#spoonie

Instagram photos and videos

#spoonie#chronicillness#chronicpain#spoonielife#invisibleillness#fibromyalgia#anxiety#butyoudontlooksick#chronicfatigue#chronicpainwarrior#antipsychotics#endometriosis#health#invisibledisability#fibrowarrior#memes#love#aspergers#chronicillnesswarrior#disability#ehlersdanlossyndrome#fitness#mentalhealth

Hashtags #spoonie for Instagram

Period Alert - Adenomyosis is my diagnosis ... the pain today is pretty bad and my period was unexpected 🙄.
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People have no idea the battles people go through... @flow.days made me giggle with this today but also was crazy how strongly I can relate.
#adenomyosis #cramps #bloating #heavyperiods #menstruation
#fibromyalgia #fibrowarrior #fibrocommunity #potssyndrome #potssyndromeawareness #hypermobility #hypermobilitysyndrome #anxiety #anxietyproblems #mentalhealth #spoonie #spoonie #ehlersdanlossyndrome #idiopathicintracranialhypertension #intracranialhypertension #invisibleillness #invisiblepain #chronicillness #chronicpain #community #chroniccommunity #asthma


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Ah #eds life, and #spinalstenosis joining in on the fun. Meds aren’t helping, I can’t use my lidocaine patches because they are now giving me a rash and hives, I’m assuming from the adhesive, and sleep is just not in the cards. Curled up with my @warmies_usa hippo, propped as comfy as I can get with pillows, and just thinking. The one thing about #painsomnia is it truly gives you time to think. To think about life, what you thought it would be, and what it really is. And sometimes that hurts more than the physical pain. I love my life. I have an amazing partner, two amazing dogs. Friends that are as close as family. Planning a wedding I can’t wait for. But I’m also trapped in a body that I have to fight with to have some semblance of normal. A body that constantly betrays me. A body that I would give anything to make normal. And those thoughts are ok. It’s ok to not be ok. But in the morning I’m going to get up and do it all again. Because I’m thankful that I can get up and face another day. I might be exhausted and in pain but each day is an incredible gift. .
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#ehlersdanlossyndrome #zebra #spoonie #dysautonomia #pots #potssyndrome #potsie #gastroparesis #gp #tubie #feedingtube #webe #webewarrior #healthbeme #ichoosejoy #fighter #chronicpain #pain #chronicpainwarrior #meme #share


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I just read Chapter 6 of the @davidgoggins book #canthurtme where he delves into his #cookiejar of triumphs to fuel his psyche to run 101 miles with zero training. While I admire the sheer mental grit that overcame fractured feet and probable kidney failure to complete the challenge, I also think running 162.5km without adequate preparation, hydration or nutrition is a silly thing to do. But, this is a guy who doesn't know the word 'no', and I do like the idea of mining your mental cookie jar to overcome your body's protests. I have learned myself that the brain wants you to be safe and comfortable, and your body can always do so much more. It's good to have tools for extracting that extra effort. So I am writing my list of 'cookies' - personal feats where I went beyond the ordinary to achieve a goal - to have on hand when the going gets tough. I will need them if I am to pursue my #challenge60 😎
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Cute cookie compliments of @ironmandrea_aus 🍪
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#gutsy #beatibd #missionremission
#positivity #gratitude #motivation #health #fitness #spoonie #ibd #ibdawareness #inflammatoryboweldisease #ulcerativecolitis #selfcare #healthchallenge #healing #butyoudontlooksick #smilingspoonie #mindfulness #hollistic #vedolizumab #progress


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You must tell yourself, no matter how hard it is, no matter how hard it gets, you will undoubtedly make it.
#growthgamediary .
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#fucklyme #spoonie #joy #freespirit #healing #loveyourself #happy #love #inspire #quotes #selflove #wellness #anxiety #grateful #fuck #brave #kindness #mentalhealth #growth #awesome #goodvibes #goals


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Walking boot status update: Still can’t walk in it! I’ve found my calling (from a seated position) though...I’m making my way as an oversized elf! So far, more the wrapping kind, and less the flying kind 🧚🏼‍♀️ #thisisms #staresandsteps


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Some days, is not about health or building muscles....
It’s just therapy . -
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#strongwoman
#health
#fitchick
#spoonie
#dysautonomia
#potssyndrome
#crossfit
#girlswithmuscle
#biceps
#fitforlife


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You count 💛

Life can be unpredictable, but what’s even more unpredictable is a chronic illness. One minute you are out for a walk the next you are alone in a hospital bed.
We have no clear treatments, answers, and income. We take days of school, work, and everyday life.

This time of year can be overwhelming for people with a chronic illness. So just simply support us and say. I’m sorry you are tired, can I bring you some food.
Because this time of year brings extra stresses. After a year of not working too much the thought of buying presents is daunting. So I am making mine. Some homemade face wash.

