#lupustruth

Instagram photos and videos

#lupustruth#lupus#lupusawareness#lupusfighter#lupusproblems#lupuswarrior#lupussurvivor#lupuslife#chronicpain#chronicillness#lupuswalk#lupusfacts#lupussucks#lupusflare#lupussupport#autoimmunedisease#lupuswarriors#lupuschick#thelupustrainer#spoonie#knowlupus#lupie#lupusstrong#chronicpainwarrior#chronicfatigue

Hashtags #lupustruth for Instagram

We'll be ok 👊


1

12 months.

After 12 months of consistent workouts, nutrition, accountability, and personal development I have learned so much about myself and helping others. Look, I said CONSISTENT...not perfect.

The best thing I could have done was step out of my comfort zone and try a program. I tried and didn’t even think I could workout every day. I didn’t think I could follow a portion control meal plan but I trusted my coach and committed to myself.

The best thing I could have done was step out of my comfort zone and take selfies, take videos, and share with others. Working with a team has helped me stick with it. Working with a team has provided me with an amazing support system and new friendships.

The best thing I could have done was start working out from home. My gym is always open. My trainer is always available. I can take my workouts everywhere. All of this with my crazy family schedule.

Still think I’m crazy? Take a chance and try it. You might find your own story outside your comfort zone.


4

Been editing Episode 2 of @lupus_uncensored 🎙 and am hoping to have it up for ya’ll by this weekend! 🦋💪💜 #Repost @lupus_uncensored
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On Episode 2 of @lupus_uncensored 🎙 @thelupuswifey and I tackle the slippery slope of dating with a chronic illness! Amy was not active on social media when we met and did not know I had Lupus- I dropped the 💣 on her 40 mins into our first date. In this episode we tell that story and talk about some of the challenges and misconceptions of dating with a chronic illness. Here’s a sneak peek, enjoy! 🎙🦋💜


35

On Episode 2 of @lupus_uncensored 🎙 @thelupuswifey and I tackle the slippery slope of dating with a chronic illness! Amy was not active on social media when we met and did not know I had Lupus- I dropped the 💣 on her 40 mins into our first date. In this episode we tell that story and talk about some of the challenges and misconceptions of dating with a chronic illness. Here’s a sneak peek, enjoy! 🎙🦋💜


5

An affirmation I thought of 10 years ago and still use to this day:
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Every cell of my body remains on a continual and progressive path towards complete and permanent health❤️
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I hope this affirmation brings you peace and strength🙏🏼
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With love and light,
Ferzana


3

I don’t think this one needs a caption. 🦋⚔️💜


24

So this girl came through today. Former power lifter and bodybuilder who had part of her identity taken away by Lupus showed up today. Such a kickass workout. Overwhelming grateful to be strong 💪 To all my warriors, don’t ever give up. #lupus #lupuswarrior #lupusawareness #lupusfighter #lupussucks #lupuslife #chronicillness #lupussurvivor #lupusflare #lupuschick #autoimmunedisease #lupuswalk #lupusstrong #spoonie #lupusawarenessmonth #invisibleillness #lupuswarriors #sle #purpleforlupus #chronicpain #lupusproblems #fibromyalgia #lupusadvocate #lupie #lupusfacts #atlanta #lupustruth #selenagomez #lupusrash #lúpus


14

I so wanted to believe everyone who told me that simply saying something positive over and over again would somehow magically align me with only good things😕
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However, I realized that for me, that's only partly true... if you don't connect with the words you are saying, then your inner self is going to know you are not authentic and the affirmation isn't going to add any value💡
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However, if you find an affirmation that you really believe, then saying it will definitely raise your vibration⭐
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Over the past 10 years, I have found some amazing affirmations that I continue to use to this day and often, I will hear one and it will really resonate🌟
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I love writing down my affirmation of the day, 10 times in my journal every morning and identify how that is already true in my life📝
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In this way, I truly make a connection with the affirmation and I do find my vibration lifting as I think of it during the day💫
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Try it for yourself today. I will start sharing some affirmations as a regular weekly post and would love to hear some of your favorites🙏🏼
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With love and light,
Ferzana


3

I am one lucky Lupie with these two in my corner. 🥊🦋💜 @thelupuswifey and Mama Bear are the only ones who get to see me at my absolute worst yet they always seem to know what to say or do to get me standing again and back in the game. 💪 Who’s in your corner?? Tag them below 👇 so I can personally thank them for helping you. 🙏🦋💜 Most of us can’t fight this fight alone, it will break you down and drive you crazy. Trust me, I tried to do it alone for 13 years and I ended up helpless in a hospital bed. Stepping out about my disease and asking others for help is why I’m still here today. 💯

If you do manage your disease on your own then TAG YOUR OWN DAMN SELF because this shit is RIDICULOUS to go through alone. Stay strong and keep fighting my fellow warriors, we got this 🦋💪💜 #justkeepswimming 🐠
#lupiemanagementteam 🦋 #ittakesavillage 😇


54

Me perguntaram quais os meus sintomas. Perguntei do quê? E se queria saber dos de agora, os de sempre, os de quando o lúpus ativa ou os depois de tomar algum remédio especifico.

