#Spoonie

Instagram photos and videos

#spoonie#chronicillness#chronicpain#spoonielife#invisibleillness#fibromyalgia#pain#anxiety#autoimmunedisease#chronicfatigue#gastroparesis#fatigue#ulcerativecolitis#eds#ehlersdanlossyndrome#autoimmune#depression#chronicfatiguesyndrome#arthritis#spooniecommunity#mecfs#chronic#chronicillnesswarrior#family

Hashtags #Spoonie for Instagram

๐Ÿ™‹๐Ÿผโ€โ™€๏ธ Confession time! Iโ€™ll be honest Iโ€™m in the midst of a bad blip with M.E. ๐Ÿ˜ž Life has been difficult for a few weeks and incidentally the stress has compounded some of my symptoms, namely the fatigue ~ ๐Ÿ™„

For days Iโ€™ve napped every day. My body has felt heavy & my eyes keep rolling. Yesterday i had a 2.5 hour nap in the afternoon & then Iโ€™ve slept for 11 hours last night ๐ŸŒ›๐Ÿ˜ด Thankfully mum and dad are here till Saturday so Iโ€™m making the most of their help with the girls ๐Ÿ‘ฉ I brought my capsules with me & am making sure Iโ€™m extra religious about taking them as these are my life savers for fatigue & will at least keep me functioning. I donโ€™t know where Iโ€™d be without them & of course my amazing family ๐Ÿ˜ด๐Ÿ’•


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After spending time yesterday resting, both mentally and physically and doing a LOT of drawing, Iโ€™m feeling more positive about what to do with my care going forward. (On the drawing side Iโ€™ve been designing magical girl and Spoonie enamel pins and I am SO excited to share designs with you all when theyโ€™re ready!) So until I drag myself out of bed here is a throwback to last week when I was living off three different machines that seemed like all they wanted to do (aside from keeping me well) was beep as soon as another stopped. ๐Ÿ˜‚
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#zebrastrong #chronicillnesswarrior #hospital #ivfluids #piccline #gastroparesis #vascularcompression #spoonie #spoonielove #chronicillness #superiormesentericarterysyndrome #maythurnersyndrome #nutcrackersyndrome #eds #pots #mastcellactivationdisorder #spoonielife #spoonieproblems #vasculardisease #tubie #tubielife #tubefed #chiari #seizure #oxygen #gastroparesis #zebrastrong #mals #smas #medianarcuateligamentsyndrome #ehlersdanlossyndrome


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Extremely tired and a lot of pain.... Gisteren moest ik onverwachts naar het ziekenhuis omdat de peg-j weer in mijn maag lag. Het team op de scopie was heel fijn. Nadat ik het roesje kreeg en ze met de scopie door de fistel wilde gaan kreeg ik een zware aanval. Uiteindelijk hadden ze mijn man erbij gehaald en die kwam erachter dat een aanval getriggerd wordt door heftige pijn. Zodra er iets door de fistel ging of eruit ging kreeg ik een aanval hierdoor moest de mdl heel snel te werk gaan en lukte het hem om de nieuwe peg-j in 1x goed te leggen.
Op de uitslaapkamer kreeg ik weer een heftige aanval en was ik flink van de wereld. De arts wil dat er een onderzoek komt naar epilepsie en had een neuroloog opgeroepen om dit te bespreken maar die neuroloog kwam niet opdagen. Rond half 11 zei de verpleegkundige dat we naar huis mochten en dat we een klacht moeten indienen ivm het lange wachten. Gelukkig hoefde ik niet te blijven, wat wel in de planning stond van de arts.
Tijdens de aanval luxeerde mijn schouder waar ik nu veel pijn aan heb. Heb het gevoel dat ik overreden ben en heb veel pijn in mijn lijf. Ben nu wel een weekje zoet met herstellen.
#tired #exhausted #moe #uitgeput #eds #heds #ehlersdanlossyndrome #gastroparesis #gastroparese #dystonia #dystonie #dystrophy #dystrofie #pain #alotofpain #tubielife #edsfighter #edswarrior #spooniewarrior #spoonielife #spoonie #chronicalill #chronischziek #onzichtbaarziek #invisibleillness


