#zipperclub

Instagram photos and videos

#zipperclub#chdawareness#heartwarrior#chdwarrior#openheartsurgery#1in100#chd#heartmonth#heartmom#chdaware#heartkids#congenitalheartdefect#hearthero#transpositionofthegreatarteries#downsyndrome#heartstrong#downrightperfect#showyour#chdsurvivor#conqueringchd#CHD#tetralogyoffallot#heartdisease#heartbaby

Hashtags #zipperclub for Instagram

Photo by @sophiemayanne for the @behindthescars_ project ♡♡ .

These photos were taken only a week post surgery, hence the right scar is particularly fresh! .

Having a pacemaker prevented me from doing very few things;
- Do contact sports longterm
- Take part in a Magnets science project in primary school
- I can't sleep / lie on my front for long periods of time (no idea why, but it hurts)
- And I can't walk through airport security metal detectors (which is my go-to fun fact about myself) .

That is it. Post-surgery I am alwys a little more cautious, but it really doesn't stop me from doing anything ♡ ♡ .

#paced #pacemaker #pacedandproud #chronicillnesswarrior #congenitalheartdisease #chd #behindthescars #zippercommunity #zipperclub #zipperclubmember #scars #achievements #heartwarrior #heartdisease #chdwarrior


2

Day 23 of #showyour❤️ - Weekend Vibes

Well, my weekend started early this week!
Daniel and I had a lovely 3 day getaway at @tumblingwatersretreat in Stanwell Tops.
3 days of relaxing in beautiful outdoor stone baths with these incredible views!
Let's just say coming home was bitter sweet! We missed the girls terribly but we definitely needed a weekend away to help us regroup as a couple and to just relax and SLEEP!
Exactly what we needed after the year we have had and before this year if medical appointments and surgeries start.
The appointment life never ends when you have a Heart Kid.
We are one of the very lucky parents that are able to have getaways. A lot of Heart parents arent as lucky as us. This is why raising money for @heartkids is so important. Because not only do they support parents and families like ours, they support the ones who need a lot more support than us. Ones who's kids are much more severe than Harlow.
So please, with only 5 days left to raise money, please donate what you can. The link is in my bio. Every single cent counts. 💕

#showyour❤️ #helplittlehearts #heartkids #fundraising #weekendvibes #couplesretreat #tumblingwatersretreat #incredibleviews #outdoorbath


1

Hoping to finish my #💯miles today but I need YOUR HELP to reach €500!!! Donate https://www.facebook.com/donate/1178620645647745/?fundraiser_source=external_url

Or PM me.

It's going the the CARDIAC UNIT in the Mater Misericordiae University Hospital.

Please and thanks. ❤ @materfoundation

#CHD #TOF #ICD #Pacemaker #TetralogyOfFallot #PVR #Arrythmia #Cardiology #CHDAware #HeartDisease  #HeartWarrior #RaisingAwareness #ZipperClub #Cardiology #OpenHeartSurgery #Ablation #VFib #Tachycardia #Shocks #KeepFighting #NeverGiveUp #BelieveInYou


0

Much and many thanks to @bring_thepayne at Salisbury Cycle for giving new life to my old Trek 1.1 with parts from various donor bikes. With any luck I'll be out of the hospital on Monday and this beautiful collaboration will be my indoor trainer bike until I can replace my Emonda and return to the road...
"One piece of log creates a small fire, adequate to warm you up, add just a few more pieces to blast an immense bonfire, large enough to warm up your entire circle of friends; needless to say that individuality counts but teamwork dynamites." Jin Kwon
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#maryland #beardedcyclist #beautyofcycling #cycling #cyclingphotos #cyclinglife #cyclingpicoftheday #cyclingshots #cyclingrecovery #instacycling #wahooelemntbolt #strava #stravaphotos #trek #trekbikes #trekemonda #bontrager #lifebehindbars #optoutside #brightcycling #gopro #goprocycycling #pactimo #zipperclub #openheartsurgerysurvivor #ascendingaorticaneurysm #myocardialbridge #ileostomy #cardiacrehab #roadcycling


