#pseudotumorcerebri

Instagram photos and videos

#pseudotumorcerebri#kalorienzählen#followme#abgerechnetwirdimjanuar2019#abnehmen#abnehmen2018#abgerechnetwirdamstrand#abnehmenohnezuhungern#foodblogger#wirstarten2018durch#teamsarahrocksww#unserdingunserbaby#abnehmtagebuch#wegmitdemspeck#weightlossdiary#iih#weightloss#idiopathicintracranialhypertension

Hashtags #pseudotumorcerebri for Instagram

Finished my 3rd #iihawareness bracelet today. Took me 2 hours because I shake so much. I'll post more as I make them. If you would like to purchase one I'm asking $10 each or 2 for $15. All proceeds go toward my medical bills. Much love and light💖
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#makersgonnamake #IIH #brainpains #pseudotumorcerebri #livinginhope #neurosurgerynumerodos #livefiercely #spoonie🥄mom #hustleneversleeps #medicalbillssuck #supportfam #supportawareness #supporthomemade


0

#tummylovethursday / #flexfriday
Always so many messages about weightloss and loose skin. Of course i have loose skin. I drop over 250 pounds and knew i wasnt going shrink everything back up. Does the loose skin bother me? I would be lying if i said it didnt. It gets to me physically and mentally. I get raw marks from it rubbing. Lately i wish it was gone. But i dont hate my loose skin. I think for dropping 250 pounds i look great and im proud of myself. My motto Love the skin your in. Self love and being body positive go hand and hand. Taking care of the body you have and loving yourself ❤️ Losing weight is hard but not giving up is harder. Striving every day for a healthier me. 💪❤️
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#200poundsdown #vsg #wls #vsgcommunity #obesetobeast #verticalsleeve #gastricsleeve #weightloss #girlswithredhair #girlswithplugs #fatbabe #plussize #healthyliving #losingweight #stayingfit #postopvsg #weightlossjourney #motivation #vsgbabe #inspiration #pseudotumorcerebri #selflove #bodypositive #fullbody #autoimmunedisease #bodypositivity #gastricsleevecommunity #bodypositive #looseskin


96

Another day, another infusion. This is my 5th infusion in 6 days. Botox is no joke and not for the weak at heart. We have modified my treatment that involves several units and a lot of pokes around left temple, which is where my headache is located.
Fun fact about my Nummular Headache: it never moves, never varies, it’s ALWAYS in the same spot. The only tome I don’t have pain is when I’m on a Ketamine drip, otherwise I always have some level of pain.


1

What is your favorite summer location? .
I have a bunch, but the SLP rec center always makes me so happy. I really pause on the first and last day there because it means summer has officially begun and then it's officially over. And #littlekids so no time to pause the rest of the time. 😉
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I've been listening to Jen Hatmaker's #forthelovepodcast and loving every moment! I couldn't read today because of the eye dialation so I closed my sore eyes and listened. ❤️ She asks all guests in the For the Love of Summer Series some of their summer favorites. Now I want to know yours? 😍☀️🏊🍻👗
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#strongerwithjoy #brainsurgery #brainsurgerysurvivor #momlife #braintumorsurvivor #meningioma #pseudotumorcerebri #iih #lularoeaddict #weightloss #deltazeta


4

Don't ever say you can't!! I guarantee you, you can! You just have to want it bad enough.
Regrann from @therealg_life - 💥HIT THE LIKE BUTTON 💥
🔥🔥Follow @therealg_life 🔥 @vsg_queendiet - #motivationmonday
Sometimes you have to fall down in order to get back up. I spent so much time struggling with fad diets to lose weight. Everyone always ask me what motivated me to actually wanted to lose weight. And I guess a lot of things played into me wanting to get this weight off. I was embarrassed to leave my house because of my weight, I could barely walk anymore, my health had just went downhill, and the list goes on. When I started my weight-loss journey I knew this time things were going to be different this time I wasn't going to give up. I didn't care how many times that I was going to fall down I was going to stand back up and keep going.
Losing weight is hard but not giving up is harder. Down over 240 pounds and everyday I'm striving for a healthier me 💪❤️ #nevergivingup ❤️
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#200poundsdown #vsg #wls #vsgcommunity #obesetobeast  #verticalsleeve  #gastricsleeve #weightloss #girlswithpiercings #girlswithplugs #nerd #fatbabe  #plussize  #healthyliving  #losingweight #stayingfit #postopvsg #weightlossjourney #motivation #vsgbabe #inspiration #goals #pseudotumorcerebri #pcos #autoimmunedisease #hypothyroidism  #gastricsleevecommunity #150poundsdown"


3

I’m not sure how all y’all foodies take glorious picture of what you eat 🤷🏻‍♀️🤷🏻‍♀️
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Seed cycling bars are a staple in this household and have been very beneficial for me fighting PCOS and IIH - I pre-make a weeks worth at a time and always make extra since the little bear loves a healthy treat too. .
Have you tried seed cycling yet? I’d love to know your thoughts on it .


