#aworldwithoutCF

Instagram photos and videos

#cysticfibrosis#aworldwithoutcf#aworldwithoutCF#spoonie#chronicillness#endcf#transplantlife#mydonormyhero#summer#Transplantworks#2yearspostlungstransplant#shinerama#cfcanada#whenindoubtswimitout#fightcf#unmondesansfk#whenindoubtpedalitout#healthcare#heatwave#question#takecare#summerheat#tips#luckylucyscasinonight6

Hashtags #aworldwithoutCF for Instagram

Love you momma 💜💜💜 #Repost @laineymacg ・・・
My sister Karen and I will be among 90 Canadians participating in the CF Canada Walk to Make Cystic Fibrosis History: Peru, an 8 day trek to Macchu Picchu. Please help me on my journey to make CF history for not only my daughter, Katie, but also the 4,200 Canadians living with this incurable genetic disease. 1 in 25 people in Canada carry a Cystic Fibrosis (CF) gene which affects the lungs and digestive system and is the most common incurable genetic disease affecting children and young adults. This fundraiser raises awareness about people living with CF and all pledges go directly to the Cystic Fibrosis Canada Foundation, a non-profit organization. We are paying for our 8 day trek in Peru and are required to raise a minimum of $4,200 ($1/Canadian affected) to participate; all donations are made directly to the CF Foundation using the link below. Donations over $20 receive a tax receipt. Link in bio. #cysticfibrosis #aworldwithoutcf


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My sister Karen and I will be among 90 Canadians participating in the CF Canada Walk to Make Cystic Fibrosis History: Peru, an 8 day trek to Macchu Picchu. Please help me on my journey to make CF history for not only my daughter, Katie, but also the 4,200 Canadians living with this incurable genetic disease. 1 in 25 people in Canada carry a Cystic Fibrosis (CF) gene which affects the lungs and digestive system and is the most common incurable genetic disease affecting children and young adults. This fundraiser raises awareness about people living with CF and all pledges go directly to the Cystic Fibrosis Canada Foundation, a non-profit organization. We are paying for our 8 day trek in Peru and are required to raise a minimum of $4,200 ($1/Canadian affected) to participate; all donations are made directly to the CF Foundation using the link below. Donations over $20 receive a tax receipt. Link in bio. #cysticfibrosis #aworldwithoutcf


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Dans un mois jour pour jour, se tiendra la deuxième édition de l’événement caritatif La Mode est dans l’Air! , animée par nul autre que @marieevejanvier et
@donnasaker . Dépêchez-vous de vous procurer vos billets pour cette soirée incroyable, une foule de surprises vous y attendent ! http://evenements.fkq.ca/evenement?id=91&lang=fr
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In exactly one month, will be held the second edition of Fashion is in the Air!, benefiting Cystic Fibrosis Canada and hosted by none other than @marieevejanvier and @donnasaker. Do not forget to get your tickets today, plenty of surprises await you ! http://evenements.fkq.ca/evenement?id=91&lang=en
#unmondesansFK #aworldwithoutCF


1

How do you keep yourself motivated to exercise during the week? ⠀

#tuesdaymotivation #exercising #workout #healthy #summer #cysticfibrosis #aworldwithoutCF #spoonie #chronicillness


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People living with CF can be described as incredibly resilient people! But, how would you describe resilience? Share one to 3 characteristics that define a resilient person in the comment section. ⬇️


#resilience #CFchampion #CFlife #cysticfibrosis #aworldwithoutCF #spoonie #chronicillness #raredisease #mentalhealth


1

🌧️ It’s a gloomy Monday in Boston, but autumn’s not here yet! Have you or will you travel anywhere fun and exciting this summer? Tell us in the comments!👇 #travelbug #wanderlust #vacationmode #rainydays #reminiscing #takemewithyou #cysticfibrosis #CF #CFAwareness #CFtravels #aworldwithoutCF


5

People with CF face lots of challenges. Despite the disease, many thrive and live inspiring lives. Today, we want to celebrate every milestone whether it is a lung transplant anniversary or traveling alone for the first time with all of you! Share one of your milestones with us today😃

#milestones #CFlife #doublelungtransplant #cysticfibrosis #aworldwithoutCF #spoonie #chronicillness #invisibleillness


