#neuropathysucks

Instagram photos and videos

#neuropathysucks#neuropathy#chronicillness#diabeticneuropathy#neuropathicpain#nervepain#peripheralneuropathy#spoonie#diabetes#autoimmunedisease#nervedamage#chronicpain#socks#kidneywarrior#PKD#makeupfun#jewelryfun#wigfun#REMEMBER#DialysisKeepsUSalive#jewelry#YouHaveToMakeItFUN#dialysissocks#dialysis#sockfun

Hashtags #neuropathysucks for Instagram

Yeah, baby I like it raw 💨
These first few workouts since falling ill - they are like war against myself & an evil invisible torture device, but #maryjane got my back. Literally couldn't do it without her.

#neuropathysucks
#cannabislifestyle #420art


1

WOKE UP TODAY HAVING MAJOR FLARE UPS!!! SUCKS!!!! Imagine! Put your hand on a hot stove burner and burn yourself pretty bad till it blisters or stick you hand or feet in a bucket of ice and leave it there for 3years!!!! Throbbing Aching Burning Muscle Spasms!! This is CRPS And This IS WHAT I LIVE WITH EVERYDAY!! And so many others too!! I don’t ask for pity I ask for understanding and get knowledgeable about this and neuropathy because it is becoming More And More prevalent in our society!! It is also an auto immune disorder so when you flare up it can break your immune system down to the poor of getting sick on a regular basis small stressful thing create extremely painful flare ups!! Things that Normally we deal with in a normal basis!! I wouldn’t wish this in my worst enemy!! It Breaks you Mental state down and then try’s to attach your Spirit which is the most important thing we have!! Just wanted to educate people on this disorder! It is called “ The Invisible Disease” Because Most Times you look normal,but inside your body is attacking itself and trying to kill body parts, nerves etc etc!! There is No real cure at this time and I Pray every day they will find one before it gets extremely worse!? Like I said I’m not whining or bitching I try real hard not to let people know how much pain I am in so that I don’t ruin There day and this has happened people seam to walk away or gravitate away from anything negative or painful!? IT IS VERY SAD!! I have friends that R way worse than me and they literally have to be put into a ketamine COMA for a week at a time in order to have some form of a normal life!!?? I really appreciate if you have read this and try to understand! PEACE OUT ✌🏻 #crpsawareness #crpssucks #neuropathysucks #ptsdsucks #painfull


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Take the next step with confidence! ✨ Neurotiva is a multivitamin with the purpose of helping aid common symptoms seen throughout Neuropathy patients. Our formula is crafted with care to help reduce inflammation and provide relief! 🤗 Check it out at www.neurotiva.com 💚
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#neuropathyfighter #neuropathicpain #neuropathysucks #neuropathy #nervepain #nervepainsucks #nerves #nervedamage #diabetes #diabetesawareness #diabeticfoot #autoimmunedisease #diabeticneuropathy #neurotiva #multivitamin #peripheralneuropathy #chronicillness #chronicpain #autoimmunewarrior #allnatural #numbness #tingling #burning #inflammation


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Happy Wednesday Warriors! 🍃 Neurotiva is a proprietary blend of all natural ingredients, which focuses on raising vitamin levels that are seen as deficient in people with Neuropathy and contains antioxidant properties that may help with Neuropathy symptoms; tingling, numbness, burning, nerve pain, and fatigue. Click the link in our bio to learn more! ✨
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#nerves #polyneuropathy #chronicpain #burning #neuropathic #numbness #neuropathicpain #chronicillness #nervepain #neuropathy #nervedamage #diabetes #type1diabetes #diabeticneuropathy #autoimmunewarrior #autoimmunedisease #neuropathysucks #neuropathystrong #neurotiva #multivitamin #tingling #fatigue #burning


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I hate it when I can sleep!
#neuropathysucks


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Yeah! I get to live for another week! I absolutely hate taking pills. It's my goal to be off of as many as possible within 2 years. #diabetessucks #neuropathysucks


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July 4th 2018 with Suzy my new dialysis mate. She likes to dress up for the occasion too. She is a boy to get to know! I wish is was in different circumstances but she is awesome and definitely a bright spot in my life!!! 💜💜💜


