#spoonietired

Instagram photos and videos

#spoonietired#spoonie#chronicillness#chronicpain#spoonielife#invisibleillness#purpleness#exhausted#myspoonielife#spoonieproblems#mytruth#truth#tired#painsomnia#fighter#pain#disabled#chronicchaos#butyoudontlooksick#terminalillness#spooniestrong#spooniesupport#spoonietuber#health#sleep#disabilities#longtermillness

Hashtags #spoonietired for Instagram

So the look on my face shows the exhaustion that I feel all day every day. There's no reason for me to be this tired yet I've always been this tired. Even before I got pregnant. My seizures, rls, nightmares are under control. There's no reason for me to be this tired. Especially when I sleep till 8, take at least a 3 hour nap during the day and am usually in bed by midnight. I have just always been exhausted. It's ridiculous. I had a sleep study done and all they came up with was hypersomnia. Anyways I'm laying in bed hoping to rest before the spawn wakes up lol. But this is what we feel as spoonies when we're exhausted. And people will never understand as it's so different from normal exhaustion. It's just not the same. When you get so tired you could sleep 3 hours after sleeping all night and being up for 4 hours then you'll know. #spooniemama #spoonie #epilepsy #chronicnightmares #restlesslegsyndrome #hypersomina #spoonietired #spoonieexhaustion #notthesamething #ineedanapnow


0

Prize for most stupid place to put a cannula goes to........
Keep catching it on everything (it won't work i can tell the vein has popped but nobody listening to me, they said without it they won't do MRI - that will be in next 3 days hopefully) especially on wheelchair wheels when I'm pushing myself round.

#spoonie #cannula #hospital #spoonielife #spoonietired #spoonieproblems #spooniepain #doncaster #doncasterisgreat #doncasterroyalinfirmaryisntgreat #doncasterroyalinfirmary #sick #ill #disabled #disabledlife #invisibleillnesses


0

Monkey’s grooming each other in the monkey forest in Bali. πŸ’ so cute! //
Sometimes I just want to sit there and have someone groom me (okay, all the time πŸ˜‚). //
I’m getting a bit tired as I’ve switched locations- from beach to jungle - and have done more touristy things. I am in a more crowded city with lots of traffic and stimulation. //
It’s really showing me how reactive I am to the smell of exhaust, sound of traffic, the existence of chaos. My body cannot be on alert like that - I melted down yesterday, sobbing on the sidewalk. //
I was exhausted and over stimulated and hot and tired - I literally bawled, tears running down my cheeks. I had to stop and bury my hand in my face - it was too much. //
I know a lot of people with autoimmune diseases (acquired or otherwise) that move to quieter places in a more natural environments so that they can easily be in nature and stay calm.
//
I live in Oakland right now - it’s calmer than SF but still a major city. It really has me considering if I should stay... it’s a very overstimulating environment and being away has highlighted that. Might be time for calmer waters. #MECfs #lymesometimeskillsmyvibe #morethanlyme #naturetherapy #overstimulationsucks #neuroinflammation #healinglyme #healinghappens #spoonietired


3

😡😩 My tired is tired. Can't sleep with builders in here. Will be straight to bed when they've gone. #tiredaf #spoonielife #spoonie #spoonietired #spoonieproblems #spoonies #spooniefamily #spooniewarrior #spooniesisters #spooniewarrior


2

A must watch... have a blast with ME and check if we agree. I am Still ME YouTube channel!!!! I’m waiting for You! #IamStillMe .
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#fibromialgia #fibrofog #fibrofighter #fibrosucksπŸ’œπŸ’” #fight #fighter #fightlikeagirl #spooniebeautyhacks #spooniemom #spoonietuber #spoonietired #spooniebeautytips #spoonieproblems #spooniewarrior #spooniebeautyjunkie #spooniebeauty #spoonietuber


0

That's me dears, 6pm - toddlers are up later!
Btw grow Brits dying got chick Γ±? Ugh don't even know what I was typing fell asleep, oh yes - clocks go forward an hou kg rmm
Argh