3

Thank you so much @oliveiradecor1 for bringing the magic to our venue again this year with your beautiful decor! #thankyou #princessballhamilton #endCF #aworldwithoutCF #magicaldecor


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People with CF face lots of challenges. Despite the disease, many thrive and live inspiring lives. Today, we just want to celebrate every milestone whether it is a lung transplant anniversary or traveling alone for the first time with all of you! Share one of your milestones with us today 😃

Pictured here is Yannick during his double lung transplant two years ago! He has celebrated it on July 1st!
#milestones #CFlife #lungtransplant #doublelungtransplant #cysticfibrosis #aworldwithoutCF #spoonie #chronicillness #invisibleillness


11

On August 18, 2018, I will be celebrating my 20 year anniversary for my first double lung transplant.
My donors and I have been able to accomplish many noteworthy life happenings.
One of our greatest accomplishments was to welcome our grandbaby Olivia Alexis into this world on November 11, 2016.
I have been here with Dorothy to enjoy in the raising of our own children to adulthood, now I have a chance to see our grandbaby grow to be a young lady.
With the enjoyment, there has been a few setbacks. I am being worked up to possibly getting a kidney transplant.
Life has certainly taken me down some winding roads, but through it all, it has also taken me home.
Thank You to my donors, their families, the Doctors, Nurses and Staff that have brought to the place I am today, health wise.
#beadonor
#GiftOfLife
#TrilliumGift
#OrganDonationWorks
#KidneyTransplant
#CysticFibrosis
#AWorldWithoutCf
#YouSavedMe
#ThankYouIsNotEnough


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Longnecks and Stetsons fun in #princegeorge fundraising for @cfcanada #aworldwithoutcf #cfcanada #ostrich #ranch


1

WOW!!! Raised $1140 total with online donations
Just wanted to say thank you to all who came out, donated Or shared the event details to make this such a sucess.💙 #chathamkent #ckont #memphisreigne #wishesmatter #makeawish @makeawishswo #lemonadeforwishes2018 #peterswish #FUNraising #cysticfibrosisfighter #lemonadestand #payitforward #donations #bighearts #thanks #saturday #aworldwithoutcf @ckxs991


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Have you had a chance yet to stop by and get a glass of lemonade and a cookie ?.. support Make a Wish? We hope to see you Chatham- Kent
#ckont #memphisreigne #aworldwithoutcf #makeawish #lemonadeforwishes2018 #makeawishswo @makeawishswo having fun #FUNraising


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I wore this shirt today for inspiration on my first big test since I got out of the hospital, many times in the past 3 months.
The shirt was made by #michaelbarber_art , Mike and Adam Veri of Barber & Veri have been huge supporters of my journey for years, so it is great when I can return the support.
Speaking of inspiration and a will to do the best I can, with what I have been given, today my phone clocked 5445 steps on Dorothy and my day out.
We were in Simcoe, Delhi, Tillsonburg, Brownville, back to Tillsonburg then home to Delhi.
I wasn't pooped out, Dorothy was.
#GettingBetterEveryDay
#fucf
#AWorldWithoutCF
#CureCF


1

Find someone who looks at you the way Madi looks at her best friend! 🤗

#friendship #relationshipgoals #happytime #love #summer #summertime
#cysticfibrosis #aworldwithoutCF #spoonie #chronicillness


3

MARK YOUR CALENDARS!☀️
Just 5 weeks until Shine Day #YXE. Stay tuned for shine site locations and how to get involved. Link available in our profile to donate now.
#aworldwithoutcf #shinerama #usaskshinerama #cfcanada #cysticfibrosis


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We would like to extend a big thank you to @supplementking.saskatoon for their generosity in supporting the 2018 College of Rehabilitation Science’s Shinerama Campaign. It’s community partners like Supplement King that aid in our success each year! Check them out for a great selection of supplement and workout gear.
#usaskshinerama #shinerama #cfcanada #cysticfibrosis #aworldwithoutcf


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A BIG thank you to @summitsaskatoon for their donation to Shinerama. We are so thankful for your kindness and generosity in supporting such a worthy cause .
#aworldwithoutcf #cfcanada #cysticfibrosis #shinerama #usaskshinerama


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If you are alive at the day,
You have accomplished more than you know.
#CysticFibrosis
#AWorldWithoutCF
#CureCF


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SPONSOR NEWS: please help us give a warm welcome back to returning #TillieTourney sponsor @ajabbate ! We couldn’t make this @CFCanada #Tillie18 fundraiser a success without our generous sponsors. Thank you!