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โ€ข #pineapplehair = shizzz went down during my home workout! ๐Ÿ’ช๐Ÿผ
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Weights upped again (thatโ€™s every workout this week so far!), cardio crushed and abs donezo โœ…โœ…โœ…
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Over and done with before most people have even got up! ๐Ÿ˜†๐Ÿ‘‘๐Ÿ™๐Ÿป โ€ข


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In session yesterday, I told my psychologist I was out of spoons and didnโ€™t know how to get more and I couldnโ€™t function. She said to eat and sleep. Sheโ€™s supporting via text at each meal for a few days to give me some accountability. #spoonie #spoontheory #spoons #recovery #eatittobeatit #edrecovery #eatingdisorderrecovery #eatingdisorder #ed #ednos #osfed


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Hello,
Iโ€™m The Unapologetically ill.
I donโ€™t mean to sound negative by the title.
I created this originally to document my life w/ chronic Illness but soon realized that my name needed to change and my approach because the world is not all filled with kindhearted people. There are too many a-holes out there who choose to be mean, condescending and just ridiculous at times. The truth is, Iโ€™m tired of it. I will not put up w/ it any longer nor apologize for it. Letโ€™s educate people and come together as a group.
This is a safe space where I will be free, create awareness, and post about chronic illness. On here I will post about the truth that many of us go through on this journey of self healing while battling an invisible illness that we did not choose, while reminding those beautiful people that there is nothing to apologize for. Those who cannot understand, judge or lack empathy do not deserve our time. You know exactly what I mean when I say these words. Everyone from medical practitioners, coworkers/work, friends and even some family. *Gasp* yes, you heard me. Until you are in our shoes, you will never know or understand the heartache and pain we go through each day.
Letโ€™s support each other and lift one another when times are dark. If you do have great friends, family & coworkers, who are there for you, hug them and let them know you are thankful and appreciate everything they do -because having an illness is not easy. Itโ€™s hard on you and on our loved ones too.
๐Ÿฆ‹๐Ÿ’œ๐Ÿ’ช๐Ÿผ๐Ÿ’š๐Ÿฆ‹ #spoonie #chronicillness #butyoudontlooksick #fibromyalgia #lymedisease #chronicfatiguesyndrome


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Design by #cristinamcallister, colored by me in Pigment. See more of my coloring by this artist at #McAllisterBySelah #adultcoloring #adultcoloringbook #digitalpainting #coloringbook #coloringforadults #creativelycoloring #colorart #digitalpainting #pigmentapp #pigment_app #spoonie #howicope #staycalmandcolor // Be an ethical colorist: give credit to the artist, and visit their website/source to see if the artwork is really free or if it has a cost and is being illegally shared online.


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I love my new @lamp_paperi stamp! Itโ€™s a tiny little one, but makes all the difference in so many ways. I canโ€™t wait to be able to use it! Iโ€™ve been extremely tired lately, and just allowed my body to rest after such a horribly hot, humid summer time. Resting is quite an understatement though, as I hardly have energy to lift my finger. But thereโ€™s all the time in the world, now is now, tomorrow is tomorrow, and all I worry is that I havenโ€™t got the energy to some important paper work needing to be done, well, last month. Crafting time comes when comes, and now I simply cuddle up with Mr. Hemingway and my children, read whenever I can see and hold a book, and sleep. (This stamp will be available when my hubby has time to list it on @varalusikka Paper Garden shop, I was lucky to get one. Or, put it simply, I said I need one. Husband having a paper shop has its benefits.)
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#stationery #stationerylove #onmydesk #happymoments #stamp #vintage #vintagecrafting #crafting #mailart #journaling #family #chronicillness #disability #spoonie #livethelittlethings