4

So da ich eben so müde war habe ich nochmal was geschlafen. Hier unser Abendessen: Backofen Hähnchen und quinoa Salat. Vom Salat ist noch etwas über also nehme ich das heute auch mal mit zur Arbeit. Wünsche ich noch nicht einen schönen Abend 😘
—— #abgerechnetwirdimjanuar2019
#abnehmen
#abnehmen2018 #abgerechnetwirdamstrand #abnehmenohnezuhungern
#followme
#foodblogger
#wirstarten2018durch #teamsarahrocksww #unserdingunserbaby
#abnehmtagebuch
#wegmitdemspeck
#weightlossdiary
#kalorienzählen
#pseudotumorcerebri


1

And you have to wake up every morning with determination to make the day yours! Make your goals, your reality. And never stop smiling....good things are on the horizon! 💛✌🏼🌻


3

You are meant to try new things in life. What’s stopping you from making the decision to try something new? You are meant to take chances in life and see where certain things can take you. Life is not meant to be lived within your limits...you are meant to go beyond your limits and make big things happen for your future. What kind of chance are you willing to make for your future self? ❤️


1

Had an appointment with the neurologist today. The only beneficial suggestion that came out of it was about going in for a lumbar puncture to see where my pressures are currently at since taken out my shunt back in the beginning of this year. As much as it was very painful the first time and dreading it, i’ll just have to put on my brave face and deal with it so I can receive some answers..
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I still have two sets of botox left. The upcoming one is at the end of this month and the third+final set of it will be at the end of October. Along with it since the last time I had them I felt so much worse than normal. The neurologist mentioned she could give a shot of Toradol in my back end to prevent an reoccurrence of last time. Usually that medication doesn’t work when I’m given it at the emergency room but what do I know? 🤷🏻‍♀️
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They’ve mentioned nerve blocks and I’m curious about the experiences that others have had with it. I know everyone is different but I want to get a general idea of what I could be getting into before making any decisions. —————————————————————
Mini-rant: Nothing offends me more than when I’m at a doctor’s appointment and get accused of over-medicating which would be next to impossible because all I’m currently on is a blood pressure medication along with a medication or two for my anxiety and depression. I’ll occasionally take a Tylenol here and there but the overall point is they’re assuming things about me and this isn’t the first time. I’ve thought about alternatives such as the CBD oil and/or medical marijuana due to it being natural as well as hearing such positive reviews about it. If you’re currently using it for any chronic illness please feel free to tell me your experience with it and how it works for you. Thank you!! •











#Hospital #brain #surgery #survivor #spoonie #chiarimalformation #pseudotumorcerebri #hydrocephalus #chronicpain #chronicillness #invisibleillness #butyoudontlooksick #cbdoil #marijuana #mmj #medicalmarijuana #cannabis #cannabiscommunity #architecture #building #ig_captures #ig_myshot #ig_shotz #myview #vsco #vscocam #vscophile #photooftheday


0

I have a little obsession with the cute quotes inside the Dove chocolates wrappers. I think I'm gonna start collecting them whenever I buy more chocolates. I liked these two out of this pack so far.
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"After every storm there's a rainbow, no matter how long it takes to show up."
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"Be good, or be good at it."
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They both sum up me and my life pretty well.
Anybody else ever see any good quotes inside the Dove chocolates wrappers?
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#dovechocolate #inspirationalquotes #nerd #geek #gamer #gamerchick #altgirl #tattooed #pierced #athletic #healthnut #glutenfree #ptsd #depression #anxiety #invisibleillness #spoonie #pseudotumorcerebri #idiopathicintracranialhypertension #celiacdisease #multiplesclerosis #osteoarthritis #scoliosis #chronicpain


