Today marks exactly 1 year since my heart began stopping♥️ . ・
The first time it happened I was standing in one of the editing bays at Beachbody headquarters, where I work, going over a recent video I was overseeing. Suddenly I got this gut-wrenching-sick feeling in my stomach. I immediately felt sleepy, and felt myself consciously trying to keep my arms from shaking; and succeeding. Or so I thought. ・
☝🏼First of all, I’m much more funny than using fake seizures for comedy. ✌🏼Secondly, I started having syncopes, meaning my heart sometimes stops completely for 3-7 seconds, on November 15th of 2017.
It turns out I have an autonomic nervous system condition called Dysautonomia, more specifically the POTS (Postural Orthostatic Tachycardia Syndrome) and NCS (Neurocardiogenic Syncope) forms. These forms affect millions of seemingly healthy people worldwide. You would never know that this invisible illness was something we have to worry about.
After having 20+ of these syncopes and numerous tests (swipe right to see what one of these syncopes looks like when my heart stops) I’ve determined that I have about 15 seconds from when my stomach gets that gut-wrenching-sick feeling until my heart stops. I actually use my @apple iWatch's “Track my workout” feature which helps me monitor my HR (High Intensity Interval Training seems fitting 😂).
I'm happy to write this for a few reasons. ・
People don't really talk about this condition. I know personally when I feel one of these syncopes coming on I usually do the worst thing possible — I hide it. I know it's not safe, but for some reason instinctually, in the moment, all you want to do is hide it. ・
You never would suspect a group fitness instructor like myself who stays active and eats relatively healthy to have such issues. But this, and many other invisible conditions, affect people every day, so most importantly I want to say YOU'RE NOT ALONE. ・
It's embarrassing even though you can't control it.
It's humbling no matter how strong you feel.
But most importantly it's only a speed bump, even though at times it feels like a dead end. ・
1 year down, and many more to go 💪🏽