#supportlupus

Instagram photos and videos

#supportlupus#lupusawareness#lupuswarrior#girlinterrupted#idontlooksick#lupusisreal#reflection#love#lupustips#knowlupusnolupus#lupiesister#mentalillness#fatigue#kindness#peace#flowerbombbaby#blackgirlsrock#knowyourworth#wellbeing#blackgirlmagic#smilethruthepain#smileontheinside#mindfulness#twofaced#insomnia

Hashtags #supportlupus for Instagram

My #mom is still here visiting me and my #family and she helped this morning catch up #laundry - what a relief, its been piling up! Thanks Mom! β˜ΊοΈπŸ’•πŸ’•πŸ’•πŸŒΉπŸ’œπŸ™ #lupuscaregivers #lupusfighter #lupuswarriorπŸ’œ #supportlupus #familysupport #ilovemymom ❀️ #thankyou #sjogrenswarrior #fightinglupus #fightingformylife πŸ’œπŸ’œπŸ’œ


4

Started 60mg #prednisone today, then I will taper back down to 10mg. Went to my #ent doctor and have another severe #sinusinfection #earinfecton - had some weird nasal #scope done - inside my nose is fire engine #red - my face is so swollen. Happy Friday πŸ’œπŸ™ #lupusfighter #lupuswarrior #sjogrenswarrior πŸ’œ #lupielife #spoonie #lupie #willieverbreathagain #fightinglupus #fightingformylife #supportlupus #lupusflorida #mom #wife #nana


10

Have a beautiful morning and remember you are wonderful and uniquely made and made a new each day. I love you.
#supportlupus #reflection #lupusisreal #idontlooksick #girlinterrupted #TheLupieMUA


1

I get up in the morning and start with positive affirmations! "Even though I have #lupus #sjogrens, I fully love and accept myself." "I have lupus but lupus doesn't have me." "Lupus is not my entire life, I have a life I need to live." "If I need to rest or take a break, it's ok, I am taking care of myself so I can be the best that I can be." "If people in my life do not understand that I have lupus, I have to go day by day, then I don't need them in my life. I will not feel guilty or regret the things that I am not able to do." #selfcare is important - don't let the negative vibes take you over, no regrets, no quilt. You are important, live your life, love yourself! πŸ’œπŸ’œπŸ’œπŸ™ #lupusfighter #lupuswarrior #lupusawarenessπŸ’œ #motivation #positivevibes #fightingformylife #fightinglupus #supportlupus #mom #wife #nana #auntie #sister #daughter #iwillsurvive #loveyourself #noregrets #chronicillness #positive πŸ’‹πŸ’œ


2

Went to CVS "where everyone knows my name" to pick up my #meds and ended up waiting a few extra minutes - the #pharmacy was surprised I only had ONE medication πŸ’Š to pick up, zofran for my nausea 😡! Ha! That never happens to me lol usually I have a huge bag 😁 #lupuslife #sjogrens #sjogrenssyndrome #lupusfighter #lupuswarrior #lupielife #lupie #lupusflorida #lupusfl #supportlupus #lupusawarenessπŸ’œ #fightinglupus #fightingformylife πŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œ


0

Nothing worse than a "friend" that doesn't understand you have an #autoimmune #disease with #gooddays and #baddays - #lupus doesn't care if you made plans to go shopping because when it #flares up, you have to stay home. Don't get upset 😑, maybe another day or month or week I can go, raincheck please!
I'm not complaining, just call it the way I see it. Your true friends are there for you no matter what is going on in your life, lupus or not. I have nothing to prove. πŸ’œπŸ™ #lupusfighter #lupuswarrior #mamawolf #supportlupus #lupuslife #lupielife #lupie πŸ’œπŸ’œπŸ’œπŸ’œπŸ’œ #friends #friendshipquotes #fightinglupus #fightingformylife


1

#homehaircut done! not too shabby if I do say so myself ~_^ good to go for #lupus πŸ’œ treatment. Will find out which one this week since my #benlysta approval is taking forever from my #healthinsurance, even after my #lupusdoctor Dr. Beg at #ucfhealth has filed a long medical appeal. #happydays #lupusfighter #lupuswarrior #mamawolf #supportlupus #lupusawarenessπŸ’œ #lupusflorida #fightinglupus #fightingformylife πŸ’œπŸ’œπŸ’œ