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Few people ask about my new profile picture. So here's a bigger photo of it. Sorry havent been on much been kinda depressed. It hard hearing people say i need to stop losing weight. I still look at myself and see that 400 pound girl. This journey has been life changing for me. Im still figuring out who i am now after weightloss. This journey is neverending. Staying healthy for life 💪🏻-
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#200poundsdown #vsg #wls #vsgcommunity #obesetobeast #verticalsleeve #gastricsleeve #weightloss #girlswithpiercings #girlswithplugs #firmoo #foodaddiction #vsgbabe #plussize #healthyliving #losingweight #stayingfit #postopvsg #weightlossjourney #motivation #vsgbabe #inspiration #goals #pseudotumorcerebri #pcos #autoimmunedisease #hypothyroidism #gastricsleevecommunity #fullbody #plussize


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I’ve debated how or if to share this photo and experience. But I think it’s important that the full picture of how debilitating living with chronic migraine or a headache syndrome is.
Yesterday, I was in a lot of pain, but I pushed myself. I gave in to the pressure of society of being “productive”. I gave into the self imposed stress of being a “good wife” (AGAINST my husband’s wishes). I literally dragged myself, my daughter, and my husbands car to the dealership for a long overdue oil change. And while there, my headache became so intense I couldn’t breathe.
And then the anxiety hit. I was STUCK. I couldn’t Uber - my daughter is still in a 5 point harness. I couldn’t medicate- because my car needed to get home. I couldn’t drive because I was in so much pain. The anxiety was as bad as the pain.
I’m blessed. We’ve used the same dealership for both our cars for as long as we’ve owned them. They know us. They took care of us and my daughter and I made it home safe.
But this is what “functioning” means to me. It’s not simply proceeding with life in pain. It’s about the very real chance of being STUCK.


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So happy that my sister found her happily ever after! She deserves it more than anyone ever. Cindy, there is no doubt in my mind that Dad was standing right there with us. He would of been so happy and proud of his “Mush Mouse”. You made a beautiful bride on your wedding day and I wish you and Darren a life full of happiness! 😘❤️😍


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I have a new blog post up about accepting help from others when you have chronic illness—the link is in my profile😊 One of my struggles with being sick these past few years has been asking for help when I need it. As someone who was previous very independent, losing the ability to do simple things was embarrassing, frustrating, and discouraging. I hated the thought of having to ask for help—it felt like I was just being weak. Though I’d 100% rather be the person helping, I’m so thankful for the help I’ve received 💛 I’ve had to humble myself to admit that I can’t to everything for myself right now. And that’s okay. It isn’t my fault. The same goes for all of you. I hope you can gain something from my thoughts on this subject & I’d love to hear your thoughts as well 💙💚


19

So die Schminke steht für meine Hochzeit 🙈. Essen gab es heute bei mama. Lecker Lasagne😋 so ich Quatsch noch ein bisschen mit meinen Eltern und nachher dann ab zur Arbeit euch einen schönen Abend 😘
—— #abgerechnetwirdimjanuar2019
#abnehmen
#abnehmen2018 #abgerechnetwirdamstrand #abnehmenohnezuhungern
#followme
#foodblogger
#wirstarten2018durch #teamsarahrocksww #unserdingunserbaby
#abnehmtagebuch
#wegmitdemspeck
#weightlossdiary
#kalorienzählen
#pseudotumorcerebri


0

Starting my day with my pain management doc. I was truly blessed to find him at the very beginning of my journey. He has been incredibly supportive of my journey and works very synergistically with my neurologist to ensure I’m receiving the highest quality of life possible.
Today’s discussion: #ketamine nasal spray. I’m excited to see if it provides similar relief to the #ketamineinfusion I receive monthly.


1

ahhhhhh. 😌 Rest Day. .
Enjoying some patio time on this gorgeous morning with an iced coffee and the kids playing in the sandbox.
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My arms are still dead for the last 2 workout days and it feels SO GOOD! Nothing like that gentle muscle reminder as I go about my day that I am doing something for my best health #amiright. .
The first 2 days of the program were SO good! Simple lifting, short cardio, and abs that make will make a huge difference in just 30-40 minutes. I always thought I could do it on my own, but pressing play and just doing without thinking saves me so much time and energy. ⏰
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I honestly think this is going to be my new favorite program! ❤️❤️ And there are 3 rest days?!?! 😮
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Have FOMO yet? DON'T watch me - join me!!!! 😘🤗
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It isn't too late to jump in on this first group! Starting NOW would keep you on schedule in less than a week. - but to much longer and you will be behind. I know I did a last call last week before I left for AFT, but after the first 2 days, I just can't keep people out!! It's THAT good!! .
Drop an 💪 below or PM me and we can still get you in. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
🎆🎆🎆 #strongerwithjoy #brainsurgery #brainsurgerysurvivor #momlife #braintumorsurvivor #meningioma #pseudotumorcerebri #iih #lularoeaddict #weightloss #deltazeta


