#spoonie

Instagram photos and videos

#spoonie#chronicillness#fibromyalgia#invisibleillness#chronicpain#spoonielife#anxiety#depression#mentalillness#mentalhealth#fibrowarrior#ptsd#insomnia#selfcare#pots#recovery#tired#chronicallyill#spoonieproblems#fatigue#girlswholift#kidsgetMStoo#pediatricms#teenswithms#spoonies#dysautonomia#workingdog

Hashtags #spoonie for Instagram

🐴❤️🐕 Colt met Colt today. This was a two month old quarter horse Colt. It was fun to be able to do something with horses even if it was just for a minute because of my health. For anyone who might not know I rode my whole life, worked around horses my whole life, use to barrel race and horse vault. I rode both English, dressage and jumping & western. I miss it a lot. Love my babies. #ServiceDog #TBI #TraumaticBrainInjury #Fighter #IChooseJoy #YouTuber #Vlogger #TheLordIsMyStrength #IChooseJesus #Seizures #Survivor #HeroDog #RawFedDog #Blessed #DoNotDistractServiceDogs #Hypoglycemic #ChronicOvercomer #ICanDoAllThingsThroughChrist #HeIsGreaterThanI #ServiceDogColt #RealLifeDory #JustKeepSwimming #TrickDog #InvisibleDisability #Spoonie #Syncope #StruckDownButNotDestroyed #TonicClonicSeizures #ChronicPain #FearIsALiar


0

My beautiful partner and I went on a wonderful day to day. He took me to the mall and out to dinner. Was extremely low on spoons today and had to use my wheelchair in the mall and was still really tired but still had a good day. Not ashamed to say my partner and I are both individually in therapy and occasionally go to couples sessions. Really glad my therapist suggested weekly date night. It has definitely reinvigorated our relationship. [Image Description: selfie of Zoe and her partner Wesley.] #depression #ocd #anxiety #anxious #mentalillness #chronicillness #chronicpain #spoonieproblems #spoonie #spoonielife #spooniecommunity #nospoons #fibromyalgia #fibrowarrior #fibrolife #dysautonomia #dysautonomiawarrior #dysautonomialife #potssyndrome #posturalorthostatictachycardiasyndrome #ncs #neurocardiogenicsyncope #allergylife #allergies #chronicmigraine #babewithamobilityaid


0

This bamboo has become quite a pain in the ass!!! Roots and shoots everywhere!! If anyone has any advice on how to kill leftover roots (kid and pet friendly preferably) once I take out what I can it would be appreciated. From what I've read it's hard to kill. Never plant bamboo next to your house without containment, while pretty it can create issues.


1

New blog post up on www.dawnzauner.com! "5 Steps To Accomplishing Goals with a Chronic Illness"

#writer #motivator #dreamer #chronicillness #chronicbadass #spoonie #invisibleillness #chronicpain #chronicillnesswarrior #influencer #blogger #motivation


0

Its been a hard week all around, physically and emotionally. I'm beyond greatful for the weekend. It will be full of self care, which will include art, movies, food, and sleep. How will you #recharge this weekend? .
.
.
#selfcare #chronie #spoonie #tired #weekends #friyay #coffee #music #sleep #celiac #weekendvibes


0

Stiff neck and shoulders? Try stretching and rolling out your inner thighs for relief. Sound counter-intuitive? 🤔
.⠀
According to traditional Chinese medicine, acupuncture, and some schools of massage, the shoulders and the inner thighs are on the same meridian, or energy pathway. Whether you’re a big proponent of Eastern medicine or not, most of us have over-tight shoulders from living hunched over our devices, so it’s worth a shot. ⠀
.⠀
Find an easy butterfly pose by placing the soles of the feet together. Bring the hips up closer to the feet, then press your hands or elbows into the calves and thighs to deepen the stretch.⠀
.⠀
.⠀
#chinesemedicine #acupuncture #meridians #easternmedicine #stretching #shoulderrelief #tightshoulders #necktension #shouldertension #painrelief #spoonie #holistichealing #holistichealth #yogateacher #yogamindset #mindbodyspirit #mindbodydharma #feelvibrant #fibromyalgia