Goodnight all

#goodnightpost #tiredaf #spoonietired #spooniepain #chronicillness ft uklgul


1

Happy Friday one and all .... veeeeeeery tired today after god awful sleep and then once I had finally drifted off - my son woke me because he couldn’t find his teddy (it had fallen on the floor) 😩😩😩😩 how is everyone? #fibromyalgiawarrior #fibromyalgia #fibroinsomnia #insomnia #spoonie #spoonielife #spoonietired #TFIF #whatsyourlabel #pain #fibropain #ouch #gonnafeelthislater


0

Ugh No amount of coffee or anything helps me through this but if the afternoon. Every day the same, I am trying not to go sleep today..... That doesn't mean I'm awake necessarily, keep dropping my phone & everything.

#spoonie #spoonietired #coffee #bedtime #isitbedtimeyet #ugh #sotired #needsleep


0

This is a wildflower garden I pass on my way to my therapists office. It reminds me that sometimes you can just let go, be a little less regimented, a little less controlling, and end up with beautiful results. //
I’ve realized recently how controlling I’ve become over my time and commitments. I can’t imagine letting anyone into my carefully curated space. I have to prioritize my treatment, my self care, my therapy, my health - and I can’t bend, or I will break. //
It’s pretty opposite of how I used to live my life - which was by the seat of my pants. But now? Now I feel very rigid. //
And it’s working. I’m in less pain. I’m less exhausted. I’m more functional. Everything is less hard. //
But it can be lonely. These rules protect me, but also isolate me. Someday soon, I hope to put most of them behind me and run around in the cold rain for hours bc f*ck bad thermoregulation, and f*ck exercise restrictions, and f*ck flares. #illnessisisolating #imtired #spoonietired #rulesicantwaittobreak #lymediseaseawareness #lymedontkillmyvibe #chronicfatiguesyndrome #healing #hoping #expectinganewday #someday


5

We went out! We had to go to the pharmacy and while we were waiting for our scripts we went to @sanchurro_belmont The staff we so friendly and helpful and the churros were delicious! Totally shattered now, but it was so nice to go out and do a thing. Now to recover.... Oh and these are my gorgeous kids @emmy97xox and @doggie015 #πŸ’— #kids #emmy #jay #love #fun #sanchurros #greatstaff #friendly #helpful #churros #delicious #snackpack #easter #pavlova #strawberries #kiwifruit #yum #exhausted #shattered #tired #recovery #rest #spoonie #spoonielife #spoonietired


14

Duality lyrics
I have always related to this song so much, it was through this I knew things about Corey he'd never made public back then.
I now relate in a different way, I am so so so exhausted right now, there's a good chance I'm aneamic but my drs sigh..... But I am struggling to be awake more than a few hours even then i can be falling asleep, & my dreams and reality are getting so jumbled.
I have even been wondering at times if I'm actually dead I am so disconnected, it's so strange.

#musicismymedicine #spoonie #spoonietired #spoonieproblems #spoonielife #duality #slipknot #lyrics #songlyrics


4

Fucking fed up
Anyone who thinks this shit is the easy life it fun I'll swap places with you no question.

#miserylovescompany #miserable #spoonie #spooniepain #spoonietired #exhsusted #chronicillness #terminalillness #legaliseeuthanasia


16

Right? Every time I hear this, I’m like β€œyou’re so lucky to have gotten 4 hours of sleep!” Ugh. #this #sotrue #yourtiredisnotmytired #mytruth #myspoonielife #spoonie #spoonietired #myspooniejourney #chronicillness #tired #drained #exhausted #painsomnia #chronicpain #chronicfatigue #truth #purpleness #invisibleillness πŸ’œπŸŒ»πŸŒ·


3

I am sorry, I'll try to do better, seriously seriously tired at the moment, crappy chronic stuff. Surprised my phone still works it's been dropped on the floor so many times with me falling asleep 😞😣 #sorry #physicalhealth #posting
#illness #disabled #spoonie #chronicpain #chronicillness #invisibleillness #terminalillness #disabilities #spooniesupport #spoonielife #spooniestrong #spoonieproblems #health #pain #painsomnia #sleep #exhausted #spoonietired #longtermillness #idontlooksick #bedtime


12

I don't care it's Friday, I do not feel happy at all, I'm well and truly miserable & having a moan, so if you don't like it don't read it!

