#alzawareness

Instagram photos and videos

#alzawareness#dementia#alzheimers#caregiver#endalz#elderly#love#parents#elderlyphotography#dayswithmomanddadbyjs#evokingemotion#father#mother#tellyourstory#grace#indianapolis#realtalk#daughter#support#nursinghome#jonistreitphotography#blackandwhitephotography#hospice#alzheimersassociation#orangecounty

Hashtags #alzawareness for Instagram

I would pay all the money in the world to know what he is thinking about. This wasn’t today. Today he didn’t open his eyes for me at all. That always makes for a harder day for me. I am desperate for a connection. A moment. A second even. He squeezed my hand when I talked about how he used to tease everyone on the unit. Maybe it was a reflex. Maybe it was in agreement. Hard to tell. I am so tired. In all the ways one can be tired. I took two naps today in an effort to recharge a bit. And now it’s 7:15 pm. And going to bed sounds like the best thing ever. These days are long and hold a lot of questions. And worries. And fears. But also so many beautiful memories flooding my mind. Hug your loved ones, guys. 💜


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I have so many questions about dementia and love, and the soul connection that is there even when two people no longer seem to know each other. For the last few weeks, my momma has been wheeling herself down by the locked doors that lead to where my dad is. She just sits outside the door. I walked by her a couple nights ago and she just kept saying “he’s a good man” over and over. On Tuesday, Mom came down to see Dad and sat by him as she ate her lunch. I told her his name and she said that she didn’t know him. I mentioned that he is her husband. She kind of shrugged and said, “well he sure is good looking.” When she was finished eating that day, she wandered off on her own. Of all the rooms on the unit, she went into Dad’s room on three different occasions. Why his? It was never her room. But she seemed very familiar with it. Then her aide told me today that someone saw her crying in the hallway. When asked if she was okay, she said, “it’s just so sad” over and over. What does her heart know? I just want to hug her. 💜



#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #blackandwhitephotography


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He still has some fight left. Which makes me happy. This is the aftermath of that fight. Also, this is exactly how I am feeling after the longest, most emotional week ever. Kind of mad. Kind of sad. Kind of wanting to hide under my covers. 💜


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💜👆🏻 How cool is this idea from @theyouthmovement_org’s Bradley chapter?! June is Alzheimer’s & Brain Awareness month, a great time to recreate this in your town!
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📸: @theyouthmovement_org
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#paintyourtownpurple #paintthetownpurple #endalz #alzawareness


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Playing Tic-Tac-Toe for Alzheimer’s and special needs seniors can be fun and easy to learn. With Alzheimer’s patients who suffer from a more advanced stage of the disease, the X and O playing pieces will be more familiar to them. With most special needs seniors you can make any type of hand-crafted Tic-Tac-Toe playing pieces.
#KITES #Alzheimers #Dementia #NursingHome #CareGiver #BeActive #love #parents #alzawareness #elderly #bedsidecaregiver


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Alzheimer’s Disease is the most common form of dementia. It deteriorates a persons cognitive thinking,memory, and behavior.
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Alzheimer’s runs in my family and I have witness my grandmothers going from strong independent women to almost and infant state. I redesigned a section of this informative booklet of facts and figures provided by @alzassociation to take a more personal approach and really break down how Alzheimer’s effects the mind.
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This project is for them and other families affected by it 💜
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#alzheimers #alzheimersassociation #alzheimersawareness #graphicdesign #graphicdesigner #freelancer #chicago #freelancedesigner #bookdesign #publicationdesign #datadesign #visualdata #graphicartist #designer #layoutdesign #bookdesigner #health #dementia #alzawareness #design #bookpublishing #pamphletdesign #brochuredesign #typography #printdesign #chicagodesigner #artdirection #texture #pattern #healthymind


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Happy Thursday! Is it Summer yet?! After being gone over the weekend followed by a severe slice between my second and third fingers Monday morning requiring 12 stitches, I am finally able to see Mom today!
Thank you, Thad, for participating in “The Longest Day” in honor of Mom. For more information, please click on the link in my bio! 🚵🏻‍♂️💜 #motherinlaw #soninlaw #theirbondiseverything #lovethroughthepain #alzheimerscantstopthelove💜 #alzawareness #alzorg


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@carmenbuckphoto is now on Facebook Live in the @txalz office for her book signing! Purchase yours today on smile.amazon.com #JustSeeMe #AlzAwareness