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What a cool team! Tell us; what was your team dress code for your @lawnsummer nights event?⠀

#tbt #team #summer #lawnbowling #lawnsummernights #montreal
#cysticfibrosis #aworldwithoutCF #spoonie #chronicillness #invisibledisease


1

‘’I decided to walk in this show to help raise money for this disease that not enough people know about.
Buy tickets to support a cure and be part of change!’’ @feliciaparrillo , model at ‘’Fashion is in the Air’’ event.
#unmondesansfk #aworldwithoutcf
Buy tickets here : http://evenements.fkq.ca/evenement?id=91&lang=fr


2

Even if the weather isn’t shinin’, we still are! #msvushines ☀️☀️☀️ See you at STRETCH ‘N SHINE today at 12 PM in the Don MacNeil Room on the Mount Campus for a $5 yoga class! ALL proceeds will go towards Shinerama, and the fight to end cystic fibrosis 💪🏼 See you there! 🧡💙 #fightcf #aworldwithoutcf #cysticfibrosis #endcf


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STRETCH ‘N SHINE UPDATE! ☀️ Due to the rain forecast for tomorrow, our yoga fundraiser has been moved to the DON MACNEIL ROOM on the 3rd floor of Rosaria at @msvu_halifax! ⛈️ See you then! 🧡💙 #fightcf #aworldwithoutcf #cysticfibrosis #endcf


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Having a sickness with no sign of a cure, possibly in our life time, which also limits you in every way; All we need is a willing ear to listen, and beautiful heart to share our life with.
#IHaveBoth
#CureCF
#AWorldWithoutCF
#CysticFibrosis


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One more thing to pay attention to with the #CFlife! Hopng all those affected by the fires are safe, thank you to the men and women fighting those fires, and for those with respiratory concerns... look after yourself!
#nodaysoff #aworldwithoutCF #65roses #CFawareness #cysticfibrosis


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#Repost @msvushine with @get_repost
・・・
Don’t miss STRETCH ‘N SHINE this THURSDAY from 12 pm to 1 pm in the Meadows on the Mount campus! ☀️ Our friends from @dal.shinerama will join us to sell snacks, while our partners at the @mount_fitnesscentre put on a great yoga class, so you can stretch and shine to #endcf! 💙🧡 #fightcf #aworldwithoutcf #cysticfibrosis #shinerama


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"Never go on trips with anyone you do not love." - Ernest Hemingway⠀


#cysticfibrosis #aworldwithoutCF #spoonie #chronicillness #trip #nature #vacations #famousquote #summer #relationships #love #lovebirds


4

This sweet girl is Isabella, our honorary princess for the 2019 @princessballhamilton. She is so precious, and beyond excited to attend. We couldn’t be happier to have her. Can’t wait pretty girl!!!!! #honoraryprincess #prettygirl #soexcited #cantwait #endCF #aworldwithoutCF


4

All About Lucky Lucy: In her 3rd year, Lucy was taking over 4000 enzymes, and doing over 300 hours of chest therapy per year. Now, she has to spend even more time on her treatments, but it doesn't stop her from laughing, playing and having fun! Here she is in the park at 3 years old.....check out all the pictures of her growing up on our CF Canada webpage...http://ow.ly/jfvv30lg2lD
#cysticfibrosiswarrior #cysticfibrosisfighter #aworldwithoutcf #luckylucyscasinonight6


1

We’re so happy to announce our emcee for #Tillie18 – Global News Chief Meteorologist ANTHONY FARNELL!
@anthonyfarnell was the Tillie Tourney’s inaugural emcee in 2016.
We’re so happy he will be leading our post-golf program again on Sept. 14!
Growing up on the West Island of Montreal, Anthony Farnell developed a love for weather early on. In 1998, his love for weather grew further as he lived through the “Ice Storm of the Century” in Montreal. Anthony brings his weather knowledge and experience to @globalnews, where he has been Chief Meteorologist for more than a decade.
Highlights of Anthony’s career include covering the record-breaking winter of 2014 and the 2013 Christmas ice storm in Ontario that left thousands of GTA residents without power for weeks. As Global National’s top weather expert, he reported live from Gravenhurst, Ontario, just hours after one of the largest tornadoes in Canadian history struck. He has also covered many hurricanes including the devastating effects of hurricane Sandy in 2012.
Anthony helps out several local charities in and around Toronto in addition to the Tillie Tourney. We're so grateful for his generous support!


