIOR " .
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Thank you to my sister @joysauce who took this gorgeous night shot. She wanted to bring awareness to kidney disease, auto immune disease, and other growing illnesses that we and our children face and children's children face. As she stated, "take care of yourself, don't give up. Take your time. Do what you gotta do even if you lose 'friends' in the process. Ignore the noise and take care of yourself.".
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check out her out 📸: www.joysauce.net


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LAST NIGHT WAS EPIC 🎉 We celebrated life at @theredpianosb and supported Lerone in his search for a kidney donor. HUGE thank you to @jasonlibs @lesbrambles and @bryantitustrio for helping #santabarbara GET LOUD FOR KIDNEYS! We know we raised just over $6,000!💸👏 THANK YOU to everyone who came out and made this event such a success! If you still want to DONATE you can do so on our website - 👉👉👉 www.getloudforkidneys.org
#getloudforkidneys
#kidneyawareness
#kidneywarrior
#kidneystrong
#bethechange
#getloud #standupforchange #kidneydisease #awarenesscreateschange


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just wanted to show off one of my kidney sister's baby bump!!! Regrann from @lalaluvely - I spot a growing bump 🤰🏽👀. On my way to exercise. #happyfriday #pregnancy #pregnancyaftertransplant #pregnancyafterkidneytransplant #momtobeagain #kidneywarrior #kidneytransplant #kidneytransplantrecipient - #regrann


7

I naively thought life on dialysis was the worst thing I’d ever have to go through.

I thought once I received this transplant that Life would be easier from then on out.

And not to be all “woe is me” or “fml” but FUCK!! I’ve survived child abuse, molestation, rape, depression, suicide, divorce, and kidney failure (twice) but none of it compares to this agony.
I watched them try to bring her back.
And then

I told her doctors they could let her go.
I let her go.
I was with her when she passed.
I made phone calls I never imagined making.

All I want to do is SCREAM!

There is no silver lining.
There is no bright side.
There is no positive spin on this.

A lesson?

Yeah.
Call your mom more.
Spend more time with her.
Forgive her.
Accept her as she is.
Make sure she knows just how vital she is in your life.

She may not be everything you want or need, but she damn sure is everything she can be.
Just as you are.

So just love her.
Just fucking love her.

#grief #guilt #regret #love #void #esrd #kidneywarrior #dialysiswarrior #heartache #pain #sadness #life #missingmom


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I try never to think of the bad things that could happen to my boyfriend's health or to my health.. I block out those thoughts by taking a breath and telling myself to have Faith and really feeling the faith I have. It works for me.
#kidneytransplant #kidney #kidneywarrior #blessed #donatelife #doublelungtransplant #cysticfibrosis #organdonation #keepthefaith #stayingpositive #positivethinking #faith #65roses #dialysis #kidneydialysis


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❤️The only time I’ve been able to sit up in the past 24 hours was for me to sip on soup. I’ve been able to walk around and make my shakes and food here and there. But it hurts to walk and keep myself up. My insides are still killing me and it feels like I’m sore from a workout except it hurts to walk and it hurts to breathe. When I tried to sit up to eat, all I could feel was a burning pain all over my back and my legs. Then I just passed out. If the pains too much, I haven’t been able to deal with it very well like I’ve been able to before. Idk what it is but it’s been really hard. It’s hard to take 2 steps forward and 20 back. It’s just out of my control. I tried twice today to open a palette and do things but I can’t. It’s just too painful right now. My bed and sleep is the only thing I can do. 😓
#spoonie #chronicillnesswarrior #kidneywarrior #spooniestrong #spoonieproblems #GERD #GIWarrior #chronicNausea #chronicpain #invisibleillness #butyoudontlooksick #kronic #chronicallyill #fighter #spoontheory #myGut #regurgitating #regurgitation #Flare #flareUp #painsomnia #invisibleillness #spooniesisters