Gente, não é uma gripe que depois de uma semana vai embora. Não é um braço quebrado que depois que consolida você tira o gesso. Não é preguiça nem drama. É uma condição crônica, sem cura que passa a fazer parte da vida da pessoa.
Mais empatia por favor.

#lupustruth #lupusfighter #lupusbrasil#lupusproblems #lupussurvivor #lupus


22

my morning coffee > your morning coffee

1. Most nutritious meal of the day
2. Superfoods to support my low energy levels (lupus sucks)
3. Probiotics to help digestion (dang lupus again)
4. And tastes amazing!

Every. Day.


4

Zandrea was only 29. She lost her mother to Lupus in 2014, the same year she was a Miss Universe Jamaica finalist. Zandrea used her pain to serve others and established a foundation in Jamaica to help young women both emotionally and financially women who are suffering with this disease. She was good one. Lupus takes all good ones from us.
But we won’t ever stop advocating. We do it for Zandrea, Elva, @ashasharron, and all the other beautiful Lupus warriors who have had their voices taken from them by this cruel disease. If we still have a voice we must use it. We must. 🗣💜 #lupusadvocacy
And I don’t care which Lupus organization you join or specifically how you use your voice/share your story but please help us in this fight. Even if it just means sharing your story- that is enough to make a difference. Don’t assume you are too small on IG or insignificant to make a difference.
Less than a year ago I had only 500 followers and nobody that hardly even gave a shit about Lupus on my personal IG page. Then one day I changed my tag to @thelupustrainer and stepped out to tell my story. And here we are. 🦋💜 That’s literally how it happened you guys, you can do it. #advocaterollcall 💪
Health Update: Didn’t sleep at all last night, a little nervous about my pulmonologist appointment today, but so fucking happy to be alive. Even on a Monday. 🎉🦋💜
#ripzandrea #lupusawareness


65

I’m big on meditation but I recall in the early days of my diagnosis, frantically trying to find peace within myself and not really understanding how meditation would get me there🤔
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I kept trying various methods of meditation that worked for people but somehow felt confused as to why there were so many rules to meditation. I thought the rules for meditation would stimulate my mind more than calm it🥴
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Finally I found a meditation style that worked for me - it was a 10 day silent meditation that was life altering to me🧘🏻‍♀️
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I learned the best technique during the first few days of that 10 day course: to simply focus on the spot just at the base of your nostrils where air enters your nose. It’s very subtle but you’ll be able to feel the air on that spot👃🏼
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Place no pressure or expectations on yourself and gently bring your attention back to the air on that spot as you breathe in and out🧘🏻‍♀️
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Give that a try and set your timer for 3 minutes. If you feel peace during that time, try 5 minutes the next time. And keep increasing the time up until 15-20 minutes⏰
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Ultimately, anything that brings you a sense of calm and stills your mind can be considered meditation. Even a walk out in nature on your own or with your dog.. Set some time aside every day to bring calm within you☮️
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With love and light,
Ferzana


1

Often times I feel that I don’t even need to force myself to take any action. If I simply set an intention and focus on that at the start of my day, and then I release it and go about my day, I find that my subconscious mind continues to focus on my intention and starts to align my day to it🕯
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If I’m experiencing a bit more anxiety or stress, I reach for my favourite crystal- a flat pink onyx in the shape of a heart, that I hold while setting the intention, and then carry around in my pocket throughout the day. Whenever I reach into my pocket, I remember my intention and become more mindful again of my commitment and it brings me a sense of calm🧘🏻‍♀️
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Try it for yourself, simply set an intention today: from releasing anger, forgiving yourself or someone, being gentler with yourself, being more mindful of the food you eat or the thoughts you keep💫
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You can use the trick I use with keeping a flat crystal (or even a special stone that catches your eye while out in nature) in your pocket or set a reminder ever hour or so on your phone📱
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Over time it won’t feel like work and you’ll realize at the end of the day, that the experiences you start to resonate to you are in alignment with the intention you set for yourself🧲
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With love and light,
Ferzana


