#gtube

Instagram photos and videos

✨💙 New Product Alert 💙✨ Tubie Tummy Time Pillows! This custom order from @arias_mum turned out so well I decided to add it to our product line! Coming next month! Want one now? Send me message! 💙😍 #Tubie #GTube #tummytime


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#minimonday
Auf diesem Bild bist du 5 Monate alt. 5 Monate, in denen wir schon viel erlebt hatten. 12 Wochen Intensivstation. Weitere 12 Wochen Beatmungs WG @365grad. Innerhalb dieser Zeit entstand dieses Bild, als wir endlich nach 5 Monaten unsere Nasen Magensonde los wurden und somit auch den blöden Schlauch, der lebensnotwendiger weise immer in deinem hübschen Gesicht baumelte. Statt dessen bekamst du endlich deine PEG, die uns unseren und deinen Alltag erheblich erleichterte. 2 Wochen nach der OP konnten wir dich endlich mit nach Hause nehmen. Nach langen 6 Monaten, durften wir eine vollständige Familie sein. Wie sehr du unser Leben seit dem bereicherst! Ich möchte dich nicht mehr missen. Der Schmerz, den ich während der Schwangerschaft tragen musste und in all den Momenten, in denen ich um dich bangen musste, werde ich nie vergessen. Ich werde niemals die Angst verlieren, die ich jedes Mal habe, wenn du einen schweren Infekt hast. Denn du bist zwar stabil aber nicht gesund. Du bist fit aber eben großen Gefahren ausgesetzt. Und trotzdem bist du so ein großer Schatz. Tapfer. Mutig. Glücklich. Stark. Voller Liebe. Selbstbewusst. Du bist du.
#mutterliebe #muttertochter #muttertochterliebe #❤️ #stolz #glück #liebe #familie #familygoal #campomelicdysplasia #disabled #lifewithdisability #disabledchildren #disabledgirl #mygirl #tracheostomy #gtube #dwarfism #wheelchairgirl #wheelchairlife #picu #nicubabies #kinderklinik #nurserylife #nursery #intensivcare #specialneedskids #specialneedsmom #specialneeds

Uniklinik Köln Kinderklinik
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Always with my #1 supporters 💚


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This is our real life for you... Elizabeth used to vomit as many as 12x daily. Then we had the vomiting down to only once every couple days... we’ll cold season has brought us back to multiple vomits a day... is only October and we are over it already! #elizabethjoy #prayersforelizabethjoy #gtube #gtubebaby #tubie #tubiebaby #preemie #26weeker #feedingtube #blendeddiet


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What a fun weekend it's been, and we are kicking off the week with some physio today for Maddison. I'm excited to show off how much more energy Maddison now how's that she's more fed, I can't wait to hear what her therapist has to say!
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#specialneedsmom #specialneedsjourney #momlife #motheringishard
#instamotherhood #honestmotherhood #motherhoodunplugged #bekind #failuretothrive #gtube #jtube #tubie #tubefed #momblogger #babygirl #infinitypump #rhinocruiser #hipdysplasia #babygirl #oneyearold #fedisbest #bornunabletoswallow #medicallycomplex


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"Grateful doesn't even cover it!! This girl who has had so meany hurdles given to her will always give her all. Cp and a very strong mouth aversion along side a weak swallow reflex means the way of the tubes it was, but her little sis is helping to solve the fear of the oral ways. So grateful for these little tots making the days full of the good stuff." -- Annie R.

#cerebralpalsy #functionalformularies #Enteral #RD2B #TubeFeeding #WholeFoods #Organic #RDchat #Blenderized #LiquidHope #Nourish #Gtube #FFliquidhope #FFnourish #tubie #feedingtube #fortheloveofchildren #jtube #warriors #tubie #love #realfood #formula


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Early morning porch sittin' with a good read- 'Food Chaining' a Bible for oral eating for picky eaters and kids with oral aversion. Flexing my SLP brain muscles to learn more and take Camden's eating game to the next level and to help others who share this challenge. This methodology has been hugely helpful for Camden- SUCH a diamond in the rough for #shortbowelsyndrome families #shortgutsowhat #shortgut #oralaversion #feedingtherapy #gtube #feedingtube #tubie #speechtherapy #speechtherapy #speechtherapist #slp #slpmom #specialneedsmom #dysautonomia #totalparenteralnutrition #pots #raredisease #chronicillness #invisibleillness #butyoudontlooksick #foodchaining #cherifraker #nofilter #igers #medicalfamily #medicalmom #cccslp


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Thank you @target and @catandjackbytarget for making ADAPTIVE CLOTHING for our little ones at Target pricing!!!! Nothing is sweeter for a parent than knowing your child is valued, respected, and considered. It’s incredibly challenging to find clothing that is adaptive for feeding tubes, wheelchairs, etc. this onesie is FAB for little ones with a tube! I can imagine how this would have been helpful as a baby. I’m so thankful you THOUGHT of children like this. As if I didn’t love Target already, my heart is FULL! #ansleyisfancy #targetdoesitagain @targetlittles @targetdoesitagain #cerebralpalsy #cpspasticquad #lissencephaly #microcephaly #onh #cvi #specialneeds #medicallycomplex #gtube #tubiebaby #trachbaby


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La única discapacidad en la vida es una mala actitud.-Scott Hamilton.

#goodmorning #schooltime #thanksgod #viviendomivida
The only disability in life is a bad attitude.-Scott Hamilton.
#ashanti #princess #wearethesame #yonomequito #todossomosiguales #warrior #miracle #disability #hypotonia #gtube #asthma #lifeisbeautiful #dream #love #life #believe 😘🙏🏼👸🏻♿️💕🌥️


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台風後の道路には葉っぱと植木鉢があちこちに散乱していました💦皆様のところは大丈夫でしたでしょうか。
現在発送作業真っ最中!リバティの花ペグカバーも残りわずかとなりました🌼お早めにご注文下さいね!!
クリスマスペグカバーも現在制作中!早くお見せできるよう頑張ります🎄

#paletteibu #ペグカバー #胃ろう #gtube #tubie #specialneeds #医療的ケア児 #在宅介護 #胃瘻


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