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#throwbackthursday this photo is about 11 years ago to the week.
Took four of my five nieces and nephews to #cardiff to the #doctorwho exhibition it has moved now but at the time it was in #cardiffbay my other nephew was only 3 and too little to watch drwho lol..
We went to the exhibition first then myself and my parents sat having a cup of tea while they went bowling it was an amazing day.
From just this photo they have now gone on todo so much 1 is a mom herself now to a wonderful 3yr old little girl and turn 25 this year, next one is now 22 university masters graduate with honors/got engaged and is now a depty manager to a tour company, next one is 21 next month going into last year of her degree, tkd 2nd dan teacher, european champion, then the small little cuddle bud is 18 this year, rugby star of the future studying second year ready for university plus 12 gcses, tkd past champion and just came back from rugby tour in Australian..then the little one who isnt on this pic is an amazing intelligent soo tobe 14 amazing dancer who has already dances in thw wintergardens blackpool, school spokesman /been in the christmas pabtomine with owen money so anyone who know me know i am an amazingly proud and protective auntie.
I wasnt blesses with children of my own but i was blessed with amazing nieces and nephews whi i am so glad I've bee in there lives so much.
Now they are grown and are all on there way to amazing lives i now give all my attention ti my amazing parents and our furbaby.
#family #welshfamily #thursday #2018 #blesses #celticfamily #spoonie #spooniepet #chronicpain #invisableillness #photography #cornwall #family #welshfamily #caerphilly


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As you go about your day, try to notice when you take even the smallest step towards your goals, and be sure to honour that it some way. Even just writing it down in your journal will give you that moment of recognition. ๐Ÿ‘ฃ๐Ÿ†๐Ÿ™Œ๐Ÿผ What three things are okay for today? What will you offer yourself gratitude for? ๐Ÿ™๐Ÿพโœจ illustration for which we are grateful @spoonie_village #gratitudeattitude #gratitude #thursdaythoughtfulness #bethankful #lookforthegood #mindfulness #pause #notice #beherenow #grounding #bepresent #letitgo #alifeworthliving #awareness #selfcompassion #connect #liveauthentic #spoonie
#drugsandalcohol #youngpeople #addiction #recoverywarrior #thecornercgl #thecornersheffield #sheffield


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Be kind to your mind and body ๐Ÿงก


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Iโ€™m regretting not bringing a jacket out today! ๐Ÿ˜ฉ We weโ€™re enjoying a warm summer (for once!) here in the UK, but woke up today to rain and much lower temps. I still thought Iโ€™d be ok without a jacket or cardigan, but now Iโ€™m outside Iโ€™m definitely too cold. Darn thyroid canโ€™t regulate my body temperature at all. I was thinking about how Iโ€™m more often than not too hot or too cold. Rarely โ€˜just rightโ€™! ๐Ÿฆ‹๐Ÿ’™
#hypothyroidism #underactivethyroid #chronicillness
#chronicfatiguesyndrome #chronicfatigue #thyroiddisease #thyroidwarrior #hashis #hashimotos #hashimotosthyroiditis #hashimotosdisease #hashimotoswarrior #adrenalfatigue #autoimmune #autoimmunedisease #thyroidawareness #spoonie #theinvisiblehypothyroidism


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FINALLY got my shoulder brace!! ๐ŸŽ‰ Iโ€™ve done quite a lot of damage to my shoulder with my frequent dislocations and needed a specific brace which of course no one locally stocked and I had to order in!! Been relying on tape which has just ripped my skin raw when taking it off even though I was using latex free sensitive skin tape๐Ÿ™„ hopefully this stops it from popping out and gives my rotator cuff some time to heal!! (Iโ€™m having such a bad pain day I did not have the energy to put on makeup so please be kind๐Ÿ˜‚)


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The summer is definitely over, and I am back to bed. Well, summer 2018, it was fun as long as it lasted.
#ensommererover #summerisover #iwantyouback #comebackplease #bedrest #chronicillness #chronicpain #spoonie #mecfs #mecfswarrior #millionmissing #millionmissingnorway #mecfs #mecfslife


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Looks like Audrey approves of my new front sleeper pillows. Apparently designed to prevent your neck from bending backwards. Aka just less filling. Comfy though. If only I could use my earplugs Iโ€™d have a good nights sleep! #spoonie #invisibleillness #hypermobilitysyndrome #cfsme #dog #jackrussell #dogsofinstagram #bed


