#zipperclub

Instagram photos and videos

#zipperclub#heartwarrior#chd#chdawareness#openheartsurgery#chdwarrior#congenitalheartdefect#scarsarebeautiful#1in100#love#chdsurvivor#heartsurgery#hlhs#vsd#heart#hypoplasticleftheartsyndrome#momlife#heartmom#heartdisease#tga#hearthero#chronicillness#heartstrong#scars#chdaware#cabg#heartfailure#heartiversary

Hashtags #zipperclub for Instagram

Elliott had his fifteen month (already?!) checkup today and OH MY GOSH. Because of his medical conditions he’s always been so tiny. Seriously, when strangers would ask his age they would always thing I was crazy and didn’t know how old my own kid was because he’s always been so small. BUT NOT ANYMORE. Today, for the first time ever, instead of not even weighing enough to be on the chart, HE IS IN THE 30TH PERCENTILE FOR WEIGHT. I may have cried when his nurse told me (okay, I definitely cried). ⁣

Heart kids have to fight ever single day. Elliott doesn’t eat anything by mouth (we’re starting to work with speech therapy on this) and I’ve been struggling with it. Seeing him grow so much lately and FINALLY look his age though has helped me know that it’s okay. It might suck having to plan our day around his feeding pump, but he’s getting the nutrients he needs and it’s showing. Some day I’ll be able to take him for Saturday morning Dunkin’ dates or late night ice cream adventures. Right now though, I’m just going to revel in his chub and be thankful that he’s growing. ⁣

#heartwarrior #1in100 #chd #chdawareness #chdwarrior #chdsurvivor #zipperclub #strongkids #letthembelittle #littleandbrave #blueeyes #toddler #chronicillness #miracle #miraclebaby #momlife #momlifeisthebestlife #heartmom #checkup #hathair #happy #smile #llamallama


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Delivery day! 📦 The milrinone infusions I'm on require weekly deliveries of custom-mixed bags of medication. My pharmacist talks to me once a week, updates my records, and does an assessment of condition over the phone - only then can he mix my meds and have them overnighted to me on ice. Amazing how the contents of this box keep me going every day. I'm definitely thankful for modern medicine. Without this medicine, I would be bedridden, and so I'm forever grateful that it allows me to get out of bed and still have something of a life every day. .
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#piccline #milrinone #hypertrophiccardiomyopathy #heartsurgerysurvivor #heartfailure #hearttransplant #pretransplantlife #congestiveheartfailure #zipperclub #hcm #cardiomyopathy #chronicillness #spoonie #heartwarrior #heartdisease #openheartsurgery #hypokalemia #potassium #chf #lowpotassium


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This Sodalite and Agate mala 📿 will be posted to my website later today. Each mala is one of a kind so if you see one you love, be sure to get it before it is gone. Please contact me if you have any special mala requests. I love helping people bring their ideas to life.


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Buenas tardes! Acabo de salir de mi chequeo con mi cardiólogo y adivina que??? Todo salió súper bien y ya no tengo que volver por 6 meses!!! || Hello everyone! I just left my check up with the cardiologist and guess what??? Everything is great and I don’t have to come back for 6 months!!! ❤️
#MarkRiley #OpenHeartSurvivor #ZipperClub #MiLuchador


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Oh the neverending inner dialogue for the parents of a heart warrior. That alone can keep your mind full. Then we need to think of other kids, relationships, household management, work and the list goes on. Do you do yoga, meditation, painting, bullet journalling ....we'd love to hear any of your strategies for staying mindful!!


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Praise be! Glory! Hallelujah! Many thanks to all those who prayed and thought about us this morning 💙 #ouraugiegray has been cleared for 4 months! Augie was awake but calm and quiet during his echo so the tech got great images of his heart. The doc came in and said that everything looked perfect and there was nothing to report or be concerned about! He also encouraged us by saying that hopefully from here on out we should expect to hear that every time we come in with this type of heart defect. Augie will grow up to be a normal active boy without anyone knowing the wiser unless they see his awesome zipper scar.
So, here’s to the next 4 months! Our biggest task now is working hard to keep him healthy and free of cold and flu germs 🦠 😷 during the fall/winter and holiday season.
#teamaugie #dtga #tga #transpositionofthegreatarteries #arterialswitch #heartwarrior #zipperclub #chd


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I underestimated how emotional I would be posting these memories. I feel like I blocked so much out. And even that breaks my heart because I didn’t have her long enough to want to block anything out. Even the bad. Love my sweet girl. I miss her, but I am so happy she isn’t in constant pain anymore. I have said before, “although my arms ache for you, I will take that pain if it means you don’t have any.”.. .
🐒💛One year ago👇🏼👇🏼
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Everly is doing good today! She is just resting. They will re-evaluate tomorrow to decide whether she needs another surgery. Until then, we are just chillin! I changed her bow to match her blanket. If you ask me, she is rocking the yellow! ✨💫 .
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#chd #chdawareness #congenitalheartdefect #heartwarrior #zipperclub #hypoplasticleftheartsyndrome #HLHS #avcanal #DORV #pulminarystenosis #meeteverlyjo #prayersforeverlyjo #btshunt #pulmonaryarterypatch