I put up with a LOT from my illnesses. I am not really a girly girl, but my hair & nails have always been ways I've been more feminine, my hair won't hold colour now & now my nails are breaking from the slightest thing, they are so weak it's unreal.

I've always had great nails, they've always grown, I've never needed false ones & been able to be sparkly & creative with them. I'm wondering how much more do I have to endure.
I know that's self pitying & there are far worse things could happen - believe me I live with many worse things without complaining much, & yes I probably am being ridiculous but my nails were an escape from illness, if they looked good I felt better than I really am.

I won't dwell too long, I know it won't get me anywhere but I am having a mini melt down for the next hour, so feel free to ignore me

#illness #disabled #spoonie #chronicpain #chronicillness #invisibleillness #terminalillness #disabilities #spooniesupport #spoonielife #spooniestrong #spoonieproblems #health #pain #painsomnia #sleep #exhausted #spoonietired #longtermillness #idontlooksick #canteven #fedup #miserable #sick #sickofbeingsick #mentallydrained #reality #truthoftheday #butyoudontlooksick #whatnext


15

I am here with another dose of reality, but I've if those 'I'm ill but still climb mountains' posts, because those things can be as harmful as miserable ones all the time!
One of the worst things with end stage liver disease is how much it affects your sleep. I also have other things that play into it like pain with my leg (haha I'm falling apart lol πŸ˜‚) I am sucking it up, I am just really struggling with it. I have a hospital appointment on the 24th & have to try & be able to be awake at 5pm - yes a hospital appointment at 5pm πŸ™„ that's virtually bedtime for me πŸ€ͺ

#illness #disabled #spoonie #chronicpain #chronicillness #invisibleillness #terminalillness #disabilities #spooniesupport #spoonielife #spooniestrong #spoonieproblems #health #pain #painsomnia #sleep #exhausted #spoonietired #longtermillness #idontlooksick #esld #cirrhosis #liverdisease #ridingawareness


2

Sorry for the lack of posts today, I have nothing to say, I know, I know!
Just exhausted again 😟
So tired it's 18.30 nearly & I'm off to bed. See you do tomorrow, hopefully a brighter me. #illness #disabled #spoonie #chronicpain #chronicillness #invisibleillness #terminalillness #disabilities #spooniesupport #spoonielife #spooniestrong #spoonieproblems #health #pain #painsomnia #sleep #exhausted #spoonietired #longtermillness #idontlooksick #canteven #bedtime


9

Afternoon sorted. Cats & dogs film & I have no doubt at all some much needed Zzzz's So tired it's unreal. Have a good afternoon ❀️
#BoxingDay #postchristmas #tired #spoonietired #spoonie #afternoonsorted #myday


0

@emmy97xox and I just watched Fantastic Beasts and Where to Find Them. What a brilliant movie, we both loved it. The Niffler reminded us so much of our ratties, just the way he moved was so rattie like. I hope there’ll be a sequel! #fantasticbeastsandwheretofindthem #brilliant #movie #lovedit #nifflersrule #niffler #rattie #ihopetheresanothermovie #neededabreak #restandrecharge #spoonie #spooniepain #spoonietired #spoonielife


2

I am. I'm also spending the week with my baby girl & I'm just resting. Hubby & I get introduced to so many good movies when we're with her πŸ˜ŠπŸ‘ We love our time with her. The weather is bothering me big time but I'm having a great time. I hope you're having a comfy low pain day #sotrue #imtired #fatigued #spoonietired #mytruth #truth #spoonie #myspooniejourney #chronicpain #chronicillness #chronicfatigue #purpleness #invisibleillness #painsomnia #myspoonielife #invisibleillness πŸ’œπŸŒΌπŸŒ· #unknownmemecreator #lovemyfamily β™₯️


