#CFLife

Instagram photos and videos

#cflife#cysticfibrosis#cfwarrior#cysticfibrosisawareness#fitness#health#orkambi#instafit#cftrust#instagood#crossfit#motivation#mission#cysticfibrosiskids#lifestyle#lovelife#peace#fitkids#nutrition#journey#instfit#fight4orkambi#love#crossfitkids#cf#kidscrossfit#cfawareness#fitnessmotivation#sunday#handstand

Hashtags #CFLife for Instagram

by @pti_biotech

After months of traveling around the globe and a summer spent in Europe, @stephilee is back in Boston. She is spending a couple of weeks at the hospital to get her lung function back up. We are her devoted followers. If you want to learn what it means to live with #cysticfibrosis, here is your chance to ask her anything! #Repost
・・・
a lot of people have requested i film a q&a video while i’m here in the hospital 🏥🚑 so ask me whatever you wanna know about cystic fibrosis, life, death, hospitals, health, or anything along those lines in the comments & i’ll answer some of the best/most liked ones in my next video! ❤️👇🏼🌻
・・・
#CF #cflife #lifewithcf #cfwarrior #cffighter #fightcf


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by @katdeligo

Playing guitar for the first time in what seems like forever. I miss playing music.
#music #elvispresley #canthelpfallinginlovewithyou #fallinginlovewithyou #guitar #music #sing #fucf #cysticfibrosis #cflife #performer


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by @bri_cf_life

Holidays are always good to free the mind😛 #cf #cflife #holidays #holidaywithmybestie #relaxing #noworriesintheworld


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by @normal_life_youtube

‪As we say goodbye to the great summer we have had this year, each CFer will be using this phrase, not because of the brilliant HBO show but because of the challenges we face in Winter with #CysticFibrosis. Here are some great tips from @cftrustuk >> copy and paste this link in your google search https://www.cysticfibrosis.org.uk/news/christmas-and-cf @cfaware


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by @julievanboxsom

On commence la semaine avec le training le plus difficile mais aussi celui que je préfère les jambes... presse, legs extensions, squats... j’ai bien galéré surtout la presse qui n’est pas du tout comme dans mon ancienne salle mais les sensations sont meilleures et c’est beaucoup plus difficile... bref que du mieux #legday #legdayworkout #legday🍑 #squat #fitness #fitnessgirl #fitnessmotivation #cflife #cfwarrior #nopainnogain


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by @helpsabrinabreathe

Clinic day, flight down and back in the same day. Lets do this ✌
#cflife


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by @jacbessette

Hey friends! If you saw my stories you know... we loved the movie Life Itself.... check out the blog for why! >>Link in Profile<<

Ashburn, Virginia
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by @southcoast_cf_fitkid

THE FLOOR IS LAVA 🔥🔥 The end of the week is here and on the dawn of a new week I want to wish all my other CF Warriors to have a great week and to kick CF butt 👊🏻
Eat well , exercise , take your meds and do your physio...LETS SMASH IT💪🏻
#🦄💪🏻💜💚💙 #positivevibes
#cysticfibrosis #cysticfibrosisawareness #cysticfibrosiskids #cflife #fight4orkambi #cftrust #cfwarrior #mission #motivation #peace #love #instagood #instafit #fitness #fitkids #instfit #orkambi #health #nutrition #journey #lifestyle #lovelife


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by @carisa_noelle

Lazy rainy Sunday ⛈


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by @leo_love_lioness

The cure for anything is
s a l t w a t e r
.
s w e a t
t e a r s
and the s e a .
.
When we arrived here at Spiekeroog 4 days ago, I was coughing all the time. I didn’t feel really comfortable. My lungs felt heavy from all the mucus inside and every little hill was like a huge mountain for my body. I know these periods well, so I don’t even worry much about it. Healing is not linear and so is Cystic fibrosis. It is always an up and down, it comes in waves. I learned to accept this (most of the time) .... the last days we spent nearly every free minute by the seaside, walking kilometers in the sand and dunes barefoot in the ice cold salty water. Breathing in the salty air. Deep inhales and exhales. Just breathing. In connection with the elements. Letting all just be. Letting me just be. The stormy wind was blowing through my air into my face, the sand was peeling every pore of it, too. Rain all over my body.
The walks by the ocean felt like a huge all round clean up of my whole body mind and soul. Magic of nature. Wind, water, sand, salt, Mother Earth showed her magnificent healing power.
Today we are leaving and I can breathe more deeply, walk faster and nearly don’t cough anymore. The mountains became hills now again and I am grateful for the cure for anything: s a l t w a t e r .
With a pinch of acceptance and t r u s t .💛
.
.
.
.
#cysticfibrosis #cflife #cfwarrior #saltwater #cure #cfawareness #mukoviszidose #healing #seaside #inhaleexhale #ocean #motherearth #nature #magicofnature #nature #naturephotography #travelyogi #meditation #yoga #selflove #connection #mindfulness #bodypositivity #spiekeroog #balticsea #saltyair #letgo #thoughts #qotd #breathe #satnam

Spiekeroog
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by @katdeligo

Practicing handstands. Did the best handstand of my life then ended up on my ass 😂
#circus #flexability #handstand #performer #dancer #dance #strength #yoga #fucf #cflife #cysticfibrosis #dancerlife #music