5

When I was diagnosed initially, I focused only on the physical aspect- I saw a nutritionist and completely cut out all inflammatory foods🥔🍓🌶
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I started taking vitamins and minerals that built my cells back up from the basics💊
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I stopped my high sugar diet and even became a vegan for 6 months🥗
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Though I started to see myself physically getting much stronger, I could still feel anger eating away at my insides. I felt spiritually off balance but I continued to push past it and focus only on my physical healing🥊
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Only to land back in the hospital the following year, needing 7 blood transfusions and another few months off work. That was 2010🛌🌡
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In 2011, when I gave in to my intuition and started to focus on releasing the anger I was carrying around, and getting back into meditating and praying and finding spiritual balance (in addition to all the things I was doing for my physical self), things started to shift in a massive way for me🧘🏻‍♀️
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I felt like I started healing more exponentially. I started to get a feeling that my healing was going to be permanent and that I would never take a step back in my healing. I knew too much. I had found the missing secret for me.. that I would continue concentrating on every aspect of me and that was the only way to achieve true balance🎁
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Today, look deep within yourself and feel where in your body is anger, fear, unforgiveness, guilt, shame, etc. manifesting (mine is usually in the pit of my stomach and the tension in my jaw). Sit in quiet contemplation and just be still. That is the time you can hear your spirit speaking to you. Hear what your inner voice has to say. You don't even need to take action🎈
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Just set the intention that you wish to heal physically, spiritually and emotionally and the more mindful you become, the more inspired you will feel to make better decisions with your healing🌟
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With love and light,
Ferzana


3

My sister gave me a copy of TheSecret in 2009 and I watched it over and over again for the first several days of bed rest after my diagnosis🧬
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The one thing that struck me was Henry Ford's quote "Whether you think you can, or you think you can't, either way, you are right"🎯
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It was so profound to me because it showed me that no matter what my doctors said about the life that I would potentially live: that I would likely be on a lifetime of immune suppressants and that my kidneys may never heal, and that my bones and teeth would get weak and I may get frequent flares without medication... that none of that would be my reality if I CHOSE A DIFFERENT REALITY FOR MYSELF🎈
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And that's exactly what this quote made me feel - that I got to choose the outcome of my story. That I would start telling myself a different story- one where I overcame the temporary dis-ease in my body and where I became stronger and more resilient then I ever was before💫
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And that is the life I am living today - a life that I wish for you and your loved ones too🎁
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If you truly believe you will heal, then you will heal, completely and permanently. Believe that at your very core and you will surely heal because that inner voice that speaks to us all the time is really what directs our reality🌟
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With love and light,
Ferzana


4

Vomiting so violently at 3am it woke up my Mom sleeping on the other side of the house is a new Day 4 post-chemo occurrence for me. 😑😑😩 Usually the majority of my 🤮 is when I first wake up in the morning (no, I’m not pregnant 🤔🧐😂). Yes I take anti-nausea meds, medical marijuana, and eat a bland diet. And yet this shit persists, it is relentless you guys. 🤢🤮🤮🤮😷 In order to keep from losing my mind at this point and since I can’t sleep now anyway I made this image for you all. I figure I’m not the only one suffering with this bullshit and my sweet in-bed setup might help someone else find more comfort when they’re flaring. And that thought makes me happy. 🤗🦋💜 So this is my Lupus flare stuck-in-bed setup that has taken me quite a while to refine. I recently purchased a weighted blanket (I’m 6’0 tall, 200 lbs., they usually say to get one that’s around 10% of your bodyweight so I got the 20 lbs. one). The 20 lbs. weighted blanket is great for me on my legs but I don’t like it on my chest because of my lung pain (due to pleurisy). That’s why in the pic it’s only around my hips and legs and not my upper body, I prefer the heated electric blanket for that since I have Raynaud’s and my hands/arms are always cold. ❄️🧤 I made a post this past week (two posts back from this one) about “Linda” my non-pregnancy pregnancy pillow 😍🙌🛌😴🤤 and trust me it’s worth your time to look into getting your own Linda lol 💯 she’s a #gamechanger (I call her Linda because she’s the only one around here who listens to me #listenlinda 😂) I got all of these things on Amazon and I knowww you guys are pushing me to setup my Amazon Influencer page (that I’ve been sitting on for a few months 😂🤫) but I feel like shit so I’ll do it tomorrow lol (maybe but probably not if I still feel like this). Hopefully I got all my 🤮 out and won’t wake up again with it later this morning. That would just be peachy 🍑👌😂🤷🏻‍♀️ #losingit #thankforlistening 🙏🦋💜 #fucklupus 🖕#fuckchemo 🖕 #eatcookies 🍪