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Esok adalah harapan..
Sekarang adalah kenyataan..
Kemarin adalah kenangan, yang tak luput dari khilaf dan kesalahan..
Ketika tangan tak mampu berjabat,
Kaki tak dapat melangkah.
Hanya hati yang mampu berbisik:
”Minal Aidin Walfaizin Mohon Maaf Lahir Batin”
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#ikcc #ikcc4kidneys #lebaran #idulfitri #eid #mubarak #2018 #indonesia #instagood #friday #tgif #kidney #kidneywarrior


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My awesome #vacation techs! #purple #polkadot socks
I'm getting very frustrated with my #vacay dialysis nurse and home Drs. I have extremely low blood pressure. It normally runs anywhere from 60/40 to 80/60. And when I am doing dialysis get gets lower, much lower. So understandably my nurse is extremely nervous when this happens. So she stops pulling fluids off. (I don't pee so any fluid I eat or drink has to be taken off with dialysis) Well this has not been happening. I am up over 15 pounds of fluid. My face is swollen, my legs are swollen and my stomach are swollen. My lose pants are uncomfortably tight. If she doesn't take fluid off tomorrow it is going to go around my heart and lungs. Causing me to have to go to the hospital. I have asked my home Drs to help. They say they can't. I finally had to call my dialysis complaint line. They gave me numbers to call on the morning, but if they don't help, I get to spend part of my vacation in the hospital. So not necessary. I only had 6 dips of liquid today. I've been so nauseas I've couldn't eat all day. I was finally able to eat some toast.
It's not my fault I have low BP. The medicine you can take to raise it did absolutely nothing.

Prayers would be appreciated and thanks for letting me vent.

#REMEMBER
#DialysisKeepsUSalive
#PleaseBeAnOrganTissueAndBoneMarrowDonor
#YouHaveToMakeItFUN
#dialysissocks #dialysis #socks
#sockfun #funsocks #sockgame
#sockselfie #sockobsession
#onecanneverhavetoomanysocks #polkadot #purple
#kidneys #kidneywarrior #PKD #neuropathysucks #spoonie
#wigfun #makeupfun #jewelryfun #jewelry


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Please keep angel in your prayers he will be going in for kidney transplant surgery today June the 15 glory to God. Please also keep his living donor his sister in prayers as well, may the lord bless her for saving his life. May surgery be a success and for a miraculous speedy recovery. In Jesus Christ mighty name. Amen ty god bless you all #beadonor #savealife #kidneywarrior


6

Her lips,
Her cheeks
Her eyes
Speak for themselves
#KIDNEYWARRIOR
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📷 FUJIFILM XT-2

Something different from my growing client photos and landscape art, but still 100% me. I want to bring awareness to kidney disease, auto immune diseases and the growing illnesses that we and our children and children’s children will face. As one who has suffered from #GravesDisease for 3 years, I can say, IT’S COOL TO BE HEALTHY. How the fck are you going to find your potential and light the world on fire when you aren’t spiritually, emotionally and physically well? Take care of yourself. Don’t give up. Take your time. Do what you gotta do, even if you lose ‘friends’ in the process. Ignore the noise & take care of yourself. This post became a mom post lol, but i whole heartedly mean this

Thank you to my sister @iris.mazon for being my muse! Any models wants to collaborate? DM me!

#fujifilmxt2 #sandiegophotographer #sandiegoart #socalphotographer #sandiegolifestylephotographer #sandiegoportraitphotographer #visualambassadors #artofvisuals #buildandbloom #creativeportraits #portraitmood #pursuitofportraits #fairylights #moodyports #portraitkillers


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Life has knocked me down many times, it showed me things i never wanted to see. I experienced tears, sadness and failures, but one thing is for sure... ill always GET UP!! 💪🏼🙏🏻❤️ #bouldering #lasvegas #redrocknationalpark #familybonding #hiking #stayhappy😊 #toughqueen #naomij #toughqueen #ckdwarrior #lifeisbeautiful #lifecontinues #dialysiswarrior #strongmindbodyandspirit #kidneywarrior #figther #kidneywarrior #kidneytransplantneeded #kidneydonorsrock #kidneydonorneeded #savelives #savealife


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Do you want to live a healthier life, but don’t know where to begin? Would you like to improve your diet, increase your activity level, or just instill healthier habits? Here are a few Internet resources to help you get started. RSNhope.org, enter Web ID 402 in the search bar.


