#CFS

Instagram photos and videos

#cfs#spoonie#chronicillness#fibromyalgia#chronicpain#CFS#spoonielife#invisibleillness#chronicfatigue#mentalhealth#lupus#fatigue#ME#fibrowarrior#chronicfatiguesyndrome#fibro#spoonies#pots#ptsd#blogger#autoimmunedisease#depression#chronicillnesswarrior#chronicallyill#ibs#disability#cute#disabled#mecfs#spooniewarrior

Hashtags #CFS for Instagram

I picked these up from the library today. I get overwhelmed with information. It seems you could get totally different information on a subject depending on the source. So I am gonna do some research on my own.


1

So accurate.
Pain causes us to be irritable, crabbit, quick tempered. I don't believe you should take it out on others, but sometimes it happens. A reminder that they will understand why, but i try and apologise when ive realised i was out of turn.
However, sometimes i am just cunt ✌🏼
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#chronicproblems #chronicpain #cfs #memetherapy #mentalillness #depression #chronicpainawareness #spooniememe #invisibleillness_ #invisibleillness #autoimmune #laughteristhebestmedicine #cardiacsarcoidosis #insomnia #sarcoidosis #mentalhealth #mentalhealthawareness #painawareness #spoonie #autoimmunedisease #painmanagement #spoonielife #anxietyattack #painsomnia #raredisease #scotland #uk


0

This weather is not okay. Yesterday it was 37 degrees Celsius and today it’s flash flooding.
My body HATES IT!! I woke with a migraine about 2 hours ago. I feel like I have just woken up still. Did I even sleep last night?
My eyes are heavy, my head is spinning, my body is aching. My pelvic pain is a solid 8/10. I can feel stuff trying to move but it feels stuck. Idk. It’s like someone’s scraping away my at my uterus with an icecream scoop. They keep pushing down harder with the scoop not realising that I am in fact not ice cream.
I feel like I have barbed wire throughout my digestive system. Every time I eat it hurts to go down. When it hits my stomach it feels heavy.
I slept for 11 hours, I’ve been awake for 2 hours. I feel like I could sleep for another 8 hours. I’m tired and restless and my mood is next level.
Last night I cried and gave up on my dinner because I dropped the milk lid on the floor. I feel so frustrated at myself because it’s such a tiny thing that ended my day on a bad note but at the time it was like the be all and end all of the dinner chronicles.


3

Fitness and friends...it truly is a recipe for success and results. It’s hard to find the motivation to workout everyday, but it’s not hard to find the motivation to come see the people you love! Love this community and all of you who make it so special! • • • •

#CrossFitSimplicity #CFS #SimpleYetEffective #CrossFit #downtownburlington #community #wearedowntown #burlingtonnc #btown #fun #friends #fit #fitness #wod #pr #fitnessmotivation #motivation #results #success


3

Tw- suicide
Day 12- how has your illness made you a warrior. I have learned to not take life for granted. Constantly feeling like my body is dying is not fun and it took a huge mental toll on me. I didn’t want to live anymore because everyday was worse and worse.i am extremely grateful for my mother who has been by my side every ER visit and nights in urgent care. Every IV and injection she holds my hand and lets me know it’s okay. I am a warrior because I struggle yet I’m still here. #disabledandcute #disabled #potsie #fibromyalgia #fibro #fibrowarrior #chronicillness #chronicpain #chronic #invisibledisability #mentalhealth #spoonie #pots #cfs #medicines #gp #gastroparesis #posturalorthostatictachycardiasyndrome #flareup


0

So considering I spend a majority of my time on bed rest I thought I would treat myself to a new bed frame hoping it gives better support than the one I have now. Can't wait for it to arrive Friday!Suchretty bed I hope to feel like sleeping beauty in it! #sleepingbeauty #chronicfatigue #cfs/me #fibromyalgia #bulgingdisks #spoonie #chronicilness #invisabledisability #fibrowarrior💜 #medication #newbed #bedrest #alwayssleeping #notlazybutill #sleepfordays


0

👩‍❤️‍👩 TY 💖 @sitting_pretty - "Lately I’ve felt like the tube of toothpaste that I keep strangling for one last glob because I never remember to buy a replacement. These past weeks I’ve experienced unchecked, unfiltered ableism prancing happily through news stories, newly released Netflix movies, comments from friends — I’ve felt defeated, powerless to the blaring, pervasive, easy outpour of narratives that disabled people are problems, burdens, unfortunate versions of their better, nondisabled selves, tear-jerker images here to make spectators FEEL something. This is not what I see in the disability community. I see creativity & humour & grit & beauty & singularity & style & flair. But recently, I’ve felt smacked in the face by how little people outside this community understand or see what I see. .

