#CFS

Instagram photos and videos

#cfs#chronicillness#spoonie#chronicpain#fibromyalgia#invisibleillness#chronicfatigue#spoonielife#fibro#anxiety#autoimmunedisease#disability#autoimmune#spooniestrong#crps#pain#chronicfatiguesyndrome#pots#fatigue#mecfs#dysautonomia#spoonies#depression#lupus#mentalhealth#health#posturalorthostatictachycardiasyndrome

Hashtags #CFS for Instagram

A new day of @spoonie_village’s challenge for ME/CFS awareness month!

DAY 27: REST TIME | Whenever I have had an activity, I need rest and recovery time. From getting up and dressing myself to going on a trip, afterwards I need to allow myself plenty of time to rest, though the length of course varies depending on the activity and overall state of my health. Plus the more I consciously build in rest time, the more I am able to cut down the overall rest time I need. Listening to my body’s needs and acting on that has really been beneficial the past year or so. Though its needs always vary. Such is the spoonie life!💕

#chronicillnessandME #spoonie #MECFSawarenessmonth #spoonielife #chronicillness #illness #invisibleillness #chronicfatiguesyndrome #cfsme #cfs #mecfs #ibs #gravesdisease #autoimmunedisease #thyroid #fibromyalgia #fibro #menieresdisease #hidradenitis #vertigo #fatigue #migraine #chronicpain #tinnitus #lupus #eds #anxiety #mentalhealth #depression #awareness


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A few of my favourite things: shnitzel with spinach 😊
I'm having post- new blog hands inflammation, so can't write or use them at all. They have to rest in order to work again. So this week Just watching my dogs and plants should be plenty. ❤️
#mygarden #ediblegarden #spinach #growingspinach #newblog #spoonielife #spoonie #meawareness #invisibleillness #cfsblog #meblog #chronicillnessblog #invisibleillnessblog #myalgicencephalomyelitisawareness #cfs #cfsme #lifewithme #lifewithcfs #chronicfatiguesyndrome #invisibleillness #cfsawareness #cfswarrior #mewarrior #lifewithinvisibleillness #housebound #chronicillness #dysautonomia #inflamation #autoimmunity #autoimmunewarrior


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Love this 😂😂👌🏼
Have you been following our yoga experience on Facebook? It’s almost coming to an end, head over to Facebook to have a look!


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My Quinceañera. I chose to raft the San Juan river for five days. Don’t remember much haha 🍄 it was beautiful though and slickhorn canyon is always a beautiful hike. Mejor que una fiesta con un vestido elegante que nunca volveré a usar!
#goosenecksoverlook#naturephotography#quinceañera#naturalworld#sanjuanriver#mexicanhat#outdoors#landscapephotography#comingofage#panameña#desert#canyons#naturalpools#familia#slickhorncanyon#goosenecksstatepark#cfs#fibromyalgia#adventure#justakid#travel#imigrantes#creekside#vintage#otroladodelmundo


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Guys, we talk about the physical part of this so often because we eat, breath, sleep it. But part of fighting the uphill battle for understanding is talking about even the darkest of dark corners. So here I am, continuing to try to be vulnerable for all of you. Why? Because you are not alone in this and it's time we started supporting each other.

This has been the loneliest year of my life. Tonight has been especially hard- everyone is celebrating together drinking, swimming, enjoying time with friends and I'm home throwing up because I took my methotrexate yesterday. But the medication isnt the reason I'm home. I'm home because of all the things going on, I wasnt asked to join.

And thats a very real issue for most of us in the chronic world. Out of sight, out of mind right? And it's hard to know what to do for people when you cant understand what they are going through. So people just don't do anything. And we are the ones who suffer.

