#spoonie

Instagram photos and videos

#spoonie#chronicillness#chronicpain#spoonielife#fibromyalgia#invisibleillness#cfs#blogger#recovery#fibrowarrior#chronicillnesswarrior#positivity#ehlersdanlossyndrome#chronicfatigue#health#pain#butyoudontlooksick#quotes#happy#quotestoliveby#weightlossjourney#rheumatoidarthritis#awareness#hypermobility

Hashtags #spoonie for Instagram

My mood today! Lol I will shank you if you touch me....look at me...breathe at me or expect anything from me today! Stomach is in bits...pain in my chest...broken sleep again! Honestly feel like I've gone 5 rounds with Mike Tyson...someone ring the damn bell! Lol hope everyone is having a bless day though! 😣😪😭💜 #fibromyalgiaawareness #spooniestrong #butyoudontlooksick #chronicpainwarrior #fibro #fibrowarrior #chronicpain #spoonie #spoonielife #depression #copd #anxiety #migraine #chronicillness #fibromyalgia #exhausted #tired #spoonies #chronicillnesswarrior #pain #purpleribbon #fibrosucks #life #mylife #mentalillness #everythinghurts #spoonieproblems #fibrofighter #me


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I SEE - Day 24 of @awakenyourchakras & @chakraopener 's #chakrachallenge
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" look within the silence and behold our indigo soul-light
hear the quiet wisom that illumines our inner sight
together let us dream of the peaceful world we would perceive with our imagination we will create what we believe "

poem ©️2002 Mara Berendt Friedman
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#isee #chakras #balance #raiseyourvibration #goodvibrations #goodvibes #energy #healingenergy #selfcareishealthcare #holistic #holistichealth #holistichealing #naturalhealth #naturalhealing #spooniemom #ramom #warriormom #rheumatoidarthritis #chronicpain #invisibleillness #spoonie #spoonies #healthybodyhealthymind = #happylife


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If our printer had feelings it wouldn't be happy with us. .

Teachersclubsuk.co.uk has some lovely resources for KS1/KS2. .
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#homeed #homeeduk #homeeducationuk #homeeducation #homeedfamily #homeedrocks #homeedresources #geography #english #art #poetry #letterwriting #staedtler #toocoolforschool #educationstartsathome #spooniehome_edmom #spooniemom #spoonie #educationotherwise


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It’s Friday you have made it through another week and the weekend is here.
Celebrate your victory, you may have wanted to give up, you pushed through struggles or bad days and you made it to Friday.
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Today reflections:
You will breath..think of solutions...but above all you will be okay because “you don’t quit.”
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#eclecticawareness #awareness #morning #friday #youmadeit #breath #findsolutions #worrywontcontrolme #stresswillnotbreakme #itwillbeokay #idontquit #youdontquit #reflections #reflecting #mood #vibes #positive #wordsoftheday #mentalhealth #emotionalhealth #chronicillness #invisibledisease #invisibleillness #spoonie #spoons #mindbody #meditate #meditation


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One of "those" days today. The rain is no coincidence.. But thats fine. Take the ups with the downs and have a good rest ready to enjoy the weekend after my day of rest. Its certainly a roller coaster ill give this spoonie life that!
Hope youre all ok and having as good a day as possible. Lots of love and spoons as always always xxx Jo and Poppy xx
#restday #flaredays #lupussucks #sickchickandpoppy #inspirationalpage #positivevibesonly #spoonieblogger #chronicallyfabulous #disabledandcute #lupus #antiphospholipidsyndrome #fibromyalgia #endometriosis #butyoudontlooksick #spoonie #spooniecommunity #spoonielife #invisibleillness #spoonie #kidneydiseaseawareness #chronicillnesswarrior #autoimmunedisease


