#POTS

Instagram photos and videos

#pots#chronicillness#pottery#ceramics#dysautonomia#spoonie#clay#eds#plants#chronicpain#posturalorthostatictachycardiasyndrome#chronicillnesswarrior#fibromyalgia#love#art#migraine#cactus#handmade#succulents#invisibleillness#mentalhealth#servicedog#chronicallyill#fighter#fibrowarrior#gastroparesis#endometriosis

Hashtags #POTS for Instagram

We love pot Zeno 😍 Comes in 6 different pattern- choose your favorite! #miljögården miljogarden_ #miljögården #pots #interiordesign #homedecor #homeinspo


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I love cooking, I think it’s a creative moment and one of the pleasure of Life 😋 Today I received a special surprise! the Agnelli pots personalized with my signature 😍
#celebritymasterchef I don’t fear you!😂👩🏻‍🍳❤️
Amo cucinare, lo considero un momento creativo e uno dei piaceri della Vita 😋! Oggi ho ricevuto una sorpresa speciale! Le pentole Agnelli personalizzate con la mia firma 😍👩🏻‍🍳❤️ 🍳#celebritymasterchefit non ti temo! 😂
#pentoleagnelli
#lesorpresequellebelle
#cooKiara
#kiaramente


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It was a big day yesterday, having a big move around at the warehouse. It's like when you decide to rearrang the house, I started with such gusto, then by midday everything's on the floor and I'm wondering why I decided to so this! But the end result is GREAT! A beautiful big gift table with some of our best, Christmas pressy ideas. Such a lovely range of gifts, and heaps of options between the $20 -$100 range. All unique and best of all, locally handcrafted.
We have so much going on @thecreativecollectivebrisbane until Christmas, pop over to our website and sign up for our fortnight newsletter and follow us on Facebook so you dont miss out hearing about our; extended opening hours, late night shop and sale! YAY
I think I should use the word Gusto more often, could be one of my favs 😊


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😁5 30 am wake up call painting Colourful pots of Love for my beautiful friends!! Sooo much fun! Amazing morning!!! Yay! Now to fill them will all my lucky plants at home!! 🌱🌵🌿🍀🌻💚🧚‍♂️ #love #colourful #rainbow #pots #succulents #yay #Rainbowpotoflove


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So far, this week has unfortunately called for a daily nap to get me through. It’s often hard to attribute what causes a poor night’s sleep with multiple chronic illnesses. It’s difficult to put a finger on whether it’s pain from EDS or Lupus keeping me up or adrenaline from POTS...or even a combination of everything. Without knowing the culprit, it’s tricky to treat, so the cycle continues. Meanwhile I am passing out (like a pretzel 🥨) at about 3pm everyday for a mid day snooze 💤


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day -15- what medical devices/aids do you use?

i use mobility aids a lot. i have crutches and a cane, and we are in the process of getting me my own wheelchair, although in places they are provided, i use them (like in the picture, i’m using a wheelchair at costco) and i often use the motorized carts at places like king soopers and target.
mobility aids prove to be a necessity because walking is so painful, and causes flare ups, and is even more difficult with illnesses that are caused by crps like eds where walking causes you to dislocate hips, ankles, toes, and knees on the daily!!
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#crps #amps #chronicillness #chronicallyill #sick #pain #eds #migraine #scoliosis #pots #fibromyalgia #chronicillnesswarrior #endometriosis #gastroparesis #tubie #life #explore #explorepage #eds #hospitallife


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day -15- what medical devices/aids do you use?

i use mobility aids a lot. i have crutches and a cane, and we are in the process of getting me my own wheelchair, although in places they are provided, i use them (like in the picture, i’m using a wheelchair at costco) and i often use the motorized carts at places like king soopers and target.
mobility aids prove to be a necessity because walking is so painful, and causes flare ups, and is even more difficult with illnesses that are caused by crps like eds where walking causes you to dislocate hips, ankles, toes, and knees on the daily!!
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#crps #amps #chronicillness #chronicallyill #sick #pain #eds #migraine #scoliosis #pots #fibromyalgia #chronicillnesswarrior #endometriosis #gastroparesis #tubie #life #explore #explorepage #eds #hospitallife