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Don’t copy others and try to be like everyone else. You were made so that you can be unique and vibrant! You were placed on this earth so you could be yourself in a world where everyone wants to be he same. Being the same isn’t ideal, because you were meant to be yourself, unique, and most importantly...beautifully you! Don’t change for anyone, ever 💕💕💕


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Transformation Tuesday time! January 24th vs. today. I have a hard time seeing the difference day-to-day but then I do a side-by-side comparison I wonder if my IIH is messing with my vision 😂 #transformationtuesday #wls #vsg #wlscommunity #vsglife #proudofmyself #metamorphosis #longtermgoals #keepingmyeyesontheprize #iih #pseudotumorcerebri #idiopathicintracranialhypertension #ptc


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every day struggle bus #iih #pseudotumorcerebri


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Auf Nachtschicht habe ich meist nicht so die Lust auf warm Sachen oder belegte sachen. Da gibt es bei mir meist nur trocken Brötchen 🤣 heute ist die Schicht echt anstrengend. Eigentlich hat mich das was ich heute mache Spaß gemacht vorher heute ist es einfach nur anstrengend. Ich hoffe ich komm in der in paar Wochen wieder dahin das es mir Spaß macht. —— #abgerechnetwirdimjanuar2019
#abnehmen
#abnehmen2018 #abgerechnetwirdamstrand #abnehmenohnezuhungern
#followme
#foodblogger
#wirstarten2018durch #teamsarahrocksww #unserdingunserbaby
#abnehmtagebuch
#wegmitdemspeck
#weightlossdiary
#kalorienzählen
#pseudotumorcerebri


0

One of those days contemplating how on earth to function.
Botox is so important for my care, but it’s also a brutal recovery.


1

Wanted to give you a glimpse behind the smile. Many of my friends may not know that I suffer from a chronic condition known as pseudotumor cerebri. In short my body produces too much spinal fluid, causing pressure to build up inside my head. Once the pressure gets high enough it causes things like migraines, loss of vision, muscle stiffness and a whole host of other things that make you feel pretty crappy. Three years ago when I was diagnosed I had lost half the vision in my right eye, I suffered from daily migraines and could barely get out of bed. Thanks to my caring doctors and sticking to my treatment plan I can say that I’ve came a long way! But I still get those occasional flare ups like today. Today I feel pretty crappy. Hope to be back in tip top smiling shape very soon though!
#ptc #pseudotumorcerebri #underpressure🤷‍♀️ #maskcarabeauty #chronicillness #hanginthere


7

Growing up, I wasn’t that skinny little girl who was into sports at school or even being around other kids my age, mainly because I wasn’t like kids my age. I was heavier. I was ashamed. And I got made fun of for it, to say the least. ...
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Fast forward to now. I LOVE taking the time to take care of my body. I LOVE working out and putting time aside for myself. ...
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It’s really funny how life can change dramatically over the years. Who would of ever thought, that chubby little girl would turn into the woman she is today! 😍 ..
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Every day is a chance to move my life in an even greater direction and I will not ever give up on me again. I will be the role model for others around me and my future family, if that’s what is in my future.. ...
What’s stopping you from making a change? What’s stopping you from saying NO to everyone else and YES to you. Stop procrastinating and making excuses and prove to yourself that you can make the change your life desperately needs! 💪🏼😘❤️


5

So sieht ein improviesiertes essen bei uns aus. Eigentlich hatte ich vor Chili con carne machen. Aber heute habe ich gemerkt ich habe gestern über die Hälfte vergessen 🙈 ich hatte nur hackfleisch und Paprika eingekauft. Und ich wollte heute nicht schon wieder einkaufen gehen 🙈 also gibt es eine hackfleisch-Paprika-Reis-Pfanne 😋 ist echt lecker geworden. So ich ruh mich noch was aus bevor es nachher und die zweite Nachtschicht geht 😁 euch einen schönen Abend 😘
—— #abgerechnetwirdimjanuar2019
#abnehmen
#abnehmen2018 #abgerechnetwirdamstrand #abnehmenohnezuhungern
#followme
#foodblogger
#wirstarten2018durch #teamsarahrocksww #unserdingunserbaby
#abnehmtagebuch
#wegmitdemspeck
#weightlossdiary
#kalorienzählen
#pseudotumorcerebri