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Can’t be dolled up everyday 😉 Big big flare today right when I have to leave the home 🤦🏼‍♀️ Extra dose of #MagicBeans helped tooons but still in no mood for makeup or dress up... Will reply to all your messages asap, Bare with me 😘 #nomakeup #nofilter #fibromyalgia #flare #spoonie #spoonieday #gooddaysandbaddays #onedayatthetime


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🌻positivity is key🌻 ▪️Today is a realllll good day ▪️
Made an appointment to see my new Rheumatologist hopefully to start with with new therapies etc. I'm experiencing low level pain and well it's the bank holiday!!! Yeahhhh baby!💛 👘 Alsoooo hubby bought me new summer pjs that consist of top and shorts so I no longer scare the postman when I open the door and I look slightly modest!! Ooops 🙈 🌼Andddd this PYT in the pic is one of my nearest and dearest and is always there for me... if friends were flowers I'd pick you!🌼 Have a fab weekend my fellow spoonies 💛🌻 #spoonielove #spoonielife #fibrowarrior #fibrolife #fibromyalgia #chronicpain #chronicpainwarriorprincess #spoonie #positivity


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Daddy left on his Harley this morning. I want to ride on his bike. He needs to find a way for me to join him. I would look cute in doggy goggles! ❤️🐶 #dogsofinstagram #kobict #sheltie #shetlandsheepdog #sheltiesofinstagram #KobiTheSheltie #sheltie #instadog #petstagram #doglover #sheltiegram #spoonie #harleydog #harleydavidson


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SWIPEEEEEE ➡️➡️
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Changed up leg day again aka my lower half is currently screaming 😭😍
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Happy #flexfriday humans!


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In costochondritis, “costo” means ribs, and “chondritis” means inflammation. While the actual bones of the ribs are inflamed in this condition (it would be called osteomyelitis, and that’s in the bone marrow, and is an infection), the cartilage in the ribcage is. This is usually a short-term condition and usually resolves itself, but for many EDSers, episodes of costochondritis seem to happen much more frequently. It is oddly more frequent in women, with 70% of people with costochondritis being AFAB. Avoiding exercising, applying heat/ice to the affected rib(s), and stretching often help reduce the pain, but surgical removal of the affected cartilage may be considered if those treatments, as well as using anti-inflammatories, do not help.


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Schaut ekelhaft aus , schmeckt aber sau guad! Vegane #puddingoats mit einer Nektarine, Trauben und einer halben Banane ❤️
Heute Abend geht es für mich zum erstenmal in meinem Leben in die L'Osteria 🍕 . Ich bin gespannt und freue mich darauf mal wieder zu geniessen #treatyoself
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#looseskin #weightlifting #crossfit #crossfitgirls #hashimotos  #curvy #fattofit #obesetobeast #weightlossjourney #weightloss #bodypositive #ootd #spoonie #thick #lipödem #thickthighs #deinestarkeseite #lymphedema #Frauensache #plussize #effyourbeautystandarts #hclf #bopo #lipedema #hclfvegan #forksoverknives


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-Overgrown-
It becomes all-consuming, can't fight back.

I will get out of this funk.


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Time to enjoy the simple things (including blackbirds singing and wrens soloing) and let my aching body rest a bit 😏 Have a Happy Friday, rolling straight into the weekend, y'all.
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#cats #friyay #reading #coffee #lovelibraries #spoonie #enjoythelittlethings