0

Blurry picture happy family 🤩
.
.
I love these ages! My youngest is old enough that public outings are actually fun (I never enjoyed taking babies out places 😬) and my oldest is young enough that he still wants to go out in public with me 🤓 .
.
We went out to dinner at @rainforest_cafe tonight and it was fun! #familynight #parenthood #thesearethebestdays #thrivingonwellness


1

Friendly reminder to love yourself up with compliments before heading out the door this weekend. Prince Charming isn’t coming because, alas, he’s just a fantasy. No one knows just the kind of compliments you need and desire but you. Fill yourself up with love and anything thing else is the cherry on top of it all. 😘
😘
You are safe. You are beautiful. You are held. You are loved. (And you’re super sexy, too.)
😘
Happy Weekend! 💃🏻
💃🏻
#imowningitall #bigdreamsbigmess #sistergoddess #femininepower #radicalselflove #treatyoself #selflovewarrior #selflovejourney #selflovefirst #acceptyourself #embraceyourself #Arieswoman #spiritualgangster #spiritualgangsta #synchronicity #Spoonie #Spoonielife #autoimmune #chronicillnesslife #t1diabetes #diabeticpower #t1dwarrior #t1dstrong #diabadass #lovingthesinglelife #singlelifestyle #lovingmyself #singleandhappy #dontfollowthecrowd


0

Can you think of ways of we can help out with this issue?

This month is dedicated to providing hope and connection to all walks of life, ensuring that you will have a place to go, always.
#stopthestigma #mentalhealth #mentalhealth #mentalhealthawareness #mentalillness #invisibleillness #spoonie #endstigma #healthycopingskills #coping #selfcare #selfhelp #stayalive #mentalhealthmatters #yourstoryisntoveryet #breakthesilence #stigmafighter #recovery #art #expressyourself #Sdurbanbeats #educationalelephant
If you or someone you know is struggling and needs support, please call the National Suicide Prevention Lifeline at 1-800-273-8255 or text START to 741-741 to get connected to Crisis Text Line.


0

Ten photos to sum up what life was like living in Fort Collins before I met Jacobi (husband). I found this apartment on Craigslist and signed the lease sight unseen and it worked out way better than it should’ve. I was getting physical therapy at CSU but it wasn’t really helping. I couldn’t see any doctors outside of the college health care system, which was fine I guess. More of a bandaid on bullet holes sorta thing. These were the last of my party days, and they still we’re few. But I did have fun! I was on tinder a lot and that was new and exciting. I was in college and trying to make friends which was hard but fun. My arms were just hindering everything but I had no solution but to keep going so I did. It was generally fine, tbh. I hurt but I just ignored it. Which took a lot of my patience and wore me down to near depression. Definitely not the best route but it helped me survive college. Days before Jacobi were fun but never as fun as being with him and now married to him! I’m going to double post to comment on the worst specialist I have ever been to, because she was a horrible person and deserves her own post. Anyways. This is another installment of my life and the road to diagnosis. It was fun. Life is fun-er now.


1

Little flashback 📸. After my gastroenterologist put me through colonoscopies, endoscopes and nuclear medicine scans he suggested I see a gynaecologist. I remember waking from the laparoscopy and crying for practically two days straight. Had to take a break from being the nurse to be the patient and it’s hard to be in such a vulnerable position. Im so grateful for all the staff who have treated me these last 8 years and I am so proud of our NHS. 💙 #laparoscopy #surgery #endometriosis #gynaecology #fatigue #chronicillness #chronicpain #invisibleillness #awareness #recovery #ibs #ibsawareness #positive #positivethinking #spoonie #chronicfatiguesyndrome


0

🍉🍉 Watermelon Strawberry Smoothie 🍓🍓 I have always wanted to make a watermelon smoothie (rind and all) but never owned a blender that could do the trick....that is until now! My Vitamix A3500 handled that rind and seeds like a champ...it was smooth like vegan butter 😂😂 I didn't actually measure anything, but it was really good and was approximately 20oz.
I used coconut water, watermelon (everything), and a handful of frozen strawberries. It wasn't very sweet, which was perfect for me! Swipe ⬅️ to see my Vitamix in action. .
.
.
.
.
#Fibromyalgia#fibrodiet#fibrowarrior#plantbased#blackvegan#myhealthyjourney#myveganjourney#personalblog#stlmo#stlblogger#chronicillness#spoonie#flareup#superfoods#lifestylechanges#healthyalternatives#naturalhealing#healingfoods#watermelon#watermelonwithseeds#seededwatermelon#smoothistime#vitamixa3500#vitamix#watermelonstrawberry#lycopene#watermelondrink#coconutwater#healthbenefits


