Happy Monday everyone! It’s been a rough couple weeks so we haven’t been posting too much but wanted to hop on and update a little.
Ave’s having a rough time adjusting to the Strensiq so we are working through all of that.
She’s also had some issues with her heart (nothing new, she’s always ran high but this is the longest it’s lasted and it’s not from her Strensiq.) Her RESTING heart rate is between 125-140 (pic where she is sleeping she was 134) and her active heart rate is running 170-180. (Those lower heart rates on the watch are mine from wearing it before we put it on her....) She’s not feeling dizzy or faint but she is a little more tired lately. So today we’ll be heading in and trying to get a game plan for this.
So that’s our situation in a nutshell, hope all of you are having a great start to a great week!! ❤️❤️