Guys, it sucks. I'm with you on that. I've cried all night over it. Ive always been social and kept a full calendar. adjusting to life as a lupie has been excruciatingly lonely.
But the point here isnt to gain sympathy. You guys get it already. The point is to remind all of us that we are in this together. And that's the beauty of social media- it might look different than our previous lives but we have this amazing opportunity to connect with each other. To see each others posts, comment, and share in the comfort of knowing that someone out there gets it.
It has been a pretty crappy day, but the fight continues. I promise to continue sharing it all, good, bad, and ugly because I believe in the power of connections.
Tomorrow will be better. 💜

#lupusawareness #lupuswarrior #lupie #lupus #chronicillness #chronicfatigue #cfs #autoimmunedisease #autoimmune #autoimmuneawareness #spoonielife #spoonie #toxinfree #themoreyouknow #lupiechick #lupielife #lupussupport #lupusawarenessmonth #sjorgens #rheumatoidarthritis #ra #lupusproblems #lupusfacts #lupusfighter


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Think the only way to get protein is through animals .... think again!⁣

Protein is an essential nutrient, but that doesn't mean that we are meant to only get it through cows, chicken, and fish. We need plant sources as well to ensure that all of the essential amino acids are included in our diet. ⁣

.... AND ....⁣

It's not hard to include plant proteins in our food. Most times we already eat them for other reasons.⁣

Can you spot a plant protein you already eat for other reasons?⁣

#livingkleen #veganlifestyle #laughalittle #laughalot #holisticnutrition #eatrealfood #foods4thought #holistichealth #healthyeats #eatwell #holistichealing #eatyourveggies #eatyourgreens #eatfresh #antiinflammatory #autoimmunity #chronicfatiguesyndrom #holisticliving #CFS #RA #fibromyalgia #celiac #cancersucks #


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Uri 💕 #CFs


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January 15th. A day that will always hold a special place in my heart! On this day I was discharged from hospice by my own choice & the 1st major thing to do was to take my powerport out that the skin had eroded almost all the way over it due to the all of the weight loss I experienced on hospice. The 2nd thing I needed to get done was getting my gjtube placed for nourishment. It’s been a very slow process with a lot of ups and downs, but here I am today almost 5 months later, standing with flaws and all completely grateful to have this 2nd chance. I have a very long road ahead of me, but I’m going to try and find the good in each day and take it day by day. We just gotta keep on keeping on!
#chronicillness #invisbleillness #pots #posturalorthostatictachycardiasyndrome #gastroparesis #gp #eds #ehlersdanlossyndrome #heds #chronicpain #chronicfatiguesyndrome #cfs #crps #mcas #mals #raynaudssyndrome #mentalillness #mentalhealth #neurogenicbladder #spoonie #spoonielife #spinalcordstimulator #anxiety #depression #awareness #livelife #keeponkeepinon #gjtube #powerport


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Repost: @exercito_oficial
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FaÇa agora seu pedido por whatsapp ou site www.soumilico.com
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#soumilico #fardas #coturnos
#homensdefarda #mulheresdefarda #orgulhodeser #exercitobrasileiro #exercito #forcasarmadasdobrasil #forcasarmadas #3sgt #ciavex #cadetes #cporrj #cpor #1gaaae #cfs #aman #npor #ebst #pqdt #pqd #infantaria #cavalaria #artilharia #eb #4gacl #10bil #brasilacimadetudo


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**Warning Possible Triggers**
🖤
These are the faces of an invisible illness, this face masks C-PTSD, Fibromyalgia, CFS or ME, Generalised Anxiety disorder, OCD, Depression, PMDD and Panic Disorder. This face tries and looks so tired and the last face is broken, hiding so no one can see the tears.
🖤
Not only do I fight daily to improve my mental health but also my physical health. Alone these conditions debilitate, together they down right make living nearly impossible. I cry a lot, I won't lie. I look tired because I don't sleep well, I feel exhausted from the conversations in my head to keep moving to keep going. 🖤
I wake up every morning with hope even when I know that it's going to be different everday and I continue to grasp onto that hope throughout the day, regardless of the pain, the anxiety, the severe mood swings that accompany my mental health conditions. I hold onto hope even when I'm gasping for air through the panic, through the tears and through the emotions that feel so heavy and so painful I don't know how I'll go on.
🖤
I am scared to die but I won't lie when I say suicidal thoughts haven't crossed my mind when I'm at my lowest. I think it's almost normal when you are dealt a blow in life that physical cripples you and mentally derails you. I think it's normal to think it's all too much when it really is. A whirlpool of emotions and thoughts that threaten to drown you, yet I hold on to hope.
🖤
Hope that I will make it through this, hope that'll it get better and that I will regain my life again and the strength to carry on comes from this hope, this flickering ember that threatens to spark a raging fire inside when things become too much. 🖤
Hope is powerful, hold onto it, let it give you strength and courage to continue. Nothing is permanent, not this moment, not this feeling, nothing.
It will change. Hold on 💙💜💙


