#ChronicIllness

Instagram photos and videos

#chronicillness#chronicpain#fibromyalgia#spoonie#invisibleillness#migraines#chronicfatiguesyndrome#anxiety#chronicillnesswarrior#chronicpainwarrior#selfcare#fibrowarrior#spoonielife#spoonies#depression#spooniesupport#pain#fatigue#migraine#notalone#headaches#headache#migraineur#chronicmigraine#chronicmigraines

Hashtags #ChronicIllness for Instagram

You’re never too old to jump on a tractor and see beyond afar! 🐽 I’ve wanted to visit @pennywellfarm for sooooo long and now that we were on holiday In the area we visited! Though there was lots of children and some passive aggressive mothers who thought their children deserved to hold a chicken/pig after throwing various other animals on the floor 🙃 it was a lovely day and reminded me your never too old to play with baby pigs 🐽


1

Today I am highlighting another kind company. Thank you to @awcanada for your support in helping to #EndMS. I'm here with Gerard and enjoyed spending time with his team. $2 from every Teen Burger sold will be donated to the @mssocietycanada

#instahealth instahealthy #thankyou #beawarebekind #MS #bringingustogether #bringinguscloser #multiplesclerosis ##kindness #thisisMS #chronicillness #brain #health #instalife


0

I have had to put a stop to #EMDR treatment. It was no longer in my best interest to break myself open one hour a week and unearth my deepest, darkest horrors. My life is now. My husband- the person who taught me how to trust and how to stay. My children- the truest, purest love I have ever know. Myself- worthy of compassion and care. I might go back to it when I have stabilized. For now, it only bleeds shame, self-hatred, and resentment when I touch it. That's not who I am meant to be.

#chronicpain #chronicillness #fibromyalgia #fibro #ocularmigraines #chronicheadaches #interstitialcystitis #ibs #pmdd #hormoneimbalance #invisibleillness #spoonie #spoonielife #spooniefamily #spooniecommunity #anxiety #gad #generalizedanxietydisorder #ptsd #depression #insomnia #insomniac #existentialism #existentialist #highlysensitiveperson #highlysensitive #empath #empathetic #introvert


0

Episode 20 is Live!
Do you suffer from headaches, pain, or other neurological or lifestyle disease? You may have a sleep disorder.
Good sleep is essential for rest and repair. Dr Stasha Gominak is a neurologist who through trying to help her headache patients, embarked on a long journey to discover how Vitamin D regulates sleep cycles and leads to true healing. Dr Gominak is convinced that many of today's lifestyle diseases (other than cancer) are actually rooted in sleep disorders. In this first of a two-part episode, Dr Gominak recounts the amazing story of how she discovered that Vitamin D is involved in sleep cycle regulation, and that once 'proper' sleep is restored and the optimal repair mode is active, the B vitamins, particularly B5, come into the story. She also discusses the role of the microbiome in Vitamin D-regulated sleep, and how B vitamins are an essential precursor to a healthy gut as well as the product of a well-functioning microbiome. Although very complex in its details, Dr Gominak's theory is beautifully logical and elegant. She inspires with stories of how her patients' feedback was instrumental in discovering this story and how she has since observed recovery from all manner of diseases. The essence of this fascinating episode is the body has the ability to heal and repair itself if only it's allowed true restorative sleep.
For more information visit Dr Gominak's website at drgominak.com

iPhone: https://itunes.apple.com/gb/podcast/london-heal/id1367709820?mt=2&i=1000417548215

Android via Stitcher: http://www.stitcher.com/s?fid=185492&refid=stpr

Or right here: https://media.whooshkaa.com/podcasts/3615/episodes/662aa7-lh20stashagominak.mp3?id=263333

Wish you had it all written down? Become a London Heal Insider and get extended podcast notes delivered to your inbox - Londonheal.com


1

You are loved. You are worthy. You are unique. 💭 Starting my day off with some positive affirmations ~ I’ve been in a lot of pain the past few days and it’s been making me feel a bit low, so I’m focusing on the good things. We create our own happiness. ✨ || wearing @topshop #topshopstyle #topshopgirls


