Life Update 💁🏻♀️ So a lot of you guys know I started IV antibiotics about a week & a half ago, which isn’t too far after doing IV antibiotics back in September. 2 weeks ago I started feeling short of breath just sitting still & had all those fun CF exacerbations symptoms like increased mucus, body chills, feeling feverish, a drop in lung function, etc. So we started what we hoped would be a 2 week course of IV antibiotics 💉
Today I went back to clinic for a follow up to see if what we are doing is the right course of action! The good news is I’m feeling better & able to do my life which I’m extremely thankful for, but my lung function is down even more & honestly this is the lowest lung function I’ve had in 4 years, which scares me beyond words, but I’m trying to remain positive & hopeful about it all! So after much discussion & learning some new information we decided to continue IV antibiotics for another 2 weeks & change up some of the meds we are using 💜
This is the reality of CF. You can do everything right. Take all your pills, do all your treatments, listen to your body & take care of yourself but sometimes it doesn’t always go your way. Currently I’m trying to find peace with that since I’m starting to feel a little defeated.
But with that being said I’m extremely thankful to have options, to be feeling more like myself, for my family, boyfriend, & friends for being so supportive of me through all of this, for my amazing CF team who goes above & beyond for me to make my life a little bit easier with all that I have going on, & for the support from all of you!! I’ll never be able to put into words how much the support you all give means to me 💜