May is #LupusAwareness month and #Lupus has severely impacted my life after the last few years. Most days are spent being in severe pain, being stuck in bed, having no appetite, losing friends/not being able to work anymore, not being able to commit to a certain date and time because you have no idea how you will feel that day, being giving dozens of pills that seem to make no real difference, being depressed that you have no idea when/if you will get better, having people constantly judge you because “you don’t look sick” when everything you feel is internal, and so many more things that anyone who isn’t in chronic pain could understand.
But it’s also taught me patience, faith, compassion for others, to take time to see what and who is most important to me, taking time to appreciate the small things, that taking care of yourself is not selfish and most of all that our plans don’t matter when Lupus has a plan of its own. So you just have to trust your struggle. So I do my best to stay as positive as possible and to keep others strong and support them and to remind them to keep going and never give up.
If someone you know/love has Lupus or a chronic pain disease love them, be empathetic not sympathetic. You don’t have to understand their struggles but you can love them and support them through their journey
#FuckLupus #LupusWarrior #Lupiechick #ChronicPain #May #LupusAwarenessMonth #FindACure #invisibleillnessawareness #invisibleillness #spoonie