61

Pity party is over. #stillstanding 🐺
Strength is a choice. Make the decision to fight for your happiness.” ⚔️🛡 Thanks for fucking me up with some truth today, @thesisuway ❤️🖤 #Repost @thesisuway
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𝘓𝘪𝘧𝘦 𝘪𝘴 𝘯𝘦𝘷𝘦𝘳 𝘮𝘢𝘥𝘦 𝘶𝘯𝘣𝘦𝘢𝘳𝘢𝘣𝘭𝘦 𝘣𝘺 𝘤𝘪𝘳𝘤𝘶𝘮𝘴𝘵𝘢𝘯𝘤𝘦𝘴: 𝘣𝘶𝘵 𝘰𝘯𝘭𝘺 𝘣𝘺 𝘭𝘢𝘤𝘬 𝘰𝘧 𝘮𝘦𝘢𝘯𝘪𝘯𝘨 𝘢𝘯𝘥 𝘱𝘶𝘳𝘱𝘰𝘴𝘦. 𝘌𝘷𝘦𝘳𝘺𝘵𝘩𝘪𝘯𝘨 𝘤𝘢𝘯 𝘣𝘦 𝘵𝘢𝘬𝘦𝘯 𝘧𝘳𝘰𝘮 𝘢 𝘮𝘢𝘯 𝘣𝘶𝘵 𝘰𝘯𝘦 𝘵𝘩𝘪𝘯𝘨: 𝘛𝘩𝘦 𝘭𝘢𝘴𝘵 𝘰𝘧 𝘩𝘶𝘮𝘢𝘯 𝘧𝘳𝘦𝘦𝘥𝘰𝘮𝘴 – 𝘵𝘰 𝘤𝘩𝘰𝘰𝘴𝘦 𝘰𝘯𝘦𝘴 𝘢𝘵𝘵𝘪𝘵𝘶𝘥𝘦 𝘪𝘯 𝘢𝘯𝘺 𝘨𝘪𝘷𝘦𝘯 𝘴𝘦𝘵 𝘰𝘧 𝘤𝘪𝘳𝘤𝘶𝘮𝘴𝘵𝘢𝘯𝘤𝘦𝘴, 𝘵𝘰 𝘤𝘩𝘰𝘰𝘴𝘦 𝘰𝘯𝘦𝘴 𝘰𝘸𝘯 𝘸𝘢𝘺. - 𝘝𝘪𝘤𝘵𝘰𝘳 𝘍𝘳𝘢𝘯𝘬𝘭

Strength is a Choice. Make the decision to fight for your happiness.

@mackowal Episode 14 - Life Is A Moment
🌷 💀 ⏳
𝘎𝘙𝘐𝘛 | 𝘊𝘏𝘈𝘙𝘈𝘊𝘛𝘌𝘙 | 𝘎𝘙𝘈𝘛𝘐𝘛𝘜𝘋𝘌 | 𝘚𝘌𝘙𝘝𝘐𝘊𝘌
_____________________________________


18

I love this concept❤️
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When you have a full closet, and want to add a new wardrobe, you need to get rid of the old clothes and make space for the new ones👗👡
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Same with your fridge- out with the old, in with the new🥬🥒🧀
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Our thoughts and emotions are the same: In order to allow space for new more inspiring thoughts, we need to set the intention of clearing the old, negative thoughts that weigh us down🧼🧽
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Sit in quiet contemplation today and ask yourself what is weighing you down. Then, without judgement, just hear what your spirit says. Be mindful and set the intention that you are ready to release anything that is weighing you down, with acceptance and love and with complete forgiveness🎈
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At the same time, choose an affirmation and start saying that to yourself for 10 minutes at the start of the day☀️
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You will notice very quickly that you start to shift into a more positive space💫
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With love and light,
Ferzana


