#spooniefun

Instagram photos and videos

#spooniefun#spoonie#spoonielife#chronicillness#selfie#pleasebeanorgantissueandbonemarrowdonor#youhavetomakeitfun#canyouguess#dialysissocks#dialysis#socks#dialysiskeepsmealive#davitadyalysis#davita#nofilter#canyouguessmysocks#wig#wigfun#invisibleillness#chronicpain#bratz#myalgicencephalomyelitis#spoonievillage

Hashtags #spooniefun for Instagram

Sometimes you just gotta ask... πŸ™„


10

πŸ¦• I’ve been busy this past week keeping the neighborhood, roads and shopping centers safe from a dinosaur invasion! 🐊 I’m really addicted to this game. Even though β€˜Pokemon Go’ was the original, I didn’t enjoy it because A) I’ve never played Pokemon, watched Pokemon or collected Pokemon - and B) I’m a huge Jurassic Park/World fan and I really like the format of how this game is played. Plus, the AR is a really neat feature because it lets me put dinosaurs in my environment by using the camera. πŸ¦– I got my husband addicted to it as well 🀣 - And so now whenever we go out to run errands, we hunt dinosaurs and supply drops.🦈 The best β€˜found’ incubator was at our local AMC Theater because it gave us like a couple dinosaurs that are immediately level 12’s, 9’s and 7’s. That’s where I got my T-Rex!πŸ¦– #jurassicworldalive #jurassicworld #jurassicworldfallenkingdom #jurassicpark #jurassicworld2 #dino #dinos #dinosaur #dinosaurs #velociraptor #trex #tyrannosaurusrex #triceratops #spoonie #spooniefun #spoonielife #spoonielove #spooniegirl #spooniewarrior


2

@nosprimaverasound are absolutely changing my whole festival experience with the introduction of seats at one of the main stages. This is incredible and I can't believe it's not done more often. Thank you #primavera, this genuinely means so much, it's the acknowledgement that is needed for people with invisible disabilities and variable pain levels. Now, where's the sunshine? 🌞


1

Snapchat filter fun πŸ˜„
2 Week's until my 50th birthday!!
#snapchatfilters #snapchat #blueeyes #almost50 #beinsilly #laughter #spooniefun


1

It’s national dinosaur day! Which can only mean one way of celebrating at Spoonie Village.... naps and spoonie-snore-uses πŸ¦–πŸ’€πŸ¦–πŸ’€πŸ¦–πŸ’€πŸ¦–πŸ’€πŸ¦–πŸ’€


2

Took the hubby crossbow shooting yesterday for his birthday @wildparkderbyshire - it was brilliant! Felt like Daryl Dixon.... if he was reeeeeealy slow to load and aim β€œjust hang on a minute walkers...” πŸ™ˆ but guess who win and got 🎯 .... me!!!! I never win anything like that! #wildparkderbyshire #crossbow #crossbowshooting #birthday #birthdayboy #daryldixon #daryldixonlovers #walkershooter #targetpractice #bullseye #spoonie #spooniefun #spoonielife


4

This is what happens in Oxford when the sun shines. β˜€οΈ (One of us is working significantly harder than the other.)


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#EDS and #Gastroparesis and #Dysautonomia all make it so that I need to take #Zofran (Ondansetron ODT). I am so grateful for this medication and for having health insurance that covers my medications if they are medically necessary. I had to have completed "step therapy." That is the #insurance term for trying ALL (and I mean ALL, because out of pocket cost for this is insane!) of the other options before resorting to this and possibly soon... IV Zofran, because the flavoring in this medication can make me sick and even more nauseated. Lately I've needed it morning and night and I just want the nausea gone! So many of my chronic Illnesses (or maybe it's just the POTS or EDS or MCAD, etc... that is causing all my problems 😁 [it's in my genes ;P]). You really never know how much something affects you until you have good days or go into remission. Goodnight everyone and Cheers for a great day tomorrow! #medicationtalk #medicine #zofranODT #ondansetron #palliativecare #keepingmeascomfortableas possible #affirmations #selfesteem #selfesteemwhilechronicallyill #selfcare #spooniefun #okaynomorehastags πŸ˜‚


8

Repost from @viktorsvintage @TopRankRepost #TopRankRepost FREE OJ!!!!πŸ”₯πŸ”₯πŸ”₯πŸ’₯πŸ”₯πŸ”₯πŸ”₯And by free i mean that this figure can be yours...for free!! The 3rd drop of I DIDN'T DO IT OJ Simpson figure is almost here so to celebrate that i will be giving away one OJ for Free! All you have to do is: Follow me, Like this pic and Repost it! That's it! And the winner will be picked on Friday!! Thank you all for being awesome and good luck!!! #viktorsvintage #designertoys #art #arttoy #artist #OJ #ojsimpson #bartsimpson #thesimpsons #cowabunga #resintoy #free #freetoy #giveaway #homemade #90s #80s #apslife #apswarrior #apsfun #antiphospholipidsyndrome #spoonie #spoonielife #spooniefun #getouthavefun