1

I impressed myself big time with dinner last night... I made my own nightshade-free Thai curry paste based on @asaucykitchen’s curry paste from her Low Foodmap Thai Green Curry Recipe. It sounds hard but was actually super simple and effortless as I just threw all the ingredients in my food processor. Then I used it to make Thai Green Curry Zoodles which was (very) loosely based on @perrysplate’s Thai Green Curry Zoodles with Shrimp. I served it like I learned in Vietnam with lemon and herbs on the side. It was super delicious, very easy to make and something I’ll definitely make again...
.
.
.
In my bowl is: Thai Curry Zoodles with chicken, coriander, mint and lemons...
.
.
.
#foodie #foodphotography #foodstagram #foodporn #spoonie #selfcare #selflove #nourish #healthy #health #healthyeating #cleaneating #healthyfood #eatclean #paleo #whole30 #lowcarb #nightshadefree #yummy #delicious #grateful


0

View from atop the Arc de Triomphe.
BEFORE IT WAS THE ARC DE TRIOMPHE, THE SPACE WAS ALMOST DEDICATED TO A GIANT ELEPHANT.
Pre-Napoleon, French architect Charles Ribart proposed a three-level, elephant-shaped building that would be entered via a spiral staircase that led up into the elephant's gut. The furniture would fold into the walls and there would be a drainage system in the elephant's trunk. Ribart was all set to start building, but the French government ended up denying his request to erect the giant pachyderm.
.
.
.
.
.
.
.
.
.
.
.
#ourkidstravel #travelshow #webseries #darlingescapes #glt #sidewalkerdaily #aggietribe #girlsthattravel #europeforthesummer #arcdetriomphe #livingourbestlife #visiteurope #heritagetrip #Paris #familyvacay #France #dreamitdoit #bestplacestogo #Europeanadventure #Ihopeyougetthechanceto#livelikeyouweredying #celebrationoflifetrip

#hertravelle#spoonie#dametraveler#wanderlust


1

Well, I significantly over did it today. Accidentally, but I still did over do it, so that’s my weekend set down.😕
I met a friend at the park for a catch-up (we’ve seen each other in passing at the kids’ things, but haven’t had a proper visit in several months), and we were having such a lovely long talk that I didn’t realize that the sun had come out and was on my arm. Sunburns have always gone rough with me, but since the onset of fibro they’re even worse, and pretty well guaranteed to trigger a flare.
It’s a pattern I recognized well before I was actually diagnosed, but just chalked it up to “getting older,” and thought the resulting flare (as I now know it to be) was a bit of sun/heat sick. I am in good spirits, having had such a nice visit with my friend—we caught up on all the things our kids are doing, what we’re doing, what our hubbies are up to, current events, our chronic illness developments (she’s a Spoonie too, and the first person I told about my diagnosis, actually, outside family). Just one of those dear friends you can talk and talk and talk with, and never run out of things to say. But having been so busy talking that I didn’t notice the sun, I’m going to pay on that account, and I’m feeling very exhausted, which may just be the spoons I used to get dressed and go out, but I feel rather more drained than that should account for...
I was not feeling 100% when I woke up (100% for me and my current status, versus 100% by a healthy person standard), but pushed on and went anyway, as I was so excited to visit with my friend. Perhaps that was the mistake, and I should have rescheduled, or it could just be that the sunburn put me over the edge? These are the things I’m trying to learn and figure out how to accurately assess, now that I know they are part of my new normal. Luckily there’s only one thing happening over the weekend that I have to do, and it’s on Sunday, so hopefully I will be able to save up on spoons tomorrow for managing it. *Sigh* My learning does not seem to be going along particularly quickly, I’m afraid.


