From @spoonie_village a perfect description of fatigue. I’m currently resting between waking up and getting up. My kids bring me coffee and breakfast every morning as it’s so difficult and painful for me to move in the morning. Breakfast is usually a tub of yoghurt and a banana, so it’s fairly easy. I have my morning meds, then have to lie here and wait for the pain meds to kick in. It seems so strange to think that I used to get straight up, make my own coffee and eat breakfast at the dining table. Like thinking about someone else’s life #fatigue#tiredness#pain#wakingup#gettingup#morning#meds#breakfast#spoonielife#spoonie#spooniepain#spoinieproblems
Prize for most stupid place to put a cannula goes to........
Keep catching it on everything (it won't work i can tell the vein has popped but nobody listening to me, they said without it they won't do MRI - that will be in next 3 days hopefully) especially on wheelchair wheels when I'm pushing myself round.
UPDATE : Being a preschool teacher I put on a brave face and smile for my students . I don’t want them to see me in pain even though many times I am . Today was a very high pain day for me . Both my knees are swollen and red. I can’t even bend my knees with how huge they got . My hands feel like a knife keeps stabbing me . And through it I put a smile and sing songs with my students . Because they also force me to smile when I hear those sweet voices say “Ms. Vaniaaaaaa here yay!” warms my heart like I’m doing something right here. #LupusBlog#Lupus#SLE#SystemicLupus#SystemicLupusErythematosus#LupusPain#ChronicPain#ChronicIllness#SpooniePain#InvisibleIllness