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Mom, at the #animalshelter where I volunteer, modeling her new fedora.
She’d been eyeing a fellow resident’s hat so we got one of her very own!
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#alzawareness #elderlyphotography
#livingwithdementia
#alzheimersdaughter
#lifeloveandalzheimers
#dementiacare #daughtersunite


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If you know me well personally, did you really think a kitten wouldn’t show up in a photo here at some point?! That’s right. I snuck in the sweetest kitten from my house right now. And he loved snuggling next to Dad. And this is probably my favorite photograph I’ve taken in this journey for the last year or two. ❤️



#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #blackandwhitephotography #hospice #kittensofinstagram #worthit


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Yesterday he and I worked on our tans together in the sun. And when I asked him if the warmth of the sun felt good on his skin, he said “yesssss.” 💜 He kind of had a scary day on Monday. So family all came in on Tuesday. And now he has evened out a little and is more alert. We aren’t on a timetable here. We are on a straight up rollercoaster. But it’s a ride I’ll stay on for him. He is responsive to me. And I’ve even gotten a smile or two. More like a 25% grin. But I’ll take it. 💜


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🍋⬇️ Charity Lemonade Sale⬇️🍋 With summer coming up, Aging Without Ala encourages all youth to sell lemonade to raise money towards #alzdisease💰💰 We will be holding a lemonade sale very soon, so stay tuned for updates! Donate and sell 🍸🥤 for a good cause!
#alzawareness #endalz #dementia #teenevent #lemonade #lemon #charity #event #summer


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We are out at City Tap DuPont tonight keeping happy hour prices until closing! Come out to support the @alzassociation


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in honor of my grandmother who is currently living with #alzheimers, i’m going to be coaching the #blondes in the @alzassociation x @bvbcleveland flag football game! i have to reach the goal of raising $300 in donations by June 9th and need all the help i can get from y’all. the link to donate is IN MY BIO and no amount is too big or too small. i’m hoping that everyone will follow suit behind the 10 ppl i’m tagging to be the firsts to donate:
@brycejones17 @chazo216 @ao__ @i_owe_deji @killatrav @missalexjae @meli55a_sc0tt @claybrookszn @ku_bfresh @_supajay9 @markuzrob
thanks to everyone in advance that helps me achieve this goal. let’s do numbers! 💜 #memoriesmatter #endalz (p.s. my mom dove and grabbed that flag btw. she 50+ and out here ballin!)


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I took a lot of photos today. And I have so much to say. But it will have to wait because I’m drained. It was a good day. Dad saw my mom and all my siblings. In the same day. That hasn’t happened since his birthday last September. I hope his soul feels free to rest now. I left him snuggled up in his bed with the soft evening light coming through. I just love him more than I can ever tell you in words. 💜



#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #blackandwhitephotography #hospice


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1962. He was 25 and as dashing as could be. On the back of this photo is a handwritten note that says “Keck (his nickname) taking his own photo. August 1962”. Guys, it sure sounds like my dad was the groundbreaker for selfies! 🤷🏻‍♀️❤️☺️



#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #blackandwhitephotography #selfie


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💙👩🏼🎨 #SHADEOFTAS


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As Alzheimer’s progresses, a senior’s ability to communicate and perform everyday activities declines. Giving these seniors means to express themselves, when they can no longer do so with words, can help them feel safe and relax. For instance, art or photos can trigger emotions and memories for seniors who no longer speak. A senior who has not expressed a word in months might suddenly smile or want to pick up a pencil and draw.


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Guard dog. 😍


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Last night I left around midnight. He was stretching out his arms to get more comfortable. I held his hands to calm down the tremors. He rested his arm on my shoulder as I bent over him. I told him I needed to go home to sleep but that I would be back in the morning. He squeezed my hand. I kissed him on his cheek. And he turned his head and kissed my cheek back. He knows. I’m so grateful for those little gifts that come at the most unexpected and hard times. (Also, appreciation post for how cute this puppy is and a thank you to @sarahhill920 for taking this precious photo for me.)



#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #elderlyphotography #tellyourstory #evokingemotion #blackandwhitephotography #hospice


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Dad had the sweetest little visitor last night. Thank you, Leo and your momma @sarahhill920 for making me feel less lonely and so loved. Thankful for all your hugs and support over this journey. Sometimes you need the friends in life who 100% don’t judge the things you say or the way you feel about the hardest situations. And you, my friend, have always been that for me. Also, give me that puppy. 💜💜💜


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If you're in Eastern Washington/Northern Idaho and want to learn how people in your community are fighting Alzheimer's, join us as we light the Steam Plant smokestacks purple for The Longest Day! Save the date for June 20 and join the fight!