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Celery juice for breakfast, followed by a smoothie bowl 🍌🍓🍍🍈🍊🍇🍏🥥 8 different fruits with added maca powder & raw honey. Tastes like heaven! I had to fight the urge to eat toast as I was so hungry - but I pushed through and made this beautiful bowl of goodness. After I fix my digestive system I can try eating bread and pasta and other products, to test if I really am intolerant to wheat and yeast. But for now I just need to stick to plant-based, wholefoods. The most significant thing i've noticed since starting this high-nutrients eating program is that my tachycardia has gone - that was almost immediately too. I used to lie awake at night with it praying for it to leave me alone. If you've ever had tachycardia for a long length of time then you know it is worrying - which ofcourse exacerbates the problem 😢
Also my skin has cleared up! It's not exactly glowing yet but it looks so much healthier. My belly is flatter too (still a long way to go to reduce the swelling), and I do not get food tired after eating plants. Which means less collapsing into an almost coma after lunch and dinner. I've still napped but I didn't feel like I was dying as I was falling asleep, which was often the case. Will a plant based diet cure #mecfs? I don't know, if so maybe it would be years before we could see the results. But in the meantime whilst the medical world work on a cause and treatment - eating a diet high in fresh fruit and veg is making my body stronger to fight whatever is going on with my immune and nervous system. .
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#cfs #mecfs #myalgicencephalomyelitis #chronicillness #chronicfatiguesyndrome #spoonie #wellness #hiddenillness #inspiration #meawareness #invisibleillness #chronicillness
#medicalmedium28daycleanse #optimism #healingwithplants #healingwithnature #natureisahealer #earthweareone #youarewhatyoueat #healyourself #medicalmedium #plantbased #eatyourselfwell #eatclean #cleanliving #healdocumentary


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I really like this - it’s true that in looking after myself and in working really hard on maintaining that as a constant priority in my life, I feel more and more empowered and safer with myself.
My life used to be all about everyone else. And I was always advising others to focus on themselves and the world would fall into place around them. I never saw the irony in that my advice was directly contradicted by my own people pleasing behaviour. But now, I try every day to remember that the most important person on my life is me.
It’s hard, but hard work is worth doing if it leads to positive results.
I try I remind myself that anyone who really loves me will be happy that I am taking care of myself first. And anyone who isn’t, doesn’t matter. And that’s all there is.
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#selfcareisntselfish #selfcare
#BPD #CPTSD #dissociativeidentitydisorder #Mentalhealthawareness #spoonie #Mentalillness #mentalhealthadvocate #onedayatatime #onestepatatime #ItsOkayNottoBeOkay #Takebackcrazy #Iam1in4 #MentalHealthWarrior #mentalhealthmatters #selfcareisntselfish #selfharmrecovery #traumasurvivor #abusesurvivor #addictionrecovery #mystoryisntover #therapy #recovery #mentalhealthrecovery #recoveryisworthit #psychology #endthestigma


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Been a tough week so here’s a picture of me looking like a normal human 😘 thanks for all the lovely messages ❤️


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Currently in the waiting room... No one is here probably because it’s 6am 😂
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Would you guys like more updates? Feel free to let me know 🙃
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#waitingroom #hospital #iamokay #justroutine #alone #6am #morning #thewarriorchronicles #ultrasound #spoonie #chronicillnesswarrior #invisibleillness #awareness #randompain


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Long Post Alert 🚨 I’m sorry I haven’t had much of a training update on Thor since Petsmart, my health hasn’t been the greatest as I’m preparing a trip to California to see a new doctor, searching for a new house since we need a bigger place and our lease is up soon, as well as trying to launch a new business from home where I can start making some type of income for my family since I cannot work a “regular” job. BUT— my photography business is officially launched, we are working on finding a new house, and I’ve been having some incredible in-home sessions with Thor. His stays have gotten great, allowing me to walk off completely (still working with him being comfortable with my disappearing act and some distractions), and making PA trips very far and few. He’s still really young and I truly do want him to enjoy his puppyhood and ease into this very slowly. I did get ahead of myself for awhile thinking he wasn’t learning enough for his age (thanks anxiety), but he was actually learning too much too fast. I want him to enjoy working and reduce any chance of him washing out in the future. If you’ve read this far, bless your soul. Thank you for following Thor and I’s journey as a team, and you can check out my photography page if you’d like (I post a lot of dogs ♥️) @oakleydianephoto