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Body image distortion is an issue so many struggle with. From a very young age our brains are flooded with near unattainable images of slim, sculpted bodies with perfectly round cleavage, and tight cellulite-free bums. •
I’m not alone when I say this has affected me for almost as long as I can remember. Measuring up to those starving women I’ll never know has always left me feeling like I’ll never be enough more often than I’d like to admit. •
A little over six years ago I took this picture. I knew her first open-heart surgery was impending and I was struck with the grief of knowing that the perfect little chest she was born with would soon be forever altered and how this cruel world would bear down its false standards of beauty on her too. Yesterday was the anniversary of her zipper club inauguration and while I’ll always carry a sadness for her loss, as a parent I’m finally learning to let go. Every day I want to show her that she’s beautiful, and strong, and unique, regardless of what she looks like on the outside. Those scars are the marks of a survivor and a reminder that every day is a truly a blessing. •






#heartmom #heartwarrior #heartdisease #congenitalheartdefect #congenitalheartdisease #survivor #heartstrong #partialavcanalheartdefect #mitralvalvereplacement #zipperclub #zipperclubmember #1in100


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Hi friends! My baby brother and I are collecting items for the Duke PCICU (pediatric cardiac intensive care unit) this holiday season. My brother spent lots of time there while he fought for his life, so we want to give back! If you would be willing to purchase a small item or toy for donation we would so greatly appreciate it! These items help to bring a little comfort to the kids fighting so bravely. These items will stay on the unit and be used over and over again to help these families. It was such a blessing when these items were available for my brother Kip! If you would like to help out we have a wish list on amazon, just choose to send the item to the gift registry address at checkout - my baby brother and parents are going to be delivering at the beginning of December! Thank you so much for spreading a little love and joy ❤❤❤ http://www.amazon.com/registry/wishlist/3AIKW2RYRRH4E

#hlhs #heartwarrior #kipandfin #goldendoodle #ilovemybrother #chd #love #spiritofchristmas #donation #dogsandbabies #chdawareness #chdsucks #zipperclub


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Rise & Shine!!❤️
It’s workout time!!💪
🌟🌟🌟🌟BUT WAIT!!🌟🌟🌟🌟
Don’t stop reading now....there’s more!!🤗 Anybody like a legit #blackfriday sale?!?💯
If yes, I’ve got a HUGE one! And if getting fitter, stronger, healthier, and/or happier now or in the new year is on your “to-do” list, you don’t want to miss out!😍 Drop a “❤️” for info & no worries, there is no obligation to buy. Although I have a feeling you may want to after you see all of this!!😉 #riseandshine #workouttime #fit #momma #zipperclub #heart #strong #blackfriday #sale #champagne #love #lakelife #team #heartstrong


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1 year ago today Jaiyana had her 3rd bloodless open heart surgery. She has completed 3 out of 3 expected surgeries. Health wise this past year has been quiet, and it’s so amazing to see her oxygenated & pink instead of blue because the lack of it! She has more energy and endurance. She’s able to keep up with her siblings and other kids for longer periods of time.
As you can tell from these photos, we were all smiles. Inside it was the complete opposite. It was important to us that she not feel or see our concern. For the first time for a major surgery the anesthesiologist allowed us to go back with her as they put her to sleep. Maybe because he had seen so much of us in and out of the hospital at that time? 🤔 I remember walking out of the OR doors breaking 😭 hoping and praying I’d see my baby again. We waited and passed the time with a handful of the HLC & PVG (whom we’ve kept in touch with over this past year ☺️) and then our friends trickled in and out throughout the day. We anxiously waited in the hallway at the 6th hour just to get a glimpse of her being wheeled down to the PICU. The first hurdle had been passed 👌🏽
Heavy is the crown and yet she wears it as a feather. There is strength in her heart, determination in her eyes, and the will to survive resides within her soul. .
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#tricuspidatresia #vsd #asd #hrhs #halfaheart #chdawarenessweek #chdawareness #heartmama #jw #jwheart #jwheartmom #jwheartsister #jwkids #jwmom #jwmoments #bloodlesssurgery #ucsfbenioffchildrenshospital #ucsfbenioffchildrenshospitaloakland #heartkids #hearthero #heartkids #heartbaby #heartbabyproblems #newworlddesigners #zipperclub #zipperclubmember #halfahearttwicethefight #lifewithhalfaheart #heartwarrior


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Warning! Middle finger alert! Two years ago I was at a friend's bachelor party in New Orleans when I ended up in a random ER (another friend came with) with atrial flutter, which thankfully broke on it's own without cardioversion (getting shocked).
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As I suppose usually happens when one is in flutter and waiting for an ambulance just off Bourbon Street in New Orleans, a guy trying to sell us drugs told me to walk it off 😂 and another random group of people told us everything would be ok. .
This, in retrospect, was really the start of a long journey to doing my best to get healthy and getting on the transplant list.
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This was the picture I sent the group to let them know I was doing just fine. A few hours later I was discharged. Me and the friend I was with got poboys before heading back to the Airbnb.