0

To apply:
🦓Follow and tag @slippinonspoons and @spoonspirations_ 🦓repost/share this post and explain why you want to be an ambassador
🦓be willing to represent Spoonspirations and help bring awareness to the chronic illness community
🦓have a public profile
🦓enjoy arts/crafts
#dysautonomia #lupus #fibromyalgia #lymedisease #gastroparesis #scleroderma #sarcoidosis #scoliosis #amps #pcos #interstitialcystitis #multiplesclerosis #chiari #trigeminalneuralgia #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome #endometriosis #hypothyroidism #migraines #mentalillness #chronicfatiguesyndrome #kidneydisease #eds #hypermobility #iih #intracranialhypertension #pseudotumorcerebri


1

Its a wrap day 1 in the books!! I can definitely do 4 days a week 30-40 mins! Lifting and Hiit training with core!
This will fit perfect with my weekly basketball.
What workout plan are you doing this summer ? #riseandgrind


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Die erste Schicht ist durchgestanden. Es war anstrengend aber auch gut. Alles dir Bescheid wissen müssen über mich wissen Bescheid. Geschlafen habe ich danach wirklich wie ein Stein 🤣. Jetzt wird erstmal gegessen. Wünsche euch einen schönen Tag 😘
—— #abgerechnetwirdimjanuar2019
#abnehmen
#abnehmen2018 #abgerechnetwirdamstrand #abnehmenohnezuhungern
#followme
#foodblogger
#wirstarten2018durch #teamsarahrocksww #unserdingunserbaby
#abnehmtagebuch
#wegmitdemspeck
#weightlossdiary
#kalorienzählen
#pseudotumorcerebri


1

You can do anything you put your mind to, even if it seems hard as hell and close to impossible. All you need to keep telling yourself is, “I’m a badass, and I know I got this” 😘✌🏼💪🏼


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Whatever you decide to do in life...whether it be your career, your hobbies, your relationship, make sure it truly makes you happy! And if it doesn’t, then that is the moment you decide to make a change 💜


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Update 💚 My Go Fund me link is in my bio. Any little bit helps!!! 💚#lymewarrior #pseudotumorcerebri #lymedontkillmyvibe #gofundme #lymesucks


8

After my diagnosis with idiopathic intracranial hypotension, I'm going to be trying really hard to live a healthier lifestyle. Going out for walks and eating less junk. Finding out that I have a chronic neurological condition was tough, but it was just the jolt I needed to make changes in my life. I'm going to have to pace myself though, due to the fatigue, pain and balance issues, but I know I can do it!

#iih #idiopathicintracranialhypertension #pseudotumorcerebri #spoonie #chronicpain #chronicillness #disabledandcute #autisticadult #actuallyautistic #cane #mobilityaid #healthylifestyle #spoonielife #disabled #disability #invisibleillness #invisibledisability #neurology #neurological #braincondition #bih #benignintracranialhypertension #intracranialhypertension #fatigue


4

With chronic illness there comes a lot of “uninvited” waiting—for appointments, treatments, etc. When you’re very sick and you’re told you need to wait months to see a doctor it can feel like an eternity. I was lucky enough to get an appointment at Johns Hopkins CSF center in September for my Intracranial Hypertension. I am blessed to be able to see one of the best doctors the world for this rare disease, but we were told that any surgeries he recommends (stent or shunt) will have to wait for another trip. 😕 I feel discouraged because of all the waiting we’ve had to do to see doctors this year—especially when we know there could be something that could help. Regardless, I know I’m lucky they’ve found something they can try to treat, and now it’s time to wait 💙💚 I’m trying to put my trust in God’s plan for me and to find purpose and meaning for my life now. Love to all! P.S. This is from a short hike I was able to do on my honeymoon. I could go for a view like this right now. Anyone else? 😊