2

FAREWELL TO THE LUPUS FOUNDATION OF FLORIDA AFTER 39 YEARS πŸ’œ
The Orlando/ Winter Park Support Group will continue as it has for the last 40 years.
From Sharon Jackson, Chairman of the Board of LFF: "With a heavy heart I must inform you that the Board of Directors has voted to dissolve the Lupus Foundation of Florida, Inc. After much discussion and thought, the members realized that we are not a sustainable organization.... ....lack of programming and fundraising directed the board to their decision... ...closing does not mean that you must cease as a support group. The community still needs the services you provide." The support group will continue to meet in its usual place - Conference Center of Winter Park Memorial Library on the second Saturday of the month at 1pm. For info contact Martha Emerson emerson4@earthLink.net

You can read the farewell notice at lupusflorida.org

I am sad to see LFF go away. I have been a member & sponsor for many years. The torch will be passed to sister organizations that are national. πŸ’œ

#lupusfl #lupusflorida #supportlupus #supportlupusawareness #lupusawarenessπŸ’œ #lupuslife #foundation #boardmembers #farewell #member #supporter #sponsor #supportgroup #lupussupportgroup #lupusfighter #lupuswarrior #mamawolf


2

PARTICIPANTS NEEDED FOR CUTANEOUS LUPUS ERYTHEMATOSUS STUDY

UCF Health is conducting a study to examine the effectiveness of a laser treatment for #cutaneouslupus ERYTHEMATOSUS. Participants must have #cutaneous #lupus #lesions , be 18 years of age, and cannot be pregnant. If you are female, you may need to provide a urine sample for a pregnancy test.
Patients interested in this study must have their own #healthinsurance accepted at #ucfhealth
If you are eligible and agree to participate, you will receive a cream to apply to your cutaneous lupus lesions followed by two rounds of laser treatment on the lesions.
The study will take place at UCF Health clinic - Lake Nona and will require a total of 3 visits.
If you are interested in this study, please contact Dr. David Weinstein david.weinstein@UCF.edu
Visit http://ucfhealth.com/news/study-cutaneous-lupus-erythematosus

#research #study #lupusfl #lupusflorida #supportlupus #lupusfighter #lupuscaregivers #sle #lupusawarenessπŸ’œ #healthstudy #lupusresearchmatters #lupusresearch #ucf #doctors #patients


0

I got my new t-shirt from @lupus.fighters πŸ’œ "I'm not superwoman but I am fighting lupus, so close enough!" I love this, my kids call me supermom and my granddaughter calls me wondernana. ☺️ It takes all that I have to take care of my family while having the daily challenge of #lupus #sle #sjogrens πŸ’œ and I am happy that I can do it!!! πŸ’ͺπŸ‘ͺπŸ™πŸ’œ The #gooddays are great and go by fast, with me having to drink a ton of water to stay hydrated, trying to remember who is doing what when, swollen legs by the end of day, and coping with pain trying to sleep. The #baddays come and go with #flares - fever, pain, headaches, rashes, swollen veins, pleurisy, infections, joint swelling and pain, brain fog, trouble walking because of leg weakness and neuropthy - along with complications with my bladder and kidneys.
I have been fighting lupus for more than 15 years - left my career & gave birth to my #son who was healthy despite all the complications and he is now 13. I call him our miracle baby! 2 years later due to severe problems with my systemic lupus that caused edenomyosis, I had a total #hysterectomy. When the doctor removed my uterus, it was so swollen and mishapen. That is a medical picture I will never forget - I called it the uterus that are New York!!!! Lol
We all have things that happen, good and bad. I try not to let the few bad moments or bad days spoil all the good days I have to look forward to. Especially with my husband and my family. ❀️ You can live life with lupus! πŸ’œπŸ’œπŸ’œπŸ’œ #lupusfighter #lupusflorida #lupuswarrior #mamawolf #thewolfpack #supportlupus #lupusawarenessπŸ’œ #fightinglupus #wife #mom #nana #family #ilovemyfamily


5

This dog shirt supporting Lupus is 40% off! By making this purchase, a percentage will be donated to the lupus foundation!! Check out our website for other sales #lupus #lupusawareness #supportlupus #discountedprice #savings #giveback #talkingteesforacause #4lovingpawsusa link in bio


0

Finally feeling back to myself after my #lupusflare #sjogrens #flare 😁 Tapering down off my #prednisone dose and not as #puffy anymore. #jointpain is at a tolerable level now and I can #move and #walk without my #cane; all #infections cleared up - hittin' it today, got #schoolshopping to get done! Woo! Thank you for all your #support and well wishes. πŸ˜β€οΈπŸ‘ #lupusfighter #lupuswarrior #lupusmom #mamawolf #lupusawarenessπŸ’œ #sjogrenssyndrome #mom #nana #wife #thankful #grateful #hopeful #supportlupus #supportlupusawareness πŸ’œπŸ’œπŸ’œπŸ™ #torrid #torridfashion


