#cfresearch

Instagram photos and videos

#AffloVest#cfresearch#cysticfibrosis#806#Soundcloud#itunes#Youtube#cfawareness#curecf#Medtrade#519#736#respiratorycare#RCWeek18#respiratorycareweek#RCWeek2018#cfadvocacy#cureCF#respiratorycareweek2018#respiratorytherapist#NACFC#Medtrade2018#Medtrade18#2333#cffoundation#yarnaddict#lionbrandyarn#knitting

Hashtags #cfresearch for Instagram

Long hoses and bulky generators are a thing of the past. AffloVest pioneered the first fully mobile HFCWO device.

Learn how AffloVest, with optimal oscillation can help you by visiting our website! Link in bio


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Listen to Geoff Marcek, V.P of Engineering and Quality discuss the difference in technology between air bladder and mechanical oscillation HFCWO vests.
Watch the full video on our YouTube channel (Link in bio)


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Did you know we have a size exchange program for our Cystic Fibrosis patients? Which means growth spurts are covered! Because one size won’t always fit all.

Learn how AffloVest, with optimal oscillation can help you through our website! Link in bio


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Kristal’s son using his treatment time to practice his reading skills! Thanks for sharing Kristal! Share your photos or videos with us by tagging us with #AffloVest Therapy that fits into your life, not the other way around


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See here for independent lab testing on Peak Magnetic Field information on two Mechanical HFCWO

View PDF of study through the link in our bio!

Head to our YouTube Channel to view the full video! (Link in Bio)

Learn how AffloVest, with optimal oscillation can help you by vising our website! (Link in Bio)


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Hi Everyone! I've been lucky enough to be nominated as part of the Rocky Mountain's Finest Class of 2019! As part of this nomination, I have committed to raising $4,000 for the Cystic Fibrosis Foundation! Being an avid hiker, I can't imagine living with a disease that could prevent me from doing what I love and see places like this. Imagine breathing out of a straw for every breath you take. That's what it's like to live with CF. Please consider donating today to help find a cure for CF, any amount will help. Click the link in my profile to donate. THANK YOU!! #cysticfibrosis #rockymountainsfinest #cffoundation #rockymountaincf #cfawareness #curecf #cfresearch #65roses #cff


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We are at AARC in Las Vegas! Stop by booth #913 to get more information about the AffloVest and learn more about the results of a new IRB published clinical study, Effect of High Frequency Chest Wall Oscillation Vests on Spirometry Measurements and an Independent Lab Noise Study comparing five HFCWO vests! #AARC #AARC18


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Have you connected with us on all of our social media platforms? To ensure you can keep updated on posts like this and other relevant product and industry news, please follow us on all our social media platforms. Here is a link to a browser-based dashboard with links to our social media accounts: (Link in bio)

Be sure to also share your photos or videos with us by tagging us with #AffloVest


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Listen to David Shockley, Founder & CEO, and Bob Ellis, Senior VP of Sales & Marketing, discuss the corporate vision & technology behind the AffloVest

For the full video head over to our YouTube channel! (Link in bio)


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Cold/flu season is in full flux for Sean(@sean_wiere), but he is getting through it with a bang! Check out how Sean does his treatments! Thanks for sharing Sean! #AffloVest Therapy that fits into your life, not the other way around


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FINALLY HOME 🏡❤️😍|| This girl is finally home from Hotel Hopkins & could not be happier!! I really just want to thank every single person who has visited me, brought me food, sent little pick me ups, & for all the supportive messages!! Just because I’m out of the hospital doesn’t mean I’m better or things are about to get easier, it’s honestly just the beginning in my journey to saving my lungs & recovering. And I’m reminded every single day that it’s going to be a slow, painful, not so enjoyable road to recovery but all the work I’m putting into it will be worth it in the end 🤗