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Hey Warriors!🌞 It’s HOT so make sure to drink plenty of water this summer! 💦 Drinking a lot of water will help in the reduction of toxins and reduce inflammation as well as all the other important things water does for your body. Stay hydrated, Warriors! .
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#neuropathy #neuropathicpain #neuropathysucks #water #drinkwater #nervepain #nervedamage #chronicillness #autoimmunedisease #nervedamage #chronicpain #selfcare #diabetes #diabeticneuropathy #peripheralneuropathy


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#neuropathysucks
I’ve been painting wine glasses this past weekend... but the neuropathy in my hands have gotten the best of me and I broke my almost completed glass. 😢Yesterday two champagne glasses shattered all over the kitchen floor because my hands went numb after washing the glasses so I could paint them. Though I have another wine glass sitting on the desk ready to be painted, I kind of lost the desire to paint it because I’m so frustrated with this sudden onset of neuropathy in my hands these last couple of months. Truly hoping the appointment with the neurologist will be beneficial and provide some solutions. #brokenwineglass #neuropathy #pheripheralneuropathy #numbness #frustratedspoonie #whyisthishappening #chronicillness


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#lupussucks #fibromalgiasucks #arthritissucks #neuropathysucks #prayforacure

Pretty soon, I'm not gonna be able to do it anymore. My make up or hair alone. And that's scary and breaks my heart...I just wanna feel normal again. I just want to be normal. Not perfect. Just less pain maybe? Something. Anything.


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No joke today. Neuropathy pain is hurting so bad and is preventing me from working & chasing around my son. Need some CBD in my life asap!
#frustrated #painful #tearingmedown #cbdplz #neuropathysucks #irritating #prayers #positivevibes #hopeful


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Not the most exciting exchange when you read it, but if you knew how frustrated this client has been with neuropathy that’s been progressively getting worse with his feet - this is exciting stuff! 👣
Myofascial Release on the feet is what we did. Hoping for more relief from the neuropathy and more low key exciting responses from this client. 😁
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#neuropathysucks
#neuropathy #diabetes
#myofascialrelease #mfr
#relief #thursday #eastaurora #eastaurorany #orchardpark #elma #westseneca #buffalo #buffalove #buffalony #wny #716


2

Did you know... Walnuts are a great source of omega-3 fatty acids? ✨ They contain iron, zinc, selenium, vitamin E and other B vitamins! Walnuts also have powerful antioxidants, which reduce inflammation. Make walnuts a part of your diet by having them as a snack or add them to your favorite salad! 🍴
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#neuropathy #neuropathicpain #neuro #neuropathysucks #neuropathic #walnut #autoimmunedisease #diabetes #diabeticneuropathy #type1diabetes #peripheralneuropathy #nervepain #nervedamage #chronicillness #chronicpain #omega3fattyacids #inflammation


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Captain Moroni socks from @bomsocksaredabom I wore these before the 4 of July, but my app glitched and erased my collage. I've either been too lsxy or depressed to remake. Making myself get out of my funk. Wearing #camouflage to show support for our Great #military
#REMEMBER
#DialysisKeepsUSalive
#PleaseBeAnOrganTissueAndBoneMarrowDonor
#YouHaveToMakeItFUN
#dialysissocks #dialysis #socks
#sockfun #funsocks #sockgame
#sockselfie #sockobsession
#onecanneverhavetoomanysocks
#kidneys #kidneywarrior #PKD #neuropathysucks #spoonie
#wigfun #makeupfun #jewelryfun #jewelry
#bookofmormon
#CaptainMoroni


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Hey Warriors! 🍃 Exercise can help improve neuropathic symptoms by reducing pain and improving nerve fiber branching! Try moderate-intensity aerobic exercise like brisk walking or cycling but also make sure to work your major muscle groups. Make sure to get at least two and a half hours of exercise in each week! 🌞
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#neuropathy #neuropathicpain #neuropathysucks #neuro #neuropathic #exercise #diabetes #diabeticneuropathy #nervepain #peripheralneuropathy #spoonie #neurotiva #autoimmunedisease #nervedamage #chronicillness #chronicpain #invisibleillness