6

#lupus labs & sick visit this morning - another #earinfecton and #sinusinfection, more antibiotics - still waiting to hear back from medical appeal to start #benlysta πŸ’œ good news is my NP says I am getting better #pleurisy is subsiding , my lungs are clear and chest xrays look great πŸ˜πŸ™πŸ’œπŸ’œπŸ’œ #lupusfl #lupusfighter #lupuscomplications #lupusawareness #fightingformylife #supportlupus #supportlupusawareness #lupusflorida #nursepractionersareawesome #instalupus #lupie #torrid #torridfashion


0

Waiting for my next t-shirt to support the "Fabulous with Lupus" #campaign by @lupus.fighters πŸ’œ I'm not superwoman, but I'm fighting lupus, so close enough! #fightinglupus #lupusfighter #lupusfl #lupus #lupusflorida #mamawolf #lupusawarenessπŸ’œ #lupusawareness #supportlupus #donate #lupuswarrior


0

Today is the 2018 #virtual #lupuswalk for @lupusfl and your #donations have helped me raise $150!!! #thankyou for your #support 😍 I took my short #walk from my house to the mailbox. I have been #recovering from my #lupufsflare #sjogrens #flare with #pleurisy #earinfecton #sinusinfection - so managing a short walk this #morning is a success for me! πŸ’œ Appreciate my #family and #friends - #supportlupus helps improve the #qualityoflife for #people #livingwithlupus β˜ΊοΈπŸ’œ Thanks! πŸ’‹ #supportlupusawareness #lupusfighter #lupuswarrior #lupuslife πŸ’œ #walkathon #walking #virtuallupuswalkfl


2

πŸ’œThank You @lupusla & @michaelbjordan for putting on such a great event to support Lupus and raise awareness! I’m excited to be attending and look forward to meeting other Lupus Warriors & Supporters!😊 β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”
#lupus #lupusawareness #lupuswarrior #fighter #supporter #supportlupus #supportthecause #lupusla #lupusfoundation #michaelbjordan #terrencej #losangeles #daveandbusters #hollywood #lupuslife #life #lifewithlupus #momwithlupus #mbjam #mbjam18


2

Please Friends, Help me to reach my fundraising goal. I am still pretty far away, and the walk is now less then a month away.
If you would like to show support by just making a donation, you can do so by visiting
www.walkforlupusontario.org
You can donate to me and my team directly, Just search Nat Samaroo.
If you wish to participate, please register online as soon as possible! Join Team Nat, or make your own team!
We would like everyone to try and register online before the walk to ensure you get the right size shirt for a minimum donation of $10, and to make the walk day go a lot smoother

Come on out for an day of fun, with a walk for a food cause, a bbq, and raffle with some great prizes!

The Walk for Lupus Ontario, is Lupus Ontario’s most important provincial public awareness and fundraising event. Lupus affects over 1 in 1000 Canadian men, women and children. Lupus is a chronic, inflammatory disease that can attack any tissue or organ in the body. Although there is no cure, with your help we will be one step closer to finding one. I myself have been fighting for 13 years, and it almost took my life 6 years ago. I am lucky to be here, to be able to raise awareness to help me and other with this disease. Together we can make a difference. Be a part of something big and take the steps to conquer lupus.

#walkforlupus #walkforlupusontario #walkforlupusontario2018 #lupus #lupusawareness #livinglupie #donate #supportlupus #bakesake #raffle #bbq #fundraising #fundraisinggoal #fundraisingevent


0

I wish people knew that I didn't discuss my health issues for pity, sympathy or attention. I wish people knew that I talk about it because it's a huge part of my life, whether I want it to be or not. I discuss it to help others who are dealing with the same hurdles. To inform. To educate. To be matter-of-fact. To explain. Not to get pitied, babied or fawned over. Certainly not to be looked down upon or judged. 😌✨ #lupus #lupusawareness #lupuswarrior #chronicillness #invisibleillness #supportlupus #fightlupus #staypositive #staystrong


0

have you ever been tired of sarcasm, "yeah you are sick, but still can exercise!" oh people ... do you know what is the most difficult being an odapus? now you can just see me healthy, but 5min then I could not walk because of the pain of the joints. or it could be otherwise. right now my head hurts like I'm going to break, then it just disappears when I get enough rest.

so ... when I have a lot of energy, when I feel healthy, and when all my personal affairs are settled, why am I not entitled to go to the gym to make me happy? everyone has the right to vote, I choose to exercise rather than go out for no purpose and benefit. I hope u all hv a great day😘