9

Repost @naturallyhealing365
・・・
Over the past 26 days, I’ve been housebound, riding the rollercoaster of flare ups and mystery ills; dropped by nay saying family members who don’t support my plans; double crossed by my landlady ‘friend’ resulting in the need to find a house and move quickly; been made numerous unkept promises by folk who don’t consider their word to be binding; yet, with Phoenix by my side, Baby Girl & co in my heart, and support from kindred souls in far away places, I’m proud and humbled to say, the appeal has been a big success. Big thanks to all who’ve been part of this journey so far. Two more days to help me get to the finish line folks, then the real work can begin..!🐈🐾🙏🏼💖 #DiaryOfACatSavingSpoonieWarrior
🐾
🐾
🐾
🐾
🐾
🐾
#catsofgreece #feralcatsofinstagram #animalrescue #instacat #greekcats #streetcat #feral #catlivesmatter #catphotooftheday #instakitty #catladyabroad #lovecats #vegangirl #adoptdontshop #catsofinstagram #bethechange #bringherhomesafe #spoonie #postofday #chronicillness #crowdfundingcampaign #helpneeded #goodcauses #prayersneeded #CatLivesMatter365 #charitablecause #pleasedonate #paypalme #linkinbio


0

•2:01am• So the last couple days haven’t been too bad, I’ve had he usual pains, hip pain sciatic nerve pain at night, hand tingling, temp regulation issues, neck pain.. etc. but nothing major which i’m grateful for! I have been getting tired easily lately, just walking up the stairs is making me winded, so I’m hoping that gets batter.. but idk. Anyway, how’s yalls day been? #fibromyalgia #fibrowarrior #chronicillness #chronicpain #nausea #lovely #sleepy #pain #sickofbeingsick #spoonie #medication #chronicillnessawareness #fibromyalgiaawareness #chronicfatiguesyndrome #chroniclife #invisibleillness #fatigue #morethantired #naptime #selfcare #bruised #sore #help #ouch #depression #anxiety #spoonielife


0

A reminder to those who attended the @420_support_group on #control. I came across this amazing #perception done by another and felt it was important to share.



The tools and the curriculum for 2019 that @cannabis_nurse_navigator @cannabisnurseheather and @synchangel are developing are tools that are easily individualized for personalized treatment plans. •


With @thesoberjunkie_ feeding us the inspiration and the motivational quotes to understand the power of perception, the @420_support_group will teach those who want to, how to "heal from within". Ask @sr.joshualacroix and his wife Mea. Life changing. •


Much Love,
Don't give up,
Nurse Nique
#420supportgroup #cannabis #cannabisheals #growth #victimnomore #ownit #healfromwithin #iam #veteran #nurselife #patientshelpingpatients #chronicillness #mentalhealthawareness #addiction #wegotyou


1

😂😂😂 Ain't that the truth? Sometimes you just have to laugh and not take it all tooooo seriously. I joke all the time my pancreas isn't doing it's best job 😝Because well.. life is toooo short to be a negative nancy 🙏
.
.
#diabetes #type1diabetic #diabetic #typetwodiabetic #type2diabetes #type1diabetes #type1strong #type1strength #diabetesmanagement #diabetesstrong #chronicillness #lifelongstrength #keepstrong #beticbalance #bloodsugarcontrol #bloodsugarmanagement #keepstrong #pancreas #insulin #diabeticlife #diabetichustle #diabeticlife #strength #wellnessjourney #health


0

This is for any of you feeling like you're at the end of your rope. Maybe you're scared, exhausted, losing hope etc.... Take that rope, tie a knot in it, and hang on! You Will get through this. It may not seem like it right now, but It's Going To Be OK. You’re going to be ok. As cliche as it may sound, it’s true...this too shall pass! Love you 🙏🏼♥️Leila

#itsgoingtobeok#holdon#hanginthere#hurting#scared#dontgiveup#depressed#struggling#hangon#keepgoing#yougotthis#wegotthis#chronicillness#chronicpain#mentalhealth#ptsd#anxiety#peace#love#peaceandlove#encouragement#wordstoliveby#instadaily#rebelthriver#survivor#domesticviolence#inspiration#yourvibeattractsyourtribe#wegotyou#empath www.facebook.com/rebelthrivers


0

Like any map the boundaries shift over time, affected by upheaval and occasionally triumph. This is a pretty accurate key to my current mental state.
* *
*
#worries #anxiety #depression #analogcollage #collageartist #collage #art #artshare #atlas #worldmap #womenshealth #fibromyalgia #invisibleillness #chronicillness #chronicpain #climatechange #sadness #fibroflare #sick #worrier


2

I have no idea what I have done to cause this flare. But I feel like I have been hit by a bus.
Today is going to be a verrrry long day 😫😫😫
.
.
.
.
.
#eds #edswarrior #ehlersdanlossyndrome #chronicillness #chronicpain #ouch #flareday #pain #zebrawarrior #zebrastrong #edsawareness #flarefordays #wantmybed #spoonieproblems #spoonie #spoontheory #lowonspoons #forkoff


