We all have good and bad days as Spoonies. We need to be able to give ourselves the same grace we give others. It is often easy when we feel bad for our focus to be narrowed and focus to be fixed on how we bad we are feeling. Which for most of us is all of the time. We need to remember what and who we have in our lives; that bring life and sustain us everyday. Final thought: don’t forget that we can always find something to be thankful for and counting our blessings reminds us of all we have in our lives. Have a blessed day!
Lol! I had to post.
Know that the clouds do pass and the light does shine back in.
Good Morning Sweet Friends! It is hard to be positive and smile all the time when in you are in pain and fatigued. My wish for you is to find beauty in every situation. We are stronger than others know. We prove to ourselves everyday how strong we are. We get up again and again, to face a day others can not imagine. Whatever you choose to do today...OWN IT! Do it well. Others will see your attitude, strength, and perseverance. All the while wondering how you do it. Smile for this day was made for you!
LOL! I couldn’t help myself. This is so me. I hope everyone is having a blessed Saturday evening.
To all my Spoonies out there...We must be ‘TOTALLY AWESOME DUDES’!
...the greatest of these is love!
I am sure, I am not alone in this. Not all days are bad and not all days are good. I have questions always going through my mind regarding my health and my future. I have to remember who I am. It helps to quite the anxiety. It helps to quite the questions. It helps to quite the FEAR. I have to remember and remind myself...I AM HIS!
Good Morning! It is a new day! I will start it with a new goal, a new vigor, and a desire to continue to be the strongest person my family and friends know and deserve.
I feel like I am always trying to do my best to keep the ‘Purple Beast’ at bay! Yesterday and today , I feel like she has been winning the fight. A fight it is! Everyday! A battle for my life. A battle that I have to start over every time I open my eyes. A battle that I will never stop fighting!
Wouldn’t it be nice if when we ran out of spoons we could open a draw and just get one or two more out. I think family and friends often think it’s just that easy. But those of us that are Spoonie’s know that is not the case. When you are out of spoons...you are out. My body shuts down ... Fatigue and Exhaustion are not the words for it. If I am lucky; I fall asleep for a short while, unfortunately I usually wake up in even more pain. I try to manage my spoons so carefully, but today was not one of those days. It will be a rough night unfortunately.
I am on my way to see a Psychiatrist for the first time in my life. I have been seeing a counselor for the last 5 years and love her. I have worked through a lot with her. But my Pain Doc feels I need to see this Doc to help me with dealing specifically with my pain. He evidently specializes in this area. I don’t know what to expect. I am anxious and worried about what to say and where to even start. Prayers would be appreciated from my Spoonie Family.