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Sorry for the lack of posts but currently on day 20 of being sick. And when I say being sick, I mean everything coming back up. Most I can keep down is a biscuit in order to not have an empty stomach for my medication. Yes I have been going to the docs. She didn't want to rush me into hospital yesterday, but my body is heading that way. Got another blood test today, checking renal profile again, my haemoglobin is down so checking that again before, in her words "condemning me to a lifetime of injections", CRP heading in wrong direction, checking my B12 and stuff. So at the moment I am running on empty. I'm not feeling sick, just can't keep a meal or proper drink down. Having to nibble on biscuits, eat tiny portions of cereal or porridge and having to sip of water instead of drinking normally. Thank you Ehlers Danlos for f*cking up my body just that little bit more! So excuse me looking so ill and so ugly, I can't help it #spoonie #spoonieselfie #sicknessselfie #sickofbeingsick #bloodtest #runningonempty #ehlersdanlos #ehlersdanlossyndrome #ehlersdanlossucks #gastroproblems #gastroparesis #slowmotility #slowgut #gutproblems #ihateehlersdanlos #tryingmybest #lookingugly #invisibleillness #butyoudontlooksick #butyoudontlookill #stomachproblems #fibromyalgia #glandularfever #degenerativediscdisease #facetarthritis #plantarfasciitis


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I just thought to share this for any new followers who are still unsure of their symptoms and still waiting for a proper diagnosis.
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Please don't wait until you have all the symptoms. Even if you have just one, make sure you get it checked. Don't stop going to your doctor until they do a proper check. .
Dont let them tell you 'It's in your head', 'It's normal', 'It's just a period', 'It's IBS'. .
Listen to your body. It's trying to tell you something isn't right.
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Ask to see a specialist and don't stop asking till they listen.
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Wish my #endosisters a lovely day with as many spoons as possible!
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#endometriosis #1in10 #findacure #endodiet #endofood #endofit #notdefinedbyendo #endometriosis #endowarrior #health #chronicdisease #chronic #chronicdisease #chronic #spoonie #1in10 #bowel


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Shhhh | Iโ€™m in the garden hiding from โ€œMum! Whatโ€™s for dinner?โ€
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#spoon #spoons #spooncarving #spoonie #woodcarving #parenthood #motherhood #thursday #afternoon #teatime #brisbaneartist #maker #makersgonnamake #redlandsanyday #inmygarden #mum #escape


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Thatโ€™s right, itโ€™s a real thing! It took them a long time to finally agree to put in the diagnostic manual, within the last 5 or so years (gee I wonder why? *cough mostly male doctors cough*) It has nothing to do with some type of personal flaw, but indeed is biological.


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Yesterday was a little tough and my guts were grumpy due to stress. So today I got up, got on the treadmill, got dressed, put my favorite hoops on and got to work. Thankful to be alive. Just keeping going.


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Youโ€™re never too old to jump on a tractor and see beyond afar! ๐Ÿฝ Iโ€™ve wanted to visit @pennywellfarm for sooooo long and now that we were on holiday In the area we visited! Though there was lots of children and some passive aggressive mothers who thought their children deserved to hold a chicken/pig after throwing various other animals on the floor ๐Ÿ™ƒ it was a lovely day and reminded me your never too old to play with baby pigs ๐Ÿฝ


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I have had to put a stop to #EMDR treatment. It was no longer in my best interest to break myself open one hour a week and unearth my deepest, darkest horrors. My life is now. My husband- the person who taught me how to trust and how to stay. My children- the truest, purest love I have ever know. Myself- worthy of compassion and care. I might go back to it when I have stabilized. For now, it only bleeds shame, self-hatred, and resentment when I touch it. That's not who I am meant to be.

#chronicpain #chronicillness #fibromyalgia #fibro #ocularmigraines #chronicheadaches #interstitialcystitis #ibs #pmdd #hormoneimbalance #invisibleillness #spoonie #spoonielife #spooniefamily #spooniecommunity #anxiety #gad #generalizedanxietydisorder #ptsd #depression #insomnia #insomniac #existentialism #existentialist #highlysensitiveperson #highlysensitive #empath #empathetic #introvert


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You are loved. You are worthy. You are unique. ๐Ÿ’ญ Starting my day off with some positive affirmations ~ Iโ€™ve been in a lot of pain the past few days and itโ€™s been making me feel a bit low, so Iโ€™m focusing on the good things. We create our own happiness. โœจ || wearing @topshop #topshopstyle #topshopgirls