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Look at this #incredible baby who doesn't have any lines attached 😁. Finally some good news 🥳. Went 2 weeks without eating (well we won't count when she snatched my pizza) and finally got off her tpn. Hopefully everything stays positive and she can keep them off. Tomorrow is the big echo to check on her biggest setback 🙏🏽. But this is good news and we'll take it. Thanks again everyone for y'all support, it means EVERYTHING. Much love.

#hlhs #fontansurgery #chdkids #chd #josiestrong #hlhswarrior #hlhsawareness #zipperclub #hlhs #nationwidechildrenshospital #jw


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Tonight was full of laughter, love and celebrating life. One year ago my Dad kicked a heart attacks ass. May have joined the zipper club but he’s made an amazing and healthy come back. #daddysgirl all the way. #love #laughter #celebratelife #comeback #zipperclub #mentalhealth #family #health #november #autumn #fall #tuesday #mrfixit


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Waking up from a nap to have snaps of these little cuties waiting for me 😻😻 Aunt D’s little Princesses 💕 #Auntie #MyBabies #Nieces #ZipperClub #Blessed #GoodVibesOnly


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And Lucy is OUT! 😴 I guess all these doctors appointments are just too boring for her now a days! 😂 We finally have everything figured out for Lucy’s upcoming surgery and are just waiting on a final date (which we will know by tomorrow). But her doctor did say that it will be in December and that Lucy will be getting her gtube put in, tonsils removed, both ear tubes replaced, and will be having another ABR hearing test all done while she is under anesthesia. Whew!!! Poor Lucy girl is going to be hating life once we get all that done, but overall it will be good for her and I’m glad we can get it all coordinated so that she doesn’t have to be put under multiple times. Looks like we are going to get into the spirit of the holidays by staying at the hospital! ❤️ 👂🏻 🏩💉 #theluckyfew #downsyndrome
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#downsyndromeawareness #joubertsyndrome #13qdeletion #nothingdownaboutit #congenitalheartdefect #openheartsurgery #zipperclub #heartwarrior #sleepapnea #lowmuscletone #t21 #trisomy21 #dsdn #upsyndrome #hardofhearing #bilateralhearingloss #downsyndromediagnosis #sharingdownsyndrome


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TO ALL THE LADIES🌿... I love it when women love themselves. I love it when women are learning to love themselves. I love it when women inspire other women to love themselves. KEEP IT UP! .
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#womenempowerment #womenempoweringwomen #womenempowermentquotes #positivebodyimage #selflove #selfcare #portraitphotography #selfportrait #zipperclub #openheartsurgery #congenitalheartdefect #chdawareness #vancouver #vancity #tattooedgirls #inkedgirls #sleevetattoo #loveeachother #womensupportwomen #womensupportingwomen


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Picasso Mini Bead Wrap Bracelet. ~swoon~

Limited number of these beauties left so grab one now if you love it. 😊❤️🙏🏻


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What was your dream job growing up as a kid? comment below, I’d love to hear! Maybe we even share some of the same dreams... I know I had a few!
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When I was 4 I wanted to be a princess👸🏻
When I was 7 I wanted to be a veterinarian🐶
When I was 9 I wanted to be Mia Hamm⚽️
When I was 13 I wanted to be a zoo keeper🦒
When I was 15 I wanted to be an athletic trainer🏑
When I was 17 I wanted to be a nurse👩🏻‍⚕️
At 18 I decided I wanted to be a X-ray tech.❌
When I was 23 I moved almost 800 miles from to Nashville.📍
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At 24 I went against the “norm”, put 4 years of school and 6 years of experience aside and followed my heart.❤️
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Becoming a coach was never a “dream” of mine. It is something I didn’t even know was possible until I was 24! But now that it has been a part of my life, I can’t imagine being anything else!🌟
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#followyourdreams #dreambig #followyourheart


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Check out the latest video from Em Ford, it's incredibly powerful. Beautiful isn't about being beauty industry perfect #scarsarebeautiful 📸 @mypaleskinblog
#redefinepretty #creatorsforchange #zipperclub #heartwarrior #openheartsurgery #hearthero


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Walkies for the win! 🐶❤🐶❤⠀

Often I really wish I had a pet, but it's so difficult to give a pet a good home in London. Which is why it's awesome to have friends with dogs ☺⠀

I loved growing up with animals around me. It teaches you responsibility, compassion, caring for another being and keeps you busy and grounded at the same time.⠀

Exploring the great outdoors, or simply beautiful Notting Hill, is a perfect and easy way to add exercise to your daily routine. Moreover, you meet likeminded people and get to see new places! ⠀

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#zipperclub #zipperclubmemer⠀⠀⠀⠀
#heartrunner #chdsurvivor #heartwarrior #CHDaware #servicedog #CHDawareness #scars #openheartsurgerysurvivor #openheartsurgery #pacemaker #heartdisease #tricuspidatresia #heartsurgery #heartdefect #congentialheartdefect #heartcondition #congenitalheartdisease #cardiacarrest #walkies🐾 #hearthealthy #walkies #mutt #schnauzer #nottinghill #dogsofinstagram #cutedog #rescuedog #unconditionallove ⠀ ⠀


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