7

#28daysofCHDawareness
21. This sweet babe; her first night in the step down unit drainage-tube free and freshly bathed and smelling sweet after spending several days in the cardiac intensive care unit, post-Fontan. I can’t believe this was 9 years ago!! I kissed that curly-framed forehead so many times. My hero. #chds #chdwarrior #americanheartmonth #igdaily #congenitalheartdefect #congenitalheartdefects #fontan #heart #heartsurgery #childrenshospitalcolorado #zipperclub #hearthero #myhero #mykid #kidsofinstagram #instagood #advocacy #postop


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The love of a pet compares to none other! Our sweet Bailey is 6 years old and is the best companion you could have. She was by my side as I was confined to my recliner resting and stuck with me today as we walked three, brisk, hilly miles. Love you ,Bai Bai!!!! 🐾 •




#mommasgirl #goldendoodle #goldendoodlesofinstagram #doodle #3miles #34degrees #walk #movement #healing #recovery #health #hearthealth #heartsurgery #heartsurgerysurvivor #openheartsurgery #aorticaneurysm #bicuspidaorticvalve #valvereplacement #scarstoyourbeautiful #exercise #motivation #mansbestfriend #zipperclub #heartwarrior #cardio #cardiology #dogsofinstagram


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Liver ultrasound: when I go in for a liver ultrasound the doctor is looking for cirrhosis of the liver. (Being a Fontan patient that is a huge concern later in life). Doctor said my liver has absolutely no issues!
Echocardiogram: obviously when doing a echocardiogram the doctor is looking at the heart, mainly the function and thickness, the repair I had last year during my heart surgery has no new tissue growing and my heart looks amazing.
Pacemaker check: during this test the doctor is looking for any issues, abnormal rhythms, tachycardia episodes and so on. I have absolutely no tachycardia episodes, and the only thing he seen was an extra beat that happens and that is the reason why I have some heart palpitations (nothing to worry about)
I have about 8 years left on the pacemaker.
Chest X-ray: he Is looking for any issues with the diaphragm and lungs- haven’t gotten those results back yet.
Stress test: I have had some issues with lower O2 and very out of breath during my workouts. I was able to last 5:44 seconds on the treadmill, and started to get way out of breath. He did say that if need be we can do another heart cath and block the smaller blood vessels that could be giving issues with my O2 during workouts. He doesn’t think the cath will benefit me at the moment, but more than likely I will have this procedure done in the next few years.
Overall he was very happy with all of my tests and gave me the all clear to continue to push myself as much as possible!
#openheartsurgery #openheart #survivor #warrior #chd #congenitalheartdefect #depression #anxiety #bodybuilding #bodybuilderwoman #bodybuilder #train #gym #gymlife #bikinimodel #scars #scarstoyourbeautiful #photooftheday #healthy #picoftheday #gymmotivation #workout #zipperclub #gymlife #chronicillness #chronicpain #instadaily #healthylifestyle #openheartsurgerysurvivor #survivor


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❤️❤️❤️#chdwarrior // Thanks for sharing @briellaandme // This month we are donating 10% of all sales to @mlhofsandiego


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We were asked if we wanted to be transferred to Hershey or stay at St Joes for open heart surgery. We decided we would stay. And then God went ahead and WRECKED that plan and it no longer became an option to stay. Looking back, I’m nearly certain if we stayed, I wouldn’t have made it out of that hospital alive. I’m more thankful than ever for CLOSED doors and wrecked plans. #openheartsurgery #zipperclub #recovery #godisgood


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Team HopeHeartStrong will be riding for little hearts at the #PhillySpinIn on March 29 for #CHD , #congenitalheartdefect at the @childrensphila please help us as we peddle to find a cure and breakthroughs. Link to donate is in my bio. Please donate. As a #spininstructor and #personaltrainer born with a CHD my heart begs for a cure so no parent one day won’t hear your baby has a #heartcondition. #philly #philagram #fitness #spin #spinning #spinclass #heartdisease #hearthero #zipperclub #ahaphilly #hearthealth #heartwarrior #fitnessmotivation #fitspo #fitlife #breakthrough #cycleclass #phillyevents #spinningclass #fitnessandhealth #openheartsurgery #cardiacsurgery #hope