6

Aww, that wading thru mud exhaustion. I'm there now so it's off to bed. Hubby & I took a drive & the lightening storm is here again. Gotta get prepared for that weather battle. Prayers for a good nights rest, deep comfy sleep & low pain. Goodnight. Sweet dreams. Gentle hugs 😴 #sotrue #wadingthrumud #exhaustion #spoonietired #wadingthrumudexhaustion #truth #myspooniejourney #mytruth #myspoonielife #spoonie #invisibleillness #chronicpain #chronicillness #chronicfatigue #purpleness #chronicillnesscat πŸ’œπŸŒΌπŸŒ·#unknownmemecreator


2

I've traded in the bags under my eyes! I'm now the proud owner of cargo planes under my eyes! WWII cargo planes to be exact!!! #exhausted #spoonietired #dragginass #adultingsucks


1

Here's the booth. It's over, I had a blast and saw lots of old friends. I'm a squashed overcooked noodle now. Sold a few Story Quilts (yay!) and did a lot of Tarot Readings (yay!). Now I just need to recover for a few months. Thank goodness G and another friend helped me pack up and drove me home! #exhausted #spoonietired #somuchfuntho


19

On the way to Sunday dinner and back again. I took a scary and painful tumble today - the world seemed to tilt, then I did, and balance was a thing of the past. Tried to stop the fall, but I think I just made it worse - I sprained my wrist, landed on a footstool causing aches from my lower back down the side of my thigh, kept going and scraped myself across a cardboard box causing #abrasions that are not comfortable, especially since I'm SITTING on them.) Figured flats were called for, and these are my favorites... I'll probably wear them until they completely fall apart! On the way home I was tired and in too much #pain to switch... so it was #fuzzysocks all the way. #Spoonie #SpoonieLife #SpoonieTired #DizzySpell #POTS #POTSie #POTSy #Chiari (newly diagnosed) #NeurologicalIssues #HeyWhyNotRight? #JustThrowMoreStrawOnTheCamelsBack #AtLeastIFellAsleepAlmostImmediately #ExceptIDidntGetAChanceToTakeMyMeds #ImFeelingTHATNow #InAllTheSpotsIHitOnTheWayDown #ThisWasSupposedToPostHoursAgo


0

This comes close to how #tired I am. I feel like I don't have the energy to stand up, move a single inch, read, or even watch πŸ“Ί tv so I'm going to bed already! #fibrotired #spoonietired #hypothyroid #fibrowarrior #fibroflare #fibrofighter #fibrosucks #fibrolife #spoonie #spoonielife #spoonieprobs #beyondtired #exhausted #fightlikeagirlπŸŽ€ #dreambig #dontforgettopray #gratefulfortoday #thankful #disabled #retiredmilitary


6

BUT playing with my baby nephew was so worth it & hanging out with family! Baby nephew & I played cars, with his mega blocs, with puzzles & we shot some hoops on his lil basketball goal. It was fun & definitely worth the tiredness I feel. He gets so excited to play that I just try to keep going until one of us runs out of gas & it's usually me πŸ˜„. I hope you had a good Spoonie day. #sotrue #iam #onehundredfourpercenttired #soworthit #payingtheprice #nocomplaintshere #playtime #babynephew #lovemyfamily #spoonie #spoonieknows #truth #spoonietired #purpleness #invisibleillness #chronicillness #chronicpain #chronicchaos #mytruth #myspoonielife #myspooniejourney πŸ’œπŸŒ»πŸ‘ΆπŸ½πŸ€βš½οΈπŸŽοΈπŸš’πŸš•β€οΈ #unknownmemecreator


5

This is so understated but I love how cute Snoopy looks πŸ˜„. It was fun hanging out with you today. Prayers for a comfy nights sleep with low pain & sickness. I'm so excited for tomorrow because I get to hang out with my baby girl πŸ‘πŸ½πŸ˜Š. Gentle hugs. Goodnight. Sweet dreams. #tired #drained #plumtuckeredout #exhausted #spoonietired #snoopy #peanuts #hadfunhangingoutwithyou #spoonie #myspoonielife #mytruth #takecare #goodnight #sweetdreams #gentlehugs #purpleness #chronicpain #chronicillness #chronicchaos πŸ’€πŸ’œπŸŒ» #unknownmemecreator