The other night Micah & I went out for cheap chips & salsa. One of our favorite waiters made a joke about how I could get a second margarita, because I wouldn’t be the one driving home. I giggled with the straw still in my mouth, not pausing to unpack his comment. Later, he came back with a nervous, earnest energy. “I’m so sorry, I just realized that I totally made an assumption that you don’t drive. But can I ask -- do you? Drive?” Playing it back, I realized that he’d attached my wheelchair to an inaccurate story, & he’d come back to address it, to apologize for the assumption, to fill in the gaps. He couldn’t have known the planet of fatigue I’d been carrying. And his gesture was so small, but honestly, I could have cried & kissed his sweet forehead. Instead, I told him all about my old-man driving instructor with coffee breath. How I’d learned to use the one handed-controlled lever for both gas & breaks when I was seventeen. How glad I was that he came back to talk with us.
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Because of course we’re all subject to ableist assumptions. We’ve been breathing in the fumes as long as we’ve been here. The difference I felt in that moment was an attempt to reach out, to look into another person’s eyes & see, to listen to another person’s voice & hear, to re-imagine, even when it’s hard or awkward, even when we don’t have to. A flash of collaborative revision." 💖


2

Believe you can💙💪🏼


1

The Three Cape Trek, 4 day hike begins.
For me it will be time to nourish my soul, defrazzle from the busy festive season, fun with old and new friends, lots of hills, exploration of Southern point of Australia's coastline, lots of fauna & fauna, replenishing my mind and body and most importantly a unique time for some personal transformation.


1

COMBO!! I’m going to nyc in a few days so I might not post very often until I return.
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Take your meds!
Eat something!
Don’t hesitate to DM! (I might not respond instantly)
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#chronicallyill#spoonie#chronicillnessmemes#cfs#lupus#chrons#endo#pots#polycysticovariansyndrome#chronicillness#ibs#ibd#painsomnia#spoonielife#autoimmunedisease#nausea


2

Se eu já estou com saudades?
#CFS #Básico2018 #MelhorBásicodoMundo


0

I usually don’t post anything about my private life on this account, but this is a serious thing that my family needs help with.
My brother, Zach, and his pregnant wife, Holly, moved into a new house and found that the house is not what they had been told and was a danger to Holly and the Baby’s health. They need our help. I’m not asking you to do anything special, just $5 to them would be amazing. If you can’t afford that, then please share this link on your Facebook so they can get the help they need! Please have a charitable heart this holiday season, please help my brother and sister in law, and my soon-to-be nephew.

https://www.gofundme.com/zachary-and-holly-gunderson-legal-fees

#spoonieproblems #chronicallyill #eds #lupus #mentalillness #fibromyalgiaawareness #mentalhealth #chronicpain #chronicillness #cfs #ibs #spoonie #muscles #backpain #memes #sickness #fibrowarrior #disabled #disability #invisibleillness #spoons #condition #neckpain #fibrowarrior #potssyndrome #pots #cfsme #multiplesclerosis #ms #endometriosis


5

Dodgy one outta #spoons now although I didn't waste them blitzed the kitchen and bathroom hoping to do more tomorrow although knowing my luck I'll be immobile for a few days. This is #chronicpain and #fibromyalgia #selfie #thespoontheory #spoonies #fibrowarrior #fibrofighter #ddd #blind #blindselfie #me #cfs #cps #crps #lordosis #stenosis #chronicdisease #butyoudontloiksick #invisableillness


0

“Hi! I’ll be your physical therapist today. We’re gonna start with down dog.” - Gordon


1

My meals for the day.
Celery Juice.
Hibiscus Tea.
Blackberries.
Grapes.
Apples and Dates.
Spaghetti Squash with Sundried tomato.
Potato Bruschetta. (Extra garlic)
A little over a gallon of water with lime today.