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If you're wondering why I'm living my BEST life, why I'm so happy, why I'm always posting/talking about my story, it's simply because I MADE IT! SUPPORT is such a Blessing, had it not been for my family & sister-friends this would have been impossible. This post is about being a support system for someone; you never know how much a text, DM, call, card means to someone sick or going through a tough time. You don't have to have a close relationship or even be friends. Before I was sick I had countless of "friends" but only a handful stayed by my side when I wasn't in my prime. I didn't post what I was going through but let me tell you it was REAL & I was REALLY sick (in this photo I drank to much fluids & was essentially drowning and didn't know it, my lungs were so full that I could barely breathe, I had a panic attack & didn't even remember this) .. MAKE IT YOUR BUSINESS to check on someone today, even if you don't know exactly what's going on, see if they are okay, let them know you are thinking of them 💚#TBT #ForeverSharingMyStory #kidneywarrior #kidneytransplant #kidneytransplantrecipient #kidneyfoundation #support #almost3months💚💚


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At the 3rd annual KidneyNation NetWalk, Long Island businesses came together to raise awareness and more than $11,000 for AKF! Create your own event fundraiser like this by signing up at the link in our profile! .
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#kidneynation #kidneydisease #kidneywarrior #kidneydonor #kidneyfailure #kidneyawareness #CKD #kidneys #fundraiser #fundraising #nephrology #donate #giveback #honor


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Arthur DeBose won 2nd place in RSN's 12th annual Essay Contest for his essay titled “D.R.I.N.K.." Read his essay for inspiration at RSNhope.org, enter Web ID 952 in the search bar. Share your story by August 10th!


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Big news!! We’re launching our first giveaway today to celebrate all of YOU! Tell us why you celebrate life and you might just win a weekend trip to Houston to celebrate with us (valued at $3,000)! Enter via the Contest tab on our Facebook page, on our website or just by using the hashtag #TLBCelebrates50! Share with your living organ donor and recipient friends, too! Link in bio.


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You see my fav @dalyasymone supporting in her green and closing out the day getting our walk on! Today, I walked because there was a day I didn't have the energy to walk from the front of the house to the back of the house. #kidneydiseaseawareness #kidneywarrior #GirlTrek


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10 years...some dates you don't forget! I was diagnosed with #FSGS collapsing variant...kidney disease. I thought life was pretty much over, I was so sick then. But, God is a keeper, a sustainer and a redeemer! I became a better person after diagnosis! I went back to school, achieved my bachelor's degree, won a scholarship that led to my full-time job... #blessed. Thanks @awarecauses for my necklace that shows my support for #kidneydiseaseawareness! By the #grace of God, I'm a #kidneywarrior


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Keith Matthews won Honorable Mention in RSN's 9th annual Essay Contest for his essay titled “The Odd Ones." Read his essay for inspiration at RSnhope.org, enter Web ID 303 in the search bar. Enter to share your story by August 10th!


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Every day we wake up is a gift. Every year older we get is a blessing. I’m reminiscing about past birthdays (the good and the bad) and appreciating the beauty in each one.
Join me on a trip down memory lane. •
New blog post is up! LINK IN BIO 👆🏻



#happinessisajourney #chronicallybridget #FSGS
#ESRD #chronicillness #invisibledisease #NKF #nationalkidneyfoundation #nephcure #AKF #americankidneyfund #dialysis #dialysislife #hemodialysis #transplantlife #transplant #kidneytransplant #givethegiftoflife #organdonation #donatelife #thewaitinglist #straightouttakidneyfunction #kidneywarrior #fuckcancer #donate #organ #kidney #birthdays #vegas #cupcakes


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