21

Knowing the limits of what your body/mind is able to do can be hard. Knowing when to listen and slow down is something that is against my nature..something I have been learning to do for some time, but something that is still just as hard now as it was two years ago. Posting something personal for everyone to see is equally as hard, but becoming more comfortable in my own skin as a human being is something I am working on as well.
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As I am going through a complicated, exhausting and frustrating health issue, my craft is becoming harder to enjoy every day. Some days sitting with my yarn for five minutes is more than I can handle. I have a condition that does not allow my spinal fluid to drain from my body like it should, leaving it to sit around my brain causing extreme pressure and migraines. A constant feeling of "fullness" in my head makes it feel heavy. Focusing on something for too long hurts my eyes since so much of the pressure is there.
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This little guy though..this guy right here has brought me so much comfort. Taking a small break from garments and working on little projects like this may not seem like slowing down, but for me it totally is. So for now, I think you will be seeing more of this guy, and more than likely some friends to go along with him. Take time to listen to your body friends. When it's tired, rest...when it's hurting, heal it...when it's unhappy, find your joy. 💗 .
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#yarnlove #yarn #yarnaddict #calledtocreate #girlboss #dowhatyoulove #createmakeshare #creativelifehappylife #yarntherapy #maker #makerofthings #craft #findyourhappy #handmadehappiness #handmadeisbetter #crochet #crochetismyyoga #crochetdesign #crocheteveryday #pseudotumorcerebri #ivegotthis #amigurumi #crochetbear


6

Monday morning workouts make me smile...especially when I can lift some weights!! 💪🏼😜✌🏼


3

Invest in yourself. Make time for certain things in your life. Stop wasting time on the unnecessary and things that are not needed. Make time for the things in your life that truly matter 💜


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Guten Morgen. Ich fühle mich nicht bereit aber sind wir je bereit für irgendwas🤔 egal. Ich darf keine Angst haben nur weil ich eine seltene Erkrankung habe. Ich darf mich davon nicht unterkriegen lassen. Ich muss weiter leben. Ich habe keinen Bock auf Depressionen oder andere Sachen nur weil ich mich unterkriegen lasse. Ich frühstücke jetzt erstmal und nachher nochmal eine Runde schlaf Ich wünsche euch einen schönen Tag 😘
—— #abgerechnetwirdimjanuar2019
#abnehmen
#abnehmen2018 #abgerechnetwirdamstrand #abnehmenohnezuhungern
#followme
#foodblogger
#wirstarten2018durch #teamsarahrocksww #unserdingunserbaby
#abnehmtagebuch
#wegmitdemspeck
#weightlossdiary
#kalorienzählen
#pseudotumorcerebri


2

When the cure is worse than the problem... My Dr. Doesn’t understand why I eventually give up on the meds. It’s because instead of fixing the problem, they just add new ones. New doctor’s opinion this week 🤞better solutions will be coming.
#chronicillness #chronicpain #chronicheadache #chronicmigraines #chronicnausea #fatigue #tinnitus #idiopathicintracranialhypertension #pseudotumorcerebri #spoonielife


3

This sweet kid has gone through more in the 9 years of her life on this planet than most adults have. She’s undergone multiple open heart surgeries and now two brain surgeries. I used to have the honor of teaching her dance and tumbling, but due to her being sick she’s had to stop momentarily. 😿 I’m so glad I got to hang out with her today! 💖 Hannah’s dream is to be a cheerleader and a teacher. She collects cheerleading bows, so if you have any you’d be willing to part with let me know and I’ll make sure they get to her! #bowsforhannah #cheerleader #idiopathicintracranialhypertension #pseudotumorcerebri #chiarimalformation #chdawareness


4

Wir haben gerade den Rest von steinpilzpesto von letzter Tage auf baguettebrötchen gemacht und ein bisschen Käse drauf gemacht. Ich sag euch lecker 😋 das Rezept fürs Pesto seht ihr in den highlights bei @spice_bar. Ich glaube unter Kais friday 18 🙈
—— #abgerechnetwirdimjanuar2019
#abnehmen
#abnehmen2018 #abgerechnetwirdamstrand #abnehmenohnezuhungern
#followme
#foodblogger
#wirstarten2018durch #teamsarahrocksww #unserdingunserbaby
#abnehmtagebuch
#wegmitdemspeck
#weightlossdiary
#kalorienzählen
#pseudotumorcerebri


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Accepting myself, flaws and all has been a HUGE step for me. No, I’m not exactly where I want to be, but I’ve come a hell of a long way. Bathing suit shopping has never been my favorite because of how things fit me differently, but I found this suit and I KNEW it was meant to be...plus I was super happy with the size. I thought I’d be self conscious in it because of my scars from my two surgeries, but I fell in love with it. I am embracing myself while working on me to be a happier and healthier Jill. No shame, no embarrassment, just being happy and learning to love my body and myself more than I ever have before 💛✌🏼🌻