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Serious lack of sleep. Too tired to keep my mind on what needs to be done. 😏
#handforged #handmade #getyourhandsdirty #usewhatyougot #gomakesomething #cokeforge #coalforge #anvil #T1diabetic #neuropathysucks


3

Do you know why I'm more than a little obsessed with feeling stuff underfoot? Why I love going barefoot whenever I can? My faves are long walks on sandy beaches and short runs in soft grassy fields.
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Of course I want to get my feet supple and strong so I can do supple and strong things...
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But mostly it's because I have so many students who can no longer feel much of anything in the soles of their feet. They are in treatment or remission. (Many are probably actually cancer-free but they don't dare let their guard down.)
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They are experiencing a side effect of treatment known as neuropathy. Nerve damage in hands and feet.
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When neuropathy affects the feet, this also affects balance. Everything we do on our feet is a balancing act.
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I see so many older students who struggle so much with this. Some of the lucky ones can get a referral and an appointment with a therapist who specializes in this stuff. The others just keep coming to my class hoping that our practice will somehow be enough.
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I always wonder if these folks would fare better if their feet had already been strong prior to cancer, not atrophied little pieces of junk because of modern footwear and bad advice from podiatrists and poor movement diets.
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Would their feet recover more quickly?
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Be more resilient to nerve damage? .
Would their balance have to suffer so much?
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Would they be at such high risk for falls and other injuries?
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Would they relegate themselves to the couch more often to live even more sedentary lives?
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Would they have less non-cancer related pain in the rest of their bodies? .
Would their quality of life be better?
#basicfoothealth101 #youdonthavetobeadoctortoknowtheanswer #yogaforcancer #neuropathy #neuropathysucks #barefoot #strongfeet #naturalmovement


9

Help. Anyone else have #neuropathy? My current official diagnosis is #peripheralneuropathy - my feet are the worst, then up my legs it gradually lessens. My fingertips are awful, lots of loss of sensation. A patch between my shoulder blades that always feels itchy and has led to scars from scratching. Need a skin biopsy, since neurologist is pretty certain I have #smallfiberneuropathy, with so many #fibro type symptoms. But my questions is -- does anyone notice triggers that cause your pain to flare up?? Today it feels like fire all up my legs. Imagine you shaved with a really shitty, dull razor, in a hurry, leaving a trail of savage razor burn behind. Then imagine you immediately rubbed a cheap chemical-filled dollar store lotion all over it. Imagine that stinging feeling. That's what I feel, from my knees down. I quit Lyrica + Nortriptylin in March, currently don't use pain meds, so I'm using this cooling type pain cream + @valentiaskincare #magnesiumoil spray + ice packs strapped to my shins. It's helping a lot, which is awesome. But... my neuropathy has seemed solidly bad, but stable, and more mild than a year ago. Why is it flaring so bad lately? Are there specific things in your diet, activities, meds, other health conditions, moods, etc that seem to trigger flares? I can't find any commonalities, so maybe your triggers will help me find mine!! #spoonie #spoonielife #chronicillnesses #chronicillness #chronicpain #neuropathysucks #nervepain #legpain #pinsandneedles #autoimmunedisease #ibs #hashimotos #liverdisease #adviceneeded #chronicillnesswarrior #chronicpainwarrior #spooniesupport #spooniesunite #spooniesisters #spoonies #flareup #pain #painrelief


9

Gotta love that neuropathy. Had no idea it was even on wrong. 😆 Most days I miss my feet being in sync with my body, and it hurts. I tell people it feels like fireworks constantly going off under the skin of my feet. #neuropathysucks #chemoneuropathy #cancersucks


3

*FOOT DROP*
Sometimes damage to the nerves or nervous system can prevent messages being sent to the muscles. This can affect the muscles in your feet causing difficulties picking them up when you are walking or stepping. Sometimes certain exercises can help, but often the damage to the nerve is not reversible and exercises do not work. Physiotherapists or orthotists can help talk you through devices that may help to improve your foot drop. This is important in preventing trips and falls. It may seem daunting to wear one of these devices at first, but they are generally very well tolerated.
#footdrop #footdropdoesntstopme #footdroppers #footdropawareness #footdroptreatment #physiotherapy #physio #neurophysio #neurology #health #multiplesclerosis #nerves #stroke #strokesurvivor #neuropathysucks #neuropathy #myopathy #GBS #guillianbarresyndrome #orthotics