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One of my friends on staff snuck this photo of me today. I am so glad she did. It’s a memory I will hold onto. That’s what this is all about: remembering the good and the bad. The haziness of this photo actually makes me happy from an artistic and symbolic standpoint. I hope that as time passes, the memories of the harder moments will fade into a hazy sort of hug that reminds me of how strong I am and how beautiful this journey has been. Thank you, @amberholtsclaw for taking this. You probably didn’t expect my psychoanalysis of your image. 😂😘


#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #elderlyphotography #tellyourstory #evokingemotion #blackandwhitephotography #hospice


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“You should see the other guy...” He is healing up nicely on both eyes. Today he was freshly shaven and so handsome in my favorite blue shirt of his. ❤️



#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #blackandwhitephotography #hospice


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I got to see his eyes today. And be with him while he ate dinner. And it made me so happy to see him upright. He didn’t give much in the way of verbal responses besides a yes or no. Except when he acted like he wanted to get up. We asked him where he wanted to go. And he said Illinois?!? 😂🤷🏻‍♀️❤️


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5.7 million Americans are living with Alzheimer's. Help us show them support with our AWARE purple necklaces for Alzheimer’s awareness. 💜
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#alzheimers #alzheimersawareness #alzheimersassociation #alzheimerssociety #alzheimerssucks #alzheimer #alzheimerswalk #kickalzintheballz #alzawareness #alzsucks


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She wouldn’t look at the camera but I love this nurse. She pulled Dad right in the little office next to her. We just cannot have him fall and the trauma of the most recent fall has all of us paranoid. Being in his room alone is sad and quiet. But being around the noises of staff and other residents hopefully will be a comforting white noise for him when I can’t be with him. He’s so precious. And so snuggled in. I kind of want my own chair like this. 🤷🏻‍♀️💜



#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #blackandwhitephotography #hospice


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He held my hand tightly. And then sometimes he would rub my arm. He’s so comfortable in his new chair. I cannot express how grateful I feel that he has this and can be with the staff and not in bed in his room. He doesn’t seem to be in pain. Or at least it is well-managed. He’s calm. He’s snuggled in. And he is certainly loved. 💜


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I love how he’s holding my hand. I love how snuggled in he is. I love that he is sleeping. I love that in this moment he is safe. And calm. I love the staff who care for and love him like their own. If I just keep telling you all the things I love, it keeps me from thinking of all the things I hate about this.


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This is Eleanor, one of our many fabulous Case Managers here at Carefree Home Care. She is so sweet and so giving, we wanted to make her birthday extra special. This was her thank you note to us:
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"No words can express my gratitude for all the efforts the Carefree Team did to make my birthday so awesome!! The beautiful cards, flowers, bar soaps, cake, the Amazon and Starbucks gift cards (wow!!), wine, and the sumptuous lunch. I'm so lucky to work for a company who cares a lot about its employees. You're a class act!"
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No Eleanor, you are a class act!!! Thank you for all that you do!!!
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#carefreehomecare #homecare #seniorliving #caregiver #retirement #oldtowneorange #orangecircle #orangecounty #seniorcitizen #beatalzheimers #alzawareness #goldenyears #iamacaregiver #dementia #orangeplaza #oldtownorange #hospice


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Goal: In 18 minutes, build the tallest tower out of dry spaghetti, tape, string and a marshmallow.

Goal after 3 minutes: Don't build the shortest tower.

Goal after 5 minutes: Don't eat the marshmallow.
#Friday


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“Dad, I’m here. I’m not leaving you. You’re safe and you’re not alone.” Him: *squeezes hand. 💜 (PS. Those birds on my tattoo represent him and Mom. )


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No words. Just thankful for another day.


