Friday socks.#owl socks #purple socks. I couldn't pack all my costume stuff so I just am wearing purple and purple socks to dialysis while on my #vacation
They said they would pull off fluids today. I'm hoping they do. My stomach really hurts from all this extra fluid.
My awesome #vacation techs! #purple#polkadot socks
I'm getting very frustrated with my #vacay dialysis nurse and home Drs. I have extremely low blood pressure. It normally runs anywhere from 60/40 to 80/60. And when I am doing dialysis get gets lower, much lower. So understandably my nurse is extremely nervous when this happens. So she stops pulling fluids off. (I don't pee so any fluid I eat or drink has to be taken off with dialysis) Well this has not been happening. I am up over 15 pounds of fluid. My face is swollen, my legs are swollen and my stomach are swollen. My lose pants are uncomfortably tight. If she doesn't take fluid off tomorrow it is going to go around my heart and lungs. Causing me to have to go to the hospital. I have asked my home Drs to help. They say they can't. I finally had to call my dialysis complaint line. They gave me numbers to call on the morning, but if they don't help, I get to spend part of my vacation in the hospital. So not necessary. I only had 6 dips of liquid today. I've been so nauseas I've couldn't eat all day. I was finally able to eat some toast.
It's not my fault I have low BP. The medicine you can take to raise it did absolutely nothing.
Prayers would be appreciated and thanks for letting me vent.
The pictures probably don't show it clearly, but I was a quilt with quilt like socks from @societysocks a great company that #donates a pair of socks with every pair they sell. If you can join their sock of the month club. It's fun getting cool socks in the mail
What to do when your birthday falls on a dialysis day??? Bring a birthday party to dialysis. With flashing tiaras around the room everywhere I looked I could see my partying dialysis mates. Everyone got a pencil and vanilla wafers (even diabetic patients can sneak a wafer) and when all we can do is just lay there the flashing tiaras made my day. I'm not suppose to take pictures of other patients and it took awhile for everyone to get theirs. But it was a fun party that I look forward to hosting every other year. I also found out that one of my fav. Mates shares a birthday with me, but now that I go in an hour later I miss seeing her and her family. But I did get one of her birthday donuts.
Monday's ride with Marilyn, she's a hoot and a hollar. These are @stancesocks#skateboarding socks. So thick I feel like I'm walking on air. I really need to get more stance socks and wear these more than once a year. I totally forgot to take pictures of my #emoji jewelry oops.
My full ducks in the rain costume. Down to the clear rainboot that you can see the cute sock that @funsockcity is giving away for anniversary! How cool is that? (While supplies last. US only.) I'm suppose to mention other things but I lost the letter that came with the socks. But here is the link to get your cute pair of comfortable socks.
My phone's photo app made this this now (right) and then comparison. I was surprised they found the same facial expression.
The sad news is I lost my new eyeglasses. I have jewelry I was given in elementary school. But expensive eyeglasses I misplace. I had them here at home Monday so I should find them..... I hope.
Happy Easter. I took an Easter basket with eggs filled with mostly none candy items (Easter erasure and plastic bugs, dollar store treasures). And went to each of my Dr offices in the building with my dialysis center and delivered goodies. Then I went to dialysis and went to each dialysis mate and delivered them eggs and candy both regular and diabetic. I had so much fun. I just love my dialysis mates! I love it when they are feeling good and I'm sad when they're not. It's nice getting to know their families. Some of them now take pictures of me. Who would have thought? Not me. This whole thing started as a lark. And when I started to Instagram my socks I thought I should have a purpose. I never thought this would help me as much me as much as it has. At first making up costumes distracted me from thinking about the fact I was going to get 2 huge gauge needles shoved in my arm later that day. After being distracted for so long I really stopped caring or worrying about it. Something I thought would never happen. And now I'm shoving those needles in my own arm. A lot can happen in 9 yrs.
Being the Easter Bunny made Friday much easier. And I wanted to make it easier for my nurse too. She was having a hard time leaving us.