0

Did you know... The vitamins, minerals, fiber and photo chemicals in Beets can improve your health?✨ They can also lower risk for diabetes complications and help healing nerve damage in people suffering with diabetes! Beets increase energy levels, lower blood pressure and boost immunity. Remove the thin skin from the Beets, add them to your salad or soup or you can roast or steam them! What’s your favorite way to prepare beets? 🍴(📸: @littlerustedladle )
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#neuropathy #autoimmunedisease #invisibleillness #chronicillness #nervepain #nervedamage #neuropathic #neuropathysucks #neuropathicpain #diabetes #diabeticneuropathy #diabeticfoot #peripheralneuropathy #spoonie #beets


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Sadly many know exactly how this model feels. .
#neuropathy #pinsandneedles #neuropathysucks #chronicillness #cacti #cactus #desert #bikini #pain


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Hey Warriors! NeuroTiva is a multivitamin focusing on solutions for specific nerve pain conditions such as: diabetic neuropathy, peripheral neuropathy, general nerve pain🌿
Tag someone you think this could help in the comments below! 💚
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#neuropathy #neuropathicpain #neuro #neuropathysucks #neuropathic #diabetes #diabeticneuropathy #neurotiva #peripheralneuropathy #summer #autoimmunedisease #multivitamin #nervepain #nervedamage #chronicillness #invisibleillness #numbness


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Brussels Sprouts are rich in antioxidants and reduce inflammation! They are an excellent source of Vitamin B1, B6, and Lipoic Acid; all of these are essential ingredients in our multivitamin ✨ They battle and neutralize free radicals which could damage healthy tissues and help maintain blood sugar levels. Brussels sprouts also have vitamin C, K, fiber and omega-3 fatty acids! Add Brussels Sprouts to your diet by roasting them and adding a balsamic glaze 😍
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#neuropathy #neuropathicpain #neurotiva #neuropathic #neuro #brusselsprouts #peripheralneuropathy #diabetes #autoimmunedisease #diabeticneuropathy #neuropathysucks #type1diabetes #chronicillness #chronicpain


0

As Dr. Frank Lipman said, “Health is more than merely the absence of disease. It is a total state of physical, mental, emotional, spiritual, and social wellbeing." 👟

As your health coach I want to empower you to make behavioral changes that are the foundation of lifelong health. Together, whether that be virtually or here in my office in Westlake Village, lets take hold of your health and turn things around. I want to help you grow 🌱


9

Sigh.... awwwe..... and exhale. .
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Made it to my mom’s house courtesy of my fabulous mom and I couldn’t be happier. She flew in from the Midwest yesterday and then swept in and started caring for me immediately. Because....well, she’s just that kind of mom. .
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And as soon we arrived in Monterey after a 5 hour drive, she kicked into Mom action and put together a cane (thanks chemo for the neuropathy!) and then put up the shower handles so I don’t tip over walking or showering.
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So, now as we sit in her home in the country looking outside, listening to a few birds and some silence, my mindset has begun to shift. Healing, peace and harmony are what’s on the forefront of my mind. And there’s no place I’d rather be and heal than at home with my mom. .
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Mostly, I feel hope for the first time in several days and that means the world to me. There is light at the end of the tunnel.... there really is.... and I think I see a glimpse of it. Thanks to my mom ❤️
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#healing #healingenergy #grateful #gratefulheart #thankful #neuropathysucks #neuropathy #mymomisthebest #mymomrocks #lovemymom #caregiving #chemo #momtotherescue