Welcome body combat 76πŸ’•

#sle #lupus #lupusindonesia #lupusawareness #lupusstrong #lupustruth #lupussupport #supportlupus #isupportlupus #supportodapus #isupportodapus
#lupuslife #lifewithlupus #lupusstories #lupusbattle #vitddeficient #vitamind3deficiency
#lupuswarrior #lupusfighter #lupussuvivor
#lupusmom #momwithlupus #odapusindonesia
#autoimunedisease #ladyodapus #staystrongπŸ’•


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Join my conference call at
Jul 15, 2018 8:30:00 PM (EST)
Dial: (605) 475-4732 (United States)
Access code: 367788#

For automated dialing on your telephone use the following link tel:6054754732,,,367788#

#supportlupus #reflection #fatigue #insomnia #anxiety #mentalillness #kindness #love #peace #thelupiemua #girlinterrupted #idontlooksick #wellbeing #smilethruthepain #smileontheinside #mindfulness #twofaced #knowyourworth #blackgirlmagic #blackgirlsrock #knowlupusnolupus #lupusawareness #lupustips #lupusisreal #lupiesister #lupuswarrior #LupiesUnite #flowerbombbaby


3

Have you been diagnosed? Are you looking for answers? I created this blog to help my fellow newly diagnosed lupies. I really hopes It brings you comfort. Love you lupie!
Link also in bio
https://thelupiemua.weebly.com/my-lupie-journal/lupie-lifestyle-welcomes-you

Photo by @chocolatecoveredevents5

#supportlupus #reflection #fatigue #insomnia #anxiety #mentalillness #mentalawareness #kindness #love #peace #thelupiemua #girlinterrupted #idontlooksick #wellbeing #smilethruthepain #smileontheinside #mindfulness #twofaced #ok #knowyourworth #blackgirlmagic #blackgirlsrock #knowlupusnolupus #lupusawareness #lupustips #lupusisreal #lupiesister #lupuswarrior #flowerbombbaby


1

Makeup is not only just enhancing ones beauty its ART...Mixing colors and foundations to match the complexion...Covering scars that tell stories...Changing a person self esteem...Character....I like to wear my makeup face according to how I feel at that time if Im down I might use warm neutrals....if I feeling myself I might give you something dramatic ...If im just like "whatever" Im gonna wear a bear face...So as you see its my passion...Thanks to all my newest followers lets have fun!!! #lupuswarrior #supportlupus #makeupcoverups #makeup #makeupartist #promakeupartist #travelartist #makeuplife #makeupideas #makeuptips #makeuplooks #brmakeupartist #lamakeupartist #celebartist #makeupguru #makeupforever #makeuplovers #lupusawareness #browguru #browartist #browtinting #makeuppaint #makeupislife #mua #perfectskinn @supa_cent


0

When you are going through with a chronic incurable disease and you see a smile like his and receive a text like this it truly helps. I love you son! swipe right to see how much he inspires me!#supportlupus #reflection #fatigue #insomnia #anxiety #mentalillness #mentalawareness #kindness #love #peace #girl #girlinterrupted #idontlooksick #wellbeing #smilethruthepain #smileontheinside #mindfulness #twofaced #ok #knowyourworth #blackgirlmagic #blackgirlsrock #knowlupusnolupus #lupusawareness #lupustips #lupusisreal #lupiesister #lupuswarrior #flowerbombbaby


1

Today is so much better than yesterday!!!! Glory to God...He is so much bigger than any illness known to man!!!! Thanks to my boo @yellowbone29 I didn't realize how sick I was YESTERDAY...she prayed with me and we pushed through it together...πŸ™ŒπŸ™Œ Thanks to Denim for keeping me laughing the entire time!!!😘😘😘#jeremiahsmomma #sheislupusstrong #shefightshardforherhealth #sheisnotaquitter #lupussucks #supportlupus πŸ’œπŸ’œπŸ’œπŸ’œ


5

have you ever smiled while hiding your tears?

Pernah ga kamu tersenyum, sambil menyembunyikan tangis yang luar biasa sulit kamu bendung??? Its okay, kamu gak sendiri😘

Mohon maaf lahir batin teman-temanπŸ™

#sle #lupus #lupusindonesia #lupusawareness #lupusstrong #lupustruth #lupussupport #supportlupus #isupportlupus #supportodapus #isupportodapus
#lupuslife #lifewithlupus #lupusstories #lupusbattle #vitddeficient #vitamind3deficiency
#lupuswarrior #lupusfighter #lupussuvivor
#lupusmom #momwithlupus #odapusindonesia
#autoimunedisease #ladyodapus #staystrongπŸ’•


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