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We had an awful day today. Dad landed himself in the ER after a fall that resulted in the worst head gash I’ve ever seen personally. He is back in his own bed tonight. But it was a rough day. And I’m emotionally exhausted. Thankful that tomorrow is a new day. And trying to figure out how to legally wrap him in bubble wrap to keep him protected. 💜


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In honour of Mother’s Day that just passed, and my new Living With Alz Series post, here is a great throwback photo of my parents from what I’m pretty sure is pre-children. My mom is such a ray of sunshine, and her smile is one of my favourite things. I held her a little closer this weekend - as we had the biggest change of all hit our family. Click the link in my bio to read the latest #livingwithalz series post: the biggest change of all - we got a bed at a long term care home. 💜


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Carefree Home Care takes great pride in serving our elder and senior community in the comfort of their homes with the utmost care, love and kindness. We have the best, most experienced caregivers in Orange County area. We hold ourselves to a very high standard.
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If you are looking for compassionate and affordable in-home care for seniors and elderly around Orange County, you have come to the right place. Our home care services staff is caring, experienced and fully insured.
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Call us: 714-501-9801 for a complimentary consultation.
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#carefreehomecare #homecare #seniorliving #caregiver #retirement #oldtowneorange #orangecircle #orangecounty #seniorcitizen #beatalzheimers #alzawareness #goldenyears #iamacaregiver #dementia #orangeplaza #oldtownorange


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I took this in 2015 when Mom and Dad met their youngest granddaughter for the first time. I’ve been going through old photographs. Because, well, that’s what you do when someone is slipping away from you. One of my favorite things about my dad has always been his fondness for babies. The babies in our family, of course. But also all.the.babies everywhere. I’d take them out for lunch a lot when they still lived at home. If we saw a baby across the restaurant, I could just go ahead and add on an extra 20-30 minutes to our time there because he 1) had to get the baby to smile 2) had to compliment the parent on how beautiful their baby was 3) always always made comments on either their eyes or their hair and 4) had to have a rousing game of peekaboo. Back then I was less patient. Especially on the days where we had appointments. But babies brought him so much joy. Someday I’ll tell you about the time I lost him in the grocery store because he found a baby a few aisles away. Now I can smile about it, but in the moment, maybe not. I love this about him. So so much. I’m happy I found this photo this morning to start my heart off in a happy place for the day. You know? 💜


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My mom had extra visitors today. I was trying to explain to her that the little girl is her great granddaughter. She was trying so hard to understand what I was saying. Finally she laughed and said “I don’t know what you mean. But if you just keep rubbing my back, it will be alright.” 😂 It’s so lovely when she is happy and silly. As you know, that’s not always the case. But she was all smiles today. And I’m so thankful. •


#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion


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I sat with him for most of the day today. He drifted in and out of sleep. I played music while I worked next to him. I talked to him about all kinds of things. I know he can hear me. I know he knew I was there. He squeezed my hand and shook his head yes or no. (Yes to ice cream. No to broccoli. Obviously. 😂). I got him to eat a huge bowl of ice cream. At this point anything we can get him to eat is a win. Before I left, I tucked him in “snug as a bug in a rug” to which he wrinkled his nose. Because for months now, every time I say that, he scrunches up his face and reminds me that we don’t like bugs. I nuzzled up to his cheek before I left and told him I loved him. And he mumbled it back and held my hand tighter. It’s all a gift. Every second. Every gesture. A light in the midst of the darkness. 💜


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Did you know that East County San Diego has the highest number of people with dementia? Join us for the first of a three part education series in #Alpine on Friday 5/18! #education #alzawareness #educationseries #alzheimersdisease #dementia #alpinelibrary #alzheimersassociation #freeeducation


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Sigma Kappa is one of the biggest contributors to the fight against Alzheimer's disease, and UW Sigma Kappa's Ultra Violet Gala is an opportunity to fight with them! Learn more and RSVP.


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I didn’t know this was recorded until I got home. I knew they took a photo of this moment. Look at that grip on my arm. If I took too long in between bites, he pull my arm. This moment is a beautiful gift to me. ❤️



#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #hospice


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Ironically while I was in the middle of typing out my last post, the nursing home called to tell me Dad fell. He was okay but he has a gash on his other eyebrow and his oxygen levels were low. So I went over to be with him around 9 tonight. I took him a chocolate milkshake. By some small miracle, he drank it. He held my hand really tight. And when I left, he lifted his head, puckered his lips and pulled me down to kiss my cheek. I cannot tell you what a precious unexpected gift that was to me today. Sometimes I think God knows just what I need just in time to keep me from going over the edge. 💜



#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #hospice #littlethings


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Flashing our #ForgetMeNot Frames after a successful committee meeting last night!

Our Event Chair @missexcelsior2018 introduced us to AIM Advocacy and the many ways our legislative reps are supporting our research and programming efforts with @alznycc.

RSVP for our event kick off on May 31st before it's too late!

Can't make it but want to get involved? Reach out to learn more about our 2018 #Walk2EndAlz on #StatenIsland.