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@Regran_ed from @purplewarpaint - **SENSITIVE MATERIAL**
I found an article where a woman who suffers from Limb Girdle Muscular Dystrophy documents her deteriorating to advocate for euthanasia in her state.
In the comments, I found a woman (whose name and face has been colored out for her privacy) who has fibromyalgia, like me. And in replies to her comment, many other people shared their experience with fibro.
It made me cry reading it all. One, because I understand it. I know that pain. I feel it every day. The unbearable agony that makes you want everything to end. I get that. And two, because of the support I found in that comment thread. The “keep going”’s the “please don’t give up”’s. The encouragement to continue on, it’s so heartwarming and emotional. This community of suffers takes my breath away by how supporting they are.
Fibromyalgia is not a death sentence. But depression can be. Please reach out to family, friends, professionals, even me! There are treatments to help with the pain and sorrow. There are reasons to keep on.
In the comments, please tell us what you think about euthanasia, and when you believe it’s acceptable.
Personally I believe it’s acceptable if the patient is terminal and will experience no quality of life.
If you need to talk:
tel:1-800-273-8255
#fibromyalgia #spoonieproblems #chronicallyill #eds #lupus #mentalillness #fibromyalgiaawareness #mentalhealth #chronicpain #chronicillness #cfs #ibs #spoonie #muscles #backpain #memes #sickness #fibrowarrior #disabled #disability #invisibleillness #spoons #condition #neckpain #fibrowarrior #potssyndrome #pots #cfsme #multiplesclerosis #ms #endometriosis


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Arreglo de #sucus en taza enlozada viejita 🌿☕️🌿.
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Yo soy de las que le pone suculentas a todo lo que encuentro en el camino 😅 sartenes, pavas, tazas, latas, frascos etc. Me encanta este tipo de arreglos, me gusta que las cosas viejas tomen vida. ¿Les gusta?
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#verdetopiasalta #pots #suculentas #deco #cactus #plantsdecoration #plantas #greenlover #love #hechoamano #handmade #plantshop #potd📷 #plants #salta #saltalalinda #macetascemento #inspiracionbotanica #concretepots #love #amor #lanaturalezanosinspira #macetaspintadas #suculovers #plantas #plantsgram #plants #iloveplants #arregloconsuculentas #sucu #suculove


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Giving life to ideas ✨✨ There are so many things happening at the studio these days that we are so excited about! From products to a new website we are working hard over here 💪 #UFG #urbanfarmgirls #ufgandco #studiosale #gardenstudio #gardenista #mobayview #giftideas #homegoods #homedecor #greenitup #gardendecor #gardeninggirl #terracottapots #pots #plants #sfgardens #sale #bayview


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Have you ever tried to get 4 kids and a puppy to all look at the camera and smile at the same time? #newsflash it’s real hard, y’all.
Enjoy a sneak peek of our Christmas pictures :)


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Treatment update:
After being on 6 weeks of this new herbal protocol starting tonight, I’m planning to add in oral or IV abx and possibly HBOT for my lyme, bart, babesia, and now EBV (found that one out yesterday). Also learned that I’m lucky enough to be blessed with that MTHFR gene mutation 🤪 the list keeps getting longer. My other test results showed I’ve almost completely relapsed from Lyme since last January (2017) with my test numbers for infection tripling, but I wasn’t too surprised, and figured that was the case since I’ve been feeling so bad the past few months anyways. Despite ALL of this, I’m really hopeful that this round of treatment will break the wall I’ve been trying to for the past year and a half! Fingers crossed. ((I’d love to hear your opinions on IV abx and HBOT too))
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Saccharomyces boulardii
Orthobiotic
l-Lysine
Methylfolate
Astragalaus Root extract
LB Core Protocol
Tox-Ease GL
Sida dried leaf
Stevia liquid extract
MC-BAR-1


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I finally had my abdominal CT today! I was expecting to get an IV to inject the contrast, but I was not expecting to drink some lovely barium. I told @his_rotato that it tasted like drinking vanilla coffee creamer with pennies soaking at the bottom 🤢
Yes I look miserable, and that’s because the barium drink was making me feel sick, and I just woke up in a lot of pain this morning. So my plan for the rest of the day is to rest 👍🏻
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[image description: the first photo shows Noll looking unhappy and holding a white plastic bottle. The second photo shows a bottle labeled “Vanilla Silq” in Noll’s lap. The handle of Noll’s crutch is visible to the left.]


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Baseball babe. Graduation photos for a pitcher in Edmonton. I miss playing ball so much. It makes me so sad to go watch @timothy.127 play and know I can't join him. I played fastball my whole life up to playing for olds college and red deer college. My disabilities started really showing up around that time and I had to give up sports and spend my life trying to manage just living.

#fastball #baseball #pitcher #ball #graduationpictures #graduation #dress #ballgown #dressup #formal #beautiful #beauty #fun #hope #happy #love #photooftheday #portraiture #photography #shoes #sports #chronicillness #chronicillnesswarrior #mentalhealth #PoTs #postorthostatictachycardiasyndrome #heart #dysautonomia #gradphotos


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Getting my “go juice.” Plexus Slim™ and a liter of saline to pump up my blood volume.