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“Imagine if all we offered patients with cancer was exercise and counselling. That is the equivalent of what is happening to patients with ME/CFS.
Patients want biomedical research into effective treatments, education for doctors and medical staff, and access to information and government support services such as the NDIS which are currently being unfairly denied.”
For decades, people with the condition have lingered in a twilight of misdiagnosis and misunderstanding, where clinical treatment was either absent or actively harmful and government neglect was part of the larger void in understanding across our whole society.
The condition is described as “a complex, multi-system, neuroimmune condition with a multitude of symptoms related to the dysfunction of the brain, gastro-intestinal system, immune system, and endocrine and cardiac systems…”
The technical language only goes part way to describing a forbidding condition that afflicts people in wildly differing ways, with the common factor that rest doesn’t recharge your body properly. Sleep just doesn’t work. The symptom-set reads like a list of everything that could possibly go wrong with your health, starting with “overwhelming post-exertional malaise”. It can mean anything from having to take things a bit slowly to being permanently bed-ridden, shut off from all forms of stimulus; when even the effort required to process sight and sound can become overwhelming...” 🔹Fantastic article by Scott Ludlum @guardian PLEASE READ (if able) to help gain & spread awareness 💙 LIVE LINK IN MY BIO ⬆️⬆️ Permanent link ➡️➡️ https://www.theguardian.com/commentisfree/2018/may/12/to-the-millionsmissing-with-mecfs-something-remarkable-is-happening 🔹 *
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#spoonie #meawarenessmonth #meawareness #millionsmissing #missingbutnolongersilent #endcfs #mecfs #meadvocacy #maymomentum #openmed #actionforme #endtheneglect #cfsme #thetruthoflifewithME #canyouseeMEnow #timeforunrest


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Seem to be swapping my days around a lot lately! Dog has a dodgy tummy so didn't want to leave him to go swimming, so did the next Beast workout instead- back. Here's my pull up set-up 🤣, kind of a pull up/ squat combo! I can do a 3rd set of deadlifts with 12kg now, when I started I used no weight and my lower back was sore and spasming for two days. That's taken me 3 or 4 years but still, I'll take it! I can feel my back muscles engaging more properly now when I do bent over rows and flyers, good sign things are waking up and getting stronger 😊. Being able to bend and lift more easily and safely is great.

#workout #bulkback #pullups #backday #bodybeast #beachbody #spoonie #chronicillness #chronicfatigue #hypermobility #hypermobilitysyndrome #gettingfitter #gettingstronger #plussizefitness #HAES #zebrastrong #chronicfighter #noexcuses #noexcusemoms #deathfat #eds #ehlersdanlos #edsathletes #sizeacceptance #fatacceptance #nofatshaming #plussizeworkout #schnauzer


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Feeling completely grim today & all my body is craving is fresh fruit.
This was my first time eating fresh figs & they are DELICIOUS. Plus they are a great source of antioxidants!
#naturalsugar #noimmunesystem #coldbegone #figs #fruit #spoonie


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2am is too early to be up dry heaving from nerves. I was throwing up before I could get nausea meds on board. Today my fiance is going in for endoscopic brain surgery. I'm so terrified. I'm packed to spend 4 days in the hospital with him, but for now Xochitl and I are sharing a quiet moment together while a prayer candle glows in my chiminea. It's hard when you have chronic illness to be the strong one. Hoping my tears run out now before we get to the hospital... #ptsd #cptsd #posttraumaticstressdisorder #complexposttraumaticstressdisorder #generalizedanxietydisorder #anxiety #panicdisorder #panicattack #agoraphobia #vertigo #ibs #chronicdepression #chronicillness #spoontheory #spoonie #notalldisabilitiesarevisible #servicedogintraining #sdit #prayersneeded


