I got my new t-shirt from @lupus.fighters "I'm not superwoman but I am fighting lupus, so close enough!" I love this, my kids call me supermom and my granddaughter calls me wondernana. It takes all that I have to take care of my family while having the daily challenge of #lupus #sle #sjogrens and I am happy that I can do it!!! The #gooddays are great and go by fast, with me having to drink a ton of water to stay hydrated, trying to remember who is doing what when, swollen legs by the end of day, and coping with pain trying to sleep. The #baddays come and go with #flares - fever, pain, headaches, rashes, swollen veins, pleurisy, infections, joint swelling and pain, brain fog, trouble walking because of leg weakness and neuropthy - along with complications with my bladder and kidneys.
I have been fighting lupus for more than 15 years - left my career & gave birth to my #son who was healthy despite all the complications and he is now 13. I call him our miracle baby! 2 years later due to severe problems with my systemic lupus that caused edenomyosis, I had a total #hysterectomy. When the doctor removed my uterus, it was so swollen and mishapen. That is a medical picture I will never forget - I called it the uterus that are New York!!!! Lol
We all have things that happen, good and bad. I try not to let the few bad moments or bad days spoil all the good days I have to look forward to. Especially with my husband and my family. You can live life with lupus! #lupusfighter #lupusflorida #lupuswarrior #mamawolf #thewolfpack #supportlupus #lupusawareness #fightinglupus #wife #mom #nana #family #ilovemyfamily