1

It maybe 9 degrees but that doesn’t mean I can’t over heat. #spoonie


0

Also known as walking death. ☠️


1

This morning, we hit the road at around 4:30am to head out to the first of 4 doctors appointments I had (my teams are on the other side of the state and I go at least 1x a month). Knowing I would be on the road for almost 3 hours, and then in back to back appointments after, I postponed taking my diuretics until the evening,a decision that would prove to be a terrible idea. Now I'm sitting in a hotel room, feeling like crap and with my swollen legs sausage casing'd into a pair of compression stockings I had to get because all of mine are at home. The fluid will come off tonight, or will mostly, that I am sure. Still upset at how my body can no longer regulate things like this because of my heart failure.
.
.
.
#piccline #milrinone #hypertrophiccardiomyopathy #heartsurgerysurvivor #heartfailure #hearttransplant #pretransplantlife #congestiveheartfailure #zipperclub #hcm #cardiomyopathy #chronicillness #spoonie #heartwarrior #heartdisease #openheartsurgery #hypokalemia #potassium #chf #lowpotassium #edema #fluidoverload


0

He’s so worth the wait, but I’m glad I only have to wait 15 more days 😂 I really can’t emphasize enough how incredibly hard John David works in school, jobs, and at home to take care of me and make sure things are as easy for me as possible. He’s made chronic illness so much more bearable and while I know I may never be at 100% again, he is still willing and happy to marry me and I think that makes me the luckiest girl alive 💙



#wedding #chronichope #engaged #highschoolsweethearts #younglove #pots #spoonie #funsizebride


1

I wanted to post this video to show that no dog is perfect. Koda has been working non stop, usually 8 hours, for the last couple days. Yesterday I wanted to give her a little breather by bringing her as emotional support for the family who had lost their son this past weekend. Later in the evening I decided to videotape Koda practicing some PA. She has great etiquette while vested, though it is always great to practice when she isn’t working so she can understand she should always keep that etiquete. She did have a few hiccups throughout the video, though I brought it to her attention and she snapped out of it. Koda isn’t perfect, there is always something we are working on. Even if it is as simple as sitting in the proper place in a heel. •••🐾•••
#labradorretriever #blacklab #labrador #labsofinstagram #servicedog #servicedogintraining #servicedogsofinstagram #respectthevest #lab #labradorable #invisibleillness #workingdog #puppiesofinstagram #chronicillness #dogtraining #psychiatricservicedog #dogsofinstagram #talesofalab #labradorretrieversofinstagram #englishlab #disability #spoonie #spooniestrong #spoonielife #riverdoggear #patienceandlove143 #greydogsdesign


2

“The greatest privilege that comes with the freedom of speech is using your voice for those who don’t have one.”
•••
Another crazy filled day. My colt is feeling much better today. A lot more hyper. It will be hard to keep him stalled for a few months.... we have a dog show tommorow! Lots of fun with some of my favorite people!
•••
#dog #workingdog #servicedog #dogsofinstagram #dogsofig #aussie #australianshepherd #merle #cute #puppy #spoonie #love #cute #summer #follow #beautiful #happy #instadaily #photography #relationshipgoals #blackandwhite #joy #animallover #horse


0

(Another #TW because I’m in a relapse funk lately)
Am I puking because of GP or purging? Who knows?? I don’t. I went to the vet with my mom to talk about end of life care for my dog. We’re trying yet another new medication, and if and when it doesn’t work we’re probably gonna put him out of his misery. He’s 13, has severe arthritis, hip dysplacia, cancer in his side/stomach, and sounds so sad and labored when he breathes. He’s incontinent and has been for 2 years; he literally has to have a blanket under him 24/7 so he doesn’t poop or pee on everything in sight. He has such a hard time walking that sometimes he needs to be picked up, and he falls like 50 times a day. I knew this was coming, the vet said we needed to start planning for it last time we were there, but it’s still hard. I cried at the vet, cried in the car on the way home, and then binged and threw up because I was so full and nauseous. I hate myself. I hate that this is happening and that I’m projecting it onto myself, but I am. My dog has been my best friend since I was 8 years old; I’m gonna be 22 this year. He’s been with me through all the hard times. I picked him out myself from my aunt’s litter and went to see him and his siblings every single day until we brought him home. I don’t know what I’ll do when I don’t have him. I don’t wanna live in a world without my dog.