1

❤️ ❤️Show Your Heart Photo Challenge Day 24- WeeKend Vibes💙 Weekend Vibes with my two Loves 😍 Love that I can work from home now to spend Weekends with these two and watch them grow up ❤️ @heartkids
#frederikryszardotte #freddiethefighter #myheartkid #heartkids #heartbaby #TGA #transpositionofthegreatarteries #openheartsurgery #8toomany #showyour❤️ #helplittlehearts #zipperclub #smile #chdawareness #chd #brave #braveboy #chdsurvivor #heartwarrior #brothers #myperfectyou #love #weekendvibes #beautiful #weekend #bestbros


1

This month we think a lot about heart disease, stroke and the patients who are going through these issues. Given the issues we had with the government shut down in January, Lately I find myself thinking about what programs we have in place for patients and their families to not only to save for healthcare needs but to use when they temporarily lack the funds to pay an office visit copay or and ER visit. *
If you know of any programs in the NJ, NY, PA and CT region share in the comments below. *
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#CHD #CHDSurvivor #nationalwearredday #healthcare #medicine #holistic #zipperclub #wearredday #red #stroke #heart #nj #northjersey #heartdisease #girlpower #GoRed #WearRedAndGive
@savetheheartbeat


0

Day 22

Under 5 miles to go 💯

#💯 100 Miles in a Month - February 2019 challenge for the Cardiac Unit in Mater Misericordiae University Hospital @materfoundation

#CHD #TOF #ICD #Pacemaker #TetralogyOfFallot #PVR #Arrythmia #Cardiology #CHDAware #HeartDisease #HeartWarrior #RaisingAwareness #ZipperClub #Cardiology #OpenHeartSurgery #Ablation #VFib #Tachycardia #Shocks #KeepFighting #NeverGiveUp #BelieveInYou ❤♀‍🚶🏻


0

Hit 225lbs on deads today. Had set a goal to hit this weight before the end of March and I blew through that easily. 275 here I come😏
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Also did paused deadlifts for the first time today. Will def be adding these to my program from now on.


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These two guys, my two oldest children, are heart warriors. Both born with congenital heart disease, they've had 5 open-heart surgeries between them. February is heart month, and today is National Heart Valve Awareness Day. This post honors my boys, (now men!), and every heart warrior out there, both patients and parents. #heartstrong


4

Many years ago it was discovered that I had a hole in my septum (atrial septal defect), which is a type of congenial heart defect.👎🏽
On top of this condition I also got diagnosed with asthma.👎🏽
I was told I may not survive, that I wouldn’t be able to keep up to the other kids, I’d possibly be sick very often and that I most likely couldn’t play sports.
Well I overcame the odds and today I’m stronger then ever.💪🏽💫
With a badass as scar and a pack of puffers (lol)😄 it’s both humbling and a constant reminder of how fitness can totally be taken for granted.
I’m appreciative that I can play (and love) soccer, competed in track & field, can run marathons, I can lift weights, I can hike and nothing holds me back.
I don’t say this to boast, I say this to inspire others that sometimes you CAN beat the odds.✨
Happy heart month & congenital heart disease awareness day!❤️
Take care of your heart health - it’s super important!
Go out today & be unstoppable💪🏽
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#chdsurvivor #openheartsurgery #zipperclub #scarsarecool #heartmonth #transformationtuesday #beforeandafter #StrongNotSkinny #FatLoss #WeightLoss #WeightLossJourney #ExerciseTime #Trainiac #FitnessJunkie #FitFam #InstaFitness #FitFam #Fitness #Fitspo #Fitporation #FitForLife #FitLifestyle #FitJourney #FitnessForLife #FitGoals #FitInspiration #WorkoutTime #NoShortcuts #FitTips #FitFun #HandleIt #ExerciseTime


3

Me and my girls! 💗 I love that Lucy is signing “mom” in this picture and looking at me. She was so excited to see me again after I was in the hospital for a couple of days. Boy is my heart so full! #downsyndrome #theluckyfew .
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#downsyndromeawareness #joubertsyndrome #13qdeletion #nothingdownaboutit #gtube #tubie #congenitalheartdefect #openheartsurgery #zipperclub #heartwarrior #sleepapnea #lowmuscletone #t21 #trisomy21 #dsdn #upsyndrome #hardofhearing #bilateralhearingloss #specialneeds #downsyndromediagnosis #sharingdownsyndrome #sharingdsaz