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Happiness will come to you, just when you least expect it. Choose to live your life, do things to better you and your future, and things will come to you...just when they are supposed to come, not anytime sooner! 💕🦋🌻


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Sommer, Sonne.... Wäsche!
Sonntagmorgen halb 9, die Wäsche hängt. I did it 🤣
Mir als Rentner, Mama und beschränkte Hausfrau ist es egal welcher Wochentag ist.
Ich bin so bekloppt mutiert das ich es liebe Sonntags früh aufzustehen. Ich weiß nicht wann das passiert ist mit der Mutation 😂
Meine Kleine liegt eingekuschelt neben dem Papa im Bett und schläft wieder. Sie ist seit gestern Abend krank... Fieber, Halsschmerzen, Kopfweh.
Auf in einen heißen Tag 😅... meinem Kopf geht's immer besser.
Einen schönen Sonntag für Euch 🎈💙 #sunday #sonntag #hausfrau #rentner #wäsche #mummywithms #multiplesclerosis #multiplesklerose #mswarrior #msfighter #ptc #pseudotumorcerebri #summer #summervibes #ididit #ichliebefrischewäsche #momlife #momof2 #familienleben #familylife #msfamily


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Face of an IIH Headache while running errands. I just want to crawl under a rock. #underpressure #idiopathicintracranialhypertension #pseudotumorcerebri


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Been so busy lately i havent really updated. Since eating more carbs my heart rate has gone up. So maybe the doctor theory is right. My depression been kinda all of the place. But im slowly getting things together. This journey been a wild ride but still grateful for taking the first step. -
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#200poundsdown #vsg #wls #vsgcommunity #obesetobeast #verticalsleeve #gastricsleeve #weightloss #girlswithpiercings #girlswithplugs #firmoo #foodaddiction #vsgbabe #plussize #healthyliving #losingweight #stayingfit #postopvsg #weightlossjourney #motivation #vsgbabe #inspiration #goals #pseudotumorcerebri #pcos #autoimmunedisease #hypothyroidism #gastricsleevecommunity #fullbody #plussize


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There are many days I take a lot for granted. The access to care I have, for example, especially Labor Day-Memorial Day when being a headache patient getting into the AIC at Mayo can be challenging (Though, I have to say, in the 2.5 years I’ve been using this facility, they’ve ALWAYS gotten me in. Chocolate helps, but I’m sure saying please and thank you helps more.)
This facility is the oncology/hematology AIC, that headache patients are guests of. It’s housed in the middle of the inpatient oncology unit. And every now and again, God brings me a lesson in gratitude and humility right when I need it and thankfully on days I can be receptive to it. Like today.
As a Mayo Clinic patient I don’t typically see patients my age. I also rarely see kiddos visiting (they don’t treat pediatric patients). But when I see both, it’s on this floor. And it’s such a powerful reminder that while some days it *feels* like my headache may be the death of me, it’s not.
And today, I needed that reminder.


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Oh mein Gott ich habe es getan ich habe gefoodfooxt. Das da ist #fooxfluff Da ich bedenken mit dem Eiklar hatte würde mir der Tipp gegeben mit pasteurisiertem Eiklar. Und ich muss sagen 🤤🤤🤤🤤 diesmal habe ich Honig genommen. Da muss ich sagen ist mir vom Geschmack her etwas zu viel Honig. Werde mir mal diesen fibersirup bestellen. Habe die Hälfte so gegessen und die andere Hälfte habe ich mal eingefroren mal schauen wie das nachher ist —— #abgerechnetwirdimjanuar2019
#abnehmen
#abnehmen2018 #abgerechnetwirdamstrand #abnehmenohnezuhungern
#followme
#foodblogger
#wirstarten2018durch #teamsarahrocksww #unserdingunserbaby
#abnehmtagebuch
#wegmitdemspeck
#weightlossdiary
#kalorienzählen
#pseudotumorcerebri


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Ja ich weis heute war es mal wieder still hier. Wir waren heute morgen frühstücken und dann noch ein Kleid kaufen für mich für einen Geburtstag. Sonst ist hier nichts passiert. Wir genießen jetzt noch selbstgemachte Pizza 🤤 —— #abgerechnetwirdimjanuar2019
#abnehmen
#abnehmen2018 #abgerechnetwirdamstrand #abnehmenohnezuhungern
#followme
#foodblogger
#wirstarten2018durch #teamsarahrocksww #unserdingunserbaby
#abnehmtagebuch
#wegmitdemspeck
#weightlossdiary
#kalorienzählen
#pseudotumorcerebri


