Repost from @leilamiles 👇👇
this week is awareness week as you’ve seen from my stories (this exact picture from summer 2019, lol.) a lot of you reading this are probably aware that i have crohn’s disease, and know that i usually preface telling people by making a joke about it or telling it lightheartedly. although i joke about it and make it seem as if it isn’t a big deal, it is. crohns is the majority of my life, for i have very severe crohns (especially for how young i am.) to put it in perspective, i have tried every FDA approved drug for crohns without one working, so I have run out of options and now have to try last resort clinical trials, something patients don’t try until their 40-50s (i am almost 21.) i still haven’t found something to help. i don’t make this post to complain. i was diagnosed when i was 13, and have been dealing with it silently since.
crohns is an invisible disease. people don’t realize the implications it has physically and mentally. there is insomnia, depression, anxiety, tremors, eye problems, osteoporosis, arthritis, literally almost any random thing you could think of, all related back to crohns or as a result of a medicine i have to take. although i may look healthy, i cover my dark eye bags with makeup, my stomach pain is not visible, and my inflammation and bruising is inside my body. i look normal but i am extremely sick, and people take my handicap at face value.
i make this post to ask those to be aware of those with crohns, to be aware of the pain it actually induces, and for all invisible diseases. a person with a handicapped pass may require it even if they don’t have a broken leg. me missing multiple classes isn’t a result of me slacking or being hungover, it’s because i can’t. i want to work out but it makes me tired to walk. we don’t make excuses, we just have explanations.
just be aware that diseases and handicaps aren’t always as visible as they may traditionally be! :-) and I’m f-ed up
Please follow me: -@feminist_forgirl