#lymedisease

Instagram photos and videos

#lymedisease#chronicpain#lupus#migraines#cash#joinme#inflammation#thathempychick#opportunity#seizures#autism#parkinsons#multiplesclerosis#epilepsy#itworks#addiction#moodswings#glaucoma#cbdoil#adhd#highbloodpressure#imsomnia#ptsd#add#cancer#pureromance#depression#residualincome#cbd#headaches#chronicillness

Hashtags #lymedisease for Instagram

Supporting awareness for  Lyme (like) disease in Australia. Lyme affects so many Australians, but medical and political "loopholes" have left those afflicted without the resources, support and facilities needed to fight this awful disease. I'm hoping I can make people aware of the plight of the "Lyme disease association of Australia" . You can donate to their page (https://www.mycause.com.au/charity/2148/LymeDiseaseAssociationofAustralia) and contribute to the research that goes into making this prevalent disease in Australia recognised. #FIGHTforLYME #tickscanmakeyousick #boxing #raisingawareness #lymedisease
#lymeislyme #comeonaustralia
#professionalboxing
#support #sponsor


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This journey is not always an easy one. This weekend started out ok. New treatment course could be the cause of emotions, or it could be attempting some sweets. I guess I shouldn't feel like I'm being punished. Sometimes it's so hard because I've focused so much on what I could do, what I used to do. And now with feeling these limitations I begin to feel punished. That yes I may be able to do them, like decorating gingerbread houses, cooking, cleaning and playing with my nephews. But, there will always be a repercussion of these things. Tonight I feel like I'm broken. That I was punished for wanting to do what my body won't allow. As I lay here in excruciating pain, exhaustion and all over emotion. I can only think to be thankful I made it this far. That I have a loving family, and that I will beyond a doubt make it through this to see the brighter days. I will not let this disease stop me. Ever. #pain #power #lymeawareness #quote #strong #lymedisease #emotions #chronicillness #lymewarrior #lyme


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Starting over with all new doctors when you move states is rough. I've gained a dermatologist, cardiologist and rheumatologist in the last eight weeks. It's been exhausting. But I'm hopeful that we'll form a solid team. ⭐️
#spooniechristmaschallenge #specialists #careteam #chronicillness #chronicpain #autoimmunedisease #lymedisease #fibromyalgia #psoriasis #support #spoonielife


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On Friday I had excision surgery to remove scar tissue caused by complications related to #ehlersdanlossyndrome. Of course due to my #eds (see prior post on this), the surgeon struggled to get me numb, requiring many more painful injections with a local anesthetic than typical. And once I was numb, even the long acting anesthetic wore off before the procedure was over.
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When they finished, due to a miscommunication about when my procedure was scheduled, they didn’t have oral pain meds ready for me in advance, so I was faced with a post surgical trek to the pharmacy.
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Rather than delay my pain management any longer, we opted instead to get me home and to rely on pain meds I had left over from a prior procedure until we could get the script filled the following day. Come Saturday, when we go to fill my script, only to be told that due to the “opioid crisis crack down”, the type of prescription paper my doctor used will no longer be accepted for narcotics (something the pharmacist admitted was new and most docs don’t even know about...wtf?!?); so they’d need to call my doctor to fill it, leaving me without pain meds through Monday (tomorrow).
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I’m sharing this not to complain—I’m ok, it wasn’t a great experience, but I’m grateful to have had pain meds on hand to help—but because the system is broken and the burden falls on us, the patients, to advocate like hell for ourselves to get the care we deserve. I had mentioned my prior issues with local anesthetic to my doc, but since my two surgeries were days apart, I didn’t really have time to game plan an alternative and perhaps put too much faith in my doctor. In retrospect, I should’ve called after my difficulties with local anesthetic during port surgery, but hindsight is 20-20.
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If you have eds and are going to be getting surgery with a local anesthetic and you’re unsure of how you’ll react, talk to your doctor beforehand about the possible issues. It’s much better to have that conversation beforehand than to find out during. Trust me. .
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#zebrastrong #zebrasdeservebetter

San Francisco, California
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A year ago today I arrived home from treatment. So thankful to be home this year. It’s been quite emotional with all that has happened this year. I’m nowhere I thought or hoped I’d be today, but God provides and is working and I’m right where HE wants me to be - even when I don’t understand. ❤️💚❤️


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Hi Furrrends!! It’s been awhile since we posted because Mom has that stupid Crohn’s disease, but she was super cheered up by my new haircut! She keeps laughing at me! I showed her when I snuck over and stole a Christmas cookie off the counter!
THEN she made me wear a Christmas sweater 🙄 I managed to take it off and run with it! Ha! #Silly #goldendoodle #doodle #dog #dogsofinstagram #blonde #home #family #houston #christmas #sweater #haircut #chic #funny #pet #animals #happy #holidays #crohnsdisease #healing #peace #friends #apartment #fluffypack #cookies #love #life #goals #lymedisease #fun


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