0

Over the past 26 days, I’ve been housebound, riding the rollercoaster of flare ups and mystery ills; dropped by nay saying family members who don’t support my plans; double crossed by my landlady ‘friend’ resulting in the need to find a house and move quickly; been made numerous unkept promises by folk who don’t consider their word to be binding; yet, with Phoenix by my side, Baby Girl & co in my heart, and support from kindred souls in far away places, I’m proud and humbled to say, the appeal has been a big success. Big thanks to all who’ve been part of this journey so far. Two more days to help me get to the finish line folks, then the real work can begin..!🐈🐾🙏🏼💖 #DiaryOfACatSavingSpoonieWarrior
🐾
🐾
🐾
🐾
🐾
🐾
#catsofgreece #feralcatsofinstagram #animalrescue #instacat #greekcats #streetcat #feral #catlivesmatter #catphotooftheday #instakitty #catladyabroad #lovecats #vegangirl #adoptdontshop #catsofinstagram #bethechange #bringherhomesafe #spoonie #postofday #chronicillness #crowdfundingcampaign #helpneeded #goodcauses #prayersneeded #CatLivesMatter365 #charitablecause #pleasedonate #paypalme #linkinbio


0

It was hard to shake my funk feeling today, but damn the gym helped. Having shoes donated to me really just changed everything. I decided to do a bunch of random things just to get a feel for the shoes. Seriously, they were amazing. They changed everything. They forced my feet and knees to stay somehow. Don't ask me. Wizardry. But I was able to do some light deadlifts without any issues. None. And I airsquatted. Like bruh. Life changing. I even had a PR! I did most things for reps till failure, which was fun. But my butt is super sore now. 😂😂🤷🏻‍♀️
.
Here's what I did today:
🌟 Incline bench - 115# (it went up easy and for 3 sets. Huge PR)
Z-press - barbell only for reps
Leg press - 270# for reps
Deadlifts - 95# for reps
Single arm cable row - 44#
Stairstepper w/ leg lifts - 2min
Getting Timmy out of the well - 1min each direction with 10 air squats between each minute for 5 min/50 squats
.
💪
.
#ehlersdanlossyndrome #ehlersdanlos #chronicillness #chronicpain #edswarrior #edsawareness #EDSathlete #fragilebutunbreakable #EDS #lupus #sjogrens #sjögrens #instafit #instafitness #myfitnesspal #flexibledieting #gymgirls #gymgirl #weightlifting #girlswholift #gwl #gymrat #grrrlarmy #strongman #disabledstrongman #strongwomenwhostrongman #adaptivelifting


0

You have power in your age, your race, your sexuality, your class background, your ability or disability, your experience, your family, your friends, your knowledge, your money, your talents, your values, your connections, your community and yes, even the internet ✨✨✨ There is power everywhere for you to use 💪 Whether it’s your health or your life that needs changing, you are never helpless, hopeless or anything else you might choose to tell yourself. 😱 Reframe. Rebuild. You have the power 💥❤️ #rebuildyourhealth #mindsetiseverything #changeyourlife #womenshealth #empoweringwomen #youcandoit #woke #modernwoman #believeinyou #changemakers #womenpower #chronicillness #adrenalfatigue #selfcare


0

If one more person tells me I should work out with them or go to the gym more, then I may just break their legs and tell them to hop on a treadmill and walk that shit off. 🙄🤷🏻‍♀️ #fibromyalgia #fibrowarrior #chronicillness #chronicpain #nausea #lovely #sleepy #pain #sickofbeingsick #spoonie #medication #chronicillnessawareness #fibromyalgiaawareness #chronicfatiguesyndrome #chroniclife #invisibleillness #fatigue #morethantired #naptime #selfcare #bruised #sore #help #ouch #depression #anxiety #spoonielife #noregrets


2

We all need that so called “happy place”. A place where we cut off from our troubles and tribulations. Mine has been my desk and my journaling. There is not much I can do with my illness anymore. These few months have been difficult beyond words. And now I have to give up my desk. I can’t sit in my chair anymore as the pain is crippling me. If I do force myself to journal for 1-2 hours, I am in agony for the rest of the next day. I’m quite stubborn to this illness. So I’ll just journal from my bed. I guess my point is, is that you shouldn’t let your hardships eat you alive. Don’t allow them to stop you entirely from what your heart and mind wants and needs. Find ways to get around them. Keep going my friends 🤗❤️ xx

#faith #lymedisease #lyme #chronic #chronicillness #happyplace #journal #journaling #write #jw


0

Shepard Fairey: “I Love Your Shirt!”
Me: “Thank you so much! I made it!”
Shepard Fairey: (in reference to what it says) “And as you should! Metaphorically of course, not literally.”
———
I really considered not going tonight due to high pain levels and exhaustion, but I am so glad I did! I never would have met this amazing person I’ve idolized for years. Thank you, @obeygiant!