#Alz #EndAlz #AlzheimersAwareness #Almheimers #Dementia #Advocacy #Caregiving #CaregiversSupport #Research #AlzResearch #AlzAwareness #MakeMemoriesLast #MemoriesMatter


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I have been thinking a lot about fear lately. It seems to me that grief and fear truly walk hand in hand. Fear has been a best friend (eyeroll) of mine for the last 6 years or so. When my parents were home, it was fear of them falling. Of them wandering off. Of them getting lost. Of them overmedicating. Of them burning down the house after making their daily pizza for lunch. Fear of them falling on ice because they were too stubborn to not take their daily walks around their property, even when it was freezing. Fear when their neighbors would call me. So. Much. Fear.
Fear is still my constant companion but intensified by a million percent. Fear of losing him. Fear of losing her. Fear of who I become when they aren’t here anymore. Fear of them falling. Fear of them not knowing me. Fear of them lashing out at me. Fear of forgetting the moments with them that hold my heart. Fear of missing THE call. Fear of my phone dying. Fear that the ringer gets accidentally turned off and someone at the home is trying to reach me. Fear of them being alone and sad. Fear of them having a lucid moment and me missing it.
Fear turns into a real jerk when the name of the facility pops up on my phone now. Like my blood runs ice cold through my veins and I have to force myself to breathe and answer.
When I was a little girl, the biggest thing I remember being afraid of was thunder and lightning. My dad was the one who was my safe place. I can still hear his voice saying, “Joni, there is no fear in the perfect love of God.” I’m not a super religious person, spiritual, yes. But I would pay all the money in the world for him to say this to me right now. I hope what he’s feeling is God’s perfect love for him. And no fear.


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We are in #Bonita on Wednesday evening to help you learn about #Alzheimer related behaviors. Come see us at #VillaBonitaSeniorLiving for #freeeducation and #appetizers ! #alzed #alzawareness #alzheimersassociation #sandiego #seniors #community


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He tried so hard to hold his eyes open for a photo with my kiddos. He didn’t say a word today. He just watched. And shook his head yes or no. It’s hard for them to see him like this. He’s so small. And he’s such a strong person to them. But they got to hug him and we told him how much we love him. When I took his hand at the beginning, he squeezed it very emphatically. I think it was his way of greeting me. I love him so much. So. Much. •


#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #blackandwhitephotography #hospice


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“Mom, these cuties are my kids. Do you think I should keep them?” (Her) “That seems like a good thing to do...” We loved seeing her smile today. ❤️❤️



#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #blackandwhitephotography #mothersday


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So much fun working with @emmaleenagrimmy this morning. My subjects are usually plants and animals, so it was a nice change and I thoroughly enjoyed it!
Emma and her family work so hard to support the @alzheimerssoc, a great and very important cause and I'm so glad that I can be even just a little part in it. Her Instagram is full of beautiful art, travel and all things #blue💙



#temperatehouse #natural #photographyoftheday #blogger #fashion #photography #bloggerlife #collaborators #nature #lifestyleblogger #kewgardens #naturephotography #flowersandmacro
#liveforthestory #shadeoftas #endalzheimers #dementiaawareness #florals #alzawareness #amateurphotographer #canon_photos #green #photoshoot #springtime #blonde #wildflowers #londonlife #richmond #portrait


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Then ➡️ Now. Happy Mother’s Day to my best momma. We’ve weathered some really hard storms in our relationship. But I’m thankful for all the things that have brought us closer. You may not know who I am. But I know exactly who you still are. 💜


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I love when she smiles. This particular smile was when she was about to be given a Hershey’s kiss. Whatever works! Also... she LOVES her fidget blanket. She told me to “pet it” and staff told me that she’s very protective of it. Which I find completely adorable. 💜



#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #fidgetblanket


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Today was a sleepy day for him. Dad had a rough morning fighting care. And it probably wore him out. He peeked his eyes open at me for about 30 seconds. And halfway smiled. I’m glad that I had a good day with him yesterday so this one didn’t sting as much. Every moment is a gift though. The good ones and the bad ones. 💜



#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #blackandwhitephotography #hospice


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My mom has been exceptionally tired and groggy this week. She peeks her eyes open with a little grin and then drifts off. I am sure most of you here have heard of “fidget blankets”. My brother’s girlfriend whipped one up for my mom after she witnessed how busy her hands always are. Mom thought it was pretty. And immediately her hands reached for the different textures of ribbons lining each edge. And then she promptly fell asleep. I think it’s a fabulous idea for her and hopefully it will calm her when she can’t slow down her hands. Thank you for making this! •