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I’ve never done a challenge before so I thought I’d give this one a go 🤷🏻‍♀️ • • • • • • • • • • • • • • • • • • • • • • • Day 1: Introduce yourself. I’m 25 and crap at talking positively about myself so this is awkward. I studied art and design before I got sick(er) and I still hope to one day become an art therapist or work within the mental health field. I love music especially punk/pop punk. My favourite bands are Green Day, My chemical Romance, State Champs, Blink 182, Rancid and so many more. I love horror films and stuffing my face with sushi, but only veggie because I hate fish 🤷🏻‍♀️I have a cat called Star and an unhealthy obsession with him. I’ve also grown up with a lot of animals including a dog, rescued ferrets, hamsters and briefly birds. #spoonie #spooniechallenge #ehlersdanlossyndrome


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I’ve been resisting getting a #bluebadge cover ever since I got my blue badge. I think deep down I thought that it was temporary and I would need it for long. I was wrong. But that’s ok. If you have to use #medicalaids they might as well be pretty! Thank you @bluebadgeco for this beautiful #bluebadgecompany cover. It’s so pretty! 💗 #ehlersdanlossyndrome #potssyndrome #spoonie #wheelchairlife


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Post has arrived with my new #billabong #sealeggings and #wetsuitjacket I’m in love!! 😍 What seems like a lifetime ago I use to surf but with all my health issues I can’t now. But I still love the sea. I struggle to get my wetsuit on because of my silly #ehlersdanlossyndrome joints so was on the hunt for something o could easily manage so I can still have fun in the sea now we live by the sea. Hopefully I can test out this kit very soon! Good distraction from yesterdays stress of dealing with moving and ending up in bed most of the day. Might even get the surf kayak out this summer and see if I can still do that! #findingsolutions #potssyndrome #spoonie #findingmywayofdoingthings


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⭐️ I highly recommend this oil for anyone struggling with aches and pains ⭐️

I struggle with the worst body aches with my chronic fatigue 😢

I use this oil most days as soon as pain strikes and the pain relief is better than any toxic pain killer •

I’m personally not a fan of pain killers due to the stress they put on my body. I also really don’t like that spaces out feeling. •
Pain is there for a reason to tell me there is something wrong so rather then masking it I choose to listen to my body. We need to treat the cause not mask the symptoms. •
Aroma touch is my lifesaver and I know my body thanks me every time I use it •

Ingredients
Cypress Plant, Peppermint Plant, Marjoram Leaf, Basil Leaf, Grapefruit Peel, Lavender Flower essential oils.•

#essentialoils #holistichealth #support #happy #love #adelaideblogger #australia #adelaide #nature #natural #nontoxic #syntheticfree #like #instagood #instadaily #spoonie #fibromyalgia #muscle #recovery #pain #painkiller #medication #cfs #fatigue #workfromhome #diet #nutrition


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Self portrait.- messing about with my phone editing skills 😊
This will be part of my invisible illness project for, NCFE level 2 photography, at Richmond Art School
#drawing #digitalart #selfportrait #photography #student #ncfelevel2 #richmondartschool #doodle #spoonie #craftsastherapy #invisibleillness #raisingawareness


0

Yesterday was both an INCREDIBLE day and an awful one. I am ashamed to admit I let munchausen got the better of me.

I pride myself in being honest with you guys, and as much as I want to say it was real, it is not. Sort of. I saw an opportunity and took it. While my initial symtoms were real, I pushed the boat out. I wish I could say I regret it. But I don’t.
I caught most of it on voice recording, I fainted and hit my head so an ambulance was called. I was actually 100% completely fine, but I remembered about my friend and how she got what I wanted so badly and just thought fuck it. I then acted drowsy and very ‘out of it’. I vaguely remember being sat on the floor wondering where the ambulance was because it seemed to take forever ( it really only took 8 minutes)
I was assessed by the paramedics, who decided I needed to go to hospital, and I had a bit of a job containing my excitement, but I feel I did it well because I went in because they suspected I had a seizure and was post ictal.

A number of tests were done and they all came back fine, apart from my heart rate which was between 115 and 120. They never figured out why my heart was going so fast. I’m putting it down to anxiety.