2

dear fibromyalgia and other chronically illness warriors! ( honestly I prefer “fighters”) thank you for all you profiles, discussions, ets, for all info you find and share every day. thank you for your voice, voice of pain, of mental problems, of million and more other simptoms we all have. this is really an important matter . gives hope and a feeling that you are understood and accepted. in fact, no one can understand us in the same way as a person who passes through, moreover, I think no one else really can do at all . I love your texts, your positive and NOT POSITIVE THINGS TOO couse it’s truly. I need you!. right now I have really bad fibro flare, can’t walk, sit, sleep. just stay in bed. not one or two ( or three 😅) days you know. and I read your posts every night and it makes me stronger, gives a feeling of unity, makes more calm. fibrojokes ❤️ so it’ll be better ( hope).
ps post in eng couse there is no russian infospace for fibromyalgia, I dont know the reason but in my country it's not customary to talk about it openly and especially write in instagram. thank you, love! ❤️ we can❤️ #fibromyalgia #fibromyalgie #fibroflare #chronic #chronicillness #chronicpain #fibro #fibrowarrior #fibrofighter


4

Regrann from @outcomes4me - Find ways to take care of yourself. There are so many ways, pick what is most authentic to you and your healing. ✨💛✨



❤️
#chronicillness #hiddenillness #cancer #breastcancer #metastaticbreastcancer #breastcancersupport #breastcancerawareness #cancerwarrior #cancersurvivorship #cancersucks #breastcancersurvivor #survivor #thriver #aliver #healing #gentleness #reminder #yougotthis #inspiration #motivation #outcomes4me #healthtech #Tech4Good #selfcare #takecareofyourself #nourishyourself #positivevibes
Artwork by @cloudy_thurstag #regrann
Beautiful illustration with a great meaning. Personal care is the first and the foremost thing that one should engage himself or herself with.


0

Tää vuos on ollu rankka... Suurimpana muutoksena on tullu oma sairastuminen: vuodepotilaana meni parikuukautta, sen jälkee suurehko leikkaus ja uuteen elämään totuttelu. Kaikki on muuttunu. Enää en voi syödä normiruokaa, en tehä asioita mitä ennen pystyin ja ajatusmaailma on muuttunu paljon. Mut tänää ensimmäistä kertaa yli puoleen vuoteen musta tuntuu et mä voin taas elää. En ikinä voi palata siihen elämää mitä mulla oli vielä viimevuoden lopussa, mut mä voin elää omalla uudella tavallani ❤️ ja muutokset on ollu myös positiivisia! Mun keho voi paremmin ja pitkä aikanen toive laihtumisesta on toteutunu tässä kaiken muun ohessa 👌 Viel on paljon edessä haasteita, mut päivä kerrallaan ❤️ #happylittlegirl #parempaanpäin #chronicillness


0

When recently asked about knowing if you have hope versus denial, I realized that hope is a slow deep breath for me. Denial is holding breath. I think living in hope is how we press through the tough stuff in life and keep going. So keep taking those long slow breaths and keep hoping. There is always a bright spot. #warrior #chronicillness #chronicpain #hope #keepbreathing #deepbreath 📷 DW


0

There's a feeling inside
No you cannot change it right away
Gotta make a try
And with time it'll start to go away
I'll be here when you need
That one to sit and cry to
Cause I'm the you you forgot
The only one you know you cannot lie to ❤️
.
.
.
#adrenalhealth #adrenalfatigue #adrenalfatiguerecovery #healing #recovery #womenshealth #selfcareissacred #chronicillness #autoimmunedisease #fatigue #stress #stressless #healthylifestyle #hormonebalance #hormonetherapy #hormoneimbalance #sleepyallthetime #tired #loveyourself


0

Ever have one of those days with chronic illness where you are just like “what the f%#^*?”. Went for a endoscopy and colonoscopy this morning only to find out they couldn’t do the colonoscopy because of reasons that requires me giving too much info but for sibo/gut ppl you’ll know why probably 😬😂. So now I need to go back for another one in 3 weeks. More waiting for results and answers, more feeling out of control and more google research.
The endoscopy revealed chronic gastritis which is basically a very inflamed stomach lining maybe due to helicobacter pylori bacterial infection.. tbc. The journey for answers and effective treatment continues. I try so hard with my diet and I’ve followed the natural protocol the last 7 weeks and I still don’t feel like I’m getting anywhere.
Trying to take one day at a time now patience will be my virtue 🙏🏻🙏🏻🙏🏻🤞🤞. Sorry to rant but I’m sure SIBO folks will relate to days like this xo I hope I can heal soon and help other people with their journey ❤️. Makes me feel less alone knowing there are people all over the world going through this, understand and support each other through the process. 🤷🏻‍♀️
#siborant #sibo #gastritis #gutbacteria #inflammation #gutinflammation #endoscopy #colonoscopy #bloating #brainfog #constipation #chronicillness #patience #struggles #healing #lettinggo #scd #lowfodmapdiet #onedayatatime #healingtakestime