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Repost @naturallyhealing365
ใƒปใƒปใƒป
Over the past 26 days, Iโ€™ve been housebound, riding the rollercoaster of flare ups and mystery ills; dropped by nay saying family members who donโ€™t support my plans; double crossed by my landlady โ€˜friendโ€™ resulting in the need to find a house and move quickly; been made numerous unkept promises by folk who donโ€™t consider their word to be binding; yet, with Phoenix by my side, Baby Girl & co in my heart, and support from kindred souls in far away places, Iโ€™m proud and humbled to say, the appeal has been a big success. Big thanks to all whoโ€™ve been part of this journey so far. Two more days to help me get to the finish line folks, then the real work can begin..!๐Ÿˆ๐Ÿพ๐Ÿ™๐Ÿผ๐Ÿ’– #DiaryOfACatSavingSpoonieWarrior
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#catsofgreece #feralcatsofinstagram #animalrescue #instacat #greekcats #streetcat #feral #catlivesmatter #catphotooftheday #instakitty #catladyabroad #lovecats #vegangirl #adoptdontshop #catsofinstagram #bethechange #bringherhomesafe #spoonie #postofday #chronicillness #crowdfundingcampaign #helpneeded #goodcauses #prayersneeded #CatLivesMatter365 #charitablecause #pleasedonate #paypalme #linkinbio


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โ€ข2:01amโ€ข So the last couple days havenโ€™t been too bad, Iโ€™ve had he usual pains, hip pain sciatic nerve pain at night, hand tingling, temp regulation issues, neck pain.. etc. but nothing major which iโ€™m grateful for! I have been getting tired easily lately, just walking up the stairs is making me winded, so Iโ€™m hoping that gets batter.. but idk. Anyway, howโ€™s yalls day been? #fibromyalgia #fibrowarrior #chronicillness #chronicpain #nausea #lovely #sleepy #pain #sickofbeingsick #spoonie #medication #chronicillnessawareness #fibromyalgiaawareness #chronicfatiguesyndrome #chroniclife #invisibleillness #fatigue #morethantired #naptime #selfcare #bruised #sore #help #ouch #depression #anxiety #spoonielife


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Quand jโ€™augmente tranquillou mon nouveau traitement....... le matin cโ€™est ๐Ÿ˜Ž๐Ÿฆ„๐Ÿ’•๐ŸŒˆโ˜€๏ธ๐Ÿคท๐Ÿปโ€โ™€๏ธ
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Un double cafรฉ siouplรฉ ๐Ÿ™๐Ÿป๐Ÿคฉ
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Vacances J-2 ๐ŸŽŠ๐ŸŽŠ๐ŸŽŠ๐ŸŽŠ
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Ava faire du bien ๐Ÿ™ˆ๐Ÿ™„๐Ÿ˜…
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#unicorn #unicornpower #letmebeaunicorn #coffeeplease #spoonie #spoonielife #womenshealth


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I'll try this again... this was supposed to be yesterday's humpday motivation but the signal in Exeter is shockingly bad! I couldn't post. So #throwbackthursday it is. A few of my favourite #legday moves ๐Ÿ‘ Miss being able to properly train! ๐Ÿ‹๐Ÿพโ€โ™€๏ธ Hoping I'll get back there again soon! #throwback #gym #fitfam #fitness #deadlift #squats #weighttraining #strongwomen #girlswholift #thickfit #fitnessjourney #weightlossjourney #booty #fitnessmotivation #spoonie #fibromyalgiawarrior #recovery #fitnessaddict


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Very tired ๐Ÿ’ค after dislocating my right hip during my sleep yesterday and subsequently being sore despite a smooth relocation at home thanks to my excellent husbandโ€™s precise and gentle hands, I had another muscle spasm in my upper back- this is the second like it this week and theyโ€™re really frightening! However, all of that pales in comparison to our beautiful 8 year old daughter who decided sleep is for wusses and that attempting to take her DS without permission, not once, not twice, but THREE times, making our three dogs bark like maniacs at 11:30 pm, 3:00 am and 05:30 am... sheโ€™s nothing if not determined ๐Ÿ™„๐Ÿคซ๐Ÿคจ๐Ÿ’ค๐Ÿ’ค๐Ÿ’ค cheeky madam! ๐Ÿ˜‚ sadly though itโ€™ll be a no DS day for her today for sure! We always ask the kids to leave their DS/Kindle/headset/controllers downstairs of an evening so we can have family time for a few hours before they go to bed, which is clearly very unfair and has inspired mission impossible style retrievals ๐Ÿ˜‚๐Ÿ™„๐Ÿคจ


