#lupussupport

Instagram photos and videos

#lupussupport#lupusawareness#lupuswarrior#lupus#lupusfighter#lupuslife#lupussucks#chronicillness#sle#lupusawarenessmonth#lupusproblems#invisibleillness#lupusadvocate#lupussurvivor#autoimmunedisease#lupustruth#lupie#lupuswarriors#motivation#lupusflare#lupustrust#systemiclupuserythematosus#everythingishard

Hashtags #lupussupport for Instagram

by @lupuswise

Summer is well on its way to WA! Have you made use of our exclusive, October-only @slinky_sleeves offer yet? Just like the Lupus WA & Slinky Sleeves Facebook pages to redeem your 10% discount. Slip, slop, slap and SLINK! .
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[Image Description: Orange Slinky Sleeves banner including mobile (0407 479 691), website (www.slinkysleeves.com.au) and images of products. Below is the orange circle and purple butterfly outline Lupus WA logo, a Slinky Sleeves logo on pale green background, 3 images of Christine smiling in slinky sleeve designs, and 1 image of two children wearing slinky sleeves outdoors]


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by @minnie.service.dog

To say she’s weird is an understatement


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by @luann_algoso

When I get asked about how my health started to spiral, I try to explain the timeline of events that lead up to where I’m at now. Lupus is incredibly difficult to detect and so for the last few months as my health was declining, I only worked with specific specialists about whatever was happening at that time. It started with the alopecia areata back in March, then the depression in June, getting on antidepressants in July, getting the skin lesions in August, the severe abdominal pains in September, then finally the swelling in my legs in October, ultimately leading to the lupus nephritis diagnosis. These photos show a bit of that progression and how discreet it might have looked on the outside (make up did wonders for a little bit to cover the rash!). But basically autoimmune diseases are weird and I would’ve never been able to figure out was going on with me had I not started to take the initial steps in addressing the isolated issues. The last photo is of what I look like today and the rash has gone down significantly! Still got that round moon face though due to the meds but that will go down soon as well. ✊🏽
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#vulnerability #lupusawareness #lupussupport


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by @i_amqueenchae

Even though I have been through so much dealing with lupus, through it all I’m somehow better than before. I don’t complain, because I almost lost my life to this disease and I know I’m here for a reason. Stay encouraged, strong and in the fight. Your strength comes from pain, your purpose comes from how you deal with the pain. Live your life one day at a time. 🦋

TAG A LUPIE💜 ENCOURAGE ONE ANOTHER 💪🏾
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#lupussucks #lupusawareness #lupus #lupusflare #lupuswarrior #lupusproblems #lupussupport


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by @lupa_vita

Did you know... Cucumbers are actually very high in nutrients?! ✨ Cucumbers contain ingredients like magnesium, vitamin C, fiber, calcium and vitamin A; Calcium, vitamin C and magnesium being crucial parts of our multivitamin! They also contain antioxidants and help with hydration. Make cucumbers a part of your daily diet by slicing them up and adding them to your favorite salad or your water for a refreshing drink! 🥒
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#lupusawareness #lupus #lupusflare #lupuswarrior #lupusproblems #rafighter #autoimmunedisease #chronicillness #lupusdiet #lupussucks #lupusfighter #lupussupport #lupuslife #lupie #spoonie


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by @howsefoundation

How is your relationship with your Doctor? Do you set the tone for how you want to be treated? You have to take charge of your health and make sure your doctor is doing the same!
Lupus is such a complicated disease so having a good relationship with our doctor is sancrosanct! The bond of trust should be as strong as a marriage👫🏽 and you should feel that your Doctor understands your needs and is doing everything in their power to give you the best care possible.
We need to learn that the vast majority of doctors care about us and have our best interests in mind, we just have to find those ones who are right for us. We need to be a team! We need to be able to gain the trust, and our Drs needs to establish their integrity.


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by @lupuspnw

This weekend our monthly support group will have a special guest! Katherine Walter, MSW, LICSW, CSW-G, will join us to speak on Spoon Theory and Setting Boundaries. If you can't make it in person, but want to participate by phone please let us know at infoPNW@lupus.org.