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CHD awareness photo challenge day 22: milestones .
Milestones were bringing you home from the hospital at 5 weeks when we had been told you wouldn't go home until after your 2nd surgery at 6 months of age. It was showing up to your speech therapy appointment where your therapist was ready to push for a G-tube and walking in tube free (after a grueling up all night for weeks wean). Milestones are your 1st birthday and 1st heartiversary, the first time we were able to go a whole month between cardiology appointments and then 3 months! It was your 1st steps at 21 months and finally convincing you to sleep outside of your rockn'play at 18 months. It was spending an entire year without a hospital admission (yay 2018, 2019 not so much). Your milestones are a little different and are always on your own time. You are a cautious though exuberant little person and we will continue to let you thrive on your own time in your own way, celebrating every milestone for the gift it is. .
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#chdawareness #chdaware #congenitalheartdefect #singleventricle #tinybutmighty #littleandbrave #conqueringchd #heartmonth #rockyourscar #zipperclub #hearthero #1in100 #medicallycomplex #thisisourstory #thisismotherhood #chdwarrior #thislittleofmine #littlewarrior #hearthero #livethelittlethings #liveinlove #celebratelife #magicofchildhood #mindfulliving #medicalmama #honestmotherhood #halfaheartfulloflife #judahthelionheart #gratitude #embracethelittlethings


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Dentist time! This is her 4th visit for the same broken filling back in December. Long story short Jaiyana needs to be under general anesthesia at Children’s Hospital outpatient because she’s just too stressed and anxious at the dentist. I can’t blame her because she’s gone through so much since birth. Joshua & Pete the Bear went back there with her and the dentist was able to clean her tooth out and put a temporary filling to hold her over until insurance approves her outpatient procedure.
I’m relieved in a sense that her teeth will be fixed, which in turn keeps her heart healthy and free from endocarditis. I don’t like the fact that she will be put to sleep. I think I would be okay if SHE was okay with it. I have never been put to sleep and I don’t know what it’s like, but when I put myself in her shoes I’m scared too.
Having a medically complex child is a roller coaster of emotions. It’s so easy to be distracted by the storm instead of what’s above 🙏🏽 I am thankful for the 3 fold cord because I couldn’t do it alone, and neither could she. .
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#tricuspidatresia #vsd #asd #hrhs #halfaheart #chdawareness #heartmama #jw #jwheart #jwheartmom #jwheartsister #jwkids #jwmom #jwmoments #medicallycompromised #heartdad #pediatriccardiology #heartkids #hearthero #heartkids #heartbaby #heartbabyproblems #zipperclub #zipperclubmember #halfahearttwicethefight #heartwarrior #ucsfbenioffchildrenshospital