Go easy on yourself 💛

Leesa x


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‪Take a moment to yourself to think of something that brings you joy or even a bit of laughter. Allow that feeling to rise and hold on to it. 😃Carry that smile with you warriors - I hope it’ll make a different to your day like it has to mine in the past! ‬
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#PainWarriorPepTalk #PainWarriorCode #Spoonie #ChronicIllness #ChronicLife #CRPS #POTS #EDS #LymeDisease #Lyme #Fibromyalgia #Fibro #Migraine #ChronicMigraine #ChronicPain #InvisibleIllness #MultipleSclerosis #AnkylosingSpondylitis #Lupus #Dystonia #Autoimmune #Gastroparesis #Endometriosis #IBS #Colitis #Chrons #RA


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I meet a new Gp a few weeks ago and she actually told me to start taking paracetamol as there was no reason I shouldn't be working. This was STRAIGHT after I told her no painkillers ever help. Plus Fibro is way more than just pain, I wish they understood 😣
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.#fibro #fibrowarrior #fibrofighter #fibrofog #fibrospoonie #spoonielife #spoonie #chronicpain #invisbleillness #chronicpainawareness #fibromyalgia #chronicpainwarrior #fibromyalgiamemes #fibromemes #chronicpainmemes #spooniememes #illnessmemes #depressionmemes #memes #spooniememes


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In case you didn't know, along with posting some fire memes, we're also an ultrasound & gynaecare practice located in Sydney, Penrith & St Leonards, Australia. We specialise in diagnosing & helping to manage endometriosis, along with performing ultrasounds, diagnosing other pelvic related illnesses and more. Click the link in bio to find out more if you live around the Sydney area.
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#endo #endometriosis #endoawareness #endostrong #endolife #endometriosisawareness #endodiagnosis #ChronicIllnesses #endobelly #spoonie #endowarrior #pcos #womenshealth #fibromyalgia #endometriosisaustralia #sydneyhealth #endendo #spoonie #infertilityawareness #cure #findacure


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🌸 Happy birthday 2 me • Sometimes in life you just can’t control things • I turn 26 today and had planned to go and have my hair done then go for a birthday dinner in London with my family 💇🏼‍♀️🥂• However, my body had other plans - yesterday morning, I came down with the worst coldy/fluey symptoms & haven’t been able to get out of bed since 🛌• I tried to manifest my positive thinking technique, telling myself I’ll wake up this morning feeling as good as new, but today is even worse! • 🌸
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A few years ago, I would have been outraged at the injustice of this - how dare my body be ill on my birthday of all days?! 🙅🏼‍♀️• But if chronic illness has taught me anything, it is acceptance • Sometimes we just don’t have a choice • Sometimes we are better off not fighting the facts in a bid to deny the truth • I know now my fastest route to recovery involves not letting my body use any of its precious energy feeling emotions of anger, injustice, sadness or envy that would only be natural in this situation • 🌸
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So today, rather than resisting the facts, I choose to be grateful for the positive life lessons that CFS has taught me, & grateful to be able to spend the day in bed recovering in comfort & all the excuses in the world to watch tv alllll day 📺• I’ll probably have a couple of wobbles, but I’m only human & I’ll just keep telling myself that there will be loads of years in the future to celebrate and make up for this one • 🌸
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And although it’s definitely not allowed, especially when my immune system is already down, I might even treat myself to some birthday cake! 🍰 • 🌸 #healingmeharriet 🌸


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Cream puff❤️ This morning I had severe pain and it was difficult to get up. After getting dressed, I did some housework and went to the library. However, I was hard to move with severe pain and returned home immediately. I thought I shouldn't overdo it. I need to think about how many spoons I have😌
#おやつ #シュークリーム #セブンイレブン #デブ活 #creampuff #線維筋痛症 #fibromyalgia #fibromyalgiaawareness #chronicpain #spoonie


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🧚🏼‍♀️💜Reposted💜🧚🏼‍♀️ Today I have woken in absolute agony all over 😫 I have a headache, can barely move and I just want to curl back up in bed and sleep....
But you know, I have work so.... #fibromyalgia #myalgicencephalomyelitis #fibrowarrior #chronicpain #chronicillness #chronicfatiguesyndrome #spoonie #spoonielife #ifightfibrowhatsyoursuperpower #sickofbeingsick #anxiety #alwaystired #saveme #justwanttostayinbed #fibromyalgiaawareness #MyalgicE


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Another year, another set of gorgeous festivities at Chatsworth House! For a stately home, it's actually really wheelchair friendly and you can tell how much effort they've put into entry form of accessibility!
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Where has been the most surprisingly accessible place you've visited? 🎄🎅
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#spoonie #disabledandcute #disabledandproud #babewithamobilityaid #wheelchairbarbie #wheelchairlife #wheelchair #wheelchairlicious #wheelchairprincess #wheelchairwoman #wheelchairlove #wheelchairglam #wheelchairmodel #wheelchairmagazine #pushgirl #instamodel #modellife #diversity #DiversityandInclusion #bodypositive #bodyposi #bodypositivity #effyourbeautystandards #lovetheskinyourein #loveyourbody #healthandwellness #chroniccutie #wheelchairpinup #disabled #disabledbabe