0

A spoonie has to rest often. This is not a choice because it is necessary. But why is that so? You have to look into such a Spoonie life. A spoonie sleeps very badly or hardly at night. Because we are struggling with sleep disorders. In the morning you feel very tired. But you have to take care of everyday life in full. This is very exhausting. In the afternoon you want to take a nap. That only works sometimes. To put it in a nutshell ... A spoonie is always tired and has no reserves to draw on. Mostly we also have the chronic fatigue syndrome. That pulls you down like lead. You could almost fall asleep while standing. Sometimes it gets us so bad that we have to throw up. That's why we have to rest a lot more often to recharge at least some energy 💜💜
_
_
_
_
_
#fibromyalgia #fibromyalgie #fibro #fibropain #fibrowarrior #fibrofog #fibrostrong #spoonie #spooniestrong #hurts #pain #life #fibrowarrior #strong #cfs #chronic #chronicillness #chronicfatigue #fibrofighter #fibrosucks #hope #butterfly #purple #purpleribbon #health #illness #chronicillness #fatigue #sleepy #tired


0

Yay I made a blog! With the blog I would love to try and tell people my story and tell you what CFS is all about and other illnesses as well. I want to tell you guys tips and tricks that have helped me and research things like certain foods that might help. I'll also talk to you guys about recovery and my treatments and what I learned and what helped. I'll also share my old treatments and hope you guys can be helped too!
I'll also want to talk about my migraines a bit, but that would be a side part of my blog. I really want it to be about my CFS.
The link is up in my description: www.sleepygirlcfs.wordpress.com
#CFS #chronicillness #chronicillnesswarrior #blog #lifestyle #spoonie #migraines #chronicfatiguesyndrome #me #dontkeepMEquiet #sleepygirl #sleepygirlcfs


0

#UpAndDressed car selfie edition. .
.
Jacket 1940s vintage.
Sheer white with tiny black stars is a secondhand gift.
Necklace was on sale a while back from @sussanfashion it was so over the top and blingy I couldn't resist.
.
.
[Image: Michelle can be seen from mud torso up. She is sitting in a car. She's wearing a vibrant green tailored jacket, sheer white and tiny stars shirt buttoned all the way up, a bright faux jeweled necklace, bright pink lipstick and rosepink/gold glasses. She looks tired and is resting her chin on her left hand.]
.
.
#Dysautonomia #ChronicIllness #Disability #Fashion #FrockingUp #ootd #wiwt #40Plus #40PlusFashion #EverydayStyle #DisabledAndStylish #365DaysWithDisability #DisabilityStyle #DisabilityFashion #ChronicFashion #ChronicStyle #Gippsland #Australia #Winter #RuralFashion #RuralStyle


0

My dogs always seem to know when I’m having bad days, and you can tell because I will usually have all of them around me😂 My jack Russell x is not at all a cuddly dog but she will always come lie next to me on my bad days! My sisters pug x Jack Russell usually cuddles up onto my chest but on bad pain days he sits on my legs. It actually amazes me how in tune these animals are with my needs. Don’t know how I’d get through without my dogs❤️🐶🐾 (apologies my knee is super swollen in this, just had a dislocation)


1

Day 16 of #spoonshortagebookclub is my worst spoon (energy) eating activity. This for me is socialising and everything that comes with it. Just chatting to people and having to concentrate on conversations with all the background noises absolutely drains me like nothing else, I get massive sensory overload. Even on my wedding day I had to break away from the crowd and have a nap (and missed the desserts! 😭), I took myself off multiple times throughout the day just for a bit of quiet too. Still was the best day ever! 😁 Sometimes I have to cancel on people which I hate and feel so guilty for, but its because I know I won't be able to deal with talking and listening, my pain will kick in massively and I'll feel so fatigued and dizzy. I'm hoping to be out tonight so am resting up most of the day 🤞🥗🥂🍴 #chronicillness #fibromyalgia #myalgicencephalomyelitis #chronicfatiguesyndrome #spooneating