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𝔽𝕝𝕒𝕤𝕙𝕓𝕒𝕔𝕜 𝕗𝕣𝕚𝕕𝕒𝕪 𝕥𝕠 𝕆𝕔𝕥𝕠𝕓𝕖𝕣 𝟚𝟚𝕟𝕕 𝕙𝕒𝕧𝕚𝕟𝕘 𝕃𝕦𝕟𝕒'𝕤 𝕕𝕚𝕤𝕔𝕙𝕒𝕣𝕘𝕖 𝕩𝕣𝕒𝕪𝕤 𝕕𝕠𝕟𝕖. 𝕊𝕙𝕖 𝕨𝕒𝕤 𝕒𝕕𝕞𝕚𝕥𝕥𝕖𝕕 𝕥𝕙𝕖 𝕞𝕠𝕣𝕟𝕚𝕟𝕘 𝕠𝕗 𝕥𝕙𝕖 𝟙𝟟𝕥𝕙 𝕒𝕟𝕕 𝕤𝕙𝕖 𝕔𝕒𝕞𝕖 𝕙𝕠𝕞𝕖 𝕠𝕟 𝕙𝕖𝕣 𝕘𝕣𝕖𝕒𝕥 𝕡𝕒𝕡𝕒'𝕤 𝕓𝕚𝕣𝕥𝕙𝕕𝕒𝕪. 𝔽𝕚𝕧𝕖 𝕕𝕒𝕪𝕤 𝕡𝕠𝕤𝕥 𝕠𝕡. 𝕊𝕠 𝕞𝕦𝕔𝕙 𝕝𝕠𝕧𝕖 𝕒𝕟𝕕 𝕓𝕝𝕖𝕤𝕤𝕚𝕟𝕘𝕤 𝕥𝕠 𝕒𝕝𝕝 𝕙𝕖𝕒𝕣𝕥 𝕗𝕒𝕞𝕚𝕝𝕚𝕖𝕤 𝕛𝕦𝕤𝕥 𝕟𝕠𝕨 𝕤𝕥𝕒𝕣𝕥𝕚𝕟𝕘 𝕥𝕙𝕖𝕚𝕣 𝕛𝕠𝕦𝕣𝕟𝕖𝕪𝕤. 𝕊𝕠𝕞𝕖 𝕕𝕒𝕪𝕤 𝕨𝕚𝕝𝕝 𝕤𝕖𝕖𝕞 𝕦𝕟𝕓𝕖𝕒𝕣𝕒𝕓𝕝𝕖, 𝕒𝕟𝕕 𝕠𝕥𝕙𝕖𝕣𝕤 𝕒 𝕓𝕣𝕖𝕖𝕫𝕖. 𝔸𝕝𝕨𝕒𝕪𝕤 𝕣𝕖𝕞𝕖𝕞𝕓𝕖𝕣 𝕥𝕙𝕖𝕣𝕖 𝕚𝕤 𝕒 𝕨𝕙𝕠𝕝𝕖 𝕔𝕠𝕞𝕞𝕦𝕟𝕚𝕥𝕪 𝕙𝕖𝕣𝕖 𝕥𝕠 𝕤𝕦𝕡𝕡𝕠𝕣𝕥 𝕪𝕠𝕦 𝕤𝕙𝕠𝕦𝕝𝕕 𝕪𝕠𝕦 𝕖𝕧𝕖𝕣 𝕟𝕖𝕖𝕕 𝕒 𝕤𝕙𝕠𝕦𝕝𝕕𝕖𝕣 𝕥𝕠 𝕝𝕖𝕒𝕟 𝕠𝕟.♡
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#stollerychildrenshospital #chdawareness #heartmonthiseverymonth #awareness #tofbaby #tetralogyoffallot #wegowiththefallot #chdfamily #zipperclub #opeheartsurgerysurvivor #xrays #nurseappreciation #medicalfamily #stollerychildrenshospital #stollerific #uofa #universityofalbertahospital #openheartsurgery #babiesofinstagram #slovakgirls #slovakiangirls #canadianmade #firstnations #yycliving #yycfamily #yycmom #momblog #instamom #lifeofluna #teamluna


5

If you've got a PickaPeg pegboard on your wishlist, February is a great month to buy one. $20 from every pegboard sold will be donated to the Lawson family whose 5-year-old is having his 4th open heart surgery this spring. #chd #givingheartsforhardy #hardyboy #hardyishearty




#openheartsurgery #chdwarrior #zipperclub #asd #autism #nonverbalautism #specialkids #prayerispowerful #communityovercompetition #makersmakeadifference #chdawarness#chdwarrior #differentnotless #beinspired #heartmonth #februaryisheartmonth #heartmom #handmadeinaustin #handmadeatx #letthembelittle #shelfie #makersmovement #dublinga #makersgonnamake #shopsmallyall
#finditstyleit


0

This weeks' #FundraisingTipFriday: Host a game night in your home where you accept donations for admission, game challenges, and snacks. Bonus Tip: secure donated items and raffle off a mystery box where allowed! 💕Want more fundraising tips? Check out the link in our bio for 15 Fantastic Fundraisers!
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#WalkForACause #WalkForCHDResearch #CHDs #CongenitalHeartDefect #CongenitalHeartDisease #1in100 #HeartMonth #HeartWarrior #CHDWarrior #ZipperClub #FundraisingFriday


1

A #congenitalheartdefect is a lifetime diagnosis. There is no cure. #heartmom #chdawareness #heartwarrior #1in100


5

Thank you @jillmasseyjewelry for my warrior necklace❤️ #chdawareness #zipperclub #openheartsurgery #hearthealthmonth


1