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Today marks exactly 1 year since my heart began stopping♥️ . ・
The first time it happened I was standing in one of the editing bays at Beachbody headquarters, where I work, going over a recent video I was overseeing. Suddenly I got this gut-wrenching-sick feeling in my stomach. I immediately felt sleepy, and felt myself consciously trying to keep my arms from shaking; and succeeding. Or so I thought. ・
☝🏼First of all, I’m much more funny than using fake seizures for comedy. ✌🏼Secondly, I started having syncopes, meaning my heart sometimes stops completely for 3-7 seconds, on November 15th of 2017.

It turns out I have an autonomic nervous system condition called Dysautonomia, more specifically the POTS (Postural Orthostatic Tachycardia Syndrome) and NCS (Neurocardiogenic Syncope) forms. These forms affect millions of seemingly healthy people worldwide. You would never know that this invisible illness was something we have to worry about.

After having 20+ of these syncopes and numerous tests (swipe right to see what one of these syncopes looks like when my heart stops) I’ve determined that I have about 15 seconds from when my stomach gets that gut-wrenching-sick feeling until my heart stops. I actually use my @apple iWatch's “Track my workout” feature which helps me monitor my HR (High Intensity Interval Training seems fitting 😂).

I'm happy to write this for a few reasons. ・
People don't really talk about this condition. I know personally when I feel one of these syncopes coming on I usually do the worst thing possible — I hide it. I know it's not safe, but for some reason instinctually, in the moment, all you want to do is hide it. ・
You never would suspect a group fitness instructor like myself who stays active and eats relatively healthy to have such issues. But this, and many other invisible conditions, affect people every day, so most importantly I want to say YOU'RE NOT ALONE. ・
It's embarrassing even though you can't control it.
It's humbling no matter how strong you feel.
But most importantly it's only a speed bump, even though at times it feels like a dead end. ・
1 year down, and many more to go 💪🏽


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lid-less council flat!!
don’t forget to check out my website alicemara.com for information on how to commission your own piece!

#artist #ceramics #ceramicist #pottery #potter #pots #print #printmaking #omgart #councilflat #brighton #london #england #america


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Check out my latest blog post for an overview of some of the POTS treatments I've tried over the past few years. It's important to remember, that what works for me might not work for you as everyone with POTS will have different underlying causes. It's also important to keep working with your doctor to try new treatments until you find one that works for you. -
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#chronicillnesswarrior #invisibledisability #invisibleillness #spoonie #pots #dysautonomia #treatment #hospital #doctor #health #blogpost #spoonielife #spoonielove #chronicillness


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Atlas loves snowballs even more than he loves leaves
21 months
Pictures show a sequence of Atlas jumping up to catch a snowball. In the third picture, he has the snowball in his mouth and he’s still in the air.
#servicedogintraining #sdit #medicalertdog #medicalresponsedog #posturalorthostatictachycardiasyndrome #pots #chronicillness


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Take a 👀CLOSE LOOK👀 at this NEW pasta for our Koshari... Can you spot something new? 👉Now offering a gluten-free alternative⠀
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#glutenfree #glutenfreeoption #glutenfreepasta #koshari #egyptianfood #veganfood #vegasvegans #pots #itsnutritious #itsdelicious #egyptianstyle #veganfood #healthyfood #veganlife #veganbody #veganlife #healthyeating #healthylife #healthycooking #cooking #green #eatinggreen #plantbased


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Sontuoso, elegante e rigoroso. Sono i primi aggettivi che ci Vengono in mente guardando questo vaso.


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Funky Friday has arrived! 🙌🏼 I swear I count down to Friday every week, it seriously is my favourite day of the week! 😂
Loving me all this colour from our gorgeous stockist @folkeandfreya 😍
Everthing about this makes me smile 🤗 Hope y’all have a fabulous Friday with smiles on your dials too! ❤️
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#boho #pebblesandrox #pink #spotty #potty #squarelove #ranchero #greenery #plantsmakepeoplehappy #plantsofinstagram #pots #jungalowstyle #designerpots #dubbo #nsw #newstockist #crashbangcolour #giftideas #homewares #bedroomgoals #bedroomlinen #sageandclare #interiors #interiorlovers #interiordecor #interiorstyling


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wow! what an amazing glaze combo! this is Sea Anenome and Purple Rikki drips. Purple Rikki is a glaze i personally made!!!l So exciting! this mug is up for grabs! dm if interested. 🎊 #ceramics #ceramic #glaze #glazecombo #handmade #clay #pottery #pots #mugs #mug #forsale #handmadeforsale


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