Saturday night my I saw Handel's Messiah with my family. It's one of my favorite pieces of music, and to see it performed by the Boston Baroque at Jordan Hall is such an amazing experience. I've seen it before, we usually alternate between The Messiah and The Nutcracker for a special Christmas treat. I love Christmas and I love dressing up and going out into Boston and getting into the Christmas spirit. Since becoming seriously ill, it's become much more difficult to do things like that - going out at night in the city, walking, standing, sitting in uncomfortable seats for hours - things I didn't give a second thought before can now put me in agonizing pain for weeks, or are just plain impossible. Some things I can do if I modify it by using my wheelchair, or going to a matinee instead of at night, but some things I just can't do anymore. I have to make careful choices on what is worth the consequences. For example, that was Saturday and three days later I am still incredible pain and exhausted (that's why no recent posts, I've been trying to recover). But it was completely worth it. And I've been able to figure out how to still enjoy the Christmas season without feeling like I am missing out. Do you have any holiday traditions that are harder for you since becoming ill? How do you deal with it?
New England Conservatory's Jordan Hall