0

The ultimate necklace for spoonies🥄🥄🥄
Just one of the great fashion images I found when looking for images for a blog post about shoulder surgery
Link in bio 🔺
You can see more fashion images in my new blog post Distractions - vintage fashion 💋
📷 #marielisegres by #RonaldFalloon 1965

#vintagefashion #jewellery #vintage #vintagestyle #vintagelove #vintagebeauty #lifestyleblogger #perthblogger #perthblog #arthritis #chronicillness #autoimmune #autoimmunedisease #rheumatoidarthritis #spoonie #spoonieblogger


1

❤️ Your body has an amazing capability to heal from any condition. You just need to create the right environment.
. . .
🍀Disease isn't bad luck. It's a warning sign that the body is not balanced, it's lacking #nutrients and is full of #toxins or even #heavymetals.
. . .
🔑Mindset, healing nutrition, proper detox and rest are the keys for reversing any health condition, minor or severe.
. . .
🔋Health is never found in chronic use of #medications or steroids. Tag a friend who needs to hear this.
. . .
repost from @fsthnow
#healing #detox #detoxify #nutritionforyourskin #eczema #chronicillness #eczemahealing #eczemasucks #eczemarelief #babyeczema #eczemafree #eczemahelp #eliminationdiet #eczemaproblems #tsw #rss #topicalsteroidaddiction #topicalsteroidwithdrawal #tsw
#medicalmedium #mmtribe #vegan #medicalmediumcommunity #plantbased #wellnessblogger #chronicillness #holisticmedicine #mmcommunity


1

Two days of appointments. Cystic Fibrosis one day and Diabetes the next. I walked away feeling like not much was accomplished, but things were accomplished. It just takes a while for processes to happen. Ending results: I am test confirmed to have a cold. Not RSV, the flu, or croup. I am waiting for the surgeon to call to schedule port removal and replacement surgery, which will be under general anesthesia, not local anesthesia. My lung function is up 4% from a month ago, even with a cold and driving in #fergusonfire for 8 hours last week. I’ll need to drop a college class or two to accommodate my constant doctors appointments and upcoming surgery. We are going to wait for current sputum cultures results before deciding on what to do about my test last month coming back resistant. I might be hospitalized, and I’ll do my port surgery then. I’ll come back in a month for CF clinic to touch base again, but I might be hospitalized before then. Diabetes clinic was mainly focused on upgrading my insulin pump. We didn’t spend more than 3 minutes talking about my blood sugars. My last A1C was 6.2% and had another blood test today to update it. I was given the phone number of the woman at my clinic who deals with supply orders, and I called her right away to get the paperwork going. As soon as I hung up the phone, @medtronicdiabetes called me to remind me the warrantee was up on my pump last week. They helped me get the upgrade order started and insurance approval is in the works. I called my insurance two months ago to let them know this was coming soon, and the said they will cover costs 100% as soon as the processing is done. In the end, things are getting done. It’s a little slower than I’d like and I left the clinic with nothing added to my regimen. I’m nursing this cold I picked up while on vacation (of course I got sick on vacation!). At least it isn’t RSV or croup!


1

Today is A level results day - I can go and get my results from 9.30am. Rather nervous and haven't slept well at all! 😅 On Tuesday I made this chocolate cake to take to my grandparents using the @glebefarmfoods chocolate sponge mix! It was delicious, we were very impressed. Both coeliacs and non thoroughly enjoyed it! Will definitely be buying this mix again! It's now one of my top five favourite mixes!
🌟
🌟
#glutenfree #wheatfree #coeliac #coeliacdisease #coeliacfriendly #foodblogger #foodie #foodstagram #glutenfreeblogger #glutenfreeliving #nogluten #singluten #senzaglutine #sansgluten #freefrom #instafood #glutenfreeuk #celiacdisease #celiac #blog #blogger #coeliaceats #freefrom #glutenfreefoodie #spoonie #chronicillness #chronicfatigue #mecfs #chronicfatiguesyndrome


16

Finally had a productive day! Yay me! Caught up on some of the house work that's been plaguing me. 👍 Yes, I'm a mess. Yes, my house is a mess most of the time. But I can live with it because I know I'M DOING THE BEST THAT I CAN. #fibroeverysingleday #fibro #fibromyalgia #chronicillness #chronicfatigue #chronicpain #imamess #embraceyourself


0

When you try to fake a smile on the bad days. I'm.getting good at this #chronicillness #chronicpain #neurofibromatosis #awareness