What was shocking about this trip was one of the consultants actually came into the room and before even introducing herself said (and I quote) ‘there’s nothing wrong with you so you need to go home’. Technically true, however what happened to hello... my name is...? So bloody rude! Anyway I was beyond offended (it was more the arrogance than anything else) and eventually she let me stay for a psych review.
My mum discharged me at midnight last night and took me home. I can’t say I was happy, but the room I was in had a broken tv and nothing to do so.

If any of you guys wanna approach me or anything and ask questions/ explore how I did things ect, feel free to ask!

#Munchausen #munchausens #spoonie #spoonielife #disability #Iamawarrior #first #bloglife #blogspot #bloggers #blogger #blogueuse #blogpost #bloger #makeupblog #blogger_de #lifestyleblog #blogs #blogging #blogged #blogdemoda #blogger


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There's something quite satisfying about seeing the squares come neatly together 😊

I've done a few more this morning and am off out for a jaunt to IKEA for some bits and bobs. I've discovered that if I fully do nothing on my rest days, I just end up miserable by the end of the day, so it's good to get out and do something. The fact that this is the case is such a good marker for how well I'm feeling, previously I would happily have rested on the sofa all day. Now, I am well enough that my mind and body like to be up and about doing things, yay 😄

I'll still chill lots this evening though, I've only got a few weeks to finish off this blanket.
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#crochet #crochetsquares #blanketsquares #chunkylace #madebyme #pretty #spoonieskills #spoonie #spoonielife #spooniewarrior #chronicillness #chronicwellness #chronichealth #health #wellbeing #invisibleillness #butyoudontlooksick #chronicpain #chronicfatigue #fatigue #colitis #IBD #IBDWarrior #colitiscare #mindfulness #mindful


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Herbs do wonders for health... Take a look in your cupboard, you may have something that can help your ailments! Ginger and cayenne pepper* are just 2 of my favourites.
What's yours?

#herbs #herbsheal #detox #cleanse #fibromyalgia #spoonie #alkaline #hormones #autoimmunedisease #arthritis #nausea #recovery #weightlossjourney #health #feelbetter #ibs #healthyfood #lifecoach #herbalist #painfree #happy #instalife


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When you tell your mum you've been back on paleo for the last week and she makes you a massive soup for your next weeks meals. When paleo equals wog🇭🇷food minus the vegeta and bread👍🏻👍🏻👍🏻 Thanks Mamma😃

#soup #melbourne #realfood #wholefood #simplefood #motherlylove #wogfood #melbourne #wogmum #baka #nanna #chickensoup #chickenvegetablesoup #mealprep #paleo #nutritionaleating #thepaleoway #lovemymum #healing #spoonie #chronicillness


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At 1pm yesterday (thurs), I went to the loo and on returning my surgical wounds burst open, it was bleeding a fair bit so my GP called and ambo. When in the ambo, the bleeding was really bad that I can to be blue lighted to hospital. This is a result of the district nurse refusing to come out and apply the appropriate dressings and to make sure the site way doing ok. As it turns out, me not having the dressings needed and the fact I have become so swollen, it put too much pressure on the surgical site which meant as I transferred to my w/chair for a wee, my leg burst open. Thankfully my surgeon was on call at the hospital and he came down to see me but my goodness he is fuming!! As a result, with the wound opened down to the bone which as put me in a very vulnerable position infection wise and I am now need on to take antibugs and the new stitches I now have, have to be kept in longer than the original plan. All these resources, the cost to the NHS because ONE NURSE decided to refuse putting me under their care!! #spoonie #spoonielife #spoonieblog #spoonieproblems #nhs #shocking #districtnurses #fuming #wasteofresources #nhsfail #failedbytheNHS #chronicillness #invisibleillness #invisibleillnessawarness #invisibleillnesssucks #invisibleillnessfighter #invisableillnessblog #chronicillnesslife #chronicfeed #surgery #operation #stitches #surgicalsite #letdown #letdownbythenhs #eds #ehlersdanlossyndrome #hipdysplasia


