Avery was diagnosed with an aggressive brain cancer at age 10. She’s now a healthy 12-year-old — but as with most childhood brain cancer survivors, if her cancer relapses, she will have few treatment options.
We hope to change that with BrainChild-01, a new immunotherapy clinical trial that will treat children using cancer-fighting CAR T cells.
“If they told us her cancer was back today, her body could not endure the same treatment she’s already gone through. They wouldn’t even offer it to us,” says Avery’s mom, Kristie, adding that CAR T therapy would be a spark of hope if Avery did relapse. “It’s literally the only option, which didn’t even exist yesterday.” @geekwire
NEWS: Introducing BrainChild-01, a pioneering clinical trial at Seattle Children's that targets relapsed or refractory HER2-positive central nervous system tumors. This novel therapy seeks to treat children and young adults without other options by delivering CAR T Cells directly into the brain via a catheter. Pictured here is Avery Berg, who we’ve cheered on in her journey with cancer for several years. This trial offers hope to Avery, and kids like her, for a future without cancer! Visit seattlechildrens.org/media/press-releases to learn more!
#StrongAgainstCancer VIP Ireland was diagnosed with a rare, highly aggressive form of pediatric brain cancer called ETMR in 2017. Following surgeries, many months of high-dose chemotherapy and 30 treatments of proton beam radiation, Ireland was declared cancer-free. Now, she is enrolled in a clinical trial intended to reduce the possibility of a relapse. We hear that she loves animals and has five pets who she loves to pamper. And, when she isn't busy caring for her animals, she loves to spend time with her many cousins, particularly the babies. Ireland's mom says, "In between visits with her incredible team at @seattlechildrens, Ireland is enjoying life as a healthy and exceptionally sassy 4-year-old!"
Our team is full of unbelievably STRONG dads and father figures. We wish each and every one of you a very Happy Father’s Day!! #StrongAgainstCancer
Remember Danielle, our most recent VIP? She says, “Today is #WearWhiteDay for a future that's immune to cancer. I thought my #StrongAgainstCancer shirt that my brother got me was the perfect thing to wear! ” Looking strong, Danielle!!
Today’s #FridayFeeling is brought to you by the fabulous Ip Sisters! Amanda and Alexis raised more than $8,200 for #StrongAgainstCancer at their fundraiser last week, and it looks like they had a lot of fun in the process. Thanks so much, ladies!! #IpStrong
Do you know a #StrongAgainstCancer superhero? If your child is fighting or has fought cancer, honor them with Strong Against Cancer VIP status! Our immunotherapy science will soon be available to children all over the country, and we welcome VIPs from anywhere. Send us a message to nominate your child.
We were devastated to learn of #StrongAgainstCancer Ewan's passing last month. Our hearts go out to his family, who is choosing to support Strong Against Cancer in memory of their son. They write, #immunotherapy "is a successful last line of defense for many, but does not work for everyone. We need funds to keep improving this treatment and to bring it to more young patients. Every donation makes a difference.” Together, our team can help kids like Ewan have a better chance at a life without cancer. Visit give.strongagainstcancer.org/teamewan to support Team Ewan and #childhoodcancer research at @seattlechildrens.
#StrongAgainstCancer VIP Danielle was diagnosed with stage 4 #neuroblastoma as a toddler, in 1983. After undergoing chemotherapy and radiation, the now 36-year-old suffered a neurological setback that left her without speech or the use of her right side. Danielle's mom shares, "If you knew Danielle, even back when she was a toddler, you'd not be surprised that she has accomplished what she has. She still has many physical disabilities but doesn't let anything stop her! In a wheelchair, and with speech that is very difficult to understand, she was determined to go to college. She was very successful! She currently lives with us, but is quite independent. She writes a blog and is very vocal in the childhood cancer world." Danielle's story is a powerful reminder that a person's journey with #childhoodcancer can continue well into adulthood. We are so proud to have such a fighter on our team!