3

FAB-U-LOUS darling πŸ’•πŸ’•πŸ’•πŸ’–πŸ’• no matter what you’re going through you’re fabulous and wishing you a restful happy joyous Saturday! Working on getting another couple of new things finished but energy levels have been up and down so 🀞🏻next week will be a better one πŸ’•#spoonievillage #chronicillness #chronicallyfabulous #abfabfan #patsystoneismyspiritanimal


5

Think pink 🌸 feeling much more human today after feeling like death and pain for the past few weeks. ME relapses are always soul destroying and with added stomach pain it’s been a tough one. Trying pink lipstick out today instead of my usual red πŸ’‹ off to sunny stowmarket today for the weekend to pick up some medication ready for my hospital appointment on Monday. #spoonielife #mecfs #myalgicencephalomyelitis #spooniefun #chronicillness #lookinghumanagain #curlsfordays #pinklips #pinklady


3

On a Monday when it’s -8C (17F) outside & I’m stuck inside at home, in pain & very bored, this can happen...
Just a small reminder to myself & others that regardless of what’s happening to us or around us, we always have the power to #create moments of #fun & #laughter in our lives πŸ™ƒ β€’
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#boredom #idlehands #dosomething #dosomethingfun #igspoonies #spooniefun #spoonie #chronicillness #invisibleillness #chronicpain #pelvicpain #coping #meditation #mindfulness #positivethoughts #thoughts #journal #writing #iphonephoto #perfect365 #makeupapp #makeup #funnyface #laughatyourself #lifeiswhatwemakeit


0

This little Nugget isn’t usually into #cattoys but he just loves this #littlereddot Go $1.99 #laserpointer

#kittymama #catplaytime #spoonielife #spooniefun #kittylove


0

Great Vision Board Workshop today ran by Salus Fatigue Foundation Charity βœ‚οΈπŸ“–πŸŽ¨βœοΈπŸ“œ
Here is my general 2018 vision board - Do you like it❓❓❓(swipe left for more pics)
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Soon I'm also going to be making 1 specifically for my blog too... Watch this space πŸ˜‰
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#creativefingers #visionboard #goalboard #moodboard #mindmap #collage #creativefun #workshopfun #helensjourney #salusfatiguefoundation #spooniefun #spoonies #artfun #creativity #visions #goals #dreams #focus #powerofthemind #powerofourthoughts


5

Bertram is excited to welcome the latest member of the #tinyteddyteam Bruce! Bruce was supposed to be a Christmas present for 2016, got lost in my Daddy’s office for a year and re-emerged just time time to be a Christmas gift for 2017. He has a very adventuresome spirit and has gone deep sea diving with Bertram to find these treasures. #nofilter #steiff #steiffbear #steiffteddy #steiffteddybear #teddybear #teddybears #teddylove #teddyfriends #teddybearsofinstgram #bearsofinstagram #spoonie #spooniefun


4

Highest rank in a completion yet! Got it yesterday but sunk back one percent. But hey, this mean it WAS a nice day for a cursed wedding!
#lovenikki #mobilegamr #dressup #spooniefun


0

Happy New Year Everyone! As you can see Bertram is hard at work in his new kitchen and Huggles is happily feasting on the results! #nofilter #tinyteddyteam #steiff #steiffteddy #steiffteddybear #tinysteiff #teddy #teddybear #teddylove #teddybearsofinstagram #calicocritters #spoonie #spooniefun


4

Em, me and Beeno are absolutely exhausted. We had a blast shopping this morning, but hit the wall when we got home. Beeno got a new blankie that he loved instantly. Rest time now 😴 #boxingday #tired #exhausted #hadfun #newblankie #cat #tabby @princetabbypossum #sleep #shopping #recharge #relax #spoonie #spoonielife #spooniefun @emmy97xox


2

🎢Santa Baby and hurry down the chimney tonight🎢 πŸŽ…πŸ»Santa brought an early Christmas gift-Halsey, a Bratz Formal Funk Cloe.πŸŽ„#nofilter #minichristmastree #tinseltree #bratz #bratzcloe #bratzformalfunk #dollcollector #dollsofinstagram #christmastree #christmasdoll #spoonie #spooniefun