#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #fidgetblanket


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I wish I could remember what we were talking about that made him smile. But I was too distracted by that little glimpse of happiness on his face. We took a long walk down the hallway together. Me holding onto him for dear life. He is so stubborn. He wants to walk so badly. He needs to be in a wheelchair because he’s so unsteady. It’s that same part of his personality that would run down the driveway from the mailbox everyday just to scare me to death. All with that little twinkle in his eye. Stubbornness extends to his care. He wants to be able to do things but he can’t. He doesn’t want the staff to do things for him. So he fights. It’s a challenging cycle for everyone involved in his care. Obviously I don’t like hearing about it or seeing him upset. But I’m also glad he has a little fight left. 👊🏼💜



#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #hospice


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#carefreehomecare #homecare #seniorliving #caregiver #retirement #oldtowneorange #orangecircle #orangecounty #seniorcitizen #beatalzheimers #alzawareness #goldenyears #iamacaregiver #dementia


1

I knelt down in front of her and waited for our eyes to make contact. “Hi Momma. I’m your daughter Joni. I just need a hug from my mom today....” Her: “Get out of my way. I have to go over there.“ (proceeds to roll over my toe). Thanks, dementia... for stealing my mom too. •


#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #blackandwhitephotography #angry


25

Today was hard. The gut-wrenching, no air to breathe, but no place I’d rather be ... kind of hard. I can’t remember the last time I cried on my dad’s shoulder. Until today. He slept. I held his hand. And then it hit me like a wave I couldn’t escape if I tried. The tears fell...quietly as to not disturb him. I’m so thankful he is my dad. These moments with him right now feel almost holy. I can’t think of a better word.
He woke up for a few minutes. I took his face in my hands and locked eyes with him. “I’m your Joni”. *I know.* “And I love you so much.” *I know that too.* And he went back to sleep. 💜Praying that tomorrow is a better day for him and that he starts to eat again.


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Sheri Grimes credits her mother, Joni, with being the driving force behind her singing career. For The Longest Day, Sheri is using her passion in honor of Joni, who lives with Alzheimer's disease. Save the date for Sheri's event and start your own Longest Day team!


1

From my notes filming for the #EnCaRe project in @universitycollegedublin My message to all carers: You think it'll break you but it doesn't. You shouldn't have to fight a disease you don't have. But as a carer you have no choice and you slowly regain some semblance of control and understanding... and it feels so good. It's like an infusion of resilience.
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#carers #dementia #alzheimers #ucd #encare #alzawareness


2

I sat with him for about an hour today. I couldn’t wake him. Even with the promise of a cheeseburger and a coke. There was zero response from him. Except the squeezes and rubbing of my hand. I think he knew I was there. I played some music on my phone and just took in the sacredness of all of it. I brought a book to read. But watching his soft and peaceful breathing captured my attention a little more. 💜



#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #dad #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #blackandwhitephotography #hospice


4

Me: Hey Mom, wanna race?
Her: whatever you want me to do...
Me: (gets in running stance..) On your mark... get set... GO!! Her: but I JUST ate! 😂😂❤️


6

This melts my heart. So he gets tired very easily now. But he doesn’t want to just stay in his room. He’s claimed a little bench right by the dining room where all the activity happens. The nurses (GOD BLESS ALL OF THEM 🙌🏻🙌🏻🙌🏻❤️) cover him with blankets and let him curl up on that bench so he doesn’t have to be alone in his room. He promises he’s comfortable. And I think he is. It’s so sweet but also kind of heartbreaking to me all in the same breath. I’m eternally grateful for the staff members who love and care for him every day. They are patient, kind, gentle and honestly, they kind of spoil him. Which is 100% fine by me. He drifts off to sleep for a few minutes. And then wakes up to watch everyone moving around him. He’s calm. And my heart is too. For today. 💜



#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #blackandwhitephotography #hospice


9

The smile I got when I showed him my awkward wink. 😉❤️ He’s healing up pretty well, thankfully. He knew who I was today which always makes it a special day. Love him so much. ❤️



#alzheimers #dementia #elderly #nursinghome #caregiver #love #parents #daughter #realtalk #alzawareness #endalz #indianapolis #support #grace #dayswithmomanddadbyjs #mother #father #jonistreitphotography #elderlyphotography #tellyourstory #evokingemotion #blackandwhitephotography #hospice


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