I’ve honestly never been through an experience quite like this one. My emotions have been all over the place & I’ve had days where I’ve doubted if I’m strong enough to get through this, but the support from everyone has brought me out of those times of self doubt. Support is what I need more anything right now to help me keep my positivity & keep moving forward. I don’t think everyone realizes that the treatments, IVs, exercise, & rigorous med schedule is just part of the picture. Having a positive mindset is almost just as important if not the most important aspect in recovering & all of you are helping me more than I can put into words to do that!!! Thank you thank you thank you from the bottom of my heart 💖💖

Special shoutout to @esiason17g & @darcyc27 for surprising me with this gigantic sloth 😂 Put your name recommendations in the comments below👇🏼

❌⭕️❌⭕️Lea


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Have you read the recent IRB study regarding mode of action during use of HFCWO devices on spirometry measurements during treatment? Per a post from Dale Novy, Area VP of Hill Rom on the AffloVest Facebook page, “a device that compresses the chest wall the greatest would have the greatest negative effect on these measurements...” We agree - higher compression can have a significant negative effect! During treatment, lowering lung function by compressing the chest wall could give a feeling of shortness of breath, Dyspnea, which could lead to low adherence to therapy. #AffloVest, better breathing without the squeeze.


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Happy Giving Tuesday 🤗❤️ If you have not already given to a charity today or are feeling a little extra generous please consider donating to the Cystic Fibrosis Foundation to get us closer to better medications & a cure for the ENTIRE CF community!! This past year has definitely been a tough one for me CF wise. I’ve been presented with challenges time & time again just hoping to remain stable enough to get to try & benefit from these better CF medications on the horizons. The only way these better medications that could possibly provide me with a higher lung function, less cf exacerbation, & a more stable life is through the donations of selfless people who give to the CF Foundation 💜

To donate visit: https://on.cff.org/1955gifts

❌⭕️❌⭕️Lea


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Have you taken the chance to read fellow CF Warrior, Klyn Elsbury's book I AM ___:The Untold Story of Success? We just got ourselves a copy and we can't wait to dive into this international bestseller!!
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 #CysticFibrosis #IAM #KlynElsbury #Read #book #CF #CFWarrior @klynelsbury


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Today is #givingtuesday2018! ♥️ I’m wrapping up an exclusive SeneGence holiday shopping event where all profits go towards Cystic Fibrosis research and support! 💙💛


Send me a DM to get more details! 💌





#addingtomorrows #cysticfibrosis #curecf #cffundraiser #fundraiser #shopforacause #holidayshopping #cfadvocacy #denverfundraiser #shopsmall #cfresearch #lastcall #instagramfundraiser #majorsarmy #lipsensedeals


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After almost having to go home due to her previous HFCWO device malfunctioning several times, Abby (@abbys.cf.story) received an AffloVest and she was able to continue her studies abroad in London untethered from the wall! “This gives me a new sense of freedom and I literally can’t put into words how excited I am to have this.” #AffloVest Therapy that fits into your life, not the other way around


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The past 2 days have been difficult in terms of pain, trying to do everything in my power to get all this excess mucus out & clear this infection the best I can from my end, & coming to the realization that this is going to be a slow, not so enjoyable road to recovery 🤒 It’s really hard to have been doing so many extra treatments for months now & to have only declined. Sometimes it makes you feel like all your hard work doesn’t pay off since I essentially ended up at Hotel Hopkins 💁🏻‍♀️ It’s even harder adding in even more treatments on top of the increased treatments I was doing at home & just not seeing results as fast as I would like. Every single day it’s becoming more & more evident that this is going to be a long, slow, not easy recovery. But the good news is that everyday I see glimpses of small steps in the right direction & I’m holding on to those very small steps in the right direction that this too shall pass, I will recover, & I will be back to my old self even if it takes months of even harder work to do so!

I think this is one of the hard realities of CF & chronic disease in general. You can do everything right & it doesn’t guarantee you that everything will go your way. But in my opinion just because you are compliant & it doesn’t always prevent situations of decline from happening, it doesn’t mean you should stop being compliant & give up. To me as defeating as that feels it only motivates me more to work even harder so that I can continue to live the life that I love so much & avoid the hospital as much as possible 🤗 Here’s to hoping I get to do the rest of my recovery at home soon 💜🤞🏼

Happy Monday!!