3

I wasn’t ready for the news yesterday. After my 5-hour chemo infusion my doctor asked the nurse to have me wait because she needed to talk to me. You guys as I sat there after just enduring 5 brutal hours of chemo I thought I only had one more infusion left. I thought she wanted to tell me we are still on track and only one more to go woohoo!! 🎉 IT’S BEEN 10 BRUTAL MONTHS, I WAS ALMOST DONE. 🤬🤬 I WAS ALMOST.FUCKING.DONE. 😩😢😭 Instead said told me that the slight wean we attempted to start to get me ready to come off chemo caused my Lupus markers to go absolutely haywire to levels they were at back during the time last year when I had acute kidney failure. She said we attempted this wean twice and both times your Lupus activity skyrocketed but when we brought the infusion back they settled back down to a safer level. She said Sara we can’t get you off chemotherapy at this time like we originally thought we could. Usually a year of chemotherapy is enough to start to transition a kidney patient back to other less aggressive treatments.
She then told me that unfortunately in my case and with how widespread my Lupus is in terms of organ involvement an entire year of chemotherapy, corticosteroids, and other various treatments was just not enough.
This means I will need to continue the 5-hour chemo treatments for at least once a month for the next 3 months, but potentially longer. We won’t know how long until we try to wean me off again in 3 months. 🙏🙏🙏🤞🤞🦋💜💜💜 You guys I physically didn’t have it in me at that moment to react. I was so exhausted, deflated, and nauseous I sat stoic the entire time and the entire ride home with my Mom. I couldn’t lose it in front of her, this poor woman has seen me suffer enough and worries sick about me.
So I sat stoic & emotionless and I held it in until I got home. I have been so sick, exhausted, nauseous, and uncomfortable I physically haven’t been able to cry about it until just now as I’m writing this post. 😭🤧 Thank you for allowing me to use this platform as an outlet and dump all this here. It helps me tremendously. 🙏🦋💜 #justkeepswimming 🐠 #strengthisachoice 🐺 #lupusimcomingforyou ⚔️🛡


219

This concept used to elude me when I was first diagnosed with Systemic Lupus in 2008🧬
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Since then, I have been completely open to anything that would bring me peace. And although I have learned so much along my journey, about healing on a physical, spiritual and emotional level, only recently, did I really connect with the concept of staying present🎁
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I used to find that my mind was either focused on replaying past hurts, or being fearful of something that may happen in the future that I could not control. This constantly created an energy of pain and fear and perpetuated the same vibration which would generally bring me more experiences of pain and fear🚫
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When I find myself reliving the past or focusing on the fear of the future, I stop myself by simply stating the intention that I choose to stay in the present moment🧘🏻‍♀️
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The present moment is the point of manifestation and I want to give the best chance at manifesting miracles in this current moment. That is not something I could do if I had a vibration of pain or fear around me🌟
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That simple act of setting the intention and becoming more mindful of my thoughts and staying present and anticipating miracle has been beautiful💫
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The people and experiences that come my way has been nothing short of constant miracles. I feel at peace and I love how it feels to be present - it is freeing and joyful✨
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Set the intention for yourself today and see how willingly the universe responds to this positive mindset❤️
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With love and light,
Ferzana


7

There are only 24 hours difference between these two pics. I took them in the exact same position laying on my pillow in my bed to show you how drastic our face can change day to day on chemo. 😷🏥 The only time I left the house between pics was to be driven to receive a 5 hour chemo infusion for Lupus. Yes, they use chemotherapy for Lupus when you have organ damage/failure (many people I’ve met did not know this, nor did I pre-diagnosis). The drug I am on is the same drug used for leukemia and lymphoma but mine is administered via IV infusions less often and over a much longer period of time. (That’s why many of us have thinning hair but it doesn’t fall out completely like cancer patients). #lupusawareness 🦋💜💜💜 Many of the treatments they use for Lupus have devastating physical side effects and many of those are aesthetic which makes it pretty difficult to cope with. Waking up one day looking fine (left pic) and the next day looking like a completely different person (right pic) becomes frustrating when you can’t ever see it coming. You could have a hot date, or an interview, or a presentation to give that day but Lupus doesn’t care. (Prednisone is another drug very commonly used for Lupus and known for causing a moon face). 😤🤬 I need to rest right now but I will be posting later today about my post-chemo recovery methods. It has taken me a while to figure out how to be most comfortable when I’m hurting bad and I’ve discovered some hacks that I’ll share with all of you.
Thank you for all the kind messages and well wishes, they make me smile though the suffering. 🙏😊🦋💜💜💜 #justkeepswimming 🐠
Side note: my hair has really gone downhill since Tuesday lol 😆 @cyress.barberfit #HALP! 💈💇🏻‍♀️ I’ll be in to see you just as soon as I stop 😷🤢🤮😩


67

the lie : I’ll start tomorrow

Quit, start, quit, start, over and over and over.

I’ll start the diet Monday.
Next week I’ll start saving money.
At the start of the new year I’ll be a better person.

It’s a lie. If you don’t have the energy now what’s going to change in the future?

What if we spent more time and effort staying ON the wagon instead of getting back on?!? That’s what lifestyle changes are all about. Small steps that create life changing habits.

What small step can you take to start a healthier lifestyle? I’m working on 30 days with no Diet Coke.


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