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Appreciate everything that this life has and will continue to bless you with. Because all in all, this life we are living is pretty freaking amazing! 💕💕💕


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The struggles of editing... but keto video will be up soon if I can figure out how to split it into 2 parts 🤬... the struggle is real with this one! .
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#keto #ketofam #ketolife #ketoweightloss #ketodiet #ketotransformation #ketogenicdiet #video #pseudotumorcerebri #weightloss #healthy #happy #healthandfitness #thisvideoneedstohurryup #imtired


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I have a love/hate relationship with infusions. I LOVE having access to an infusion center. I haven’t been to the ER for my headache in over a year, because I have access to the infusion center which is open 7 days a week/365 day’s a year (I should know, I spend many holidays here) I can get my headache cocktail in a much calmer, less stressful environment than having to go through ED.
That said....it’s a lot. Day 1 usually takes 3-4 hours, and then as long as my IV holds Days 2&3 take 2-2.5 hours not including drive time. It’s a lot for my daughter, she’s such a trooper, but it’s a lot.
When all is said and done, I’m absolutely grateful for the relief it brings.


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SCALE VICTORY! I lost 3lbs! Everything counts. Every little step toward the end goal is a step TOWARD THE END GOAL.
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I decided to start this on June 29, 2018 after thinking about my health and how it ties into happiness. It wasn’t until July 2 that I decided to just eat healthy. These 3lbs are literally just from the decision to eat healthy and choose better food items.
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I’m here to lose my weight. Heal my body from chronic illness. Gain health and happiness. And I’m just getting started👱🏻‍♀️👊🏻
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#chronicillness #chronicillnesswarrior #fightingobesity #loseweight #losingweight #scalevictory #babysteps #pseudotumorcerebri #weightlossjourney #weightloss #health #happiness #goals #keepgoing


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Everyone is out tonight since it’s Friday getting in their shots of tequila and I’m just that girl who wants her extra shot of espresso! 🤷🏻‍♀️✌🏼💕


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I have not slept in 30 hours. I didn’t sleep at all last night. My head sucks. My body is pooping out. I have Botox and Nerve blocks in 2 hours and an infusion in 3 hours.
I anticipate sleeping until noon tomorrow.
Also, I totally use my daughters @adenandanais bamboo swaddles because Arizona summers.


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The room of 4,000 supporting a nurse strike in VT from Pittsburgh through Skype. ❤️❤️ Our nurses need fair working conditions, hours, and pay.
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My nurses were EVERYTHING last summer for me. I will never forget the one especially in ICU that fed me my dinner when I couldn't lift my head or hold a fork. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
What if she had been too tired? What if she had to work mandatory overtime the day? I NEEDED her to be at her best to help me me at mine. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
So proud to support nurses all over our country. Please help me and my union stand for them too. 🏥 @uvmedcenter #weareuvmnc
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#aftconvention2018 #teacherlife #redfored #EDMN #iamAFT #aftALLin #aft18
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#strongerwithjoy #brainsurgery #brainsurgerysurvivor #momlife #braintumorsurvivor #meningioma #pseudotumorcerebri #iih


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Auf dem Blog geht es heute um meine Angst und meine Diagnose und darum warum es auf dem Blog in letzter Zeit so ruhig war. (link im Profil) #diagnose #pseudotumorcerebri #gedanken


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Be happy! Smile consistently! There may be certain reasons in life where you want to break down and give up, but always remember...there are TONS of reasons to be happy! What’s one reason you’re happy today? 💕


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Himbeerliebe 😍 nein das ist nicht das erste was ich esse. Habe schon ein Brötchen gegessen war aber heute morgen schon unterwegs. Freu mich schon ab Montag kann ich wieder arbeiten 🎉
—— #abgerechnetwirdimjanuar2019
#abnehmen
#abnehmen2018 #abgerechnetwirdamstrand #abnehmenohnezuhungern
#followme
#foodblogger
#wirstarten2018durch #teamsarahrocksww #unserdingunserbaby
#abnehmtagebuch
#wegmitdemspeck
#weightlossdiary
#kalorienzählen
#pseudotumorcerebri


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