6

Wake up #Montreal! 15 to 20 minutes before my #ENT #ORL procedure... I'm stressed about it. The doc said I will get a sinus "backwash"... Looks fun!! 😖
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⚠️Oh and BTW, there is no bacteria or fungus growing into my lungs presently AND my blood 💉 results are good. Should be a good news but I can't enjoy it. What is causing my #PFTs to decrease like that? What should I do?
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Should I request to be present with the multidisciplinary team when they discuss my case next time or ask for another advice from the #Toronto Lungs Transplant Clinic team...? I'm a bit lost right now....
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#JWLS #cfawareness #watches #Transplantworks #transplantlife #mydonormyhero
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#cysticfibrosis #FibroseKystique #2yearspostlungstransplant #aworldwithoutcf #unmondesansfk


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Look what just arrived today in the mail!!!! ⌚️⌚️ 🎊🎉
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How to attain two objectives with one initiative! #CFcouple 😀
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One for me & one for the 💃 @amazinglungs_4life 👌💜
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Thank you so much @jwlsofficial for those goodies!!
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#JWLS #cfawareness #watches #Transplantworks #transplantlife #mydonormyhero
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#cysticfibrosis #FibroseKystique #2yearspostlungstransplant #aworldwithoutcf #unmondesansfk


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Look what just arrived today in the mail!!!! ⌚️⌚️ 🎊🎉
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Thank you so much @jwlsofficial for those goodies!! And thanks again @ezbrthn_95 for registering me into this contest!
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#JWLS #cfawareness #watches #Transplantworks #transplantlife #mydonormyhero
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#cysticfibrosis #FibroseKystique #2yearspostlungstransplant #aworldwithoutcf #unmondesansfk


1

« La vie est belle. Mais la vie n’est pas parfaite j’en suis consciente. Elle a ses failles, ses travers, ses parts d’ombres. La vie est parfois injuste. Mais on dit que la vie prend la couleur de celui qui la regarde. Je suis une éternelle optimiste. Ma couleur est celle de l’espoir. M’impliquer auprès de Fibrose Kystique Canada c’est de faire rayonner cette couleur. Qu’elle vous contamine vous aussi. La vie n’est pas parfaite mais quand on regarde au-delà de ses imperfections, la vie est belle. Croyez-y! »

@vero_saumure mannequin au Défilé la mode est dans l’air. 💙

Billets : http://evenements.fkq.ca/evenement?id=91&lang=fr

#unmondesansfk #aworldwithoutcf


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Here is the first of the 4 Summer Care Tips from Amanda!
Hydrate, Hydrate, Hydrate!
It is so important to hydrate with CF, especially in the summer! I’ve been trying to increase my water intake, and find that it has been helpful! I sometimes use flavouring to add to my water, with bits of fruit or some packages from the grocery store! Hydrating helps especially when you are having an active day and sweating (a much more common thing in the summer heat). For those of us with diabetes, it can also help with maintaining blood sugars.
Try buying a cute water bottle to motivate bringing it around with you!
#cysticfibrosis #aworldwithoutCF #spoonie #chronicillness #tips #healthcare #question #summer #summerheat #heatwave #takecare


0

Don’t miss STRETCH ‘N SHINE this THURSDAY from 12 pm to 1 pm in the Meadows on the Mount campus! ☀️ Our friends from @dal.shinerama will join us to sell snacks, while our partners at the @mount_fitnesscentre put on a great yoga class, so you can stretch and shine to #endcf! 💙🧡 #fightcf #aworldwithoutcf #cysticfibrosis #shinerama