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Nach dem Nippel -äh!- Armgate ist zumindest die Bereitschaft der Armkompression noch eine 4. Chance zu geben wieder da. Vielleicht muss ich noch verschiedene Anpassungen und Variationen ausprobieren um eine akzeptables Hilfsmittel für mich zu finden das tatsächlich hilft .
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#looseskin #weightlifting #crossfit #crossfitgirls #hashimotos  #curvy #fattofit #obesetobeast #weightlossjourney #weightloss #bodypositive #ootd #spoonie #thick #lipödem #thickthighs #deinestarkeseite #lymphedema #Frauensache #plussize #effyourbeautystandarts #bopo #lipedema


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I need this shirt like woah. Now if only the sizing wasn't unisex (which literally means men's, why is no one honest about this?!?) By @adamtots #chronicillness #funny #spoonie #fibromyalgia


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Jeg har trukket stikket - og sagt #fuckgigt ekstra højt, skredet på Jelling festival og gir den max gas, på mit eget niveau de næste dage✌🏼🍻 #pissefedt #sammenmedfnug #fnug #ungmedgigt #gigt #rygsøjlegigt #as #ankylosingspondylitis #spondylitis #spoonie #festival #jellingmusikfestival


4

It's safe to say that I'm already bored out of my mind. I've been signed off until the 2nd of July and I'm finding it hard kill time. Netflix is boring. Day time TV is boring. PS4 is boring. I can't really go out for walks because I find it exhausting and plus I'm still really sore. I have good days and bad days with my body. It's just over 3 weeks post op and I still feel like my body has been beaten up pretty hard. Despite this, I'm still really grateful that my op was a success 👌

#ibdfreedom #ibd #ibdawareness #inflammatoryboweldisease #ibdwarrior #colitis #UlcerativeColitis #UC #Crohns #crohnsandcolitis #spoonie #invisibleillness #chronicillness #chronicpain #health #jpouch #ileostomy #ostomate #raiseawareness #nocolonstillrollin
#ps4 #netflix #bored #recovery #postop #archer


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#Repost @ehlers.danlos with @get_repost
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For gymnasts, dancers, acrobats, and skaters, natural hypermobility can be a great blessing—until it isn’t—especially for those born with hypermobile Ehlers-Danlos (hEDS) or a hypermobility spectrum disorder (HSD). To help families understand these challenges, The Ehlers-Danlos Society is raising awareness about hypermobility within the dance, gymnastics, and acrobatic communities.

REACH OUT and help us get the word out today!

ehlers-danlos.com/edsgad/

#FragileButUnbreakable #EhlersDanlos #dancer #ballet #ballerina #maledancer #danseur #gymnast #training #Splits #oversplits #RSG #flexibility #gymnastics #hyperextend #EDSAwarenessMonth #ChronicPain #hypermobile #hypermobility #EhlersDanlosSyndromes #EDS #EDSAwareness #hEDS #ChronicIllness #Spoonie #ZebraStrong #DazzleTogether


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Sums up my life pretty accurately right now. Need to practice a lot more self care.


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T H R O W B A C K

I forgot to post for #throwbackthursday so here's a #throwbackfriday instead!

This is me, in stunning Vancouver, Canada last year.
We were lucky enough to visit and stay in a penthouse appartment with rooftop terrace which I'm stood on here. My husband's cousin was living out there through her husband's job so we got very lucky and were invited to stay with them.
I've been to quite a few places but Vancouver is one of the best. I instantly fell in love with the place. It has everything! City life, beaches, parks, woodland, mountains. Its just awesome and it made me feel amazing being there as it lifted my mood so much.
Travelling long haul with chronic illness was tough but so worth it for views like this.
If someone wants to pay for me to go back, that would be great thanks!