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#vitalscanrocks Authorized Sales Agent ❤️VitalScan is a valuable Autonomic nervous system (ANS) and Sudomotor testing tool - Autonomic Nervous System (ANS) includes: Sympathetic Nervous System vs ParaSypathetic Nervous System ❤️ is a division of the peripheral nervous system that supplies smooth muscle and glands, and thus influences the function of internal organs. The autonomic nervous system is a control system that acts largely unconsciously and regulates bodily functions such as the heart rate, digestion, respiratory rate, pupillary response, urination, and sexual arousal. This system is the primary mechanism in control of the fight-or-flight response. ❤️ #autonomicnervoussystem #sympatheticnervoussystem #parasypatheticnervoussystem #medicaldevicesales #medicaldevices #medicaldeviceagent #superagentellie #vitalscanrocks #hiddenillness #medicaldiagnosis #autonomicneuropathy #diabetic #diabetes #diabeticneuropathy #diabetesawareness #stress #stressed #stressrelief #stressmanagement #neuropathy #neuropathysucks


0

"Mikey to me for a ride in his truck today. I'm much cooler now on the ride home. Just in time because it's getting hot again." - Poco Puppy .
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#pomeranian #pom #pomeranianworld #dog #mansbestfriend #therapydog #Iknowmarfan #chronicillness #marfansyndrome #trigeminalneuralgia #tnwarrior #neuropathy #neuropathysucks #painmanagment #neverquit #nevergiveup #survivor


3

🐒Aqui les comparto parte de mi cuadro de Dolor crónico intratable por lesión directa a los nervios tras herniorafia inguinal izquierda, lesión a los nervios: femoral,ilioinguinal, genitofemotal ,rama clural... Hernias discales en zona lumbar, artrosis en cadera (resultado de múltiples bloqueos,# 21) fractura en labrum acetabular derecho (pierna "sana") y ahora sumando síntomas de artritis reactiva en mis manos (los medicamentos, infecciones).
Este es sólo una autorizacion médica , pero el cuadro es extenso y todo gracias a un médico que sin ética ni profesionalismo hizo mucho daño en mi.
La vida cambia de un momento a otro, en mi caso en esa cirugía hace casi 10 años , la vida me cambio la perspectiva, las metas, las capacidades.
Solo se que aceptar la realidad y ser concientes de nuestro deber de ser lo más felices posible, no depende de las circunstancias, depende de los pensamientos y del modo en el que nos esforzamos por vivir .
Les seguiré compartiendo más y más y ya verán por que mi afán para regalarles tanta energía positiva🌸 que he aprendido a practicar y a disfrutar pese a cualquier circunstancia.
Cariños a tod@s 😘💐🌈💙 Pau
#sisepuede #dolorcronico #resilencia #dolorintratable #neuropathysucks #neuropatia #atrapamientonervioso #dolorsevero #enfermedadcrónica #sisepuede #vivirbonito


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Grapefruit contains Alpha Lipoic Acid, which is an essential ingredient in our multivitamin! ✨ Alpha Lipoic Acid can help reduce symptoms of Peripheral Neuropathy that can be caused by diabetes. Fruits and vegetables are rich in minerals, vitamins, dietary fiber and may have a mellowing effect on blood sugar. Grapefruits are low in calories but high in antioxidants. They are known to reduce stress and strengthen your immune system! Try eating half a Grapefruit before your meal for the effects to be most beneficial! 🍴
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#grapefruit #neuropathy #diabetes #neuropathicpain #neurotiva #neuropathysucks #neuropathystrong #diabeticneuropathy #type1diabetes #peripheralneuropathy #nervedamage #nervepain #nervepainsucks #painmanagement #nervepainrelief #antioxidants #numbness #nerves #autoimmunedisease #alphalipoicacid


0

I need to research this but if it works sweet Jesus I might be able to sleep again!
#neuropathy #neuropathysucks #nervepain #neverends #cantfeelmyhands #greengirl80 #iwanttosleepagain #hopeitworks #thingsarelookingup