2

Our CF awareness campaign Roses & Lungs has spread all the way to Canada 🇨🇦 Thank you @missmacrina.zin for sharing!🌹🌹 #cysticfibrosis #CFcanada #CFawareness #mucoviscidose #unmondesansFK
•••
#Repost @missmacrina.zin with @get_repost
・・・
I can’t make this up....
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B- I wonder what life would be like if I had a brother instead of a sister.
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Me- Well, we are pretty grateful for your sister because if not for her, we wouldn’t know you guys have CF!
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K- Really!? How come!?
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B- Because the tests weren’t a thing when I was born, and Mom didn’t get the other tests so yeah....you are the reason we know!
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K- Sooo basically I saved your life!?
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B- Uhhhh kinda? I guess!?
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K- hmmm....you’re welcome!! #micdrop
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#cfchats #cfsiblings #theymakemehappy #happytheyhaveeachother👫 #cflife #endcf #aworldwithoutcf #outofthemouthsofbabes #helistens #futureadvocate


0

Entraînement matinal/morning training 🚴‍♀️13 km
🏃‍♀️3 km
Entraînement pour mon premier triathlon ❤️ Feeling better then ever 😱😁
My body’s unstoppable!! My mind’s getting stronger just like my lungs 💙
Truc pour éviter la chaleur?? Partir à 6h du matin!! 7:30 tout est fini 👌👌🏊‍♀️🚴‍♀️🏃‍♀️ #2yearspoststroke
#2yearsposttransplant
#triathlonduathlonboucherville #triathlon #newchall #newcgallenges #triathlontraining
#lungstraining101 #feelinggrateful #amazingfeeling #inshape #friendshippower @annalykirk #cfcanada #vivreaveclafibrosekystique #curecf💜 #transplantsurvivor #transplantlife #transplantstrong #mydonormyhero #ourdonorourhero #unmondesansfk #aworldwithoutcf
Merci à @yan_newly_lungs4tree De me pousser au quotidien ❤️❤️❤️


3

🌄 Cycling before the heat with my ❤️ 6h00am ➡️ 🚴 ☀️
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First time riding my #feltbicycles since the #CanadianTransplantGames. Moral isn't much there with all of my health isues right now. Thanks to @amazinglungs_4life for kicking my ass yesterday night and for coming with me. She doesn't have a choice as she needs to train for a #triathlon !!!
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Little 13.3km in 45'54", AVG speed @ 17.4km/h, Max @ 30.8km/h
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#whenindoubtswimitout #whenindoubtpedalitout
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#Transplantworks #transplantlife #mydonormyhero
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#cysticfibrosis #2yearspostlungstransplant #aworldwithoutcf
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#veloqc #velomtl #roadbike #cycling #bike #training
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#swimming #swim #trainharder #chronicloveclub #Québec #Quebec #Laval #Streetart


0

All this kid wanted for his birthday dinner was red meat. Swipe for the after! #stillroomfordessert #matthewissix #aworldwithoutcf #cysticfibrisis


2

Thank you so much www.jenniferandkevin.ca for being our magic wand sponsor at the 2019 @princessballhamilton. Your support is much appreciated!!!! #thankyou #sponsorship #magicwandsponsor #endCF #aworldwithoutCF


4

Your funds make a difference.....So far LLCN has raised over $203,000 for Cystic Fibrosis Canada. Let's keep that incredible fundraising going this year! #aworldwithoutcf #cysticfibrosiscanada #luckylucyscasinonight6 #endcf #cysticfibrosis #cysticfibrosisawareness


0

How do you make the most of the August long weekend? 👍

#summertime #summer #longweekendfun #thumbsup #cysticfibrosis #aworldwithoutCF #spoonie #chronicillness


0

Take a good sunbath is fun but do not forget to put on your sunscreen! 🐶

#cysticfibrosis #aworldwithoutCF #spoonie #chronicillness #tips #healthcare #question #summer #summerheat #heatwave #takecare


2

I can’t make this up....
.
B- I wonder what life would be like if I had a brother instead of a sister.
.
Me- Well, we are pretty grateful for your sister because if not for her, we wouldn’t know you guys have CF!
.
K- Really!? How come!?
.
B- Because the tests weren’t a thing when I was born, and Mom didn’t get the other tests so yeah....you are the reason we know!
.
K- Sooo basically I saved your life!?
.
B- Uhhhh kinda? I guess!?
.
K- hmmm....you’re welcome!! #micdrop
.
#cfchats #cfsiblings #theymakemehappy #happytheyhaveeachother👫 #cflife #endcf #aworldwithoutcf #outofthemouthsofbabes #helistens #futureadvocate