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Today was a #gorgeous #Sunday to #stopandsmelltheflowers on!
I'm so #happy that it's finally #summer and the lovely #weather is making me feel #strong and #energetic enough for lots of #walks.
Being a #spoonie is tough: Everyone knows #exercise does us so much good, but with both #fibromyalgia and #cfs, it's #exhausting just to get out of bed so often, especially when the weather is cold or wet.
I'm so happy it's finally the time of year when the ⛅ is up before me & able to power me through a full day once again!!


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The day I realized how badass my crew really is💪 #farshot #cfs #crossfitsyracuse


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I haven't put in makeup in I don't know how long.... But dinner with a friend gave me an excuse! The Mexican food we had was delicious! We have officially dubbed it our place 😊
#pierced #girlswithpiercings #piercedandinked #tattoo #girlswithink #girlswithtattoos #guyswithtattoos #guyswithink #tattoolover #beard #beardgang #spoonie #spoonielife #Fibromyalgia #chronicpain #chronicfatigue #cfs #glasses #greeneyes #lips #love #ginger #dinner


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• my strength will one day kill me •⠀

I have always been the person afraid to show weakness. I wore my strength as a badge of honor, given to me by my father who told me that there was weakness in crying and if you could still walk off the pain then you were fine. ⠀

It has only been within this last year that I’ve accepted that there is no weakness in needing help. But I’ve gotten this far in life by forcing the people around me to see me a certain way, see me whole and without illness, that their views of me are permanently etched into their brains. The people in my life who have known me, they’ll never accept that this chronically ill and unable to force themselves through the most “trivial of tasks” version of myself exists. Simply because I’ve spent the last twelve years never letting it show through. ⠀

So my strength will be what kills me. It will be what keeps me going when I’m asked to climb the stairs for the sixth time that day, when I’m asked to stand at the counter for ten minutes to pack someone else’s lunch, when I’m asked to pull myself out of bed to assist someone else who has never hid the fact that they need assistance. I’ve gotten myself stuck being the strong one, being the one that can push through and grit their teeth and continue on. ⠀

But lately, I don’t feel as if I can do that anymore. I’m not well enough to keep pretending. And when the pretending stops and the weakness shows through, people think I’m being dramatic, just because I’ve always been so good at being whole. ⠀

I can’t be whole anymore, because I am not whole. There are too many pieces of this puzzle missing and quite frankly, it’s going to be the death of me. ⠀

.⠀

#undiagnosedillness #attentiondeficitdisorder #chronicillness #chronicpain #migraine #chronicmigraines #fibromyalgia #arthritis #rhumatoidarthritis #spoonie #spooniestrong #chronicfatigue #nausea #pcos #autoimmunedisease #allergies #eczema #lymedisease #chronicfatigue #chronicfatiguesymdrome #mecfs #cfs #sjogrens #sjogrenssyndrome #ideopathichypersomnia #hypersomnia #schizoidpersonalitydisorder #narcolepsy


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One of my favorite places on earth 🙂⚾️ #baseball #cardinalsbaseball #stlouiscardinals


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It’s funny how even when you’re resting you can feel pressured.. eat a lunch I don’t feel hungry for so I can be at the hospital by one .. where I don’t want to be and be back in time for a council worker visit that I really could easily cancel today. Funny aye? #chronicillness #fibromyalgia #cfs #kidneydisease #pain #diabetestype2 #ptsd #invisibleillness #resting #paceyourself #pacing