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Changing my diet has had the biggest impact on my health. Though not completely I have noticed the severity of my symptoms decrease. The only battle is finding the energy to cook. Last night I made this vegetable curry. I made loads and saved the rest to eat when I'm tired.
#fibromyalgia #fibro #spoonie #invisibleillness #chronicillness #chronicpain #cfs #fatigue #me #fibrowarrior #ptsd #cptsd #pnesseizures #chronicinfection #mentalhealth #anxiety #depression #recovery #recoverycollege #brainfog #awareness #homemade #myrecipe #veggie #vegan #curry


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So this is me for the next six weeks begrudgingly I'm going to have to restart antibiotics for #chroniclymedisease just so sick again, really probably not the best treatment but it's the best the uk can offer, this disease has made me so Ill I can afford to travel or have private treatment. Herx here I come 😢#lymediseaseawarenessmonth #lymediseaseawareness #pots #cfs #myalgicencephalomyelitis #spoonie #herx


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I woke up after fighting so hard to get the amount of sleep I did feeling intensely hypomanic 😌 Unfortunately my HR shot up so much just when I was sitting that it triggered #seizures, dizziness, being unable to talk etc...how am I supposed to do active shit when I can only lie down?! 😂 I'm gonna drink a buttload in the hopes I can at least sit up without seizures/turning to mush (yay for sleep dehydration 🙄). Our friend is coming over today so I at least need to be okay in the wheelchair 😂 I'm excited for today!
#butyoudontlooksick #chronicpain #chronicfatigue #chronicallyill #chronicillness #POTSsyndrome #disabled #disability #spoonie #transgender #trans #nonbinary #lgbt+ #bipolar #bipolardisorder #Transmasc #lgbtpride #transpride #hypermobile #wheelchair #puppy #Labrador


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Hey hey P-Town! Aunty Leasha is back in the house. LINK IN THE BIO to the latest @hunt4happy blog post: PALMY OR BUST? The journey so far...
P.S. These 4 delicious children are as @livingwiththeblacks Bella would so eloquently say: “LEGIT” my bonus living medicine! 💛
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#hunt4happy #mystory #story #blog #blogger #bloggerlife #chronicpain #chronicinjury #chronicillness #pain #fibromyalgia #spoonie #spoonielife #spoonieblogger #invisibleillness #family #mylivingmedicine #palmerstonnorth #nieces #nephews #healthymind #myyearofselfcare #happy #happiness


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Frosted Princess 😘

Do you play an instrument? If so, which?
Me: I used to play the clarinet! I can still play but it has been awhile. I still love listening to clarinet/piano music mixes.


1

Okay, last one🙈! Promise🤞🏻! I can’t get enough of these photo’s my dad made last weekend😍. Zayne is just so cute right?
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What are you doing today😃? We are going to Rotterdam, to see my grandmother and walk with her at “Kralingse Bos” and going to look for some cold drinks🍹 and a 🍦for Zayne with this amazing weather ☀️! ✖️✖️✖️✖️✖️✖️✖️✖️✖️✖️✖️
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#chronicillness #chronicpain #chronicallyill #spoonie #spoonielife #whipple #chronicallyfabulous #chronischziek #chronischepijn #blogger #feedingtube #influencer #pancreatitis #butyoudontlooksick #makeup #invisibleillness #spoonielife #spoonie #nederlandseblogger #health #beauty #fightlikeawarrior #pancreatitis #whipplesurgery #sickchick #sicklookslikeme #rotterdam


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I seem to have a particular theme for my "having a bad day" presents to myself
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#starwars #dinosaur #trex #lego #bb8 #legobb8 #metalearth #cfs #chronicillness #chronicpain #chronicfatigue #spoonie #spoonielife #treatyoself #milleniumfalcon #notthedroidsyourelookingfor


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Who else is enjoying this sunshine? ☀️ what a treat! Remember to wear sun cream to protect your skin and the #wheelAIR to keep your body cool! #NoSweat #Summer #Sunshine


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