0

Okay, so the promised update!
I cut my hair.
Today I went to see Dr. VB who is a Psychiatrist. I was very nervous because psychiatrists make me nervous. Usually they just try to stick meds on you.
It turns out that she is a psychiatrist who specialises in disabled people. Instead of giving me mess, she listened to me. She gave me paperwork to get assistance for school tuition. She said to me that she would PERSONALLY call insurance and get the testing I needed approved, a full psych eval and Asperger’s testing. She said that I need to get a diagnosis of ptsd and depression which would help me get SSDI. She also will help me get a service dog! I am beyond happy and so thankful that she is going to help me. She will be seeing me every week starting Sep 17th. I am happy.
I will get answers, I will get hope, and a better life.
I am excited for my crutches to come. After a small setback of me worrying I didn’t get the right ones, or that I should have gotten a walker, I am glad I got them. They should arrive tomorrow I think. I hope they come soon. I really want them to be here.
On Friday I will be meeting with someone important from Bible College to discuss the scholarship. I’m nervous about it tbh. I’m leery of other students and don’t feel like I quite belong there. Sometimes I wish I was average in intelligence, average in abilities, and just a normal person. I would fit in and never know that people didn’t like me. I wouldn’t be smart enough to realise it and blissfully live in ignorance. Oh well, I am not like that.
I still haven’t met with the lady about the teaching job offer... *sigh* I just stopped typing this to text her again and see if we could get a date to meet up.
I am a little sad, because I feel guilty for asking for financial aid when my parents are willing to pay it. But they shouldn’t have to pay it. They shouldn’t have to pay for medical things, and school, and food, and clothing for me. I should be able to do that myself, but I can’t. So I must apply for aid.
I will be up for a long while tonight. I feel sadness beginning to creep in.
Still haven’t heard back from the braces place. I hope they come soon. I need them now.


1

(2/4) Hey again!
Here's part two, the first slide is just a recap of the first part I posted, hope everyone enjoys and please leave you opinions below 💭
- Specs
P.S I don't own thee Medoran Chronicles, all rights to Lynette Noni
📚
📚
📚
#medora #chronicillness #medoranchronicles #themedoranchronicles #embracethewonder #medoran #meya #lynettenoni #lynette #noni #alex #bear #jordan #dix #jordix #kaidex #stirligan #read #akarnae #akarnaeacademy #akarnaeseries #raelia #draekora #draekora #graevale #wethreeheroes #w3h #teaser


0

Chronic Pancreatitis & Chronic Pain. This was day 8 with no food and this particular hospital admission lasted about 30 days. I was completely miserable until I met my roommate, a 3 year old oncology patient. She had been admitted to the hospital for her second round of chemo and radiation for her brain tumor which was the size of a tennis ball. Every day, the nurse would come in to draw her blood to which she responded with blood curdling screams and sobbing the word "no" to her parents who were doing all they could to be strong and keep it together for her. The girl's interest in me piqued one morning when I too was having blood drawn but was seemingly not upset. The nurses started coordinating our blood draw times so that we would both have our blood drawn simultaneously. She would watch every millimeter of my face as the needle punctured my skin and, when I made it through, she would maintain her gaze on me as her blood made its way through the tubing. I have learned many lessons through my hospital visits but my favorite memory is of that little girl who just wanted to know that she was going to be alright if she stayed strong second after second, minute after minute. 💙💙💙
#pch #phoenixchildrenshospital oncology #gastroenterology #chronicillness #chronicpancreatitis #chronicpain #chronicillnesswarrior #inspireothers #inspired #inspirationalwords #inspire #wegotthis #youcandothis #barrelracingcollege #teambrc #fallontaylor #barrelracer #phoenix #pediatriconcology


0

Just posted this on the @chronicreadersclub account and I wanted to share here as well:
Hi everyone! CRC needs your help!
I haven’t talked much about my health problems on this account. I won’t go into too much detail, but living with a chronic illness is hard. It’s so hard, and things have been really challenging for me lately, both physically and mentally. It’s hard to be consistent with my posts on social media and with reaching out and growing the project.
But I feel like this project is so important BECAUSE living with chronic illness is so hard. I don’t want others to feel like they’re struggling alone or that nobody cares. I want people to know someone cares. I want them to have an escape and something to look forward to, which is what books give to me. I want so badly for this project to keep going!
But we really need help. It’s also expensive to be chronically ill, and we’re struggling. Applications will probably be closing soon until we can catch up.
We would be so grateful for any help we can get!
If you’d like to donate, you can do so through PayPal (paypal.me/warriorgoddessmk — link on our website!) or you can email me (warriorgoddessmk@gmail.com) if you’d like to donate small items to go in the packages with the books or if you’d like to donate a gift card to a bookstore or to Amazon.
And if donating isn’t something you can do, your support is invaluable to us! Please feel free to share our posts and to spread the word about the program!
Thank you all for the support you’ve already shown us! You guys are incredible! 📚❤️
#ChronicReadersClub #chronicreader #chronicillness #bibliophile #books #amreading


0

“Back to the drawing board. Is there a different medication I could take? How can I help my digestion? Should I change my diet? Drop the fish oil? Change the type of magnesium? Change the B complex? Would a sleep study be beneficial? Something else to support the adrenals?