1

Repost from @mastermechanichighpark, one of our amazing, generous sponsors!
“Support #aworldwithoutCF! This sweetheart is Clara Rempel Segal 😍👑 She was born with cystic fibrosis and her family is organizing its third golf tournament, The Tillie, on Friday, September 14th, to raise money for @CFCanada ⛳️🏌🏻‍♂️🏌🏻‍♀️ We’re supporting this important cause and you can too by heading to their site to get a ticket! 🎟️
#SaveTheDate #Charity #tillie18


0

First time at the #Alouettes for little me. #Als #Football #CFL #Montreal
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What better way to stop thinking about my health issues than to assist at a sport event with my son even though the Alouettes s*ck big time tonight!!! We had fun, thats what is important!!!
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#whenindoubtswimitout #whenindoubtpedalitout
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#Transplantworks #transplantlife #mydonormyhero
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#cysticfibrosis #2yearspostlungstransplant #aworldwithoutcf #dad #fatherandson


1

We are at the CARSTAR 2018 Conference in Calgary. The goal was to raise $40,000 for cystic fibrosis and we are currently at over $200,000 raised in 2 days. Nice work CARSTAR north America. #cysticfibrosis #cysticfibrosisawareness #CARSTAR #carstarmomentum18 #isherwoodbodyandfender #cysticfibrosiscanada #aworldwithoutcf


0

"I love to go for walks in the evening at the lake but I always make sure I'm wearing mosquito spray or long sleeve shirts and pants. Especially in Saskatchewan!" - Cassandra

#cysticfibrosis #aworldwithoutCF #spoonie #chronicillness #tips #healthcare #question #summer #summerheat #heatwave #takecare


0

Support #aworldwithoutCF! This sweetheart is Clara Rempel Segal 😍👑 She was born with cystic fibrosis and her family is organizing its second golf tournament, The Tillie, on Friday, September 14th, to raise money for @CFCanada ⛳️🏌🏻‍♂️🏌🏻‍♀️ We’re supporting this important cause and you can too by heading to their site to get a ticket! 🎟️ #SaveTheDate #Charity


2

Enjoy an outdoor yoga class and help find a cure for cystic fibrosis! ☀️ Join us on the lawn at the top of Seton Road on the Mount campus for a yoga class taught by an instructor with the Mount Fitness Centre for $5. No need to bring a mat, we'll provide one! All proceeds will help #endcf 🧡💙 See you there! ☀️ #msvushines #fightcf #aworldwithoutcf #cysticfibrosis #shinerama


0

“My summer tip for all of those with CF is to drink LOTS and LOTS of water!! I know everyone says this but it is so so important especially with the hot weather! I also suggest that you take lots of rest because the heat can take a lot out of you and make you extremely tired. But really, just enjoy the weather and have lots of adventures!!🤗” - Rina

#cysticfibrosis #aworldwithoutCF #spoonie #chronicillness #tips #healthcare #question #summer #summerheat #heatwave #takecare


1

We would like to officially welcome back a few of our sponsors.
POW City Kinsmen - Title sponsors, donating $10,000 for the 3rd year in a row
@amg_branding - created our new website
@stratadevelopment - long standing partner with our event
@huskieathletics - along with the Huskie Men's and Women's basketball teams
@nightowlaudio - provide amazing tunes throughout the day
@yxekinettes - host an amazing BBQ for volunteers, players and spectators

Thank you for being our #CFallies and helping us host a first rate fundraiser and a family friendly event!
#togetherinthefight #CFawareness #aworldwithoutCF


1

TICKETS ARE NOW ON SALE for #luckylucyscasinonight6! Thursday September 6th - Don't miss out - buy yours today! http://ow.ly/TTnX30lbSxA #endcf #aworldwithoutcf #cysticfibrosiscanada #cysticfobrosis


0

Summer is the best season to get outside, travel and do fun activities. However, it is also important for people living with CF to put an extra care of their health during that time. As people with CF face salty skin, dehydration and sometimes, nutrition issues, we wanted to take the occasion to refresh our summer care tips! So, this month, we will be sharing a few from our CF community members. Feel free to share yours as well!
#cysticfibrosis #aworldwithoutCF #spoonie #chronicillness #tips #healthcare #question #summer #summerheat #heatwave #takecare