0

... and then there's #spoonietired ... If you don't know what that means, hope and pray you'll never understand. #spoonie #spoonielife #gnzpfrmbl


0

This has been so true for me. I just prayed for my Spoonie normalness to come back. It was beyond anything I've ever struggled with as a Spoonie. Having chronic bronchitis & pneumonia in the past was like a walk in the park. I'm concerned how much more damage was done to my non-existent immune system after what I'm still recovering from. I'm just praying I can recover back to where I was before my battle with #hematemesis #gastroenteritis πŸ™πŸ½ #truth #mytruth #spoonie #ugh #myspoonielife #purpleness #invisibleillness #battling #chronicillness #struggling #chronicpain #spoonietired #spoonienormal πŸ’œπŸŒ»


8

After seriously battling hematemesis gastroenteritis (what I was diagnosed with last Monday & what caused me to be admitted to the hospital), extreme, beyond & over the top exhaustion is what I feel. Everything is overwhelming & especially with major changes happening in my life, It seemed like I couldn't catch up on rest. I am resting tho. The tiredness is fierce but I'm still getting myself up. Yesterday I got up to print something I needed & I was so worn out afterwards 😜. I was so happy to get out of the house today & spend it with my daughter & Ms Owie. It was a fun day. My spirits were scraping bottom & they were definitely lifted today even moreso. I'm so grateful that my #family carries me when I can't carry myself both physically & emotionally. It's a good tired I feel now because of my loved ones. I hope you're doing Spoonie good. #tired #truth #tiredsomemore #spoonietired #spoonie #myspoonielife #mytruth #purpleness #spoonierecoverytime #itsbeenastruggle #stillbattling #chronicchaos πŸ’œπŸŒ»


3

Today's my last 8:30AM class!! πŸŽ‰πŸŽ‰ it's been terrible but this mandatory class is only ever offered at 8:30. I've taken 8:30AM courses before I've become sick and was tired, but didn't have intense neurological symptoms associated with the pure exhaustion. Now with my fatigue, no matter what time I go to bed at, I'll sometimes hallucinate, my limbs will go numb, my eyes will dry out and go red (my profs always ask me "what's wrong?" cause they think I've been crying), etc, etc. Spoonie tired is a kind of tired no healthy person will ever experience, it's not comparable. It's not a tired that sleep will fix. 😴 Vitamins and supplements don't help, eating the most pure diets from gluten-free to raw vegan to paleo don't help, but Modafanil does help take the edge off to the point that I can drag myself to my 8:30 class. Words cannot explain how relieved I am to have this course over with (even though I love what I'm learning). #spoonietired #cfs


1

Story of my life: I moan all day about how tired & exhausted I am but when it actually comes down to going to sleep I never can.. πŸ™‰And the worst part ... When I wake up, I never feel like I've had a sleep anyway... πŸ˜”Still wake up knackered!! 😩 #whyme #ulcerativecolitis #uc #chronicillness #chronicfatigue #ibd #ibdawareness #crohnsandcolitis #crohnsandcolitisuk #crohnsandcolitisawareness #tired #neversatisified #spoonietired #spoonie #exhausted #ulcerativecolitisproblems #poorly #sleepy #nevergiveup #storyofmylife


1

Spent my day drawing & painting. Made this birthday card for my brother whose birthday is coming up in 2 weeks. When I make birthday cards, I add their birthday flower. I don't know why, I just like to πŸ˜„. I hope he likes it πŸ™πŸ˜Š I'm done for the day, I'm tired so going to go lay down for a bit & hopefully get a walk in after supper πŸ‘ I hope you are having a low pain day. #birthdaycard #homemade #forbrother #october #amateur #drawing #painting #watercolor #freehand #pumpkin #birthdayflower #bat #spiders #spiderweb #fallleaves #witcheshat #halloweentheme #falltheme #hadfun #spoonietired #timeforanap #spoonie πŸ“’πŸŽ¨β€οΈ


2

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