Thanks for caring and letting me talk. It helps me a lot. And forgive me for not proof reading. I'm being lazy. Which after procrastinating is par for the course don't you think?
Wednesday's socks and the apron my sister made me. Getting ready for Friday's #Easters look. I received devastating news at dialysis that night. I had to wait until today to post. My dialysis nurse of 5 yrs. Who got me through my #nephrologist retiring, and so many things is moving on to new adventures. I get really attached to people who keep me alive. And we had so much fun together. When my online shopping was so out of control we would have such a blast opening my packages together. And I would order so many phallic type objects to embarrass her. And my dialysis mate Diana would love so loud. And her laugh was so fun and beautiful. We had such a blast. Diana died unexpectedly last fall. It's going to be so extra hard with both of them gone. I don't even feel like wearing socks or dressing up tomorrow. But I make so many of my dialysis mates smile and I would hate to let them down. I guess you fake it till you make it. I almost feel as sad as when my son passed away. Sometimes change really really hurts. This nurse was the first nurse that really listen to me. She noticed there was a problem between my new inherited nephrologist and me and worked and fixed our personality differences. Now my Dr. and I have fun. I never had a panic attack until my old nephrologist retired. But if I have one tomorrow I might not get my usual medicine and dialysis is unbearable without it.
I'm so happy to be happy to have the words Please be an organ, tissue and bone marrow donor! on my photos again. It just feels right. Pictured with me was my Monday ride to dialysis, Janelle an neighbor and friend extroidinair (stupid spell check wont fix that for me). I tried to make my face look like the fox on my socks.
Last Monday was Zebra day! Even though you can't see it well I like it best when I can't write Please be an organ, tissue and bone marrow donor on my pictures. This isn't the best photo editor but I'll keep looking. But I feel better posting pictures like this. And thank you @hotsoxco for the cute socks. You really need to check their soxs out!
Thank you for listening (reading) to me vent a bit this morning. It was just what I needed. I immediately felt better. Hubby said we should wait until the weather is a bit warmer. He's right about that. Not sure what type of pup I want. A cuddling type for sure. I'm wearing my cute puppy socks.
I braided my hair and I liked how I looked. So no wig or makeup today- cause I look good without
Wednesday's socks - My Stop making sense socks. My life has kind of stopped making sense....in a way. It's hard to explain. I'm sure part of it is the time of year (Seasonal Affect Disorder is rough) but I think another part is I want a vacation. A vacation from dialysis. I've been doing it for 9 yrs now. I think a month off would be nice. But I know there is no vacation from dialysis except death and I do NOT want that at all. I want grandbabies and puppies. That's it since none of my boys are even dating I need a puppy. I love how talking things out clears your mind.
A puppy would be the perfect substitute for a vacay! What do you think hon?
Monday was National Polka Dot day which was the perfect day to wear these sock I bought from all the way down under from @getsocked they are a great sock company that you should definitely check out their store.
A huge shout out and thank you to @sixsoxsilver !!! I enter their sock contest last month....but I didn't win. They sent me a message saying that although I didn't win they like what I am doing with my page and to please go to their website and pick any pair of socks. This is my pick. #Canadian socks! I love our awesome neighbors to the north we are so lucky to have them.
Monday was a #paisley day.
I'm wearing @happysocks. My tunic and pants are from Zulilly by Azalea they are the most comfortable clothes. Perfect for dialysis. My sister surprised me with a visit yesterday. (She called me last week and told me, but my mind remembered it as next week lol) She took me to breakfast and to hobby lobby. Then she stayed and visited with me and took me to dialysis. She also made the paisley ribbon #bracelet I bought it to make it, but truthfully I would have never gotten around to it. It took us a llooonnnnngggg time to get over childhood dramas but I'm glad we did because I love having a sister! She's even going to knit me a cool pair of socks! She is an expert knitter and quilter so I am lucky. I have many of her beautiful works of art.