1

Leaving in a jet plane 🎶🎶🎶🎶
Leaving my birth home going to my adult home! 💜💙💚 I've had the best time this month! My brother and sister (in law) nieces and nephews and my super nephews and my most wonderful Uncle Charlie and all my wonderful friends I love you all nose than you know! Thank you Nikki and Sheila for traveling so far! You too Rebecca and Julie! I hope I get to get a few more of you next year
#REMEMBER
#DialysisKeepsUSalive
#PleaseBeAnOrganTissueAndBoneMarrowDonor
#YouHaveToMakeItFUN
#dialysissocks #dialysis #socks
#sockfun #funsocks #sockgame
#sockselfie #sockobsession
#onecanneverhavetoomanysocks
#kidneys #kidneywarrior #PKD #neuropathysucks #spoonie
#wigfun #makeupfun #jewelryfun #jewelry


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I’ve seen girls post pics of themselves standing on weight scales on instagram (weight shaming) to motivate themselves. So this is the guy version of that. I call it #flinchshaming lol. Swipe to see a progressive reduction in shame and curse words! I had one of my RSO buddies load all my mags for me with random dummy rounds mixed it. #brutal and embarrassing lol. .
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So here’s the science for my fellow #nerds: when you shoot a gun, by definition there is an loud explosion taking place in your hand. Neurologically speaking, no matter how tough of a guy you are, this is a stressful event for your brain to process. So it is a natural human response to that stress to flinch. Same as blinking when something touches your eyelashes. The stress of the explosion in your hand then increases the myelination (neurology nerd speak for insulation) of the neuro pathways involved in the act of presenting the gun and pulling the trigger. This makes the flinch a automatic part of that neuro pathway. You can, through stress suppression techniques, override the flinch (as you will see in the later videos here). The problem is that when real stress is introduced again ie some one trying to kill you, the flinch comes back because it is programmed through myelination into that neuro pathway. The good news is that you can reroute the act of shooting through new and stronger neuro pathways in your brain that do not include the flinch by meditation, visualization and dry fire, lots of dry fire. Then you slowly add stress back in to thicken and cement the myelination of that new neuro pathway in your brain. Moral of the story; I need to do lots more dry fire. .
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P. S. I didn’t copy and paste any of that. Those are my words alone so feel free to “out nerd” me if I got any of that neurology stuff wrong. .
#flinchshaming #flinch #shame #embarrassing #science #nerd #sciencenerd #myelination #neurology #neuropathways #neuropathysucks #reprogramming #meditation #visualization #dryfire #dryfiredaily


8

64yo M poorly controlled diabetes w neuropathy went to the ER for “ankle swelling” and found to have a subacute Weber C fibula fracture with syndesmotic disruption and hard callus malunion of the fracture and posterolateral dislocation of the talus. He had been walking on it w no recollection of injury and now the lateral plafond was eroding. I offered BKA and open reduction w hindfoot fusion. He was insistent on salvage.
Supine, lateral approach. mobilize the fracture and cut the anterior and distal fibular ligaments. extend incision into sinus tarsi approach and prepare subtalar joint for fusion. prepare syndesmotic space and tibiotalar joint for fusion. Harvest crest using acetabular reamers on the gluteal pillar. Reduce talus and hindfoot and provisionally Kwire. get start point and ream open the hindfoot. ream tibia. reopen TT/ST joints and place bone graft. Place nail and compress TT then ST spaces. place graft in the lateral gutter and incisura. saw medial third off distal fibula and use it as a “biologic plate”. reduce fibula w apical screw. lag into talus and into tibia x 2. final screw in fibula procimally. NWB 3mo.
#orthopedicsurgery #ortho #orthotrauma #anklefracture #pilonfracture #limbsalvage #neuropathysucks #charcot


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Here at Neurotiva, we strive to help you receive the Neuropathy vitamins you need in one capsule, once a day, at a fraction of the price! 🙌🏻
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#neuropathy #neuropathicpain #neuropathysucks #diabetes #diabeticneuropathy #peripheralneuropathy #neurotiva #multivitamin #multivitamins #allnatural #healthandwellness #vitamins #nervepain #chronicillness #chronicpain #chronicpainwarrior #neuropathystrong


0

Geranium Essential Oil helps increase circulation, which improves nerve pain and relieves numbness 🍃 It also reduces inflammation, alleviates pain, and the earthy scent has a calming effect on the body! Apply it directly on the affected area to soothe the body 🌸
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#peripheralneuropathy #essentialoils #neuropathy #diabeticneuropathy #neuropathy #neuropathysucks #neuropathicpain #nervepain #nervepainrelief #painmanagement #geranium #chronicillness #nervedamage #numbness