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by @strawfiechallenge

Do a #sunday good deed and help us get this petition to 40,000 signatures. The UK cystic fibrosis community are fighting for ground-breaking drug #Orkambi - But the deal we are fighting for will include all future drugs for CF currently in development. If you know someone with cystic fibrosis - or if you are just a kind, caring person, please sign the petition (Link in bio) and share the link for us. Many thanks. Enjoy your Sunday!
#Sundaymorning #CF #OrkambiNow #cflife #cysticlife #justbreathe #orkambiandcfpipeline #ukneedsorkambi #ukneedsorkambinow #health #charity #charityuk #breathe #breath #fibros #cysters #lungs #strawfiechallenge #takeabreathforcf #lifeunlimited #cfawareness #cfaware #cftrust #cftrustuk


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by @southcoast_cf_fitkid

A shout out to my fellow CF warrior and friend @sarah2812 Chloe and a HUGE well done for going to her first ever cross fit session yesterday!! She absolutely ACED it! Its so good to see other #cfkids getting fit & active to help themselves stay well and I feel super proud that I inspired her to go! Exercise is medicine but its also fun too 😃😃 well done Chloe keep smashing it 💪💪
🦄💪🏻💜💙💚 #crossfit #kidscrossfit #crossfitkids
#cysticfibrosis #cysticfibrosisawareness #cysticfibrosiskids #cflife #fight4orkambi #cftrust #cfwarrior #mission #motivation #peace #love #instagood #instafit #fitness #fitkids #instfit #orkambi #health #nutrition #journey #lifestyle #lovelife


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by @breatheeasy_

Neb time. 😚💨
➡️➡️➡️ •••
My cough is finally starting to settle after a week of oral antibiotics & I’m in full ‘holiday prep’ mode ahead of Thursdays trip to Croatia. My chest really struggles with flying; it leaves me tight and productive and often results in infection. So, I’m exercising loads, doing every treatment (all my neb’s included) religiously and getting in as much #physio as possible in preparation ✈️ Lots of Cystics wear masks when they fly, and some require oxygen in the air. My FEV1 (lung function) is steady about 55-57% so I don’t need the latter, but I’m looking to try a mask on longer flights. Any #recommendations? •••
#cfawaree #cfirl #cflife #cysticfibrosis #cysticfibrosisawareness #travel #holiday #treatment #breatheeasy #cyster #cfwarrior #boomerang #tobipodhaler #weekend #croatia #preparation #travelling #instagood #saltygirl #flying #flight

London, United Kingdom
5

by @southcoast_viking

A new video from today’s kids crossfit session @theboxportsmouth
Ivy worked so hard today and even tho it’s only her 3rd week she is improving so much and her stamina is unreal. She is such a little Viking herself and she is already talking about crossfit next week 💪🏻 THATS MY GIRL !!!! @southcoast_cf_fitkid
#crossfit #kidscrossfit #crossfitkids #motivate #passion #courage
#cysticfibrosis #cysticfibrosisawareness #cysticfibrosiskids #cflife #fight4orkambi #cftrust #cfwarrior #mission #motivation #peace #love #instagood #instafit #fitness #fitkids #instfit #orkambi #health #nutrition #journey #lifestyle #lovelife


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by @southcoast_cf_fitkid

New video from today’s crossfit kids class at @theboxportsmouth
Was hard today but loved every second of it....from princess to sweaty diva in 60mins 😂😂😂 roll on next week 🦄💪🏻💜💚💙 #crossfit #crossfitkids #kidscrossfit #gym #exercise #motivate #hardwork #cflife
#cysticfibrosis #cysticfibrosisawareness #cysticfibrosiskids #cflife #fight4orkambi #cftrust #cfwarrior #mission #motivation #peace #love #instagood #instafit #fitness #fitkids #instfit #orkambi #health #nutrition #journey #lifestyle #lovelife


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by @emilyeuphoria

Hi 🤗
A few of the many faces during the PICC process...
Of course had to make the first photo the cute one of me when the picc was successfully completed and correctly placed lol! Thank you to Deirdre for killing it once again! She’s the best. This picc insertion was a breeze 🙌🏼 (the Xanax helps lol)
Thank you to everyone who has reached out! All your messages, texts and well wishes have been a huge pick me up. Can’t wait to hopefully get out of here in a few days. Love to all! ❤️
#piccline #cysticfibrosis #killinit #allsmiles #emilyseuphoria #thewhiterabbit #tattoosintact #saltygirl #cflife #downtherabbithole #squishables


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by @youcannotfail

Finished off year five of #bike2breathe In beautiful Kansas City! I would like to thank my donor, sponsors, and all who supported us along the way. I dedicate this ride to my late friend, @_stormmm_ let’s #curecf .
#vertexpharmaceuticals #cfawareness #fightcfwithbef #kcloves #cfwarrior #cflife

Kansas City, Missouri
0

by @meetthestroops

Day 10: Making our way across the country slowly but surely! One of the main things that sets us apart from other riders is packing all of Taylor’s medical supplies which doesn’t make the bike any lighter😆 Medication, breathing treatments and feeding tube supplies are all of the essentials for a CFer but we don’t let that stop us from our dreams!

https://www.gofundme.com/fourupsponsorship

#cysticfibrosis #cflife #cf #cysticfibrosisawareness #justbreathe #chronicillness #lungdisease #adventure #motocycle #klr650 #TAT #transamericatrail #explorer #travel #camping #camp #wanderlust #takechances #happycamper

Curlew National Grassland
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by @swflsharks

Today is match day! Catch us on the grid at 4pm vs @tampabaybrigade ! You won’t want to miss this match up. Tickets are $20 at the door. See you at @valorfitness_ ! 🦈🦈🦈
#sharkfit

Valor Fitness
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by @julievanboxsom

Dernier training fini... bonne semaine avec 4 séances en plus des abdos à la maison... maintenant place à la détente avec peut être le dernier après midi piscine de l’année 😓. #cfwarrior #cflife #fitness #fitnessgirl #fitnessmotivation


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