1

🤦‍♀️No healthy recipe here! We all have that fave junk food snack from yesteryear, right? Yea well... I’m here to confess... one of mine is Hostess snowballs❄️. I’ve had them on the brain for almost a month. Sometimes you just gotta scratch that itch. 🙄⠀

👉Here’s the thing. One indulgence in a bad-for-you treat isn’t going to undo all my hard work. UNLESS I let it set the tone for the day/week/month/rest of my existence! And it’s a TREAT, not a “cheat” (because I’m not on a “diet” with no flexibility - THAT is a recipe for disaster!). ⠀

😒I also can’t do treats like this all the time. First, it’s got a bunch of stuff I really shouldn’t be putting in my body. Def not helpful for fighting anxiety, blood sugar flux, or inflammation 😳! ⠀
💪But second, you can’t outwork a bad diet. It’s just a fact. I’m not willing to let myself do a lot of this because I’ve come too far in my health journey to risk undoing anything! 👍⠀

⭐️So, enjoy it, but then MOVE ON. 🚫Don’t dwell or feel guilty. 🚫Don’t tell yourself the whole day is screwed. 🚫Don’t say it’s ok to have 6 more. Go back to doing the things that make you feel well, and drink WAY more water 💦 to help flush it all out. #treatsnotcheats #healthcoachnotasaint #ieathostesstoo #hostesssnowballsarethedevilandilovethem


1

And he said "Girl, you take care of me. You are my therapy, the better half of me" - say it again.

Made it out #today with my boy and also got him into the Vets last min as I can't take him tomorrow, so he's sorted now for #christmas
I just can't seem to catch a break with #feeling #better #impetigo #endometriosis (which comes with #cfs ) and now a flipping #cold
Got to be #fit for #saturday as it's the #muaythai #christmasnightout 💚 #fingerscrossed #positivity #needagiggle #company :)


0

Our STORY! From Guardians of Hope creator, Briana Beaver. .
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. "I wish I were a millionaire so I could give it all away to people facing ongoing health challenges. If you're like me, you have been struggling to save your life in more ways than one. The financial constraints of paying for healing modalities are PERVASIVE! As the former executive director of a nonprofit for children, I am well-versed in the complicated application process for grants. Nonetheless, when I became deathly ill eight years ago, my mother reached out to foundations, churches, synagogues, and other groups for support. The complicated application process and eligibility coupled with the daily crises of trying to survive made it impossible for me to find funds through any organizations. I was repeatedly turned away. Can you relate? If you have a similar story or have struggled to pay for medical care, I want to hear from you! I was fortunate to have community support through the cultivation of networking related to the nonprofit I ran and this literally saved my life for several years! Complete strangers stepped forward, offered financial support to keep me alive. So I am asking all of you out there to take action in the name of humanity! We can cohesively save lives! If you have a story to share about financial struggles related to chronic illness, please send me a message to make your voice heard! Please visit the link in our bio to get involved."


3

💟The baby and me just taking a break from folding laundry. She gets a kick out of snap chat filters plus she thinks my bed is a trampoline.
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💟 It took twice as long to do the laundry because she loves to unfold everything as I fold it; but she's great company 🤗 💟
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#sortahealthyish #spendingtimetogether #enjoythejourney #lifewithtoddler #grandmalife #cfs #fibromyalgia #livingwithchronicfatigue #livingwithchronicpain #


1

well here's that...can I go back to my first month of #aimovig when it worked? #migraine #invisibleillness #chronicmigraine #cfs


0

I love and miss this man so much, it physically hurts. I know he’s resting, but I’d give anything to have my daddy back. Some days are just harder than others. Daddy’s and their daughters...I miss that.


1

A 5 minute art experiment from a photography class during my communication design degree, over 4 years ago 🎆 still sad I only made it a year into the degree before my health was at rock bottom. But regardless, I'm grateful I made it that far at all and everything I learned and accomplished in a small amount of time. I really really reallly loved it. Making the choice to first take a break, and then to drop out was an extreme low point for me emotionally. But even part time classes were far too taxing on my health, and a degree don't mean shit if you've ruined yourself. In the months following my last project, I was housebound and struggling big time. That's when I was diagnosed with CFS, fibro and POTS, though they'd already been effecting me for years. Diagnosis was essential to begin management and recovery. I'm still trying to get back to where I was before I began study, it's a painfully slow process. Painful and slow perfectly sum it up 💢🐌 and although I fucking wish I'd been able to graduate, it's pushed me in a new direction and I'm grateful for it. Going back through my feed really put it in perspective, how much I've grown as an artist and the pure joy I get from having the freedom to paint and create every day. I still hope I get to work in a design studio one day, if that's what I still want, but I'm learning to just be happy where I am now. Waiting for recovery to happen before I start my life isn't an option. Doesn't mean I don't believe it won't happen (the fact it's happening at all is a great sign) it just means I'm making the choice to enjoy myself no matter what. After all, I've done a lot in the last four years that I'm proud of. I'm especially grateful to the people who've loved me unconditionally every step of the way ❣️ ___

#art #design #college #designschool #artinspo #collage #photoedit #artist #artistoninstagram #artgram #cfs #fibro #chronicillness #chronicpain


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