1

#Repost @runningwithgbs with @get_repost
・・・
Well, today was definitely a day. Needed that, and so glad my body cooperated and I had the energy for it. Not much, but a little speedwork on the treadmill.
.
.
.
.
.
.
Go to www.juststrongclothing.com and use my code MSANDER10 for 10% off your order! Or, click the link in my bio!
.
.
.
.
.
#juststrong #juststrongclothing #juststrongteam #motivation #run #runner #running #lifting #girlswholift #longdistancerunner #longdistancerunning #lifting #weightlifting #strongwomen #womenmotivatingwomen #gbssurvivor #gettingbetterslowly #GBSsucks #spoonie #spoonielife #spoonies #spooniefit #spooniefitness #spooniemotivation #dancer #spoonierunner #spoonielifter #spoonieliving #spooniestrong


1

Super sleepy and say for bed but gotta finish a few things first.... And then tomorrow is my Friday and I get to go home 🖤
*
*
*
#chronicpain #depression #anxiety #depressionsucks #fightdepression #depressionlies #stillfighting #mentalillness #invisibleillness #chronicillness #chronicallyill #fibromyalgia #fibro #fatigue #chronicfatigue #insomnia #pain #spoonie


0

"Health is the greatest gift, contentment the greatest wealth, faithfulness the best relationship" -Buddha
My favorite person helping spot me while I work on correcting my form in #sirsasana 🧘‍♀️ Working on 6 years of trust and faithfulness which is the greatest gift you can receive 🦋

#kraveradiance #yoga #yogi #yogaspace #thankful #yogapractice #yogaeverydamnday #strength #fit #fitness #core #healthy #spoonie #chronicillness #bestfriend #buddha #faithful #trust #instagood #beautiful #growtogether #thrive #hesdstand #nofilter #happiness #mancandyeveryday #bum #kisses


2

I took myself on a lunch date today in celebration of nothing in particular aside from the fact that I had not been to a sit-down restaurant in a long time and wanted to go. I was only able to eat one slice because the salad and fries filled me up, so I have lunch and dinner for a couple of days now. My date was really quiet and kept writing things down on her phone and she looked just like me. Not sure how I feel about her, but the pizza was good. 🍕


2

Avocado is dangerous for you babe, the surveillance is intense today
679^8,14, avocado chicken and 蕃薯苗
------------------------------------------- #darlingmovement #trigirl #chronicillness #thatsdarling #morningslikethese #fooddiary #vscocam#livefolk#liveauthentic#t1d#freestylelibre#yogaeverydamnday#cleaneats#yogagirl #foodlog #spoonie #smile#cats #swimbikerun #triathlon #beatinged#catofig


0

So I went to the county fair and I did my usual routine and plastered myself in sunscreen. We were only there about an hour and I stayed in the shade as much as possible. Later in the day I developed a fever 🤒 and broke out in hives. Some Benadryl and time later I have to realize that sunlight is one thing I can no longer be in without some serious complications. So say hello to my new UV umbrella 🌂. There are a lot of umbrellas that say they offer uv protection but you need to be careful and make sure the company is certified. Still working on getting clothes but it looks like I am going to have to buy fabric and make my own. #alergictothesun #hivessuck #mcad #mastcellactivationdisorder #hyperadrenergicposturalorthostatictachycardiasyndrome #pots #heatintolerance #newhealthcaretool #tryingmybest #spoonie #spoonieproblems


0

Returning to self care after 2 months of chaos. First of 5 massages scheduled over the next 6 weeks. Progress! #selfcare #spoonie #massage #fibro #fibromyalgia #cfs #sibo #invisibleillness #chronicfatigue #chronicillness #chronicpain


0

CLC MEMBER FEATURE: Hi, my name is Jess (sometimes known as One Tough Cookie) and I’m almost 15!

