I will never forget as a young child being constantly questioned by this one nurse.
Before she would begin my intravenous antibiotics she would ask me; "What have I forgotten to do Emmah"
"Do you know in what order these medications are to being given to you?"
"What drugs are you allergic to Emmah"
This use to drive me insane.
But then I would watch my Mum question anyone who would enter my hospital room..
"What is this test being done? Is it necessary"
"What are you monitoring?"
"Who are you?" Well, as these are some things that I remember about growing up with CF, as an adult I can say I can share the lesson that was being taught to me.
I was being taught to be in control - control of what care was needed for me as an individual with CF.
Not as a general CF patient, because despite many of us having the same gene-types we don't necessarily require the same treatments.
But I was being taught to understand MY illness and what I needed.
I needed to be educated because at times there would be staff who would have no idea about CF and this illness is something I live and breathe, what better person to know the basics, than me.
One of the many lesson's learnt from my Mum was that I have a right, a right to know what is going on, a right to question absolutely everything about my CF and and if I didn't agree or understand, that it is okay to say no and wait for further explanations.
There were many times that the 7th blood test was not actually needed, because of my Mum, I was strong enough to have a voice to the medical practitioners.
From a young age I was confident in seeking the answers I needed, I would question sometimes what seemed unquestionable.
Most importantly, I knew the only person who would be with me forever, day by day as I continued to fight CF was ME.
I am grateful for these lessons because now as an adult, I know my body and I know what to do if I don't feel right.
I feel confident, I am strong + continuously becoming more and more resilient.