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Heโ€™s my ROCK. I donโ€™t know what I would do without him. Heโ€™s always there holding my hand when Iโ€™m scared. Asking questions when Iโ€™m to scared to ask. Stepping up when weโ€™re frustrated and asking other options. Letting me cry on his shoulder as I hear another scan or blood work was normal but Iโ€™m still sick and they donโ€™t know whatโ€™s wrong. I couldnโ€™t do this without him. I love you baby. Thank you. #pots #posturalorthostatictachycardiasyndrome #potssyndrome #inappropriatesinustachycardia #heartmurmur #eds #lymedisease #lymediseaseawareness #fibromyalgia #stageivendometriosis #hystersister #hypermobility #degenerativediscdisease #discdisection #arthritis #medullaryspongekidney #ibs #gerd #migraine #chronicillness #chronicpain #autoimmunedisease #lymedontkillmyvibe #spoonie #dysautonomia #chonicillnesswarrior #invisibleillness #gastroparesis #depression #anxiety


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๐Ÿ’ฅFlashback Friday๐Ÿ’ฅ๐Ÿ“ธ: @tazcatphoto


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I'm sick once again so today I'm day dreaming about leaving the house lol ๐ŸŽฌโœจ๐Ÿ’•


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I finally had the energy tonight to get back on my @zumba schedule since a flu in September threw my thyroid off for months. Ya'll it feels SO GOOD to be back! ๐Ÿ™Œ๐Ÿพ And bonus during these past months off, I've managed not to gain a single pound!


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It's a good day for an audition, and today I get to be a fairy! ๐Ÿ˜›๐Ÿ’•โœจ๐ŸŽฌ


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Guys what is up with this weather!? I can barely keep up! ๐ŸŒง๏ธโ˜€๏ธ๐ŸŒช๏ธโ˜”๏ธ


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LOVE this cute pink top and teal bag my mom got me!! ๐Ÿ’•๐Ÿ’•๐Ÿ’•


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Absolutely IN LOVE with this bracelet from the @pcosaa ๐Ÿ’• Find this bracelet and other items on their website PCOSAA.org! ๐Ÿ’•Thank you @meganmstewart !


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Had such a fun night w/ @till_richter for the official @sagawards party! So happy to see my idol @violadavis win yet another well deserved award for her magnificent work! And after tonight's show and the display of unity and love, I'd have to say I've never been more proud to be an actor, and to be part of such a wonderful Union. ๐ŸŽฌโœจ๐Ÿ“ฝ๏ธ๐Ÿ’•


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When it comes to Halloween at my house, carved pumpkins are just part of it... Any questions? ๐ŸŽƒ๐Ÿ’€๐Ÿ‘ป๐Ÿ”ช


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In LOVE with this lip color๐Ÿ‘„๐Ÿ’•๐Ÿ’๐Ÿพ


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Four leaves fall to the ground. *Takes obligatory "Hello Fall" pictures.* ๐Ÿ“ธ: @till_richter


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Spent the morning prepping things for my amazing VO agents, then raced over to do a set visit/ meet and greet for a talk show, only to find it had been cancelled on my drive over ๐Ÿ˜ž So naturally as a good Angelino/Millennial, I used that extra time to Snapchat. Los Angeles it's good to be back! ๐ŸŒดโ˜€๏ธ๐Ÿ™Œ๐Ÿพ๐Ÿ˜›๐ŸŽฌ


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Brain Freeze โ„๏ธ


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Is it Friday yet?


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My love for this skirt is unreal. It's nothing special but I freakin' love wearing it ๐Ÿ˜› and YES that IS a jean jacket I've had since middle school from 'Limited Too' ๐Ÿ™ˆ ๐Ÿ“ธ: @till_richter


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Because somedays you have so much going on that a t-shirt and skirt just have to do. #hadtimeforthispicturetho ๐Ÿ“ธ: @till_richter


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This shoot was really so I could show off that sick burn on my shoulder. Curling irons are mean guys #thatsgonnagoawayright??


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