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My second home. 💕💪🏻 #kickboxing #martialarts #fitness #chronicpain #spoonie


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Happy Tuesday! 💜 This is exactly how I felt when I found this amazing community! Even more so when I started volunteering on this page. I love meeting so many other people who can relate to me. It’s amazing. 💜 -Meena⠀⠀⠀⠀⠀⠀⠀⠀⠀
⠀⠀⠀⠀⠀⠀⠀⠀⠀ 🌟 WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio.🌟⠀⠀⠀⠀⠀⠀⠀⠀⠀
⠀⠀⠀⠀⠀⠀⠀⠀⠀ #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #migraine #fibromyalgiaawareness #spoonieproblems #spooniewarrior ⠀⠀⠀⠀⠀⠀⠀⠀⠀
#chroniclife #autoimmunedisease #chronicillnessawareness #anxietywarrior #sicklife #disabledandcute #invisibleillnessawareness #disabled #zebrastrong #spooniesunite #raiseawareness #butyoudontlooksick #disabilityawareness #invisibedisability #spoonie #autoimmune #endometriosis #fibromyalgia #eds #multiplesclerosis #invisibleillness #chronicfatigue


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Posted @withrepost@meactnet The holidays are a stressful time. Between gift-giving (and buying), travel, cooking, decorating, and guests in the home – not to mention winter colds, increased heating bills, and challenges in local travel like snow and icy roads – it’s no wonder that many people emerge from the hazy shade of winter completely exhausted.

That goes double for all the spoonies out there. When everyday tasks are a struggle, how much more struggle does the average person with a chronic complex disease experience over the holidays?

We at #MEAction decided to put together some Pinboards to help gather some of the best links and ideas for people with chronic illnesses this holiday season. Check them out, and feel free to recommend new links and ideas for the different boards!

Do you use Pinterest? Head over and check us out at meactnet!
Read our full article by going to Link in Bio and clicking MEACtion articles.
#pwME #MyaglicE #HolidaySeason #chronicIllness #Spoonie #HolidayGuide #Hanukkah #Christmas #Winter #WinterHoliday #chanukkah #chronicLife #disability


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Posted @withrepost@meactnet Next Sunday is the first ever #MEAction Community Holiday Party! Join us on December 15th at 3:00 pm Est! (12:00 pm Pacific/8:00 pm GMT or 6:00 am AEST on the 16th)

We will gather in a Facebook event using a bluejeans link for all who are able to call in by video or phone. Our plan is to share the bluejeans video in the event space so those who cannot join the video call but want to join in through comments can!

We are so excited to relax and have fun with everyone. In this community our online friends are so very important and we want to celebrate with you!

So share those ideas! Pick out your comfy pjs or that dressy outfit you never manage to wear and warm a cuppa and join in! Link in the bio to RSVP!
#pwME #ME #MyalgicE #Holiday #party #HolidayParty #Community #chronicLife #spoonie #Disability #online #festive #winter


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Posted @withrepost@meactnet New Call to Action for the #NotEnough4ME Campaign!

This holiday season, the #MEAction community plans to flood the mailbox of the U.S. National Institutes of Health (NIH) with holiday cards calling for NIH NINDS Director, Dr. Walter Koroshetz, to take immediate ACTIONS to end the crisis of myalgic encephalomyelitis (ME). Join with us and take action now! Send Dr Koroshetz a holiday card to let him know he is not doing enough to fund and accelerate ME research. Our community deserves URGENT ACTION after 30 years of neglect. Read our easy, 3-step instructions for sending Dr. Koroshetz a card in the article. If you need assistance to send a card, we have volunteers ready to help! Link in bio!
Remember to sign and share the petition! Link in bio!

#pwME #MyalgicE #NIH #research #advocacy #activism #research #ME #MEcfs #HolidaySeason #ChronicIllness #disability #Disease #spoonie #InvisibleDisability #Healthcare #CardsToKoroshetz


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follow your soul; it knows the way. 👣


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FREE DELIVERY This is my favourite tea hands down. Such a smooth blend of intricate flavours all known to soothe all kinds of aches and pains in an effective combination that overpowers any single ingredient of its own. Perfect for stress or relieving the symptoms of chronic disease.
Soothe - balance - restore
www.etsy.com/store/UK/earthkindshop
#stressmanagement #stressrelief #stressedout #stress #chronicfatigue #fatigue #cfs #cfsme #chronicillness #chronicdisease #spoonie #spooniesupplies #spooniegifts #treatyourself #balance #restore


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