1

Walking in a Spoonie wonderland ❄️❄️❄️❄️❄️❄️❄️πŸ₯„πŸ₯„πŸ₯„πŸ₯„πŸ₯„πŸ₯„πŸ₯„πŸ₯„Happy Spoonmas day 4! Spoon snowflakes look so pretty don’t you think? πŸ˜„ #spoonievillage #spoonmas #spooniefun πŸ₯„
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πŸ₯„Shop Spoonie Village via link in bio πŸ₯„
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#spoonielife #christmas #spooniechristmas #spoonielife #chronicillness #cfsme #spoonflakes #winterwonderland #chroniccommunity #roadtorecovery #chronicillnesswarrior #chronicfatigue #chronicpain #invisibleillness


0

Day 2 of Spoonmas! It’s a special golden kinda spoon today πŸ˜‰
β€œDoctor doctor, my knee hurts”
β€œHmm well, have you tried icing it?”
πŸ˜„πŸ˜‘πŸ˜„ πŸ€¦πŸ»β€β™€οΈHappy Spoonmas lovelies! πŸŽ„πŸŽ„πŸŽπŸŽ#spoonievillage #spoonmas #spooniechristmas πŸ₯„
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πŸ₯„Shop Spoonie Village via link in bio πŸ₯„
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#chronicillness #invisibleillness #spooniefun #spoonielife #chronicfatiguesyndrome #myalgicencephalomyelitis #cfsme #christmasfun #puns #gottahaveagiggle #staypositive #keepmovingforward #chronicpain #chronicfatigue #postexertionalmalaise #roadtorecovery


3

Ro’s having a high spoon day and is borrowing clothes from Rosalie. #bratz #bratzwintertimewonderland #bratzmeygan #bratzgirlfriends #nofilter #spoonie #spooniedoll #spooniefun #spooniejoys #nofilter


0

We had our first snow of the season last night and Rosalie couldn’t wait to hit the slopes! #bratz #bratzwintertimewonderland #bratzyasmin #bratzwintertimewonderlandyasmin #dollsofinstagram #dollsinsnow #nofilter #spoonie #spooniefun #spooniejoys #firstsnow


3

My lovely Phoebe with the earrings I made her and sporting a new hairdo. #bratz #bratzphoebe #crafting #spoonie #spooniefun #bratzbirthdaybash #nofilter #dollsofinstagram


0

It’s beginning to look a lot like Christmas... #nofilter #christmastree #minichristmastree #tinseltree #christmas #spoonie #spooniefun #magictree


7

When people ask spoonies if they have tried a better diet and supplements #spoonie #spoonielife #funnyvideos #spooniefun #awareness #chronicillness


0

Today is the final day of the special pre order price for the 2018 calendar. It will still be available for pre order tomorrow and until they arrive but the price will be set at its official sale price after today! If you fancy 12 months of Spoonie village in the form an A3 portrait calendar to display your home, grab yourself one at special pre order price while you can - link in bio πŸ“†πŸ“†πŸ“† #spoonievillage #preorder #spooniestuff πŸ₯„
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πŸ₯„Shop Spoonie Village via link in bio πŸ₯„
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#spoonielife #2018 #calendarforthechronicallyfabulous #chronicallyorganized #chronicallyfabulous #spooniesisters #giftsforspoonies #chronicillness #invisibleillness #butyoudontlooksick #spooniegirl #spooniefun #lymedisease #fibromyalgia #zebrawarrior #potssyndrome #endowarrior #cfsme #myalgicencephalomyelitis


0

Back from my hiatus. I took pictures - just didn't post any. Trying to find a better photo editor/collage app.
#canyouguessmysocks
#dialysiskeepsmealive
#pleasebeanorgantissueandbonemarrowdonor
#youhavetomakeitfun
#canyouguess
#dialysissocks #dialysis #socksΒ  #selfie #davitadyalysis #davita #spooniefun #spoonie #wigfun #wig


4

Loving this months @spoonieessntls box! Can't wait to read my spoonie- geared book! 😍#spoonieessentialsbox #spooniefun #carepackages


2

Love my G by #Guess purse. My favorite store at the mall! ❀️ ❀️ ❀️
Attn: @deesview
#girlsjustwannahavefun
#Spoonie #SpoonieFun


2

Thank you all for loving support. I am going to be brave and start a YouTube page as soon as I figure out how. It could take awhile lol

#canyouguessmysocks
#dialysiskeepsmealive
#pleasebeanorgantissueandbonemarrowdonor
#youhavetomakeitfun
#canyouguess
#dialysissocks #dialysis #socksΒ  #selfie #davitadyalysis #davita #spooniefun #spoonie #wigfun #wig


4

Our friend gave us the boardgame #Mysterium, and we've fallen in love with it. It's an incredible game! Legit my fave #boardgame ever πŸ˜ƒ Here I am being the #ghost πŸ˜ƒ
#boardgamegeek #Spoonie #Spooniefun #fun #disablednotdead #murdermystery #mystery #detective #rpg #geek #nerd


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