❌⭕️❌⭕️Lea


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Just working out with my girl Selena 💁🏻‍♀️😂🏃🏻‍♀️|| One of the biggest things I’ve learned you can do to help yourself when you have CF is to exercise. No matter if you feel your absolute best or your absolute worst exercise should be pretty much your best friend. When I checked myself into Hotel Hopkins Tuesday night, taking a shower & walking a very short distance were big tasks. They left me winded & fighting for air. However, I’ve been in this situation before & I know that even tho this is going to be a long road to recovery, exercise is one of the key contributors that is going to get me out of this hospital, off of oxygen, & back to living my best life 🤗

After I got settled in my room late Tuesday night, I requested that respiratory come to visit me to get some late night chest PT in, which shocked the staff but your girl needs to breathe here 🙈 I emphasized to the staff that the next morning we needed to incorporate exercise into my routine to get me back to my normal. Along with getting chest PT numerous times per day I’ve made it a point to go to the gym during my designated time with PT to exercise every day & take a walk at night no matter how tired I’m feeling or how awful my lungs feel because staying compliant & exercising is what will get me back to living my life.

My first exercise session only lasted 20 minutes & it ended with a really low pulse ox, a pretty bad headache, extreme exhaustion & a long nap, but I did it. Each day since I’ve gradually started to increase the time I exercise followed by the speed & resistance. Since Tuesday I’ve been able to get myself off needing oxygen for a few hours at rest everyday (I still need it for everything else but hey little improvements 🤗), I’ve increased my exercise time to a half hour, & no more oxygen hungry headaches post workout 💁🏻‍♀️ Always remember recovery is never easy. It takes hard work every single second of every single day, you’re not going to like it, & you’re going to have to push yourself but if you want it bad enough you’ll develop a plan & stick to it to get yourself to a better version of your current reality, whatever that maybe 💜

❌⭕️❌⭕️Lea


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‘Tis the season.... for gifts with purchase!!🎁


I’m giving away a lot of goodies in my holiday shopping party! And it’s a Cystic Fibrosis Fundraiser with all profits directly donated to CF research! 💙💛


Let me know if you want in on the fun!





#giftswithpurchase #tistheseason #favoritetimeofyear #curecf #cfadvocacy #cfresearch #shopsmallsaturday #senegencedistributor #smallbusinessowner #dealalert #giftsforher #coloradogifts #giftsofbeauty #saturdaystyle


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Thankful & grateful really doesn’t do the way I’m feeling justice 💜🦃🍁👯‍♀️|| A hospital is definitely not anyone’s ideal holiday situation. Being someone whose been living with a chronic disease my entire life I have thankfully never had to celebrate a holiday in the hospital, however this year was a little bit different. Words can’t even describe how grateful I am for my sister, parents, @cbenney09 , boyfriend, friends, family, so many people in the cf community, & the hospital staff for making thanksgiving not only a happy day, but a wonderful holiday. I’m so thankful for all the people who spent the day with me, FaceTimed if they weren’t able to be present, & for the outpouring of loving messages 💜 It has definitely turned this not so ideal situation into a positive one & it makes me realize even more just how lucky I am to have the people in my life that I do!! Happy belated Thanksgiving everyone 🤗🤗🦃❤️🍁 I hope you all had a wonderful holiday surrounded by your loved ones! I’ll be sure to give a health update tomorrow 💜

❌⭕️❌⭕️Lea

P.S. Special shoutout to my sister for always making me laugh & fully embracing my ridiculous ideas to make the tough times easier 💜💜 Love you lots @leeznicole ... Johns Hopkins Turkey Trot 2018 was a huge success 🙌🏼😂


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All of the power without the squeeze and confinement. We take the squeeze out of your treatments, while allowing you to be fully mobile during therapy.
Learn how AffloVest, with optimal oscillation technology can help you by stopping by our website! (Link in Bio)


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Wonderful lunch today with some of the gorgeous ladies of Delta Phi Epsilon... Towson University edition 💁🏻‍♀️|| Today I got to spend some time with some of the sisters of Delta Phi Epsilon (DPhiE) from Towson University to not only discuss their fundraising plans for Cystic Fibrosis throughout the year, but to also thank them for all that they do to help people like me living with CF💜