0

SAVE THE DATE!!!!! January 20,2019 is the big day! We are super excited to see all of the beautiful princes and princesses!!!! #savethedate #cantwait #princessballhamilton #endCF #aworldwithoutCF #princes #princesses


0

42%... Todays PFTS... Just lost 20% over a month!
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Here are my #PFTS (pulmonary function) test results since my lungs transplant. You can see the struggle over here.... No stability at all. The first decrease was at the same time last year for no apparent reason. The 2nd was when the docs realized I was colonized by pseudo a lot (been in my lungs for 2 months without treatment and me without knowing). The 3rd is the result of the colonization being harder to eliminate than we thought... The 4th one, there is nothing apparently into my lungs (bacteria, fungus etc) so the docs don't even know how to treat me for now...Another CT scan has been called, sputum has been given for another lab test, I'll be going on Cipro antibiotic per os again. Crossing fingers to avoid another round of IV antibiotics... 🙏
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#whenindoubtpedalitout #whenindoubtswimitout : it appears that I f*cking need to bike or swim...!
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#Transplantworks #transplantlife #mydonormyhero
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#cysticfibrosis #2yearspostlungstransplant #aworldwithoutcf
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#veloqc #velomtl #roadbike #cycling #bike #training
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#swimming #swim #trainharder #chronicloveclub


7

Help us in the fight against #cysticfibrosis by registering your team for our 8th annual #3X3 basketball fundraiser on Sept. 15th! Go to www.hoopsforhope.ca and start fundraising to have a chance for 2 tickets with @aircanada! Registration closes on Sept. 10th for the youth, adult, co-ed and wheelchair divisions!
#togetherinthefight #aworldwithoutCF #nodaysoff #notjustlungs #butyoudontlooksick


0

All About Lucky Lucy: In her 2nd year Lucy had a rough winter and was on antibiotics for repeated chest infections. She was also busy learning to walk and talk – now, she loves to chat!! Check out the videos and all the pictures of Lucy growing up on our donations page: http://ow.ly/8QWI30lbScN
#cysticfibrosiswarrior #cysticfibrosisfighter #aworldwithoutcf #luckylucyscasinonight6


0

**Update** 2h later, still nobody around! 😆 ⌛️
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#ENT appt time...it's been an 1h since I'm in a examination room, not the waiting room... Lol Saw nobody yet. And please, meet the CHAIR OF HELL!! The doctor should restrain my movement on this one... I can't stand someone putting and pushing a camera into my nose....!!!!
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#Transplantworks #transplantlife #mydonormyhero #ORL
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#cysticfibrosis #fibrosekystique #2yearspostlungstransplant #aworldwithoutcf


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Summer has flown by but it’s not over yet. Join us for our annual MPT Beach Volleyball Tournament on August 18th! Visit our Facebook page for full details. #cfcanada #usaskshinerama #shinerama #cysticfibrosis #aworldwithoutcf


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Happy times with friend and dog!
Question: Does your pet help you beat stress? 🐶🐱🐭🐹🐰 #stress #mentalhealth #goodtimes #friends #dog #pet #mentalhealthawareness #selfcare #healing #cysticfibrosis #aworldwithoutCF #spoonie #chronicillness


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A huge THANK YOU to Assante Wealth Management - our presenting sponsor this year! #aworldwithoutcf #endcf #luckylucyscasinonight6 #cysticfibrosiscanada


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MSVU Shine leaders @khftho and @emalderwood had an amazing time at this years’ #AtlanticShine Conference this weekend! 💙🧡 We’re excited to #fightcf and help make a world without cystic fibrosis a reality ☀️ #msvushines #aworldwithoutcf #cysticfibrosis #shinerama #endcf


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If you missed out on tickets for our autographed Michael Jordan jersey that has been professionally framed last weekend - we have an offer for you!
Tickets are 1 for $5.00, 3 for $10.00 or 10 for $20.00.
Send us your contact info in an e transfer at organizer@hoopsforhope.ca and we can enter your info and send you a pic of your tickets.
Shipping will be the responsibility of the purchaser.
Thank you for helping us in the fight against #cysticfibrosis!
#AirJordan #Jumpman #GOAT #MJMonday #CFawareness #aworldwithoutCF #togetherinthefight #CFally


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