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by @lupustrust

Equalizer 2 actor, Kazy Tauginas is heading up our Lupus Awareness Month campaign. Pop over to our website www.lupus.org.uk to read my interview with him, where he talks about why he supports lupus awareness and what it was like acting with Denzel Washington. A big thank you once again to Kazy for his fantastic support! 👏👏 #lupus #lupusawareness #lupusawarenessmonth #lupustruth #lupuswarrior #lupussupport #invisibleillness #chronicillness #lupussucks #lupusproblems #kazytauginas #lupustrust #equalizer2 #denzelwashington


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by @nhorizonresearch

Learn more about a research study for people with #SLE (systemic lupus erythematosus). Please contact us at 305.226.3933 #lupuswarrior #lupussupport

New Horizon Research Center
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by @lupusinme

My BMI seems to be okay. Need to control my diet to reduce fats and gain some muscle. 💪
#bmi #lupusevents #lupussupport #healthcare #healthcounter #toomuchfats


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by @lupuswise

It’s another Motivation Monday in sunny WA and we’re reading up on Lupus stories! We at Lupus WA feel most motivated when we share our struggles, and achieve our dreams anyway, just like Ewo! What achievers are you proud of, despite and because of Lupus? .
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https//www.cosmopolitan.com/health-fitness/a3621451/invisible-illness-lupus/
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[Image Description: Cosmopolitan website article header, shows link Cosmopolitan logo and menus. Title and subtitle read “What it’s like to live with a disease no one believes is real: ‘I was drowning from the inside out’. A grad student describes her struggle with lupus - one that almost killed her.” Author is Tess Koman, Oct 7 2016.]


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by @thelupustrainer

One of my favorite @realmikejfox quotes 🙌🙌 Thank you @captrobsdaughter for sending this to me today! 🦋💜 Stay strong and keep fighting my beautiful warriors 💪💜


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by @crzylgggs

Looking back at this makes me remember when I had I teach myself the simple things I had known before my summer took a turn. Simple things like how to hold a pen, how to use a knife, how to get off of a bed, even how to walk. But I was determined so I did. 💪🏿💜
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#lupusawareness
#lupus #lupuswarrior #lupusfighter #lupuslife #lupussupport #lupuswarrior💜 #lupuswarriors #lupusadvocate #lupusnephritis #lupusjourney #lupusjournal #loveyourself #selflove #determination #purpleheartgang #purpleheart💜 #lessonslearned #strokerecovery #strokerehab #lupusstrong #lupuscommunity #strokeawareness #rebirth

North Broward Medical Center
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by @womenwhoexplore_alaska

"Hiking and backpacking 18 miles of the K’seugi ridge trail was incredible! After only having a few experiences doing daytime short hikes (plus a lupus diagnosis), I was nervous but determined to participate and complete this hike. It was the most physically challenging thing I’ve ever done but also the most rewarding. Between this group of encouraging ladies, the breathtaking views, the beautiful weather, and my overwhelming sense of accomplishment I felt when I reached the end - this experience was one of the best things I’ve ever done! Never in my life did I think I would be able to accomplish and enjoy something so much! As a fellow woman, lupus warrior, and adventurer I am so glad I did this and I encourage everyone to get out there and explore! ❤️You can’t have personal growth if you always stay in your comfort zone.❤️" -@rachhyatt612 .
Share your stories with us and the challenges you face in the outdoors!
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#womenwhoexplore #womenwhoexplorealaska #kesugiridge #denalistatepark #alaskastateparks #alaskagirl #alaskanchick #lupus #lupusawareness #lupuswarriors #lupuslife #lupussupport #womenwhohike #girlswhohikeak #girlswhohike #womenontheroad #travelalaska #alaskatravel #explorealaska

Denali State Park, Alaska
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by @amyvforme

I support strong women. The women who have walked through hell and still stand with their backs straight and their eyes focused on the future. The women who have fallen and refuse to stay down. We are all fierce warriors and that is what makes us beautiful 🖤 namaste 🙏 #lovefirst #dontlethatewin #poetry #poet #poetrycommunity #poetryofinstagram #poetsofinstagram #mindfulness #mindfulnessmeditation #selfcare #selflove #womenempowerment #chronicillness #chronicpain #chronicfatiguesyndrome #lupusawareness #lupuswarrior #lupussupport #namaste #lovewarrior


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by @chimenem_1

🦋💜Lupus is a systemic autoimmune disease that occurs when your body’s own immune system attacks your own tissues and organs. Inflammation caused by this disease can lead to hair loss. Also called SLE (Systemic Lupus Erythematosus). Treatment can help but this condition cannot be cured ‘yet’. .
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#lupus #lupusawareness #lupussupport #lupusadvocate #knowlupus #SLE #curelupus #preventlupus #BeAware #spreadlove #Hairloss #lupusallianceresearch