Since 1957 there has been a national partnership between the sisters of DPhiE & the Cystic Fibrosis Foundation. A partnership that has not only resulted in DPhiE raising over $1 million for the CF Foundation, but a partnership that has added so many more tomorrows in the lives of people living with CF💜 It was amazing to hear their fundraising plans for the year, provide myself as a resource for them, & to thank them for all they do!! I know their annual gala is going to be an even bigger success this year with these 4 leading the way 🤗💜

❌⭕️❌⭕️Lea


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Listen to Geoff Marcek, V.P of Engineering and Quality discuss the rigorous process an ISO13485 medical device development company goes through to ensure the quality and effectiveness of their devise: AffloVest

Full Video through the link in our bio!


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NEW PODCAST ALERT 🚨🤗🎧|| This week Meredith Gaito, who is a 26 CF fighter, joins the podcast to talk about some pretty big accomplishments... running the New York City Marathon with @team_boomer_usa AND her experience being the director of the upcoming documentary @breathingoneverest 🏃🏻‍♀️🎬📽🗻❄️

Meredith talks all about using exercise as a form of treatment for her CF, the importance of nutrition in pre-CFRD especially with running, a major hurdle she faced during marathon training, & her experience running as a member of Team Boomer 🤗🙌🏼🏃🏻‍♀️

Meredith also goes into detail about directing @breathingoneverest which for those that don’t know is an upcoming documentary that documents Nick Talbot’s journey summiting Mount Everest. Nick is the first person with CF to ever summit Everest!! She talks about not only the journey of making this film but also the challenges that come along with having two people with Cf working on the same project 🎬📽

To LISTEN search “Breathe In: A Cystic Fibrosis Podcast” on #itunes #Soundcloud #Youtube or on GunnarEsiason.com

❌⭕️❌⭕️Lea & Tiff


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"Have AffloVest, will travel!” Rachael “loves being able to do treatments AND AffloVest in the car when they travel.” Thanks for sharing Rachael! Share your photos or videos with us by tagging us with #AffloVest Therapy that fits into your life, not the other way around


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See here for independent lab testing on Peak Magnetic Field information on two Mechanical HFCWO

View PDF of study: Link in Bio

Learn how AffloVest, with optimal oscillation can help you through our website: Link in bio


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Despite the widespread use of HFCWO devices, little has been published regarding the mode of action of the technologies and the claims of increased cephalad airflow bias in the lungs during use as a mode of action has never been proved through spirometry testing

Press Release: Link in Bio

For full study click Respiratory Therapy Online Issue: Link in Bio


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Don’t let his face fool you... he loves helping me with IV antibiotics 😂|| So happy I was able to get out of the house this weekend & spend time with my friends & boyfriend. I feel so lucky to have understanding friends who are willing to change the plan when I’m having a bad lung day or when I’m on IVs. I also feel extremely fortunate to have such a supportive & understanding boyfriend who takes cf head on with me ❤️ He even learned how to mix some IVs this past week 💁🏻‍♀️

Being sick & on IVs is never easy but it always puts things in perspective for me & just how lucky I am to have the people in my life that I do 💜💜

❌⭕️❌⭕️Lea


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Corbus Pharmaceuticals, a sponsor of the Narberth Take A Breather Run and Walk, is conducting a study and researchers are now looking for participants for a global, six-month research study in people living with #cysticfibrosis.

Here’s a little flashback to the NACF Conference when Bruce of Take A Breather was able to catch up with Lindsey of Corbus Pharmaceuticals. #CorbusPharmaceuticals, thank for your support and the great work you’re doing!

#takeabreathercf #NACFC #corbuspharmaceuticals #sponsors #endcf #cfresearch #makeeverybreathcount


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Jamie “getting her night treatment done!” Thanks for sharing Jamie! Share your photos or videos with us by tagging us with #AffloVest Therapy that fits into your life, not the other way around


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