When I was 10 years old, I started experiencing extreme headaches and nausea, which prompted my mom to take me to the doctor. My pediatrician knew something was very wrong. He sent us to our local children’s hospital right away to get a CT scan. The results showed something most 10 year olds have never heard of, an inoperable brain tumour. The dancer, athlete, happy-go-lucky kid was gone. My treatment protocol was 70 rounds of chemo. Shortly after round 9, I woke up with very concerning symptoms. My mom called 911 and feared I was having a stroke. I was rushed to the hospital by ambulance and had an emergency MRI that revealed my tumour had not been responding to treatment and had grown to the size of a small orange. My tumour that had been deemed inoperable had to be operated on to save my life. The surgery came with many risks, hemorrhage, having to relearn how to walk and talk, not being able to breathe on my own and the possibility I wouldn’t make it through. The surgery was over 8 hours, and I made it through, with a large portion of my tumour gone and was able to walk and talk. This wasn’t the end of my journey though, the damage done to my brain from my tumour and treatments caused me to have many long-term effects. I developed epilepsy, optic nerve damage, a growth hormone deficiency and that’s just scraping the surface. My tumour still remains, but I am not receiving any treatment at this time.

I recently finished my first year of high school, am back at dance and playing sports and I'm loving it. After missing almost all of grades 5-7, it feels great to be living my “new normal.” I live by the saying “Not every day is good, but there is something good in every day.” It’s true, you just need to find the good.

With love and light, xo Jess
#chronicloveclub


24

I’ve noticed these community’s here on instagram are very separate. I’ve also seen a lot of hate and negativity come from the so called “spoonies” directed towards those with mental illness. It’s time someone merges the 2 together because with out mental health can you really be healthy? and with out physical health can you have mental health?#mentalhealth #physicalhealth #mentalillness #mentalhealthmatters #bpd #borderlinepersonalitydisorder #mentalhealthcommunity #chronicillness #spoonies #spoonie


2

A lil cbd vape sesh in bed. #hempbombs vanilla cupcake 🎂 and crushed🍍


4

Ugly picture, BUUT ya girl made tofu wraps for dinner 💁🏻‍♀️
They were delish, ‘twas tofu, mushrooms, zucchini & tomatoes with a bunch of different seasonings. Spread some mayo out on a wrap and BOOM! Was super hungry so had two today! 🤷🏻‍♀️
#tofu #veggiewrap #weightlossjourney #livethankful #positivementalattitude #blogger #fibromyalgia #spoonie #bipolar #wisewords #quotes #borderlinepersonalitydisorder #recovery #inspiration #life #spirituality #mindfulness #anxiety #quotes #itgetsbetter #mentalillness #mentalwellness


4

* F/U day
매번 오는 팔럽 이지만 매번 긴장 되는건 어쩔 수가 없나보다.
상태는 점점 안 좋아지고 있는데 한국에는 당장 나갈수가 없어서 어쩔 수 없이 호르몬치료를 다시 시작해야 한다고 한다.. 이번엔 또 얼마나 버틸지 모르겠지만 당장 다른 옵션이 없다 ㅠ.ㅠ
언제까지고 마약성진통제로 버틸수만은 없는 노릇이기에.. 치료가 너무 힘들지 않으면 좋겠다. 😷
아무튼 약 받고 또 그렇게 두달 생명연장 완료! 😘
그 사이에 이머젼시가 없길 바랄 뿐..😂
.
.
.
진료보구 코스트코 약국가서 약 찾고 피자도 먹었다. 좋아하는거 먹으니 금세 기분 좋아짐😄
.
.
.
쌤이 긍정적인 생각을 갖고 약 먹어야 효과가 더 좋게 온다고 했으니 다음 팔럽 전까지 행복한 생각 많이하구 맛난거 많이 먹구 운동도 좀 해서 컨디션 확 올려서 가야지.😉
.
.
Vas 4
.
.
.
My condition is getting worse, but I can't go to Korea yet. I had no choice but to start hormone therapy again. I hope the medicine will ease up on pain and lesions. And I hope I don't get too tired during treatment. Let's think about many positive things. I can handle that for sure!!!!! 👊💪 Let's hold on again. 👏
.
.
Vas 4
.
#deepinfiltratingendometriosis
#endometriosis #stage3 #자궁내막증3기 #vicodin #promethazine #narcotics #마약성진통제#endowarrior #endobelly #endopain #endofighter #endosister #gy #spoonie #spoonielife #난치성 #질환 #투병일기 #만성질환 #소외질환