There are quite a few questions, but the main one is this.

How much effort am I supposed to put into trying for better health?

Would it be better to stop spending valuable time reading and researching and live my life as it is, with the understanding that I will continue to be tired, variable, unable to participate in all the things around me that need my attention? On the other hand, I am that way already, because things that I try then lead to other problems many times. There seem to be no guaranteed positive outcomes.

I get drawn into the complexities, and sometimes I find myself thinking about nothing else throughout the day but my recurring questions about the health strategies I’ve been reading about. Then I ask myself, what kind of life is that?” Link to the article in bio.


1

2 birthday shirts... both are amazing and suit me so well


4

People don’t understand that living with a chronic illness is like being held under water, trying to fight back;
#MoreThanMeetsTheEye #ChronicIllness #ChronicallyIll #RareIllness #NeverEndingBattle #OneThingAfterAnother #Fighter #Fighting #SuperiorMesentericArterySyndrome #NutCrackerSyndrome


1

So most of you will probably already know this but we had a cat accident in Switzerland. Someone hit us while making a turn and so we turned rather quickly 😝
Everything is okay and I had myself checked out as seen in the photo.
In two days it will be 2 weeks after the accident and my neck is still real sore s I went to physical therapy (for my CFS) and told them about the accident and my neck. They said it will take a few weeks to heal and that my neck is extra tense. They will massage me weekly and we will take a break from my training schedule for my CFS until my neck has healed completely 😌
Hope it heals fast
#CFS #chronicillness #chronicillnesswarrior #blog #lifestyle #spoonie #migraines #chronicfatiguesyndrome #me #dontkeepMEquiet #sleepygirl #sleepygirlcfs


3

I loved the holidays ❤️ We did some amazing stuff and took lots of rests in between doing things. And even with a few setbacks I still loved it.
.
Luck is definitely not my strongest side, in Switzerland we had a car accident. Someone hit s in the back when we were turning, now my neck still hurts with the simplest things. But nevertheless we got another car from our insurance and made the best of it.
Then I was going to party 2 evenings while on a camping. I slept in and took a nap in the afternoon before going out but at 1 my neck hurt so much that I went back home. The rest of the group stayed out till 3:30.
The next day I was more rested because we went swimming and I napped there and just layed in the shade. But during swimming I cut my foot in some glass or some mossels... Right in the walking area. In the afternoon I took another nap and was ready to go along with them but at 23:00 I got some sort of virus acting up and couldn't leave the toilet anymore because my stomach hurt so much and I couldn't keep anything in. .
Even though I had all of these setbacks I look back at my holiday with happiness and joy. Because I know my luck is terrible but I always try to see the bright side. And for me the bright side always outshines the darkness. Even the tiniest light outshines it for me. It took me a long while to actually see the bright side "automatically" but every time something happened to me I forced myself to look at something positive.
So I hope you guys can do the same and live happy lives during hard times 😌
#CFS #chronicillness #chronicillnesswarrior #blog #lifestyle #spoonie #migraines #chronicfatiguesyndrome #me #dontkeepMEquiet #sleepygirl #sleepygirlcfs #vacation #love


0

I love my friends, and I can talk to them about so many things. I can call them in the middle of the night and they wouldn't mind. I can talk to them about boys and girls or about friends who left me, being in pain, about all the bad and also all the good. I am super grateful for that and for them giving me a good time.
.
But talking about my illnesses is so much easier with someone who is going through the same stuff. I found @justineswennen by signing up for @recovery.buddy.parcels and instantly we hit it off, why? Because we are going to the exact same things. Our symptoms might not be exactly the same, but mentally I think we're kinda alike and that's so comforting. Being able to talk to someone who understands that if you say yeah I'm fine that you're not really fine but that you're just having an okay day. .
For everyone that does need someone to talk to you may always message me. But if you want someone close and nearby to be there for you (for people with chronic and mental illnesses), maybe also sign up to @recovery.buddy.parcels it's a worldwide thing and you'll be matched with someone that's nearby and alike!
.
Thanks @becoming_caide for thinking of this 😍
#CFS #chronicillness #chronicillnesswarrior #blog #lifestyle #spoonie #migraines #chronicfatiguesyndrome #me #dontkeepMEquiet #sleepygirl #sleepygirlcfs #recobery #recoverybuddies


2