2

#neuropathysucks #bonepain #fuckcancer well I had waited long enough to see Doc again about nerve issue. Had my #nerve testing and got results back no change. Permanent #neuropathy I’m a little better since #chemo ended but this will be my #newnormal was hoping to have some improvement but my numbers have no change. Never thought this would be my life was hoping for improvement but 😝. Find a way to move on. All of this before I’m #40 thank god for my awesome caregivers mom & sis @sprwmn78 for helping me. Nighttime is such a bitch when my legs get tired and weak. Hope to get in pool soon bc no gym for me a risk @nbcf @youngsurvivalcoalition @breastcancer_awareness @hoaghealth @breastcancermagazine @livingbeyondbc @stupidcancer @su2c


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I’m not feeling very good. Thankfully Jaz is always here for me #boxersofinstagram #ilovemydog #neuropathysucks #fibromyalga #chronicpain


2

Kinda hard to do your nails when you can’t feel your fingers 😂😂😂 but I’m LOVING #RNDiana, #RNCharmed, and #RNBarbara with a sprinkling of #RNBubbly on the accent (to match the #KateSpade ya know!) 🤣🤣🤣 #revelnail #powderdip #neuropathysucks #perfectlyposh #poshyinpink


0

Friday socks.#owl socks #purple socks. I couldn't pack all my costume stuff so I just am wearing purple and purple socks to dialysis while on my #vacation
They said they would pull off fluids today. I'm hoping they do. My stomach really hurts from all this extra fluid.

#REMEMBER
#DialysisKeepsUSalive
#PleaseBeAnOrganTissueAndBoneMarrowDonor
#YouHaveToMakeItFUN
#dialysissocks #dialysis #socks
#sockfun #funsocks #sockgame
#sockselfie #sockobsession
#onecanneverhavetoomanysocks
#kidneys #kidneywarrior #PKD #neuropathysucks #spoonie
#wigfun #makeupfun #jewelryfun #jewelry


2

My awesome #vacation techs! #purple #polkadot socks
I'm getting very frustrated with my #vacay dialysis nurse and home Drs. I have extremely low blood pressure. It normally runs anywhere from 60/40 to 80/60. And when I am doing dialysis get gets lower, much lower. So understandably my nurse is extremely nervous when this happens. So she stops pulling fluids off. (I don't pee so any fluid I eat or drink has to be taken off with dialysis) Well this has not been happening. I am up over 15 pounds of fluid. My face is swollen, my legs are swollen and my stomach are swollen. My lose pants are uncomfortably tight. If she doesn't take fluid off tomorrow it is going to go around my heart and lungs. Causing me to have to go to the hospital. I have asked my home Drs to help. They say they can't. I finally had to call my dialysis complaint line. They gave me numbers to call on the morning, but if they don't help, I get to spend part of my vacation in the hospital. So not necessary. I only had 6 dips of liquid today. I've been so nauseas I've couldn't eat all day. I was finally able to eat some toast.
It's not my fault I have low BP. The medicine you can take to raise it did absolutely nothing.

Prayers would be appreciated and thanks for letting me vent.

#REMEMBER
#DialysisKeepsUSalive
#PleaseBeAnOrganTissueAndBoneMarrowDonor
#YouHaveToMakeItFUN
#dialysissocks #dialysis #socks
#sockfun #funsocks #sockgame
#sockselfie #sockobsession
#onecanneverhavetoomanysocks #polkadot #purple
#kidneys #kidneywarrior #PKD #neuropathysucks #spoonie
#wigfun #makeupfun #jewelryfun #jewelry


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Don't want to work on the project due to a serious lack of sleep ( #neuropathy + thunderstorms is a bad combination for me) so, working on a tool using some leftovers.
#handforged #handmade #getyourhandsdirty #usewhatyougot #gomakesomething #cokeforge #coalforge #anvil #T1diabetic #neuropathysucks


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