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by @thelupusdoc

FACTS FROM TLD:
• LUPUS is most often diagnosed in young women, ages 15-44.
• LUPUS is 2-3X more prevalent among women of color.
• LUPUS affects 1 in 537 young African American women.
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#thelupusdoc #lupuswarrior #lupusfacts #lupusincolor #lupussupport #lupusawareness #livingwithlupus #lupusresearch #lupusresearchalliance #lupusfoundstion #lupus #SLE #SystemicLupusErythematosus


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by @_intheloop_

Did ya know? 👆
Fatigue is a common symptom of lupus...and it doesn’t just mean ‘being tired’. It’s a whole body, cannot move, need to lay down or you’ll fall over exhaustion. The only way I can compare it is to the flu...when you feel like you’ve been hit by a bus and just need sleep.
There are days I’ve slept 20 hours. There are days I nap twice. This is only one of the reasons why I can’t work right now. Thanks @goldenmoe for being awesome and walking today with the Lupus Research Alliance for the 15th Annual Walk With Us to Cure Lupus event in NYC! You are a beautiful, inspiring force in the lupus community and YOU will help us fight until there is a cure. 😘
“The goal of each Walk is to help further the mission to prevent, treat and cure lupus by raising funds for research. With the help of generous support from the LRA, our scientists are leading the way to uncover the underlying causes of lupus, develop better targets for therapy, and ultimately a cure .”-Monique💜
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#WalkWithUs2018 #WALKWITHUS
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Intrepid Sea, Air & Space Museum
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by @the_lupus_diary

My name is Latoya.

I was diagnosed with Systemic Lupus Erythematous (SLE) in 2001 (when I was 17) after constantly falling asleep and developing an open sore and red rash on my cheek that wouldn’t heal.

I remember receiving a phone call from the GP asking me to come in ASAP as my blood count was so low I should be in hospital. Diagnosis took 6 months and once confirmed, the words Systemic Lupus Erythematous were scrawled on a piece of paper. The internet then wasn’t what it is now, so I had so many questions. After some persuasion, my GP referred me to the Lupus Unit of a hospital in London. I finally got to grips with my symptoms, how Lupus would impact my life and how to learn to live with it. The staff there were/are amazing - particularly my consultant who will never know how much she helped me in those early days of helplessness!

My physical symptoms were so much worse in the early years compared to now, and for many years I struggled with confidence and anxiety. Some of the biggest challenges were dealing with extreme fatigue and hair loss. Last year I became a mother. My experience with pregnancy and Lupus was quite smooth and during the second trimester I went into a period of remission right though to the birth of my baby. If you are thinking of having a baby, 1). It’s possible and 2). There is extra support available.

If, like me, you suffer from scarring due to discoid lesions, I’d recommend a pair of exfoliation gloves and using them daily when you have a bath/shower. They are a great way to reduce scarring over time. Lupus affects many people in different ways.
My hope for the future is that Lupus isn’t a death sentence for anyone. My advice to anyone newly diagnosed is to be honest with people around you. If you’re tired, take a break, lay down, go to sleep. Sometimes it can be hard for people around you to believe or understand especially if you “look well” but I found that following how I feel has really helped.#lupusawareness #lupuslife #lupuswarrior #autoimmunedisease #lupusflare #lupussurvivor #lupusadvocate #lupussupport #lupusproblems #lupusrash #livingwithlupus #lupusrash #lupushelp #pregnancy #baby


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by @madamewinnell

Such a pleasure to return to the Lupus Research Alliance Walk for another year. Rain or shine, I wouldn’t have missed this extremely important event to raise awareness of this autoimmune disease that has been increasing in prevalence. ⁣

Lupus is an autoimmune disease in which a person develops antibodies that attack their tissues, organs and joints. Symptoms can be unspecific and there’s not a single test to diagnose Lupus. It is so important that our health providers pay close attention to patients’ non specific symptons such as but not limited to unexplained fatigue, joint swelling, rashes and fever.⁣

There is amazing research being conducted as we speak and it was pleasure to walk with and network with the Hospital of Special Surgery, who is a leading research and patient liaison for Lupus patients. #walkforacure ⁣💜💟💜💟💜💟

Lupus Research Alliance
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