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I am the slowest shopper -- So many decisions to make! And wait! Did you see this over here?
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I now just prepare people beforehand, when they ask if I want to go shopping (dont let the use of the word "people" make you think this happens often). Like, I would love to go, I'm just slow at making decisions and get easily distracted. [ Because pain. And fatigue. Et cetera. ]
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#shopping #spoonie #spoonies #Fibromyalgia #fibro #ChronicPain #chronicillness #POTS #dysautonomia #CFS #CSS


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MILESTONE MOMENT: A real life dinner with a real life person.

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There are many things I long for. When I began this post I started to list some of them, but soon realised I could write for days.
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However, there is one thing which has left an indelible space in my heart all these years, and that is the longing to sit and eat dinner with someone.
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I tried searching my memory banks for the last time I had sat opposite someone at a table and ate dinner at the exact same time and I literally could not remember when that happened.
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Last Christmas, I sat cross legged on my new back deck with my Mum and Step Dad and we ate lunch together. The Christmas before, we had lunch on their back deck, me laying on deck chair and them sitting at the table and chairs near by. There has been a few times when someone has been in my room or sitting nearby to me when I ate my food. My Mum or Step Dad, a rare visitor or doctor for example. These are the only memories I have for maybe 8 or 9 years? I honestly don’t know.
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If you’re isolated due to illness, maybe you can relate with the simple longing for a shared meal with another human being. If you do, know that I understand how that kind of longing feels.
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Last night, after almost a decade, I sat opposite a friend at my desk and we ate and talked together. There were some tears but a lot more smiles. Limited energy levels meant I wasn’t able to prepare the kind of elaborate meal I would have liked to, so a pre-made soup and an unfussed salad made do for my guest and I, had my usual rotation diet meal. But the sentiment and the meaning made up for any of that.
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It may seem unimportant to some or an act taken for granted by others every day of the week, but sitting at a table opposite someone and sharing a meal. Talking about life. Conversation punctuated by mouthfuls of food. Listening. Making eye contact. Enjoying the company. I can’t begin to tell you how much you miss that when it’s no longer a part of your life anymore. —

Illness has striped my life bare of so many things ... most notably human contact, friendship and normal everyday interaction like seeing faces and receiving hugs.
{Continue👇}


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I am super excited to announce my very first free training video!! I've been hard at work creating this training for women suffering from a chronic illness like FM, CFS, CRPS, POTS, or RA - women who are always in pain and so tired they struggle to make it through the day much less being able to enjoy life. Women who are battling with the hopelessness that this is what the rest of their lives looks like because they can't see a way out and nothing seems to work for them.

In this live training, I cover the four underlying problems in all chronic diseases and five of the big steps I work on with my patients to get them feeling better as quickly as possible. They are covered in a way that allows you to start implementing these changes immediately so you can start to feel the relief you have so long deserved.

And I'm bringing the training to YOU - free!

If you're interested in learning more about things you can do at home to start managing your pain better, join me this Friday, May 31st at 2:30 pm PST. If you join live, I have a free gift and you can enter to win a prize valued at $250! Join me!! Sign up here (or there's a link in my bio): https://tanyapaynternd.com/webinar-sign-up/

I hope to see you soon! It's going to be amazing!
#chronicallyill #chronicfatigue #chronicpain #chronicpainwarrior #spoonie #spoonies #fibrostrong #fm #cfs #fibromyalgiawarrior #fibromyalgiasucks #chronicpainmanagement #pots #potssyndrome #ra #crps #fatigue #spooniesupport #invisibledisease #iseeyou #dontgiveuphope #chronicillnesswarrior #chronicillness #anotherway #feelbetter #fourfoundationsofdisease #symptomcode #tanyapaynternd


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Visionate, La juventud no es para siempre.
Emprende tu propio proyecto de vida y no prestes oído a palabras necias.
#FundacionComunidadDeEmprendedores #FestSong #CFS #MFS #SFS #ENFOCATE


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