0

super hero lady queen


1

Moved some weight today and it felt great.
💙
Also, spent some much needed time with my Grandaddy 🖤 we talked about powerlifting and he was so proud of my max weights. He told me he expects a 135 bench outta me soon, looks like I have some work to do 💪🏻
.
..
...
#iam1stphorm #duespaid #gravesdisease #thyroidwarrior #ketostrong #girlswholift #spoonie


0

What the enemy intended to bury you, God will use to help you grow. 🌱


2

You never know what you are capable of until you are faced with a challenge. #lupusawareness #fibromyalgia #spoonie #fight #healing #chronicillness #foodmatters #lupuswarrior


1

🔥🦄 #fairytalefriday 🔥🦄 this #princess has been #fighting some #crazy #health battles lately ... so I thought this #art was fitting 🤣 😎 😅
💖
What health issues do you guys face? Are you pretty healthy? A #spoonie?
💖
TY for looking / liking / commenting / following ♡♡ #disney #waltdisneyworld #wdw #buildaladder #photography #disneyprincess #cinderella #cinderellascastle #fairytale #hair #longhair #kawaii #lolita #invisibleillness #zebrastrong #unicorn #unicornstrong #thespoonielife #thespooniesisterhood #chronicillnessfighter #dream #magickingdom #pixiedust ♡♡ lots of love & virtual hugs


0

Don’t be ashamed by your story. It will inspire others. I have met so many amazing women through my @lularoe journey. Looking forward to meeting more next week in California. #lularoevision18 #womenhelpingwomen #lularoe #lularoewithlisafilson #lularoemaxi #lularoegigi


3

Support is always important! Remember to be there for others and they will be there for you. We have a strong community! ❤️#Repost @chronically.ill.coral.2018 with @get_repost
・・・
Thank you to those who reached out to me in response to my last post. I love how supportive this Instagram community is! 💛
I’m not feeling so bad today, thankfully. I hope everyone else is feeling good and having a nice day 🌞
I have quite a few people visiting me this weekend, yay! It will be knackering but I’m so excited to see them! 😁
.
.
.
.
.
#sickbutstrong #me #recovery #pwme #mecfs #spoonie #disability #invisibleillness #spoonielife #spooniesupport #fatigue #cfsme #chronicfatigue #chronicfatiguesyndrome #myalgicencephalomyelitis #bpd #bpdrecovery #mentalhealth #mentalillness #chronicillness #chronicillnesswarrior #millionsmissing #chronicpain #pots #disabilityawareness #meawareness #merecovery #cfsrecovery


1

Filming "How to test for POTS at home" Feeling pretty with my war paint on. I don't do my make up often but have found a new desire to experiment with it. What do you do to cope with your chronic illness? #betrayalofthebody #nofilter #POTS #dysautonomia #PMTTT #activestandingtest #thespooniesisterhood #zebrastrong #spoonie #cancersurvivor


0

Sittin Pretty with my #RustyTrustyCane at my monthly #PainManagement appointment this morning. I had my first round of #TriggerPointInjections in my back. The procedure itself wasn’t bad but I’m pretty sore now, so I’m taking it easy, in bed with ice packs on the injection sites. #WithPainComesStrength 💪🏾 #EffYourBeautyStandards #HospitalGlam #InvisibleIllness #ButYouDontLookSick #Spoonie #SpoonieLife 🥄 #ChronicPain #Neuropathy #ImmunodeficiencyDisorder #Lupus 💜 #AutoimmuneDisease #AutoimmuneWarrior #LifeIsBeautiful


3

I haven't posted in awhile because i took a much needed break as i became a mother to an amazing little boy. Gunner was born April 17th and spent 1 month in the NICU, 3 months later you could never tell he was born 6 weeks before he was supposed to. He is such a little miracle and being terminally ill i never thought i would ever get to have children let alone have the strength to raise them, well Gunner proves to me every day that i am a lot stronger than i think. From the first time i saw him after undergoing 5 surgeries to bringing him home and seeing how excited Nygma was to be a big brother. Every day i take for a blessing and enjoy every moment i have on this earth

#3monthsold #newmom #1sttimemom #momlife
#terminallyill #spoonie #chronicallyill #onedayatatime #preemie #NICU


0

Didn’t even start yet 😝 #nopump


1

🤢😴
I’m constantly sleeping
I hate my stomach so much
#spoonie #tired


1